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Symptoms a year after CABG, 20 months after Heart Attack.
I would be interested in the experiences of others relating to the aftermath of CABG surgery. Potted history: From around summer 2017 when aged 60, I started to feel a mild tingling and "tight" sensation sometimes under my left ribs, sometimes in my back around the same height. It continued on and
I would be interested in the experiences of others relating to the aftermath of CABG surgery. Potted history: From around summer 2017 when aged 60, I started to feel a mild tingling and "tight" sensation sometimes under my left ribs, sometimes in my back around the same height. It continued on and
RailRover
in
British Heart Foundation
2 years ago
Request for my views on rux
Hi there I received a request re ruxilitinib. I have to admit that I consider it to have been my “life saver” I was on hydroxyurea from 2007 to 2016 and had dreadful symptoms, constant itching, swollen spleen night sweats, and the most dreadful mouth ulcers and swollen tongue. That was so bad that
Hi there I received a request re ruxilitinib. I have to admit that I consider it to have been my “life saver” I was on hydroxyurea from 2007 to 2016 and had dreadful symptoms, constant itching, swollen spleen night sweats, and the most dreadful mouth ulcers and swollen tongue. That was so bad that
bruddery
in
MPN Voice
2 years ago
wheeze cough
Hi all Since May quad CBAG 7 weeks ago I have a couple of things that I thought would go away and haven’t the first is I’m getting a lot more phlegm I don’t think this is down to my heart I think it’s more likely to be the fact I don’t swallow very well and I was tube for around 10 hours. The second
Hi all Since May quad CBAG 7 weeks ago I have a couple of things that I thought would go away and haven’t the first is I’m getting a lot more phlegm I don’t think this is down to my heart I think it’s more likely to be the fact I don’t swallow very well and I was tube for around 10 hours. The second
Jako999
in
British Heart Foundation
2 years ago
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Does the anxiety ever go away?
Hello everyone, I hope you are having a good weekend. It is now nearly 12 months since I had my heart attack and my CABG x 4. . The road has been bumpy since then. What with challenges with changing medications and wondering if each twinge or slight pain is another heart attack. The main problem I seem
Hello everyone, I hope you are having a good weekend. It is now nearly 12 months since I had my heart attack and my CABG x 4. . The road has been bumpy since then. What with challenges with changing medications and wondering if each twinge or slight pain is another heart attack. The main problem I seem
Heyjude31
in
British Heart Foundation
2 years ago
help with drinking 2 to 3 litres of water a day.
post allogeneic stem cell transplant I have been told I need to drink at least 2litres of water a day. With the medication I'm on I cannot drink plain water and have to flavour it and have with plenty of ice. Butstill find it difficult. Any advice on managing to get my full amount of water would be
post allogeneic stem cell transplant I have been told I need to drink at least 2litres of water a day. With the medication I'm on I cannot drink plain water and have to flavour it and have with plenty of ice. Butstill find it difficult. Any advice on managing to get my full amount of water would be
Kraskie1915
in
CLL Support
2 years ago
Heart attack I didn’t know about?
I’ve just come back from seeing my cardiologist who said I’m doing pretty well following my quadruple CABG 6 weeks ago but wants me to do some stress tests because I’ve used my gtn a couple of time since. The big thing is now we had time to chat as my surgery was pushed through really quickly following
I’ve just come back from seeing my cardiologist who said I’m doing pretty well following my quadruple CABG 6 weeks ago but wants me to do some stress tests because I’ve used my gtn a couple of time since. The big thing is now we had time to chat as my surgery was pushed through really quickly following
Jako999
in
British Heart Foundation
2 years ago
Doing the Plank post CABG?
hi i am 6 months post quad CABG and in a good place fitness wise. i want to do some more core exercises so was thinking of the plank which I did pre-op. Question, when just lying on my front on a hard carpeted floor I can still feel pain in the centre of my chest which I understand is normal.
hi i am 6 months post quad CABG and in a good place fitness wise. i want to do some more core exercises so was thinking of the plank which I did pre-op. Question, when just lying on my front on a hard carpeted floor I can still feel pain in the centre of my chest which I understand is normal.
CyclingTime
in
British Heart Foundation
2 years ago
2 Years Ago:
2 years ago, I had enjoyed a successful CABG x 3 & a New/ Rebuilt Aorta courtesy of an 11 1/2 hour op. It transpires that was the easy part! 2 years last night I was to suffer stroke, sepsis & a virus that chewed away at my upper lip. My throat became totally blocked, requiring a tracheotomy and I
2 years ago, I had enjoyed a successful CABG x 3 & a New/ Rebuilt Aorta courtesy of an 11 1/2 hour op. It transpires that was the easy part! 2 years last night I was to suffer stroke, sepsis & a virus that chewed away at my upper lip. My throat became totally blocked, requiring a tracheotomy and I
Hidden
in
British Heart Foundation
2 years ago
ET progression to MF - anxiety issues
My ET is now progressing to Post ET Myelofibrisis. My hemo has recommended I start on Ruxolitinib & also to be considered for a stem cell transplant. I know some of you have been in the same situation. Am I correct in thinking MF is life limiting? Also how have any of you coped on Rux? I feel very
My ET is now progressing to Post ET Myelofibrisis. My hemo has recommended I start on Ruxolitinib & also to be considered for a stem cell transplant. I know some of you have been in the same situation. Am I correct in thinking MF is life limiting? Also how have any of you coped on Rux? I feel very
SRH55
in
MPN Voice
2 years ago
gout - aspirin?
hi. I’m 4 months post CABG x 2 and 6 months since a stent and going on all the meds including aspirin Clopidogrel ramipril bisoprolol Statins etc etc. I thought I’d got away without side effects but I’ve now had two severe gout attacks in the past month. Joints in my feet swell up with extreme pain and
hi. I’m 4 months post CABG x 2 and 6 months since a stent and going on all the meds including aspirin Clopidogrel ramipril bisoprolol Statins etc etc. I thought I’d got away without side effects but I’ve now had two severe gout attacks in the past month. Joints in my feet swell up with extreme pain and
Peas23
in
British Heart Foundation
2 years ago
Soluble tablet shock
Hi all I have a problem swallowing tablets so I try to get soluble ones but not any more, I had no idea how much salt is in them. They are soluble and fizz because they are a bit like bicarbonate of soda 3 soluble co-codable or paracetamol is the equivalent to a tea spoon of salt and if you take the
Hi all I have a problem swallowing tablets so I try to get soluble ones but not any more, I had no idea how much salt is in them. They are soluble and fizz because they are a bit like bicarbonate of soda 3 soluble co-codable or paracetamol is the equivalent to a tea spoon of salt and if you take the
Jako999
in
British Heart Foundation
2 years ago
After CABG how long before blocking could reoccur?
Hi all. I had triple CABG almost 4 months ago and im fine, getting good exercise. I have no problems but feel bit bad for not eating as well as i could all the time. Most of time im good, but not perfect. My question is how quick could arteries clog up again if you dont get your butt in gear? Thanks
Hi all. I had triple CABG almost 4 months ago and im fine, getting good exercise. I have no problems but feel bit bad for not eating as well as i could all the time. Most of time im good, but not perfect. My question is how quick could arteries clog up again if you dont get your butt in gear? Thanks
Hidden
in
British Heart Foundation
2 years ago
Heart Failure post CABG, collaterals
CABG is supposed to help us but i see most of us having heart failure post CABG. I knew that collaterals that we develop are like natural bypass and it protects us but in spite, of that I went for CABG and i have heart failure ever since. I regret that I did not take multiple opinions. Wanted to hear
CABG is supposed to help us but i see most of us having heart failure post CABG. I knew that collaterals that we develop are like natural bypass and it protects us but in spite, of that I went for CABG and i have heart failure ever since. I regret that I did not take multiple opinions. Wanted to hear
Seena2019
in
British Heart Foundation
2 years ago
Stamina and keeping vertical all day !
Hi - I'm 5 months post CABG, I returned to work 4 weeks ago in school- it was difficult mentally the first few days but that's improved. I still can't manage a whole day without needing to be horizontal for at least half an hour, not necessarily napping. I'm on my feet most of the day or sitting at my
Hi - I'm 5 months post CABG, I returned to work 4 weeks ago in school- it was difficult mentally the first few days but that's improved. I still can't manage a whole day without needing to be horizontal for at least half an hour, not necessarily napping. I'm on my feet most of the day or sitting at my
Puffin1963
in
British Heart Foundation
2 years ago
I’ve go ptsd
We’ll following my totally unexpected quadruple bypass 5 weeks ago then my HT 2 weeks ago my mental health which is something in 55 years I have never suffered with, taken a nose dive. Because I was told so many time I was so lucky not to be dead and it was a miracle I was alive, then I had the heart
We’ll following my totally unexpected quadruple bypass 5 weeks ago then my HT 2 weeks ago my mental health which is something in 55 years I have never suffered with, taken a nose dive. Because I was told so many time I was so lucky not to be dead and it was a miracle I was alive, then I had the heart
Jako999
in
British Heart Foundation
2 years ago
Update and meeting the team.
I’ve had lost of tests done over the past few months. I met up the the transplant team. I’m looking at 5-10 years for a bone marrow transplant, they said it could be earlier, as I’m still working and I’m well enough they don’t want to do it to early. I will need to take year off work, (when the time
I’ve had lost of tests done over the past few months. I met up the the transplant team. I’m looking at 5-10 years for a bone marrow transplant, they said it could be earlier, as I’m still working and I’m well enough they don’t want to do it to early. I will need to take year off work, (when the time
wendycu
in
MPN Voice
2 years ago
Clopidogrel and vision
Hi everyone I hope you are managing to stay cool in this heat. I am hoping to come off my Clopidogrel in September, which will be 12 months since CABG. Since I have been taking this my vision has definitely got worse. As a diabetic of 36 years I have to look after my eyes, but they have definitely deteriorated
Hi everyone I hope you are managing to stay cool in this heat. I am hoping to come off my Clopidogrel in September, which will be 12 months since CABG. Since I have been taking this my vision has definitely got worse. As a diabetic of 36 years I have to look after my eyes, but they have definitely deteriorated
Heyjude31
in
British Heart Foundation
2 years ago
Stem Cell Transplant-update
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
ConniesDad
in
MPN Voice
2 years ago
4 weeks post quadruple cabg info please
Hi all I can’t believe it’s exactly 4 weeks ago at this exact time I went into what turned out to be a 7 hour operation for my quadruple bypass. I’ve got some 4 week post op questions if that’s ok and you have the time to read them and give me an answer please. First of all this week I’m feeling so
Hi all I can’t believe it’s exactly 4 weeks ago at this exact time I went into what turned out to be a 7 hour operation for my quadruple bypass. I’ve got some 4 week post op questions if that’s ok and you have the time to read them and give me an answer please. First of all this week I’m feeling so
Jako999
in
British Heart Foundation
2 years ago
MF high risk Mutations
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
EPguy
in
MPN Voice
2 years ago
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