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Calquence
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Calquence
I am supposed to get a pet scan this week and then start
calquence
. I am normally a very active person and am wondering what my tolerance to physical activity may be. Also looking on internet it appears this is an extremely expensive drug.
I am supposed to get a pet scan this week and then start
calquence
. I am normally a very active person and am wondering what my tolerance to physical activity may be. Also looking on internet it appears this is an extremely expensive drug.
1reb
in
CLL Support
14 days ago
calquence
Do others have
Calquence
experiences?
Do others have
Calquence
experiences?
Healthysearcher
in
CLL Support
2 months ago
Calquence Olympics
I was very surprised to see a commercial for
Calquence
on NBC during the Olympic Marathon yesterday. I had no idea that there were commercials for CLL. https://youtu.be/L_5QVqFeep4?feature=shared
I was very surprised to see a commercial for
Calquence
on NBC during the Olympic Marathon yesterday. I had no idea that there were commercials for CLL. https://youtu.be/L_5QVqFeep4?feature=shared
PennyLane2024
in
CLL Support
12 days ago
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Calquence & Paxlovid?
Seems weird that I have to stop
Calquence
if I take Paxlovid orally but not intravenously...but what do I know!
Seems weird that I have to stop
Calquence
if I take Paxlovid orally but not intravenously...but what do I know!
Amberesque
in
CLL Support
1 month ago
Long, but much needed post about calquence vs venetoclax
Any help/knowledge/insight from anyone on their or others experience, they know of, who developed new cancers on
calquence
? Infections on venetoclax? Risk percentages? Bless you all.
Any help/knowledge/insight from anyone on their or others experience, they know of, who developed new cancers on
calquence
? Infections on venetoclax? Risk percentages? Bless you all.
Hidden
in
CLL Support
4 months ago
CLL and weight loss
I have had CLL in w&w status for 18 months but with continued weight loss doctor started me on
Calquence
6 weeks ago. No weight gain as yet. Does anyone have experience with gaining back wanted weight with CLL?
I have had CLL in w&w status for 18 months but with continued weight loss doctor started me on
Calquence
6 weeks ago. No weight gain as yet. Does anyone have experience with gaining back wanted weight with CLL?
Healthysearcher
in
CLL America Support
1 month ago
No more prednisone.😕
I know that one of the drawbacks of
Calquence
is tiredness so I wonder if it’s just the drug affecting him now?
I know that one of the drawbacks of
Calquence
is tiredness so I wonder if it’s just the drug affecting him now?
janjuergen1
in
CLL Support
28 days ago
Jaypirca?
Been told from pharmacist that is has lower risk for heart issues/atrial fibrillation than
calquence
but higher secondary cancer risks. Can anybody verify/share more?
Been told from pharmacist that is has lower risk for heart issues/atrial fibrillation than
calquence
but higher secondary cancer risks. Can anybody verify/share more?
Hidden
in
CLL Support
3 months ago
Pemgarda
Since I am taking
Calquence
, would anyone know if I should stop prior? I will obviously ask my doctor, but this forum is very useful too. Thank you. Neil
Since I am taking
Calquence
, would anyone know if I should stop prior? I will obviously ask my doctor, but this forum is very useful too. Thank you. Neil
OaktownN
in
CLL Support
2 months ago
calquence
My doctor put me on
Calquence
. I take only 1 a day because 2 was giving me headaches. So far I’m doing really well on this. She put me on this because she said it has the fewest side affects. My problem is the cost. I can’t afford to pay the a co-pay of $2,000+ a month.
My doctor put me on
Calquence
. I take only 1 a day because 2 was giving me headaches. So far I’m doing really well on this. She put me on this because she said it has the fewest side affects. My problem is the cost. I can’t afford to pay the a co-pay of $2,000+ a month.
Bobby9toes
in
CLL Support
5 months ago
First Post
spleen has stopped shrinking now though..hes been on
calquence
less than a year The problem is the lung nodules are still growing baffling the consultants as the
calquence
is working elsewhere another top consultant is being contacted via the consultant he already has for opinions but we were told
spleen has stopped shrinking now though..hes been on
calquence
less than a year The problem is the lung nodules are still growing baffling the consultants as the
calquence
is working elsewhere another top consultant is being contacted via the consultant he already has for opinions but we were told
Supersurfer1
in
CLL Support
2 months ago
Coming off Calquence after 3 Years. The reason is I had a pain in my chest like some one was stabing me in the chest
Coming off
calquence
after 3 Years every thing was good I was told I was in remison . The reason I came off was a pain in the middle of my chest felt like I was being stuck with a knife. I spent 2 days in the er they ran every test that they could run and everything was good normal.
Coming off
calquence
after 3 Years every thing was good I was told I was in remison . The reason I came off was a pain in the middle of my chest felt like I was being stuck with a knife. I spent 2 days in the er they ran every test that they could run and everything was good normal.
Wgsljs
in
CLL Support
2 months ago
Afraid of Low blood counts
My Mother has started venetoclax since December, was on
calquence
previously but had to switch due to atrial fibrillation.
My Mother has started venetoclax since December, was on
calquence
previously but had to switch due to atrial fibrillation.
Hidden
in
CLL Support
6 months ago
Artrial fibrillation after nearly 2 years of Calquence?
My Mom wants to go back to
Calquence
but her doctor said he's afraid of the heart risks becoming even worse if she were to go back to
Calquence
and is urging her to stick through with venetoclax, at least until her next blood draw in 2 weeks.
My Mom wants to go back to
Calquence
but her doctor said he's afraid of the heart risks becoming even worse if she were to go back to
Calquence
and is urging her to stick through with venetoclax, at least until her next blood draw in 2 weeks.
Hidden
in
CLL Support
7 months ago
When to take Medication
Omeprazole made it worse, only Gaviscon extra helps but my CNS says not to take with
Calquence
. Until I have a gastro app I don't know what to do, it's making me really miserable. Any ideas?
Omeprazole made it worse, only Gaviscon extra helps but my CNS says not to take with
Calquence
. Until I have a gastro app I don't know what to do, it's making me really miserable. Any ideas?
Suzie42
in
CLL Support
8 days ago
Bruising and rashes
Has anyone else experienced this from
Calquence
?
Has anyone else experienced this from
Calquence
?
balconygirl
in
CLL Support
7 months ago
after 3 years + of Calquence getting bad side effects
My husband had been taking
Calquence
for 3 + years and has been working well. The labs are normal. But the Dr did not want him to stop. But a few months he is getting a lot unpleasant side effect. Like itching skin. Arthritis and a lot pain on the hands.
My husband had been taking
Calquence
for 3 + years and has been working well. The labs are normal. But the Dr did not want him to stop. But a few months he is getting a lot unpleasant side effect. Like itching skin. Arthritis and a lot pain on the hands.
Chillo
in
CLL Support
5 months ago
start new medicine Venetoclaz
I was on
Calquence
for 6 months, my CBC was elevated. My doctor switched me to Venetoclaz. Hope this one will work.
I was on
Calquence
for 6 months, my CBC was elevated. My doctor switched me to Venetoclaz. Hope this one will work.
farber
in
CLL Support
7 months ago
black eyes
does anyone get black eyes from
Calquence
? Thanks
does anyone get black eyes from
Calquence
? Thanks
Jschech
in
CLL Support
7 months ago
Cll to Hodgkins lymphoma
My husband had Cll 11 years and started treatment in Oct, 2023 with
Calquence
. It was working, but not as effectively as desired. They then added Venclexta in Dec. He still wasn’t getting better, so after a pet scan and lymph biopsy, it was determined he now also has Hodgkin’s lymphoma.
My husband had Cll 11 years and started treatment in Oct, 2023 with
Calquence
. It was working, but not as effectively as desired. They then added Venclexta in Dec. He still wasn’t getting better, so after a pet scan and lymph biopsy, it was determined he now also has Hodgkin’s lymphoma.
Junebug20
in
CLL Support
4 months ago
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