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GCA/pmr flare?
I’ve been trucking along pretty well since 2022. Currently at 4mg pred and 15 mg MTX, both CRP & ESR have been fairly consistent within range. I’ve been at 4mg pred for 3-4 months as my Rheumy wanted me to stay on the same until my synacthen test (had first one cancelled) beg of Sept - which came
I’ve been trucking along pretty well since 2022. Currently at 4mg pred and 15 mg MTX, both CRP & ESR have been fairly consistent within range. I’ve been at 4mg pred for 3-4 months as my Rheumy wanted me to stay on the same until my synacthen test (had first one cancelled) beg of Sept - which came
Cfmad298601
in
PMRGCAuk
7 days ago
My GP Surgery are driving me mad! Now charging for me accessing my blood test results. £1 a sheet, payable in cash on collection.
Good evening all I hope you are all as well as you can be. I have come here to moan about my GP surgery. I live in Pembrokeshire, Wales. I am always made to feel that I shouldn't be accessing my blood test results from my doctor's surgery. I have 6 weekly monitoring blood tests for a DMARD I take
Good evening all I hope you are all as well as you can be. I have come here to moan about my GP surgery. I live in Pembrokeshire, Wales. I am always made to feel that I shouldn't be accessing my blood test results from my doctor's surgery. I have 6 weekly monitoring blood tests for a DMARD I take
Wendy39
in
LUPUS UK
7 days ago
Low iron???
My wife's Hgb is often low, though can pickup a little after a ferinject IV. Her hematologist would prescribe ferinject when her ferritin was lower than 15, so she is always on the low side of normal. A recent trip to Christie's and blood tests gave this result above. We understand the ferritin numbers
My wife's Hgb is often low, though can pickup a little after a ferinject IV. Her hematologist would prescribe ferinject when her ferritin was lower than 15, so she is always on the low side of normal. A recent trip to Christie's and blood tests gave this result above. We understand the ferritin numbers
jointpain
in
MPN Voice
8 days ago
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Please help - private blood test (1 + 2)
I’ve been and am quite unwell and thought it was T3 but recent private blood tests show something else? (Tested 24 hours between Levothyroxine). * TPO 933?? I’m not sure how to proceed to get back to functioning and feeling normal. Been taken all recommended supplements, but perhaps I’m not absorbing
I’ve been and am quite unwell and thought it was T3 but recent private blood tests show something else? (Tested 24 hours between Levothyroxine). * TPO 933?? I’m not sure how to proceed to get back to functioning and feeling normal. Been taken all recommended supplements, but perhaps I’m not absorbing
Lotus77
in
Thyroid UK
9 days ago
vitamin D ?
Hi .. as per previous posts my rls is extremely bad a few times a week , my ferritin levels were 41 before but have gone up to 74 today after more blood tests last week . ( I’ve been taking iron ) However , they said I’m deficient in vitamin D so I had a look online and they say studies have been linked
Hi .. as per previous posts my rls is extremely bad a few times a week , my ferritin levels were 41 before but have gone up to 74 today after more blood tests last week . ( I’ve been taking iron ) However , they said I’m deficient in vitamin D so I had a look online and they say studies have been linked
Ronniebongo
in
Restless Legs Syndrome
9 days ago
Hashi and water retention
Hi, I posted my blood test results about two weeks ago and then saw my doctor this past Wednesday. She told me to stop the T3, as it’s been over the last two times tested. She said to retest my thyroid levels in 7 weeks and the she would consider upping my dosage from 75 mcg of Synthroid. Yesterday
Hi, I posted my blood test results about two weeks ago and then saw my doctor this past Wednesday. She told me to stop the T3, as it’s been over the last two times tested. She said to retest my thyroid levels in 7 weeks and the she would consider upping my dosage from 75 mcg of Synthroid. Yesterday
Sunsetzzs
in
Thyroid UK
9 days ago
Second morning cortisol test results still not up to scratch at 313.
To recap, I finished Prednisolone in January this year. Tiredness and irritability 😖led me to mention these symptoms to my consultant at my routine hospital review. Early morning cortisol test reading in July showed a score of 313-up from 240 in April. To obtain this latest score I carried out an e-consult
To recap, I finished Prednisolone in January this year. Tiredness and irritability 😖led me to mention these symptoms to my consultant at my routine hospital review. Early morning cortisol test reading in July showed a score of 313-up from 240 in April. To obtain this latest score I carried out an e-consult
123-go
in
PMRGCAuk
11 days ago
Gabapentin and liver resection
The help I have been given from this forum has been invaluable, I don't know where I would be without it. I have weaned myself off of Pramipexole and am now using Gabapentin, I don't think I have suffered anything like some of the other members. My question is, I need to up the dose, I am taking 1 x
The help I have been given from this forum has been invaluable, I don't know where I would be without it. I have weaned myself off of Pramipexole and am now using Gabapentin, I don't think I have suffered anything like some of the other members. My question is, I need to up the dose, I am taking 1 x
Ozzey
in
Restless Legs Syndrome
5 months ago
New blood results, still feel rubbish
I had full TT in March, some tissue remaining. I started on 25mcg of Levothyroxine but felt awful so Endocrinologist has increased this to 50 mcg with added 10 mcg of t3. I still don’t feel great. I slept from 1 pm until 4 yesterday, unheard of for me, I am 64 and normally very active. I also have very
I had full TT in March, some tissue remaining. I started on 25mcg of Levothyroxine but felt awful so Endocrinologist has increased this to 50 mcg with added 10 mcg of t3. I still don’t feel great. I slept from 1 pm until 4 yesterday, unheard of for me, I am 64 and normally very active. I also have very
Redforme
in
Thyroid UK
2 months ago
Splitting NDT - SHBG and cortisol changes - help!
Hi all, I have started splitting my Armour dose, taking less in the morning and more in the afternoon. I had a test for ft3 ft4, but also checked cortisol and SHBG. I was so surprised. My ft4 is similar to where it was before splitting, my ft3 is a tad higher. SHBG went up from 62 to 79.9. Cortisol
Hi all, I have started splitting my Armour dose, taking less in the morning and more in the afternoon. I had a test for ft3 ft4, but also checked cortisol and SHBG. I was so surprised. My ft4 is similar to where it was before splitting, my ft3 is a tad higher. SHBG went up from 62 to 79.9. Cortisol
Incoguto
in
Thyroid UK
5 months ago
Once a day T3ers only
Do you still do your blood tests in the same way as those on divided doses or T4? I can't think of any better way unless someone has any ideas? I am taking all my T3 on waking so got earliest appointment I could ( testing other stuff too so can't do my own finger prick test) and that is 10am Mon, sadly
Do you still do your blood tests in the same way as those on divided doses or T4? I can't think of any better way unless someone has any ideas? I am taking all my T3 on waking so got earliest appointment I could ( testing other stuff too so can't do my own finger prick test) and that is 10am Mon, sadly
AKatieD
in
Thyroid UK
3 months ago
Raised GGT
Following a routine ultrasound a couple of years ago I was diagnosed with multiple liver cysts including one large one (15cm). Liver blood tests showed raised ggt and alkaline phosphate. Ayear ago they were 95 and 135 respectively. My GP referred me to a liver specialist who remarked that he sees much
Following a routine ultrasound a couple of years ago I was diagnosed with multiple liver cysts including one large one (15cm). Liver blood tests showed raised ggt and alkaline phosphate. Ayear ago they were 95 and 135 respectively. My GP referred me to a liver specialist who remarked that he sees much
Grandma-Pat
in
British Liver Trust
14 days ago
supplements and thyroxine
Hi all. I wanted to ask advice as I know that my GP will just suggest a regular blood test to see if the supplements are affecting my thyroxine. I hope you don’t mind taking some time to check if these ingredients are ok with my thyroid meds. I have uploaded pics. I guess it’s the iodine in my perimenopausal
Hi all. I wanted to ask advice as I know that my GP will just suggest a regular blood test to see if the supplements are affecting my thyroxine. I hope you don’t mind taking some time to check if these ingredients are ok with my thyroid meds. I have uploaded pics. I guess it’s the iodine in my perimenopausal
Beansprog
in
Thyroid UK
15 days ago
Ferritin Levels
Hi,looking back on my blood test over the last 2 years I see my ferritin levels are lowish, ranging from 17, 33, 26, 24, 19, 23, 19 ug/l. How do I raise this level? Thanks in advance.
Hi,looking back on my blood test over the last 2 years I see my ferritin levels are lowish, ranging from 17, 33, 26, 24, 19, 23, 19 ug/l. How do I raise this level? Thanks in advance.
Puddingym
in
Thyroid UK
15 days ago
You can't make this stuff up
8 years of IVF, 8 transfers, 3 miscarriages and one live birth in the midst of all of that for which we are very blessed. Just as we decide that we just don't think we can go on anymore as the only embryo left is very poor quality.............I get a positive pregnancy test from a natural conception
8 years of IVF, 8 transfers, 3 miscarriages and one live birth in the midst of all of that for which we are very blessed. Just as we decide that we just don't think we can go on anymore as the only embryo left is very poor quality.............I get a positive pregnancy test from a natural conception
hifer
in
Fertility Network UK
15 days ago
Genetic diagnosis
Hi all, sorry I haven't posted anything for ages but sometimes life is like that. I have finally got some sort of diagnosis. I had more genetic testing a couple of years ago and they have found that I have two anomalies on gene SPG7. This means that my disability is more spastic based than ataxia.
Hi all, sorry I haven't posted anything for ages but sometimes life is like that. I have finally got some sort of diagnosis. I had more genetic testing a couple of years ago and they have found that I have two anomalies on gene SPG7. This means that my disability is more spastic based than ataxia.
ww-wibblywobbly
in
Ataxia UK
5 months ago
Why does Paul Robinson insist there’s no such thing as adrenal fatigue and T3 will fix low cortisol. It certainly hasn’t in my case .
I’m currently using armour thyroid at 2 grains and feel bloody awful. Same old same old symptoms I get when I try to increase Levo or Levo/t3. My adrenals suffer. I know it’s adrenals because I’ve been doing this for almost 5 years now. Really surprised with his info/advice which makes me doubt everything
I’m currently using armour thyroid at 2 grains and feel bloody awful. Same old same old symptoms I get when I try to increase Levo or Levo/t3. My adrenals suffer. I know it’s adrenals because I’ve been doing this for almost 5 years now. Really surprised with his info/advice which makes me doubt everything
Jamima
in
Thyroid UK
3 months ago
Phosphate binder, not so good
my boyfriend was diagnosed with kidney failure in August 2019 and since he got into Davita dialysis a month after, they prescribed him this pills 3X 3 times a day with every food to block the potassium since the kidneys supposedly weren’t working ok, he did so, and he never failed getting them, but,
my boyfriend was diagnosed with kidney failure in August 2019 and since he got into Davita dialysis a month after, they prescribed him this pills 3X 3 times a day with every food to block the potassium since the kidneys supposedly weren’t working ok, he did so, and he never failed getting them, but,
Justicelover
in
Kidney Disease
18 days ago
too much thyroxine
at the end of last year my thyroxine was raised from 175mcg to 225mcg in one fell swoop. I began to experience exhaustion fatigue severe joint pains a generally feeling ill as well as low mood. Despite seeing GP on several occasions over a period of 3 months l wasn’t offered any explanation or solutions
at the end of last year my thyroxine was raised from 175mcg to 225mcg in one fell swoop. I began to experience exhaustion fatigue severe joint pains a generally feeling ill as well as low mood. Despite seeing GP on several occasions over a period of 3 months l wasn’t offered any explanation or solutions
LadyLola
in
Thyroid UK
3 months ago
Changing time of meditation
Hi, is it possible that by changing the time of your dose of thyroxine from morning to night can affect the absorption giving you effectively a higher dose? I have taken 100mcg early morning 3-4 hours before food for a long long time. My T4 was slightly over range on last blood test in July but I changed
Hi, is it possible that by changing the time of your dose of thyroxine from morning to night can affect the absorption giving you effectively a higher dose? I have taken 100mcg early morning 3-4 hours before food for a long long time. My T4 was slightly over range on last blood test in July but I changed
jodary
in
Thyroid UK
18 days ago
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