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Eylea experiences please
I was very frightened to have a sudden extreme distortion in vision in one eye just before Christmas- my optician immediately referred me to a consultant in January and l have a macular oedema (think that’s correct) probably due to extreme short sight -12dioptre in that eye. I was told the only treatment
I was very frightened to have a sudden extreme distortion in vision in one eye just before Christmas- my optician immediately referred me to a consultant in January and l have a macular oedema (think that’s correct) probably due to extreme short sight -12dioptre in that eye. I was told the only treatment
Hidden
in
Macular Society
3 years ago
Bisphosphonates
I was diagnosed with PMR at the end of January, it did take 4 GP's to finally decide on the problems, my GP started me on 20mg Prednisone which has helped greatly, no more pain! I am now taking 10mg for a couple of weeks, then advised to alternate take 2 and 1. My question is, do I need to take a bisphosphonate
I was diagnosed with PMR at the end of January, it did take 4 GP's to finally decide on the problems, my GP started me on 20mg Prednisone which has helped greatly, no more pain! I am now taking 10mg for a couple of weeks, then advised to alternate take 2 and 1. My question is, do I need to take a bisphosphonate
Yealink
in
PMRGCAuk
4 years ago
Please help - recently discovered various issues which may all be linked to thyroid disorder? Still in the dark, no Endo appointment yet
Sorry, this is a long post! I am 35 and am lucky to have had really good health until recently. I lead a very active lifestyle (sea kayaking, running, snorkelling, hill walking) and eat a varied, healthy diet. There are now various issues (some of which I have found myself with private blood tests),
Sorry, this is a long post! I am 35 and am lucky to have had really good health until recently. I lead a very active lifestyle (sea kayaking, running, snorkelling, hill walking) and eat a varied, healthy diet. There are now various issues (some of which I have found myself with private blood tests),
1503640
in
Thyroid UK
4 years ago
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Recommended dose of Vitamin D3
Vitamin D I see in the discussion on Vitamin D many people seem to be taking massive doses. The recommended dose of D3 which I take together with calcium is 800 iu, which I believe is what the government is issuing. Mine is already prescribed I don’t have the link handy, but too much is shown to be
Vitamin D I see in the discussion on Vitamin D many people seem to be taking massive doses. The recommended dose of D3 which I take together with calcium is 800 iu, which I believe is what the government is issuing. Mine is already prescribed I don’t have the link handy, but too much is shown to be
Catlover432
in
Lung Conditions Community Forum
4 years ago
Dosage reduction
Following on from my post a month ago, this is where I am now. Continued with 10 mg daily until I reached 6 weeks, then reduced to 9 mg, which is where I am now. My Dr wants me to continue to taper slowly by 1 mg every 6-8 weeks. Dr prefers to focus on symptoms rather than blood tests. I asked if
Following on from my post a month ago, this is where I am now. Continued with 10 mg daily until I reached 6 weeks, then reduced to 9 mg, which is where I am now. My Dr wants me to continue to taper slowly by 1 mg every 6-8 weeks. Dr prefers to focus on symptoms rather than blood tests. I asked if
Tinasleepyhead
in
PMRGCAuk
4 years ago
Zytiga Effects On Bloodwork
Hello all, I would appreciate feedback on interpretation of my husband’s latest blood test results. As background, he was diagnosed with stage 4 PC in July 2019 (Gleason 9, PSA 77, several bone mets). He has been on Casodex since diagnosis, then put on Eligard about a month later, and he’s been taking
Hello all, I would appreciate feedback on interpretation of my husband’s latest blood test results. As background, he was diagnosed with stage 4 PC in July 2019 (Gleason 9, PSA 77, several bone mets). He has been on Casodex since diagnosis, then put on Eligard about a month later, and he’s been taking
Dett
in
Advanced Prostate Cancer
4 years ago
Bloods Advice please - new and feelimg wobbly
Hi all, I'm having a bit of a hard time mentally and seem to have lots of little niggling symptoms that I'm not sure are related to the thyroid or are stress/anxiety related. Briefly, I gave birth last March, noticed a lump on my neck in the Spring and had a scan and biopsy. Scan showed a 'patchy' thyroid
Hi all, I'm having a bit of a hard time mentally and seem to have lots of little niggling symptoms that I'm not sure are related to the thyroid or are stress/anxiety related. Briefly, I gave birth last March, noticed a lump on my neck in the Spring and had a scan and biopsy. Scan showed a 'patchy' thyroid
Fredthedog
in
Thyroid UK
4 years ago
Leflunomide and PMR
Hello everyone, This is my first post to your informative PMR community . My story of PMR is really no different to everyone else in a way. Although I do respect we are all very different ,and our management skills of this dreadful disease in unique to each individual. My PMR journey started 17 months
Hello everyone, This is my first post to your informative PMR community . My story of PMR is really no different to everyone else in a way. Although I do respect we are all very different ,and our management skills of this dreadful disease in unique to each individual. My PMR journey started 17 months
golfnutter
in
PMRGCAuk
4 years ago
Hopeful but still keeping fingers crossed!
I am today posting, to give hope to others on tapering plans! After 4 years of first GCA followed by two bouts of PMR, my third attempt of tapering , continues to be promising. I chalk off a new week every Wednesday on my calendar and I have reached the ten week mark. That is ten weeks of no prednisolone
I am today posting, to give hope to others on tapering plans! After 4 years of first GCA followed by two bouts of PMR, my third attempt of tapering , continues to be promising. I chalk off a new week every Wednesday on my calendar and I have reached the ten week mark. That is ten weeks of no prednisolone
DevonMichael
in
PMRGCAuk
4 years ago
Calcium
Since adopting a vegan diet I've thought a lot of how to ensure adequate nutrients but one I've overlooked is calcium. I see the NHS guideline is 700mg a day. How do we ensure we get that?
Since adopting a vegan diet I've thought a lot of how to ensure adequate nutrients but one I've overlooked is calcium. I see the NHS guideline is 700mg a day. How do we ensure we get that?
willsie01
in
Vegan Foods for Life
4 years ago
Do I need to take Lansoprazole & Fosavance
Can anyone help me please 🙏 I have been prescribed to take once a week ; Fosavance 70mg calcium tablet 1x 15mg lansoprazole in the morning before I take my daily Prednisolone 17.5mg Is there any thing natural I can do myself to not have to take the Fosavance or the Lansoprazole, as I want to start
Can anyone help me please 🙏 I have been prescribed to take once a week ; Fosavance 70mg calcium tablet 1x 15mg lansoprazole in the morning before I take my daily Prednisolone 17.5mg Is there any thing natural I can do myself to not have to take the Fosavance or the Lansoprazole, as I want to start
Maggie1313
in
PMRGCAuk
4 years ago
Please help me understand my results - will this TSH level affect my fertility?
Hello all. I have been on Thyreogland - an NDT comprised of 100mcg t4 and 25mcg t3, for the last 2 years. Recently, the dosage I normally take was not in stock! So I have been taking 125mcg t4 and respectively more t3 (I don't know the exact amount), I realise this was a bit stupid given that I felt
Hello all. I have been on Thyreogland - an NDT comprised of 100mcg t4 and 25mcg t3, for the last 2 years. Recently, the dosage I normally take was not in stock! So I have been taking 125mcg t4 and respectively more t3 (I don't know the exact amount), I realise this was a bit stupid given that I felt
Claudieg1993
in
Thyroid UK
3 years ago
I finally got a GP to listen
I thought I would share this as I finally had success at getting a GP to listen to me. What helped to convince them was: 1. A ticked list of symptoms using the Thyroid UK list https://thyroiduk.org/wp-content/uploads/2017/06/Signs-and-Symptoms-of-Hypothyroidism-V1.1-.doc.pdf 2. An excel file with my
I thought I would share this as I finally had success at getting a GP to listen to me. What helped to convince them was: 1. A ticked list of symptoms using the Thyroid UK list https://thyroiduk.org/wp-content/uploads/2017/06/Signs-and-Symptoms-of-Hypothyroidism-V1.1-.doc.pdf 2. An excel file with my
KikiLR
in
Thyroid UK
4 years ago
GP and Cardiologist Disagree On Statins
7 months post Covid and unfortunately I'm still having issues. Went to the cardiologist to check my heart just in case. Normal echo, initially a normal EKG, but my stress test showed an inverted T wave. After bloods tests, he wanted me on statins and BP meds (BP is -140ish/90 and LDL of 159. Normal
7 months post Covid and unfortunately I'm still having issues. Went to the cardiologist to check my heart just in case. Normal echo, initially a normal EKG, but my stress test showed an inverted T wave. After bloods tests, he wanted me on statins and BP meds (BP is -140ish/90 and LDL of 159. Normal
Hidden
in
British Heart Foundation
4 years ago
Big Increase in T4/T3 levels after small increase in Thyroxine
I hope you can help with these latest results. My wife increased her Thyroxine from 75-100 mrg in November following some low results and we just received the following test as the T4/T3 has increased a lot. At least these results show that she is converting T4-T3. We have focused on increasing Vitamin
I hope you can help with these latest results. My wife increased her Thyroxine from 75-100 mrg in November following some low results and we just received the following test as the T4/T3 has increased a lot. At least these results show that she is converting T4-T3. We have focused on increasing Vitamin
Thyroidconfusion
in
Thyroid UK
3 years ago
Liver abscess ...anyone ?
Has anyone had a liver abscess with blocked bile ducts . I had this and kidney failure + septicaemia in November which has left me so dam tired it’s unbelievable , my vitamin D and calcium was depleted and l was almost insane for three days in CCU........ coming home in December feeling like a 90 year
Has anyone had a liver abscess with blocked bile ducts . I had this and kidney failure + septicaemia in November which has left me so dam tired it’s unbelievable , my vitamin D and calcium was depleted and l was almost insane for three days in CCU........ coming home in December feeling like a 90 year
Barclay1560
in
British Liver Trust
4 years ago
Unnumbered post Learn from your mistakes 23 Feb 2021 2
Family, PAY ATTENTION. If something does not work the way "YOU" want it or had planned it to be, PAY ATTENTION and change your behaviour. This is a very BIG COMPLICATED illness, that we all have. PAY ATTENTION and learn from your mistakes and adjust. I learned that I am claustrophobic, so
Family, PAY ATTENTION. If something does not work the way "YOU" want it or had planned it to be, PAY ATTENTION and change your behaviour. This is a very BIG COMPLICATED illness, that we all have. PAY ATTENTION and learn from your mistakes and adjust. I learned that I am claustrophobic, so
RoyceNewton
in
My MSAA Community
3 years ago
Unnumbered post Yesterdays adventure 23 Feb 2021
Beloved ms family. All well and excited about the new day? I am wondering about a new desk so I have more room for my gym, I like the desk I have just a few inches (Centimeters) smaller is all I need. Ahh another problem to think about, what I need is a bigger house. The important stuff. As
Beloved ms family. All well and excited about the new day? I am wondering about a new desk so I have more room for my gym, I like the desk I have just a few inches (Centimeters) smaller is all I need. Ahh another problem to think about, what I need is a bigger house. The important stuff. As
RoyceNewton
in
My MSAA Community
3 years ago
Spasms. Beta Blockers vs Calcium Channel Blockers.
Today I watched a number of cardiac medical programs on Youtube and realised that most opinions relating the treatment of Coronary Artery Spasms include Calcium Channel Blockers. I have been prescribed the Beta Blocker Bisoprolol Fumerate 1.25mg which I understand from a number of the cardiac programs
Today I watched a number of cardiac medical programs on Youtube and realised that most opinions relating the treatment of Coronary Artery Spasms include Calcium Channel Blockers. I have been prescribed the Beta Blocker Bisoprolol Fumerate 1.25mg which I understand from a number of the cardiac programs
Smileyian
in
British Heart Foundation
4 years ago
Chilblain lupus erthematosus
I’m 70 in the USA. Chilblain LE dx from toe biopsy. I’ve googled and apparently it’s rare. The biopsy was done to rule out microthrombi bc I’m positive for APS antibodies(no symptoms) labs done at 68/69. For a couple of years raynaulds and acrocyanosis were tossed around but I don’t profile for either
I’m 70 in the USA. Chilblain LE dx from toe biopsy. I’ve googled and apparently it’s rare. The biopsy was done to rule out microthrombi bc I’m positive for APS antibodies(no symptoms) labs done at 68/69. For a couple of years raynaulds and acrocyanosis were tossed around but I don’t profile for either
phirestar
in
LUPUS UK
4 years ago
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