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Enjoying what we have left
I was principal clarinetist in a semi professional orchestra for 28 years and had to give up my position after my first 4years of PD. Anxiety and inconsistency did me in. I am still very active as a jazz/contra dance Clar. and Sax player in my eighth year and am convinced that playing everyday is slowing
I was principal clarinetist in a semi professional orchestra for 28 years and had to give up my position after my first 4years of PD. Anxiety and inconsistency did me in. I am still very active as a jazz/contra dance Clar. and Sax player in my eighth year and am convinced that playing everyday is slowing
Mick21
in
Cure Parkinson's
8 years ago
Viral Meningitis - Back pain 4 years on
Hi everyone, i'm new here and looking for info or help. i am 30 and have suffered with lower back pain from around 16 years old. i was diagnosed with viral meningitis and hospitalised in June 2014 and was in hospital for a couple of weeks. i thought i had made a full recovery although i had progressing
Hi everyone, i'm new here and looking for info or help. i am 30 and have suffered with lower back pain from around 16 years old. i was diagnosed with viral meningitis and hospitalised in June 2014 and was in hospital for a couple of weeks. i thought i had made a full recovery although i had progressing
leehawkins
in
Meningitis Now
8 years ago
Brain tumor pls no???
Is it anxiety this pressure in my head that I have??? Or is it a brain tumor?? pressure, fatigue, shortness of breath and my eyes are jumpy, my eyes won't stay still. I'm so scared it's a brain tumor, could it b????
Is it anxiety this pressure in my head that I have??? Or is it a brain tumor?? pressure, fatigue, shortness of breath and my eyes are jumpy, my eyes won't stay still. I'm so scared it's a brain tumor, could it b????
Catahrina
in
Anxiety Support
8 years ago
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dbs?
I have all the symptoms except a resting tremor. Diagnosed March 2011. Take 11/2 sinenet every 3 hours 6x a day. Med still works if I'm careful with meals. But still have off periods and diskinesia. Nights are becoming a horror as I have to pee every 2 hours and its getting harder and harder to move.
I have all the symptoms except a resting tremor. Diagnosed March 2011. Take 11/2 sinenet every 3 hours 6x a day. Med still works if I'm careful with meals. But still have off periods and diskinesia. Nights are becoming a horror as I have to pee every 2 hours and its getting harder and harder to move.
michaela13
in
Cure Parkinson's
8 years ago
Meningitis/encephalitis - 3 years on
Hi, I'm new to the forum so please be gentle with me :) I was hospitalized feb 8th 2013, with meningitis/encephalitis and also had kidney failure, lung failure, septicemia with bronchitis thrown in because of lack of staff on the ward. (Also damaged my ulna nerve when I collapsed and spent 5 weeks in
Hi, I'm new to the forum so please be gentle with me :) I was hospitalized feb 8th 2013, with meningitis/encephalitis and also had kidney failure, lung failure, septicemia with bronchitis thrown in because of lack of staff on the ward. (Also damaged my ulna nerve when I collapsed and spent 5 weeks in
MichaelB72
in
Meningitis Now
8 years ago
Bad headaches
I keep getting really bad headaches and they won't go away I'm taking painkillers and it's still not moving! I'm so scared it's making me feel so weird. Could this be a bleed to the brain? Or a Tumor? I'm 21. Someone please help me
I keep getting really bad headaches and they won't go away I'm taking painkillers and it's still not moving! I'm so scared it's making me feel so weird. Could this be a bleed to the brain? Or a Tumor? I'm 21. Someone please help me
Kaaayla
in
Anxiety Support
8 years ago
Head pressure
Does anyone else experience random head pressure? I get this pressure on the top of my head from time to time out of the blue and it gives me the worst anxiety! I'm terrified that I have a brain tumor or that I'm going to have a brain aneurysm. Am I dying? Help!
Does anyone else experience random head pressure? I get this pressure on the top of my head from time to time out of the blue and it gives me the worst anxiety! I'm terrified that I have a brain tumor or that I'm going to have a brain aneurysm. Am I dying? Help!
Lvelizabeth
in
Anxiety Support
8 years ago
VATS pleurodesis
Hi, I've just started crizitonib as targeted therapy. It's only been two weeks but I can feel the fluid building up again. I had a drain two weeks ago and then three weeks before that. I presume it's fluid because my fatigue is terrible and I'm breathless. The consultant has mentioned vats pleurodesis
Hi, I've just started crizitonib as targeted therapy. It's only been two weeks but I can feel the fluid building up again. I had a drain two weeks ago and then three weeks before that. I presume it's fluid because my fatigue is terrible and I'm breathless. The consultant has mentioned vats pleurodesis
Giblets9
in
The Roy Castle Lung Cancer Foundation
8 years ago
Read this Mr Theroux
The Wind Tunnel of Brain Injury A new day dawns and the bleary eyes force themselves to open. The breeze picks up speed, gathers strength and blows a little harder. Time marches on and the day passes, all the while the wind is picking up speed. The tunnel is now a trap and you can’t escape. That wind
The Wind Tunnel of Brain Injury A new day dawns and the bleary eyes force themselves to open. The breeze picks up speed, gathers strength and blows a little harder. Time marches on and the day passes, all the while the wind is picking up speed. The tunnel is now a trap and you can’t escape. That wind
BaronC
in
Headway
8 years ago
DBS and/or duodopa pump
is anyone using the duodopa pump? going to the new neurologist today was a walk down DBS lane. he was an excellent doctor but part of the DBS team at university of miami. told me there is a window for the DBS surgery. once you start to freeze or have memory or cognitive problems you are not. i'm
is anyone using the duodopa pump? going to the new neurologist today was a walk down DBS lane. he was an excellent doctor but part of the DBS team at university of miami. told me there is a window for the DBS surgery. once you start to freeze or have memory or cognitive problems you are not. i'm
Littlerody
in
Cure Parkinson's
8 years ago
Lyme disease testing
Lyme Disease Hi Does anyone know where you can get a reliable test for Lyme Disease privately, in the UK
Lyme Disease Hi Does anyone know where you can get a reliable test for Lyme Disease privately, in the UK
Chrissy7ine
in
Thyroid UK
8 years ago
Postherpetic Neuralgia
Hello, I am new on this site, ... I am a senior female,I had shingles 4 +yrs ago and I was very ill , I still have pain in my left shoulder blade and down my back where I had shingles, this is still ongoing, I do have painkillers co-codamol which helps but the pain never goes I wonder if it ever will
Hello, I am new on this site, ... I am a senior female,I had shingles 4 +yrs ago and I was very ill , I still have pain in my left shoulder blade and down my back where I had shingles, this is still ongoing, I do have painkillers co-codamol which helps but the pain never goes I wonder if it ever will
marybedford
in
Healthy Evidence
8 years ago
Am I really the only one?
Hi everyone, I not sure if I asked this question before but I'll ask again! I've had the DBS Surgery about 1 1/2 years ago and since then I've been on NO medication since then. I'm very curious to know if anyone else is like me and had the surgery and been taken off all meds? I asked my movement disorder
Hi everyone, I not sure if I asked this question before but I'll ask again! I've had the DBS Surgery about 1 1/2 years ago and since then I've been on NO medication since then. I'm very curious to know if anyone else is like me and had the surgery and been taken off all meds? I asked my movement disorder
Chris0846
in
Cure Parkinson's
8 years ago
Vercise DBS trial
Hi, I am new here. I am looking for recent input from anyone who is part of the Vercise Boston Scientific DBS trial. I noticed some older posts but nothing more recent. Thanks Hoganab
Hi, I am new here. I am looking for recent input from anyone who is part of the Vercise Boston Scientific DBS trial. I noticed some older posts but nothing more recent. Thanks Hoganab
Hogan
in
Cure Parkinson's
8 years ago
Shingles
Could anyone suggest how to deal with the after shingles pain? (PHN) I have been suffering for about 5 months.
Could anyone suggest how to deal with the after shingles pain? (PHN) I have been suffering for about 5 months.
foxglove
in
Pain Concern
8 years ago
Off balance!!!
I hate all this, does anyone else get really bad lightheadedness and off balance when walking about?! It's bloody awful I literally cannot walk far without feeling like I'm about to fall over, I've got a circle of head pressure right in the middle of my forehead too. I feel so crap!!! :( I had an MRI
I hate all this, does anyone else get really bad lightheadedness and off balance when walking about?! It's bloody awful I literally cannot walk far without feeling like I'm about to fall over, I've got a circle of head pressure right in the middle of my forehead too. I feel so crap!!! :( I had an MRI
JLou
in
Anxiety Support
8 years ago
Just beginning Rytary
My husband was diagnosed with PD 8 years ago. He was experiencing severe cramping which would incapacitate him at times. We went to a new doctor today hoping to find out about deep brain stimulation. While we're waiting for all the "boxes" to be checked for the surgery, my husband will begin taking
My husband was diagnosed with PD 8 years ago. He was experiencing severe cramping which would incapacitate him at times. We went to a new doctor today hoping to find out about deep brain stimulation. While we're waiting for all the "boxes" to be checked for the surgery, my husband will begin taking
KellyDeMoore
in
Cure Parkinson's
8 years ago
Recovery after DBS
My mother who is 74 years ago had her DBS 10 days ago, bot sides. She was conscious during surgey but a sedative was given. Post surgery she was unconscious and did not open her eyes for 3 days. Her doctor has started the stimulation but she cant walk and voice is slurred. . Has anyone had the same
My mother who is 74 years ago had her DBS 10 days ago, bot sides. She was conscious during surgey but a sedative was given. Post surgery she was unconscious and did not open her eyes for 3 days. Her doctor has started the stimulation but she cant walk and voice is slurred. . Has anyone had the same
Rajeshjkt
in
Cure Parkinson's
8 years ago
Thyroid illness..........or maybe Lyme Disease?
John Caudwell's site, https://caudwell-lyme.net/, has gone live. Note this statement in the second paragraph: "It can imitate dozens of other illnesses, including thyroid disease and mental illness, and typically causes severe exhaustion and chronic pain." If you are still experiencing unexplained
John Caudwell's site, https://caudwell-lyme.net/, has gone live. Note this statement in the second paragraph: "It can imitate dozens of other illnesses, including thyroid disease and mental illness, and typically causes severe exhaustion and chronic pain." If you are still experiencing unexplained
janeb15
in
Thyroid UK
8 years ago
Long term effects to vm
Hi I had vm 10 yrs ago I felt like my brain was exploding inside my head and the pain any light caused I can't even describe it. I was diagnosed very quickly and was hospitalised for over a wk I was really ill. Really felt like I was going to die. I now suffer many long term illnesses since having vm
Hi I had vm 10 yrs ago I felt like my brain was exploding inside my head and the pain any light caused I can't even describe it. I was diagnosed very quickly and was hospitalised for over a wk I was really ill. Really felt like I was going to die. I now suffer many long term illnesses since having vm
Broadyem
in
Meningitis Now
8 years ago
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