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DBS update
So gang. 3 months following DBS. I had it done because my dystonia was getting so bad and the reliability of the meds was open to question. I might thrive on a particular dose of Madopar and then the next day would be stuck whilst on a walk after having taken the same. It was very hard to plan anything
So gang. 3 months following DBS. I had it done because my dystonia was getting so bad and the reliability of the meds was open to question. I might thrive on a particular dose of Madopar and then the next day would be stuck whilst on a walk after having taken the same. It was very hard to plan anything
jeeves19
in
Cure Parkinson's
8 months ago
Testing ...
I m trying to help someone just about to start Levo as she has Central Hypothyroidism. She has used this product - https://www.hollandandbarrett.com/shop/product/vitaboost-energy-effervescent-tablets-60041827 - and I am wondering if she needs to wait until it is out of her system before testing? I've
I m trying to help someone just about to start Levo as she has Central Hypothyroidism. She has used this product - https://www.hollandandbarrett.com/shop/product/vitaboost-energy-effervescent-tablets-60041827 - and I am wondering if she needs to wait until it is out of her system before testing? I've
UKmale_hypo
in
Thyroid UK
1 year ago
Shingles - to vacc or not to vacc
Morning wonderful hive mind. Wonder if I can pick your brains... I've received my first invite for a shingles vacc and while I'm "delighted' I'm on the map with local medical network I'm daunted and unsure as to whether I book one. Came on here and had a look-see in the posts regarding shingles and
Morning wonderful hive mind. Wonder if I can pick your brains... I've received my first invite for a shingles vacc and while I'm "delighted' I'm on the map with local medical network I'm daunted and unsure as to whether I book one. Came on here and had a look-see in the posts regarding shingles and
Wolfie_at_the_door
in
LUPUS UK
8 months ago
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DBS should I or should I not??
I'm sure everyone goes through this question over & over again!! Ten times, or more like 100 times in our heads when trying to make a decision and be happy with the choice made. I went for my assessment for dbs this week in Southmead Hospital,Bristol. I went through the test and just kept on thinking
I'm sure everyone goes through this question over & over again!! Ten times, or more like 100 times in our heads when trying to make a decision and be happy with the choice made. I went for my assessment for dbs this week in Southmead Hospital,Bristol. I went through the test and just kept on thinking
MARC1
in
Cure Parkinson's
8 months ago
Presentation by Dr Yusuf (JP) Saleeb on LDN, Long Covid, and Chronic Lyme Disease
Plus your chance to ask your questions. on Tuesday 7th November at 4pm ET or 9pm UK. The recording will be available the following week. Register now https://form.ldnresearchtrust.org/232812335487964
Plus your chance to ask your questions. on Tuesday 7th November at 4pm ET or 9pm UK. The recording will be available the following week. Register now https://form.ldnresearchtrust.org/232812335487964
Shewulf
Administrator
in
LDN Research Trust
8 months ago
No more earwax
It sounds weird, but I noticed in last year no more earwax. Does anyone else with PD have the same issue or know why this would happen? Dx 8 years ago, DBS 1/2023, only take c/l
It sounds weird, but I noticed in last year no more earwax. Does anyone else with PD have the same issue or know why this would happen? Dx 8 years ago, DBS 1/2023, only take c/l
Lbi1608
in
Cure Parkinson's
8 months ago
i know this is going to sound weird but…….
Guys. Ever since I had the DBS I’ve had rhinitis, itchy eyes, itchy skin. I assumed that I needed to hoover up etc, get my dogs bedding changed etc. I’ve done all of these but I’m still symptomatic. I thought to myself the other day: this started pretty soon after the DBS. So: could I be allergic to
Guys. Ever since I had the DBS I’ve had rhinitis, itchy eyes, itchy skin. I assumed that I needed to hoover up etc, get my dogs bedding changed etc. I’ve done all of these but I’m still symptomatic. I thought to myself the other day: this started pretty soon after the DBS. So: could I be allergic to
jeeves19
in
Cure Parkinson's
8 months ago
WEIGHT LOSS SUPPLEMENTS, I.E. "GOLO" (w/Release)
Hey gang! It seems that every time I see an ad or read something about a diet supplement to help to get rid of belly fat or insulin resistant fat, I ask my Transplant Coordinator if I can take it. They always say "no" immediately without checking with the physicians or Pharmacy. They always say 'no'
Hey gang! It seems that every time I see an ad or read something about a diet supplement to help to get rid of belly fat or insulin resistant fat, I ask my Transplant Coordinator if I can take it. They always say "no" immediately without checking with the physicians or Pharmacy. They always say 'no'
TaffyTwoshoes27
in
Kidney Transplant
1 year ago
B1 Therapy #Case 2 *Andreia Peres
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
Markbit
in
Cure Parkinson's
8 months ago
Personal insights into late stage PD thoughts
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
beehive23
in
Cure Parkinson's
8 months ago
B1 Therapy #Case 1 * Manuela Correia
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
Markbit
in
Cure Parkinson's
8 months ago
Help, anyone??
Hi all, I’ve been having a few issues recently ( exhaustion, felling as if I’m trembling inside, fatigue, and just a general feeling of being unwell) I couldn’t get my GP to test my thyroid as I only did it in January and he said it was too soon as it was normal last time. He wouldn’t retest any
Hi all, I’ve been having a few issues recently ( exhaustion, felling as if I’m trembling inside, fatigue, and just a general feeling of being unwell) I couldn’t get my GP to test my thyroid as I only did it in January and he said it was too soon as it was normal last time. He wouldn’t retest any
HappyBadger
in
Thyroid UK
1 year ago
November Webinar
We hope you will join us and ask your questions during the November Live Webinar with Dr Yusuf (JP) Saleeby with a presentation on LDN, Long Covid and Lyme Disease Update. Register here https://form.ldnresearchtrust.org/232812335487964 for a $5 donation.
We hope you will join us and ask your questions during the November Live Webinar with Dr Yusuf (JP) Saleeby with a presentation on LDN, Long Covid and Lyme Disease Update. Register here https://form.ldnresearchtrust.org/232812335487964 for a $5 donation.
Shewulf
Administrator
in
LDN Research Trust
8 months ago
B1 and anti anxiety pills
My HWP, diagnosed 30 years ago, DBS 18 years ago, has been going through a very difficult period with his PD for the past 3 months. His knees keep collapsing and his 'offs' have become very bad. I am having to lift him from his falls and helping him get out of his chair, bed etc. This has been a real
My HWP, diagnosed 30 years ago, DBS 18 years ago, has been going through a very difficult period with his PD for the past 3 months. His knees keep collapsing and his 'offs' have become very bad. I am having to lift him from his falls and helping him get out of his chair, bed etc. This has been a real
JeanieBeanie
in
Cure Parkinson's
8 months ago
Tetanus booster while on prednisone?
Has anyone had the tetanus booster (I'm due for a 10-year one) while on prednisone? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Has anyone had the tetanus booster (I'm due for a 10-year one) while on prednisone? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Spartans1
in
PMRGCAuk
9 months ago
first blood results after adding t3 advice please.
Hello 👋 I have been on t3 for 2 months through a private endo. I was originally on 100mg of levo and my tSh and t4 were optional but was still symptomatic. endo tested t3 and it was 3.4 so I started on 10mg of t3 & 75mcg of levo. I feel good- main difference being im no longer showering my feet
Hello 👋 I have been on t3 for 2 months through a private endo. I was originally on 100mg of levo and my tSh and t4 were optional but was still symptomatic. endo tested t3 and it was 3.4 so I started on 10mg of t3 & 75mcg of levo. I feel good- main difference being im no longer showering my feet
Racheeeel78
in
Thyroid UK
1 year ago
Let's share your DBS settings
I start first. Vendor: Medtronics Right STN: 4.5 - 4.9v STN (2+1 interleaving) Left STN :3.6v STN double mono polar Frequency: 125hz pulse width: 90 μs
I start first. Vendor: Medtronics Right STN: 4.5 - 4.9v STN (2+1 interleaving) Left STN :3.6v STN double mono polar Frequency: 125hz pulse width: 90 μs
limcheeese22
in
Cure Parkinson's
9 months ago
24 hour Urine Cortisol Results
Hello I have posted before on my daughter but wasn't sure if i had to post there or a new post. Apologies if i have it wrong. You were all helpful last time. Thanks again After a high cortisol result from Blue Horizon we finally managed to get the doctor to do a 24 Hour urine cortisol test. I have
Hello I have posted before on my daughter but wasn't sure if i had to post there or a new post. Apologies if i have it wrong. You were all helpful last time. Thanks again After a high cortisol result from Blue Horizon we finally managed to get the doctor to do a 24 Hour urine cortisol test. I have
Joliplace
in
Thyroid UK
1 year ago
pregnacare while pregnant taking levothyroxine
hello I am 7 weeks pregnant and I started to take pregnacare and I noticed it contains iodine and biotin, really small amount like 0.15 mg per 2 tables. What is the advice while taking levothyroxine also I take progesterone and estrógeno in the mornings, I take levothyroxine at 5:30 am so by 7
hello I am 7 weeks pregnant and I started to take pregnacare and I noticed it contains iodine and biotin, really small amount like 0.15 mg per 2 tables. What is the advice while taking levothyroxine also I take progesterone and estrógeno in the mornings, I take levothyroxine at 5:30 am so by 7
Oskana
in
Thyroid UK
1 year ago
My Current Stack (What is in Yours?)
Fabnusasked me what my current stack was so I am sharing it here. Please remember I have not been diagnosed with PD. I have RBD and some other symptoms.
Also remember I have a HS degree, poor impulse control, and I am prone to bad decisions. Please do your own research.
The best place
Fabnusasked me what my current stack was so I am sharing it here. Please remember I have not been diagnosed with PD. I have RBD and some other symptoms.
Also remember I have a HS degree, poor impulse control, and I am prone to bad decisions. Please do your own research.
The best place
Bolt_Upright
in
Cure Parkinson's
1 year ago
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