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Discouraged
Been taking zytiga with trelstar a year now since diagnosis. Initially psa fell quickly from 352 to undetectable, but since May has been doubling monthly. Today it is 0.97. 😔 I sure was hoping to be on this regimen longer. I go back to dr next Thursday. Hoping to try switching prednisone to
Been taking zytiga with trelstar a year now since diagnosis. Initially psa fell quickly from 352 to undetectable, but since May has been doubling monthly. Today it is 0.97. 😔 I sure was hoping to be on this regimen longer. I go back to dr next Thursday. Hoping to try switching prednisone to
Peterd110
in
Advanced Prostate Cancer
5 years ago
Please, help with cortisol
Hi everyone, I’ve just received lab results of low dose Dexamethasone suppression test Cortisol morning <0.03 (0.17-0.50) Doc said it is good(???). I guess it means that I don’t have high cortisol. How about low cortisol? I also tested privately vit D result 66 (65-225). A while ago it was 95(50-150)
Hi everyone, I’ve just received lab results of low dose Dexamethasone suppression test Cortisol morning <0.03 (0.17-0.50) Doc said it is good(???). I guess it means that I don’t have high cortisol. How about low cortisol? I also tested privately vit D result 66 (65-225). A while ago it was 95(50-150)
olga67
in
Thyroid UK
5 years ago
Glucocorticoid Regimens in Combination With Abiraterone Acetate (Zytiga)
Assessment of the Safety of Glucocorticoid Regimens in Combination With Abiraterone Acetate JAMA Oncology TAKE-HOME MESSAGE The authors of this study randomized 164 patients with metastatic castration-resistant prostate cancer (mCRPC) to four different glucocorticoid regimens in combination with
Assessment of the Safety of Glucocorticoid Regimens in Combination With Abiraterone Acetate JAMA Oncology TAKE-HOME MESSAGE The authors of this study randomized 164 patients with metastatic castration-resistant prostate cancer (mCRPC) to four different glucocorticoid regimens in combination with
cbgjr
in
Advanced Prostate Cancer
5 years ago
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LUPRRon OR ZOLADEX
Along with Zytiga ( abiraterone) I am on 3 monthly injection of Zoladex ( gosarellin). My PSA is undetectable. I have noticed that most people seem to be on 3 monthly injection of Lupron. I’m in Vancouver Canada. They both do a similar thing but has anyone tried the 2 or switched from one to the other
Along with Zytiga ( abiraterone) I am on 3 monthly injection of Zoladex ( gosarellin). My PSA is undetectable. I have noticed that most people seem to be on 3 monthly injection of Lupron. I’m in Vancouver Canada. They both do a similar thing but has anyone tried the 2 or switched from one to the other
nobaday
in
Advanced Prostate Cancer
5 years ago
PROACTIVE
Diagnosed Nov 2017. Bone Mets to spine, neck and pelvis. Surgery on spine to remove T9 tumour Mov 17 to release spine compression.mass followed by 7 Gys radiation T9 to T5. I have been on Zytiga for 18 months. PSA UNDETECTABLE at 0.01. Had growth in neck at C3 which grew from 5mm to 20mm over 6 months
Diagnosed Nov 2017. Bone Mets to spine, neck and pelvis. Surgery on spine to remove T9 tumour Mov 17 to release spine compression.mass followed by 7 Gys radiation T9 to T5. I have been on Zytiga for 18 months. PSA UNDETECTABLE at 0.01. Had growth in neck at C3 which grew from 5mm to 20mm over 6 months
nobaday
in
Advanced Prostate Cancer
5 years ago
Going off steroid
Hi Everyone, I developed cataracts in each eye and the eye doctor believes it is from the Dexamethasone I have been on for the last several years. It was only .5 mil. per day, but enough to cause them. My oncologist told me last week that I could stop taking the steroid. I stopped last Wednesday and
Hi Everyone, I developed cataracts in each eye and the eye doctor believes it is from the Dexamethasone I have been on for the last several years. It was only .5 mil. per day, but enough to cause them. My oncologist told me last week that I could stop taking the steroid. I stopped last Wednesday and
Newtkim1
in
SHARE Metastatic Breast Cancer
5 years ago
Treatment for ulcers in vagina
Hello, just curious to people experience using Daktacort or
Betamethasone
Valerate cream for genital ulcers. Also if there are any other recommendations for treatment in this delicate area.
Hello, just curious to people experience using Daktacort or
Betamethasone
Valerate cream for genital ulcers. Also if there are any other recommendations for treatment in this delicate area.
Ande78
in
Behçet's UK
5 years ago
LOW PSA BUT CT SCAN PROGRESSION
On Zytiga/ prednisone and Zoladex for 14 months. PSA went down to < 0.008 in October 2018 and slowly rose to 0.026 in April 2019 and then drop to 0.016 in April 2019. Read my profile for more details. Above seems great yes? But I have a C3 neck tumour grown from 5 mm in September 2018 to 20mm end of
On Zytiga/ prednisone and Zoladex for 14 months. PSA went down to < 0.008 in October 2018 and slowly rose to 0.026 in April 2019 and then drop to 0.016 in April 2019. Read my profile for more details. Above seems great yes? But I have a C3 neck tumour grown from 5 mm in September 2018 to 20mm end of
nobaday
in
Advanced Prostate Cancer
5 years ago
Roller Coaster
I finished Avastin at end of October 2018 which kept the beast at bay. I was due to start Carboplatin and Caelyx in March but before that hospitalised for chest infection and then replacement of ureter stent and continuing devastating fatigue. Then out of blue, severe abdominal pain and found to have
I finished Avastin at end of October 2018 which kept the beast at bay. I was due to start Carboplatin and Caelyx in March but before that hospitalised for chest infection and then replacement of ureter stent and continuing devastating fatigue. Then out of blue, severe abdominal pain and found to have
janmark43
in
My Ovacome
5 years ago
Low ferritin?
I am continuing my quest for a diagnoses and/or treatment for my hypothyroid-like symptoms (fatigue, weight gain, feeling the cold etc). I was finally sent to an endocrinologist (due to higher than normal cortisol levels, they then discounted Cushing's through a normal low-dose dexamethasone suppression
I am continuing my quest for a diagnoses and/or treatment for my hypothyroid-like symptoms (fatigue, weight gain, feeling the cold etc). I was finally sent to an endocrinologist (due to higher than normal cortisol levels, they then discounted Cushing's through a normal low-dose dexamethasone suppression
StrangeKoala
in
Thyroid UK
5 years ago
Do steroid bursts work and do they have the dreaded side effects?
I react very badly to dexamethasone (apparently 4x stronger than prednisone) and wonder if 2 to 3 week 'bursts' of dex has worked for others who have extreme reactions to it and if the bursts give them/you the same side effects as longer doses. I have an appointment with my haematologist in 2 weeks
I react very badly to dexamethasone (apparently 4x stronger than prednisone) and wonder if 2 to 3 week 'bursts' of dex has worked for others who have extreme reactions to it and if the bursts give them/you the same side effects as longer doses. I have an appointment with my haematologist in 2 weeks
sharroN42
in
ITP Support Association
5 years ago
What do I do next?
I really stuck as to what to do to next with my health. I hope someone can help. Apologies for the length of the post! For Context: I am a 29 year old woman and I have been suffering low level, 'vague' but frustrating symptoms for a number of years. I have not been diagnosed with anything but the symptoms
I really stuck as to what to do to next with my health. I hope someone can help. Apologies for the length of the post! For Context: I am a 29 year old woman and I have been suffering low level, 'vague' but frustrating symptoms for a number of years. I have not been diagnosed with anything but the symptoms
StrangeKoala
in
Thyroid UK
5 years ago
Steroid taper when ending Zytiga
I am coming off ADT. Last Lupron injection is wearing off. I will stop the Zytiga soon as well. I am trying to skip the 4 hour drive to MSK for an appt to have labs done and setup a steroid taper. I assume the taper is just a new schedule that reduces my dosage over time. Thought i could handle that
I am coming off ADT. Last Lupron injection is wearing off. I will stop the Zytiga soon as well. I am trying to skip the 4 hour drive to MSK for an appt to have labs done and setup a steroid taper. I assume the taper is just a new schedule that reduces my dosage over time. Thought i could handle that
MMMayhem
in
Advanced Prostate Cancer
5 years ago
Dexamethasone?
My oncologist mentioned this drug-has anyone had experience of it and if so was it effective?
My oncologist mentioned this drug-has anyone had experience of it and if so was it effective?
ellyras
in
Advanced Prostate Cancer
5 years ago
Any Alternative to Dexamethasone?
I am having an extreme reaction to Dexamethasone withdrawal after 4 days of 40 mg doses; extreme dizziness, intense abdominal pain, unusual tiredness, weakness, fever, chills, eye tearing, head pressure, agitation, hunger but cannot eat, etc., etc. It has raised my platelets from 11 to 153 BUT!! Any
I am having an extreme reaction to Dexamethasone withdrawal after 4 days of 40 mg doses; extreme dizziness, intense abdominal pain, unusual tiredness, weakness, fever, chills, eye tearing, head pressure, agitation, hunger but cannot eat, etc., etc. It has raised my platelets from 11 to 153 BUT!! Any
sharroN42
in
ITP Support Association
5 years ago
Insomnia with Dexamethasone
Hi I was diagnosed with PMR in January. I was prescribed Predisolone at first which caused stomach problems. I am now on Dexamethasone which gives me Insomnia. Has anyone else found this and have they found anything that helps ? My GP prescribed Melatonin but I haven’t found this particularly helpful
Hi I was diagnosed with PMR in January. I was prescribed Predisolone at first which caused stomach problems. I am now on Dexamethasone which gives me Insomnia. Has anyone else found this and have they found anything that helps ? My GP prescribed Melatonin but I haven’t found this particularly helpful
Juleslancs
in
PMRGCAuk
5 years ago
SLE and fibromyalgia?
Hey guys so I recently saw a new Rheumatologist and he said that I had both fibromyalgia and SLE. I'm only 20 by the way. So here I am quite baffled about everything. I'm here because he started me on dexamethasone because the prednisolone was so much harsher on the stomach however as I've started it
Hey guys so I recently saw a new Rheumatologist and he said that I had both fibromyalgia and SLE. I'm only 20 by the way. So here I am quite baffled about everything. I'm here because he started me on dexamethasone because the prednisolone was so much harsher on the stomach however as I've started it
Stephanie0210
in
LUPUS UK
5 years ago
Effect of chemotherapy on RLS
It might seem strange to be asking about chemotherapy, but a few years ago I had breast cancer and was given a course of chemotherapy as part of the treatment (successful as I am still here!). As soon as I started this my RLS stopped completely, and for over 5 months afterwards I was still clear. Then
It might seem strange to be asking about chemotherapy, but a few years ago I had breast cancer and was given a course of chemotherapy as part of the treatment (successful as I am still here!). As soon as I started this my RLS stopped completely, and for over 5 months afterwards I was still clear. Then
Anne_liz
in
Restless Legs Syndrome
5 years ago
Help! Any experiences with Ozurdex implant?
Hi! Sorry if this is a long post, I'm new! Bit of back story; few years ago I was diagnosed with eye cancer and received proton beam therapy treatment for it. This worked excellent and killed off the tumour! As expected I've now begin to lose my central vision due to a bleed cause by radiation damage
Hi! Sorry if this is a long post, I'm new! Bit of back story; few years ago I was diagnosed with eye cancer and received proton beam therapy treatment for it. This worked excellent and killed off the tumour! As expected I've now begin to lose my central vision due to a bleed cause by radiation damage
Eyerecovery1
in
Macular Society
6 years ago
Radiation Therapy
Me again. My dad just had his first consultation for radiation treatment. So many questions after we left as this particular Doctor was absolutely horrible. Needless to say we won’t be going back to her, but now my dad does not want radiation treatment. He is 94 and just recently diagnosed with Bone
Me again. My dad just had his first consultation for radiation treatment. So many questions after we left as this particular Doctor was absolutely horrible. Needless to say we won’t be going back to her, but now my dad does not want radiation treatment. He is 94 and just recently diagnosed with Bone
FrancescaO
in
Advanced Prostate Cancer
6 years ago
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