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Toe cramping and leg pain in Parkinson’s
My WWP experiences intense pain and discomfort that she finds difficult to describe in her legs, several times every day. Mostly accompanied by cramping, both upwards and downwards, of toes, which makes walking very difficult and sometimes impossible. She had DBS surgery 16 months ago, but this has not
My WWP experiences intense pain and discomfort that she finds difficult to describe in her legs, several times every day. Mostly accompanied by cramping, both upwards and downwards, of toes, which makes walking very difficult and sometimes impossible. She had DBS surgery 16 months ago, but this has not
paulalex1313
in
Cure Parkinson's
3 years ago
Parkinson's Disease and Neurodegeneration: GABA-Collapse Hypothesis
Evidence accumulated over more than two decades has implicated calcium-related homeostatic mechanisms, giving rise to the Ca2+ hypothesis of
brain
aging and, ultimately, cell
death
.
Evidence accumulated over more than two decades has implicated calcium-related homeostatic mechanisms, giving rise to the Ca2+ hypothesis of
brain
aging and, ultimately, cell
death
.
LAJ12345
in
Cure Parkinson's
2 years ago
Something interesting
My husband had his AN successfully removed about 8 years ago translab. At the time they found the AN, they also found a meningioma in a different location. It was small so he was on Watch and Wait. So for the next 6 years at his yearly MRI which was done at a medical center that was close to our home
My husband had his AN successfully removed about 8 years ago translab. At the time they found the AN, they also found a meningioma in a different location. It was small so he was on Watch and Wait. So for the next 6 years at his yearly MRI which was done at a medical center that was close to our home
margielyn
in
Acoustic Neuroma Support
3 years ago
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The neurosurgeon who pioneered DBS receives the 42nd Honda Prize. Now he is exploring treatments with light using fibre optic cable implants
https://www.nature.com/articles/d42473-021-00502-y
https://www.nature.com/articles/d42473-021-00502-y
Hidden
in
Cure Parkinson's
3 years ago
PS128 Again in the News
The α‐synuclein particles later move to the
brain
via the vagus nerve, where they can cause neuron
death
(Metta 2021). Could probiotics help correct the initial gut dysbiosis that eventually leads to Parkinson’s Disease?
The α‐synuclein particles later move to the
brain
via the vagus nerve, where they can cause neuron
death
(Metta 2021). Could probiotics help correct the initial gut dysbiosis that eventually leads to Parkinson’s Disease?
Baron1
in
Cure Parkinson's
2 years ago
Is there any link between thyroid and pineal gland?
Has anyone got a pineal cyst and underactive thyroid? Is it linked?
Has anyone got a pineal cyst and underactive thyroid? Is it linked?
Maryah85
in
Thyroid UK
3 years ago
Off topic but quite scary, I think
I have also read that dementia can only be confirmed after
death
when they inspect the
brain
for confirmation. Some people might be taking unnecessary medications especially if if they're a bit absentminded. GPs to be paid £55 for each dementia diagnosis. Who is providing the monies?
I have also read that dementia can only be confirmed after
death
when they inspect the
brain
for confirmation. Some people might be taking unnecessary medications especially if if they're a bit absentminded. GPs to be paid £55 for each dementia diagnosis. Who is providing the monies?
shaws
Administrator
in
Thyroid UK
3 years ago
Shingles live vaccine
I have just spoken to my GPs surgery and I am due a shingles vaccine but they're telling me the only one they are offering is a live vaccine and it is my decision if I want to have it!! Explained I am on steroids and apparently they will not give non live vaccine. I am on 4mg and they said I should be
I have just spoken to my GPs surgery and I am due a shingles vaccine but they're telling me the only one they are offering is a live vaccine and it is my decision if I want to have it!! Explained I am on steroids and apparently they will not give non live vaccine. I am on 4mg and they said I should be
Rosshigh
in
PMRGCAuk
3 years ago
Nausea
I've been feeling nauseus, mild headache and unwell after eating for last week or so. I've booked a bllod test, but not available till Dec 6th. Anybody have any advice? I take levo 100mg, vitd/k2 5000iu, magnesium glycinate 500mg daily.
I've been feeling nauseus, mild headache and unwell after eating for last week or so. I've booked a bllod test, but not available till Dec 6th. Anybody have any advice? I take levo 100mg, vitd/k2 5000iu, magnesium glycinate 500mg daily.
Geegee777
in
Thyroid UK
3 years ago
I haven’t posted in a while, but wanted everyone to know I had my DBS surgery .
It was a lot all at once but so far with the programming everything is going well. Definitely taking less meds.
It was a lot all at once but so far with the programming everything is going well. Definitely taking less meds.
Kwinholt
in
Cure Parkinson's
3 years ago
Distraught, but Angry
Yesterday terrible, horrible neurologist appointment, to the point husband exploded 3mins 10seconds, any longer neurologist would of been dragged over table. Why; Arrogant Horrible Text Book Neurologist could not understand why my husband was not in vegetative state, blatantly stated: the past 19months
Yesterday terrible, horrible neurologist appointment, to the point husband exploded 3mins 10seconds, any longer neurologist would of been dragged over table. Why; Arrogant Horrible Text Book Neurologist could not understand why my husband was not in vegetative state, blatantly stated: the past 19months
New_beginning
in
Headway
3 years ago
Webinar: Deep Brain Stimulation
Join us for our next Journal of Parkinson's, Van Andel Institute and Cure Parkinson's Webinar where a panel of preclinical, clinical and patient experts will discuss Deep Brain Stimulation, the different approaches in the UK and the US, and current research in this area. To find out more visit: https
Join us for our next Journal of Parkinson's, Van Andel Institute and Cure Parkinson's Webinar where a panel of preclinical, clinical and patient experts will discuss Deep Brain Stimulation, the different approaches in the UK and the US, and current research in this area. To find out more visit: https
CPT_Helen
Partner
in
Cure Parkinson's
3 years ago
Private blood test. Please help
I’ve upped my dose too 100mg of Levo 4 weeks ago, and these are the results: TFT’s TSH- 21.84 (0.27-4.2) FT4-23.6 (11-26) T3-3.7 (3.9-6.8) I actually feel like
death
.
Brain
fog, disconnected from reality, anxiety, depression, muscle aches, bad headaches, extreme exhaustion, feeling sick.
I’ve upped my dose too 100mg of Levo 4 weeks ago, and these are the results: TFT’s TSH- 21.84 (0.27-4.2) FT4-23.6 (11-26) T3-3.7 (3.9-6.8) I actually feel like
death
.
Brain
fog, disconnected from reality, anxiety, depression, muscle aches, bad headaches, extreme exhaustion, feeling sick.
Angie10116
in
Thyroid UK
3 years ago
Brain tumour or csf leak or IIH
I’ve posted quite a bit but I’ve still got real bad anxiety over my current situation. After 3 months of head pressure constantly on top of my head I had a CT scan which showed an empty sella and a sphenoid sinus issue. I’m seeing an endocrinologist a neurosurgeon and an ENT and all 3 say it could be
I’ve posted quite a bit but I’ve still got real bad anxiety over my current situation. After 3 months of head pressure constantly on top of my head I had a CT scan which showed an empty sella and a sphenoid sinus issue. I’m seeing an endocrinologist a neurosurgeon and an ENT and all 3 say it could be
Mellaw1511
in
Anxiety Support
3 years ago
Shingle vaccine
Had my shingles vaccine yesterday and was told I will have to have another one in four weeks.
Had my shingles vaccine yesterday and was told I will have to have another one in four weeks.
Blackcat1M
in
PMRGCAuk
3 years ago
Meningitis
I’m scared I have meningitis, I’ve had a bad headache on and off for 2 days, and a tiny fever I think I feel hot anyway and a rash on my neck, I’ve tried the glass test and I’m unsure on whether it goes or not it looks paler than what it was but still red I’m just scared :(
I’m scared I have meningitis, I’ve had a bad headache on and off for 2 days, and a tiny fever I think I feel hot anyway and a rash on my neck, I’ve tried the glass test and I’m unsure on whether it goes or not it looks paler than what it was but still red I’m just scared :(
anxietymadman123
in
Anxiety Support
3 years ago
What if DBS played the same?
“Using computer simulations, Tass and his team discovered that a patterned stimulus that vibrates at a frequency of 100 to 300 hertz (cycles per second) can desynchronize neuron-firing.” I think **desynchronized** may be a poor choice of a word – (Calming the) neuron-firing might be better. Now what
“Using computer simulations, Tass and his team discovered that a patterned stimulus that vibrates at a frequency of 100 to 300 hertz (cycles per second) can desynchronize neuron-firing.” I think **desynchronized** may be a poor choice of a word – (Calming the) neuron-firing might be better. Now what
Gcf51
in
Cure Parkinson's
3 years ago
Does dizziness eventually disappear for good
I had a totally unexpected benign brain tumour removed in its entirety in December 2020 and have recently been scanned by an MRI machine and all is well. My condition was called a haemongliblastoma in the cerebellum of my brain. I have been fit and healthy all my life.
I had a totally unexpected benign brain tumour removed in its entirety in December 2020 and have recently been scanned by an MRI machine and all is well. My condition was called a haemongliblastoma in the cerebellum of my brain. I have been fit and healthy all my life.
Wifix
in
Headway
3 years ago
MY DOCTOR SAYS I AM DUE FOR DBS. THIS REALLY SCARED THE SH.......... OUT OF ME. PLEASE HELP! I NEED YOUR ADVICE.
I am a young onset non tremor dominant PWP,in my fifties, on Rytary and I have reached the stage where my medication does not work well like before anymore, a stage where it has become very unpredictable, whether I will get "off" period or dyskinesia, unless I increase my medication dosage. However
I am a young onset non tremor dominant PWP,in my fifties, on Rytary and I have reached the stage where my medication does not work well like before anymore, a stage where it has become very unpredictable, whether I will get "off" period or dyskinesia, unless I increase my medication dosage. However
OREOLU
in
Cure Parkinson's
3 years ago
DBS - what if, stimulation was a symphony
DBS - What if they played a symphony (Say HFS of 140 Hz and LFS of 70 Hz at the same time), A tone Generator playing at 140 Hz and a second playing at 70 doesn't sound bad, And, for fun a 3rd at 35 (turn volume of 35 Hz down to 18%). But, I am not sure I would want in my head 24/7 !!!!! Back when I was
DBS - What if they played a symphony (Say HFS of 140 Hz and LFS of 70 Hz at the same time), A tone Generator playing at 140 Hz and a second playing at 70 doesn't sound bad, And, for fun a 3rd at 35 (turn volume of 35 Hz down to 18%). But, I am not sure I would want in my head 24/7 !!!!! Back when I was
Gcf51
in
Cure Parkinson's
3 years ago
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