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Experiences with
Brain haemorrhage
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HDT and dyskinesia
A friend of mine and a PWP has severe dyskinesia and I was wondering if the high dose thiamine protocol would help her? I understand that HDT is meant to prevent developing dyskinesia but I'm not sure if it helps decrease the movements once you have it. She was considering deep brain stimulation but
A friend of mine and a PWP has severe dyskinesia and I was wondering if the high dose thiamine protocol would help her? I understand that HDT is meant to prevent developing dyskinesia but I'm not sure if it helps decrease the movements once you have it. She was considering deep brain stimulation but
Shaky-hand
in
Cure Parkinson's
5 years ago
Oxygen chambers
Hi all, I just wondered if anyone has been in an oxygen chamber (I think that is what there called) since their
brain
haemorrhage
? I have one quite local and wondered if it was worth giving it ago. My bleed was June 2017 so I should think it's safe to use. Thanks in advance Jo
Hi all, I just wondered if anyone has been in an oxygen chamber (I think that is what there called) since their
brain
haemorrhage
? I have one quite local and wondered if it was worth giving it ago. My bleed was June 2017 so I should think it's safe to use. Thanks in advance Jo
Cornishwaves247
in
Headway
5 years ago
Shingles
Shingles pain in head and eye, how can you get rid of the pain
Shingles pain in head and eye, how can you get rid of the pain
Lottie123
in
My Ovacome
5 years ago
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Does Deep brain stimulation even work for Dystonia
Hi all my name is Joshua, I have got some questions and concerned about the opt I’ve had over a year ago called deep brain stimulating (DBS), my doctor told me that it would approximately take a year before I can see any changes but it has been now over a year and I haven’t seen anything happening I
Hi all my name is Joshua, I have got some questions and concerned about the opt I’ve had over a year ago called deep brain stimulating (DBS), my doctor told me that it would approximately take a year before I can see any changes but it has been now over a year and I haven’t seen anything happening I
Josh_l
in
Cure Parkinson's
5 years ago
Freaked out! Please respond!
Hello everyone, Recently I’ve been having trouble with health anxiety and my main issue always goes back to “oh no what if I have a brain tumor”. I’ve been to the doctor like 4 times and none of them thought it was a brain tumor and they attributed it all to anxiety and sinus issues I’ve been having
Hello everyone, Recently I’ve been having trouble with health anxiety and my main issue always goes back to “oh no what if I have a brain tumor”. I’ve been to the doctor like 4 times and none of them thought it was a brain tumor and they attributed it all to anxiety and sinus issues I’ve been having
Nervy57
in
Anxiety Support
5 years ago
PMR and the shingles vaccination
Diagnosed with PMR in January this year having had symptoms from last October 2018. On 30th August 2018 I had the Zostavax shingles vaccination. Having looked on line I have found a Safety information for Zostavax from Merck vaccines who produce the vaccine. It states 'serious vaccine- related adverse
Diagnosed with PMR in January this year having had symptoms from last October 2018. On 30th August 2018 I had the Zostavax shingles vaccination. Having looked on line I have found a Safety information for Zostavax from Merck vaccines who produce the vaccine. It states 'serious vaccine- related adverse
Hidden
in
PMRGCAuk
5 years ago
Deep Brain stimulation - how it works ?
Recharge your batteries! https://www.imperial.ac.uk/news/190525/parkinsons-treatment-delivers-power-up-brain-cell/?utm_medium=email&utm_campaign=Imperial%20Today%20797%20%20Wednesday%2013%20March%202019&utm_content=Imperial%20Today%20797%20%20Wednesday%2013%20March%202019%20CID_bc4365e0a80def7f102e4d41b21e55c9&
Recharge your batteries! https://www.imperial.ac.uk/news/190525/parkinsons-treatment-delivers-power-up-brain-cell/?utm_medium=email&utm_campaign=Imperial%20Today%20797%20%20Wednesday%2013%20March%202019&utm_content=Imperial%20Today%20797%20%20Wednesday%2013%20March%202019%20CID_bc4365e0a80def7f102e4d41b21e55c9&
WinnieThePoo
in
Cure Parkinson's
5 years ago
Anyone know where I can view/ tryout recumbent 3 wheel disability bike?
OH , a keen cyclist had his
brain
haemorrhage
last year following a fall from his bike. Desperate to cycle again but balance not good. Would make such a difference to his wellbeing / recovery and independence if he could cycle again. A 3 wheel recumbent type specialised bike may be the answer .
OH , a keen cyclist had his
brain
haemorrhage
last year following a fall from his bike. Desperate to cycle again but balance not good. Would make such a difference to his wellbeing / recovery and independence if he could cycle again. A 3 wheel recumbent type specialised bike may be the answer .
Charente
in
Headway
5 years ago
Hard to Accept Dizziness Is Due to Anxiety
Hello all! My big problem lately has been this weird feeling in my head. It's kind of like a dizziness/unsteadiness but it's more accurate to say it just feels weird, heavy, or wobbly. Like, I'm not about to pass out, but it feels strange. It gets worse at times, most notably when I focus on it in the
Hello all! My big problem lately has been this weird feeling in my head. It's kind of like a dizziness/unsteadiness but it's more accurate to say it just feels weird, heavy, or wobbly. Like, I'm not about to pass out, but it feels strange. It gets worse at times, most notably when I focus on it in the
Ellishart
in
Anxiety Support
5 years ago
Brain Tumor Fears
Hey guys. (Sorry if my grammar may seem a bit choppy. English is not my first language). I'm running into alot of anxiety. I feel like I'm losing my mind at this point. I have been experiencing neurological symptoms that seem to come and go by months. It all started on Thanksgiving. The very first
Hey guys. (Sorry if my grammar may seem a bit choppy. English is not my first language). I'm running into alot of anxiety. I feel like I'm losing my mind at this point. I have been experiencing neurological symptoms that seem to come and go by months. It all started on Thanksgiving. The very first
Zesane
in
Anxiety Support
5 years ago
Warrior new avril lavigne song
Avril Lavigne spend time fighting lyme disease and had just started recording songs about it as she wrote them while she was in bed fighting the disease and is talking about it more openly trying to promote awareness and campaigning about it (like how Cristabella Braden writes about brain injury and
Avril Lavigne spend time fighting lyme disease and had just started recording songs about it as she wrote them while she was in bed fighting the disease and is talking about it more openly trying to promote awareness and campaigning about it (like how Cristabella Braden writes about brain injury and
bexx87
in
Headway
5 years ago
Lyme Disease summit coming soon online.
https://overcomechroniclyme.com/ Hope this link will work for anyone who is interested. [ Edited by admin to remove unnecessary part of link. Currently the site is not fully active. ]
https://overcomechroniclyme.com/ Hope this link will work for anyone who is interested. [ Edited by admin to remove unnecessary part of link. Currently the site is not fully active. ]
samaja
in
Thyroid UK
5 years ago
Hobbies at home
I’m recovering at home after having a
brain
haemorrhage
6 months ago. I’ve got double vision, frozen vocal chords and balance problems. Has anyone got any good news for me? Also, I’ve been told I need a hobby - eek! I’m not a hobby-type person.
I’m recovering at home after having a
brain
haemorrhage
6 months ago. I’ve got double vision, frozen vocal chords and balance problems. Has anyone got any good news for me? Also, I’ve been told I need a hobby - eek! I’m not a hobby-type person.
Ribrabs
in
Headway
5 years ago
Anyone with DBS tried High Dose Thiamine?
Unable to find any data on this. Any help would be appreciated! Thanks
Unable to find any data on this. Any help would be appreciated! Thanks
Kattripp
in
Cure Parkinson's
5 years ago
Still no treatment (UK)
Hi Everyone In my last post I thought my partner was about to start treatment, but after a 10 minute consultation at Kings he was told he seems to be managing without ( despite meeting the criteria for treatment) and the next appointment was put out 5 months. Since then his blood results have arrived
Hi Everyone In my last post I thought my partner was about to start treatment, but after a 10 minute consultation at Kings he was told he seems to be managing without ( despite meeting the criteria for treatment) and the next appointment was put out 5 months. Since then his blood results have arrived
Hm15
in
CLL Support
5 years ago
The journey to recovery (viral meningitis)
Hello and this is my story....I’m about 2 months post viral meningitis and this has been a slow journey to recovery. I had the same experience as most of you, several trips the the ER and my primary care provider and no relief or diagnosis. The only symptom I had that really stood out was the headache
Hello and this is my story....I’m about 2 months post viral meningitis and this has been a slow journey to recovery. I had the same experience as most of you, several trips the the ER and my primary care provider and no relief or diagnosis. The only symptom I had that really stood out was the headache
TCTC19
in
Meningitis Now
5 years ago
Job/hobby ideas
I suffered a
brain
haemorrhage
in my cerebellum last June, spent 4 months in hospital and have been home and living with the more lasting effects for 2 months.
I suffered a
brain
haemorrhage
in my cerebellum last June, spent 4 months in hospital and have been home and living with the more lasting effects for 2 months.
Ribrabs
in
Headway
5 years ago
Fibro and Spinal Stenosis, Struggles And Trying To Cope
I have Fibro, I think I developed it after having a
Brain
Haemorrhage
in 2009. I had to give up work in 2012 as work just became "too much".
I have Fibro, I think I developed it after having a
Brain
Haemorrhage
in 2009. I had to give up work in 2012 as work just became "too much".
Grumpet
in
Fibromyalgia Action UK
5 years ago
Does anyone know of a good doctor here in the United States that is familiar with meningitis?
I live in the United States of America and so far the doctors i have been to are baffled and their idea of testing for meningitis is by touching your chin to your chest and asking if it hurts if it doesn't hurt than they automatically rule out the possibility of meningitis without actually doing a screening
I live in the United States of America and so far the doctors i have been to are baffled and their idea of testing for meningitis is by touching your chin to your chest and asking if it hurts if it doesn't hurt than they automatically rule out the possibility of meningitis without actually doing a screening
Hydro222
in
Meningitis Now
5 years ago
Weird Physical Symptoms
Hi everyone, I’ve had some weird physical symptoms for a while. It all started with a nasty sinus infection about 2 months ago. Since then my symptoms have been persistent and changing and I know I’ve been really anxious so I try to tell myself that these are anxiety symptoms but I keep freaking myself
Hi everyone, I’ve had some weird physical symptoms for a while. It all started with a nasty sinus infection about 2 months ago. Since then my symptoms have been persistent and changing and I know I’ve been really anxious so I try to tell myself that these are anxiety symptoms but I keep freaking myself
Nervy57
in
Anxiety Support
5 years ago
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