Mitral prolapse with regurgitation

[_Paul]

Hello all,

I'm new to the group and have never posted before.

In August I was diagnosed with mitral prolapse and moderate regurgitation and also right bundle branch block. As expected, this was a bit of a shock and I have been researching and worrying about it ever since. Not really sure if it is familial, but my father had the same and has had a mitral valve repair (I'm terrified of the prospect of this)

Anyway, I don't really have any specific questions, as I'm beginning to accept that I cannot really do a lot but wait and see how things develop over time. I just wanted to say hello and join a group that could relate.

Paul 😁

[Laguna23]

Good morning _Paul

Welcome to this forum, everyone try’s to be as helpful and encouraging as we can. I have severe mitral valve regurgitation and am scheduled for surgery soon. I completely relate to your shock and anxiety about your diagnosis. This part that you are currently experiencing is so hard to accept, especially as you are in between stages of moderate and severe. The only way to move forward I’ve found from my own personal experience is to do as much research as possible to understand your issue then move towards acceptance. I found until I reached acceptance I was in a constant state of anxiety, which really isn’t a good or healthy place to be for yourself or your heart. It’s interesting your Dad had this too. Did your cardiologist think this could be congenital and hereditary? Take care you will be ok, you just have to try to accept where you now find yourself, I know it’s not easy but it will give you more peace of mind if you can.

[_Paul in reply to Laguna23]

Hi Laguna

Thank you for your response.

I am finding researching and time is making feel a little better. I had many questions to begin with, which I wanted answers too. But I now realise it was panic and that some of the questions can't be answered and I will never know for sure until it happens (e.g. will it definitely progress, will I definitely require surgery etc). I will certainly ask the cardiologist more questions in the follow up next August, as he did not really tell me much this year and I did not know the questions to ask. But ultimately I can't change anything, so they will wait until then.

I was interested whether the condition was hereditary, as it is the same as my father. However, cardiologist did not really confirm, other there is familial tendency.

Thank you for listening and for your advice

[Laguna23 in reply to _Paul]

You are most welcome Paul. In my own personal experience there are 3 stages of this diagnosis. First one is complete shock resulting in anxiety and panic. The second one was true acceptance of our situation, this was the one I found most challenging. The third one is the waiting it’s also extremely challenging. Waiting on each test and step in the process which ultimately like me leads to surgery to repair it. Hope this helps you know that absolutely everything you are feeling and experiencing is very normal. This forum is a very good place for similar case studies which you can gain more information and peace of mind from. Take care you’re doing really well as I can tell from your first post to your reply you’ve already shifted miles forward.

[_Paul in reply to Laguna23]

Thanks again. It is nice to talk to someone with experience of the same health issues