Search
Search
About
Log in
Join
Experiences with
Betaferon
Posts
Communities
32 public posts
Filter results
Tysabri for me
I don’t know about advice, but I can tell you my experience using Tysabri. I have been receiving an infusion—Tysabri—for at 13+ years. After my diagnosis only the ABC drugs—avonex, betaseron and copaxone—were available and I had intolerable symptoms. My doctor recommended Tysabri which was new at the
I don’t know about advice, but I can tell you my experience using Tysabri. I have been receiving an infusion—Tysabri—for at 13+ years. After my diagnosis only the ABC drugs—avonex, betaseron and copaxone—were available and I had intolerable symptoms. My doctor recommended Tysabri which was new at the
disconcerting
in
My MSAA Community
11 months ago
3 Oct 2023 Sleep issue solved so far I think
I started long ago on Betaseron\
betaferon
. Interferon beta 1b and I have the scarring to prove it. The wife likes to tease me about all the lumps in my butt. No soft fat for her to pinch. Ahh well this is life with a chronic incurable disease.
I started long ago on Betaseron\
betaferon
. Interferon beta 1b and I have the scarring to prove it. The wife likes to tease me about all the lumps in my butt. No soft fat for her to pinch. Ahh well this is life with a chronic incurable disease.
RoyceNewton
in
My MSAA Community
7 months ago
Unnumbered Post Chin up, try things you have nothing to lose 16 Jun 2021
I remember when I was on
Betaferon
\betaseron for years I took ibuprofen religiously before injections and a meal. To advert side effects. The4se are SERIOUS medicines that we take. Protect yourself, BUT take them.
I remember when I was on
Betaferon
\betaseron for years I took ibuprofen religiously before injections and a meal. To advert side effects. The4se are SERIOUS medicines that we take. Protect yourself, BUT take them.
RoyceNewton
in
My MSAA Community
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Post 721 In the beginning 10 Jan 2020
Good Morning my beloved ms family. If “YOU” are new that is “YOU. If “YOU” have been around for a while “YOU” know how I feel about “YOU” and this family in particular. Yes, “YOU” are cared about by a complete stranger. Let us all be clear. I am not any type of medical professional. There
Good Morning my beloved ms family. If “YOU” are new that is “YOU. If “YOU” have been around for a while “YOU” know how I feel about “YOU” and this family in particular. Yes, “YOU” are cared about by a complete stranger. Let us all be clear. I am not any type of medical professional. There
RoyceNewton
in
My MSAA Community
3 years ago
New to ms the first week of many weeks
The ONLY medicine available at the time was Interferon Beta 1b, Betaseron or
Betaferon
depending where “YOU are in the world, and I was an absolute coward when It comes to needles and they asked for one every other day. Well eventually I pulled my head In gritted my teeth and did it.
The ONLY medicine available at the time was Interferon Beta 1b, Betaseron or
Betaferon
depending where “YOU are in the world, and I was an absolute coward when It comes to needles and they asked for one every other day. Well eventually I pulled my head In gritted my teeth and did it.
RoyceNewton
in
My MSAA Community
5 years ago
Vaccines FYI
[u]Vaccine Safety When You Have MS[/u] Which Ones Are Safe and Which Ones Are Not By Colleen Doherty, MD Updated June 25, 2019 Medically reviewed by Andy Miller, MD
https://www.verywellhealth.com/vaccine-safety-in-ms-4119468?utm_term=&utm_campaign=list_ms&utm_medium=email&utm_source=cn_nl&utm_content
[u]Vaccine Safety When You Have MS[/u] Which Ones Are Safe and Which Ones Are Not By Colleen Doherty, MD Updated June 25, 2019 Medically reviewed by Andy Miller, MD
https://www.verywellhealth.com/vaccine-safety-in-ms-4119468?utm_term=&utm_campaign=list_ms&utm_medium=email&utm_source=cn_nl&utm_content
sashaming1
in
My MSAA Community
5 years ago
Question 1
Hi everyone! I am Jean. Diagnosed in 1995, I was 45. When drugs were available it was betaseron on lottery. Waited until choices were ABC. Chose A. On it until 3years ago. Suddenly the every 2 yr followup showed multiple new lesions. No idea when during the 2 years or if gradual or sudden. No
Hi everyone! I am Jean. Diagnosed in 1995, I was 45. When drugs were available it was betaseron on lottery. Waited until choices were ABC. Chose A. On it until 3years ago. Suddenly the every 2 yr followup showed multiple new lesions. No idea when during the 2 years or if gradual or sudden. No
Jldela
in
My MSAA Community
5 years ago
Immune system problems
I have had MS for 29 years and have done fairly well. I was on Betaseron for several years, then switched to Tecfidera, but my liver function numbers were not good. I then switched to Copaxone. I am currently taking nothing. My white blood cell count is low. My blood platlet count is low. We are taking
I have had MS for 29 years and have done fairly well. I was on Betaseron for several years, then switched to Tecfidera, but my liver function numbers were not good. I then switched to Copaxone. I am currently taking nothing. My white blood cell count is low. My blood platlet count is low. We are taking
Weldon60
in
My MSAA Community
5 years ago
Do you see the possibilities around "YOU"?
Interferon Beta 1b Betaseron or
Betaferon
depending on where"YOU" were in the world. Same stuff different names, marketing issues I guess. The next year I believe Avonex then Copaxone came along.
Interferon Beta 1b Betaseron or
Betaferon
depending on where"YOU" were in the world. Same stuff different names, marketing issues I guess. The next year I believe Avonex then Copaxone came along.
RoyceNewton
in
My MSAA Community
5 years ago
Just the facts, nothing but the facts
Silly but is a coping mechanism Just like DMT (Disease Modifying Therapy) or ABC’s (Avonex Betaseron\
Betaferon
. Copaxone) or Tec (Tecfidra) is. Make things smaller easier to handle and come to terms with. I do not start at 150 kilogram (300 pounds) weight at the gym.
Silly but is a coping mechanism Just like DMT (Disease Modifying Therapy) or ABC’s (Avonex Betaseron\
Betaferon
. Copaxone) or Tec (Tecfidra) is. Make things smaller easier to handle and come to terms with. I do not start at 150 kilogram (300 pounds) weight at the gym.
RoyceNewton
in
My MSAA Community
5 years ago
a very short statement
It is okay. How "YOU" feel is okay. This is your illness; these are your feelings, your fears. I do not expect "YOU" or anybody to understand mine. No matter how close they may be to me. I live in my head. My feelings and fears are mine. At 3 am when I can not sleep for whatever reason
It is okay. How "YOU" feel is okay. This is your illness; these are your feelings, your fears. I do not expect "YOU" or anybody to understand mine. No matter how close they may be to me. I live in my head. My feelings and fears are mine. At 3 am when I can not sleep for whatever reason
RoyceNewton
in
My MSAA Community
5 years ago
I do not understand
Why anybody with Relapsing-Remitting ms (RRms) would not lead a happy and fulfilling life. Come to think of it anybody with RRms today in 2018 particularly. There are so many medicines available to "YOU", I just had "B" Betaseron, then for years the A B C's. I was so happy when Tecfidera came on
Why anybody with Relapsing-Remitting ms (RRms) would not lead a happy and fulfilling life. Come to think of it anybody with RRms today in 2018 particularly. There are so many medicines available to "YOU", I just had "B" Betaseron, then for years the A B C's. I was so happy when Tecfidera came on
RoyceNewton
in
My MSAA Community
5 years ago
I am not a Doctor of any sort
I am not a Doctor of any sort. RoyceNewton RoyceNewton• in a few seconds•0 Reply This is my opinion, ignore it if "YOU" do not like it or it does not suit "YOU", I am always okay with that. In my twenty years living Relapsing Remitting ms(RRms) life I have picked up one or two pieces of advice that I
I am not a Doctor of any sort. RoyceNewton RoyceNewton• in a few seconds•0 Reply This is my opinion, ignore it if "YOU" do not like it or it does not suit "YOU", I am always okay with that. In my twenty years living Relapsing Remitting ms(RRms) life I have picked up one or two pieces of advice that I
RoyceNewton
in
My MSAA Community
5 years ago
I am not a Doctor of any sort.
This is my opinion, ignore it if "YOU" do not like it or it does not suit "YOU", I am always okay with that. In my twenty years living Relapsing Remitting ms(RRms) life I have picked up one or two pieces of advice that I might like to pass on to "YOU" either newly diagnosed(newbie) or someone in the
This is my opinion, ignore it if "YOU" do not like it or it does not suit "YOU", I am always okay with that. In my twenty years living Relapsing Remitting ms(RRms) life I have picked up one or two pieces of advice that I might like to pass on to "YOU" either newly diagnosed(newbie) or someone in the
RoyceNewton
in
My MSAA Community
5 years ago
Newbies part 2
hello again, yes I am back with yet still more to tell "YOU" AS I will say, again and again, I am "NOT" any kind of professional. These opinions are mine from forty plus years of combined experience, Mine (male) and she who must be obeyed (female) so if there is a medical issue see a doctor, I am
hello again, yes I am back with yet still more to tell "YOU" AS I will say, again and again, I am "NOT" any kind of professional. These opinions are mine from forty plus years of combined experience, Mine (male) and she who must be obeyed (female) so if there is a medical issue see a doctor, I am
RoyceNewton
in
My MSAA Community
5 years ago
it has come to my attention
msers, to just be polite I have been strongly told that I should inform people a little about me. Basically, things that I am 'not" and how I come by my opinions and beliefs. 20 years having travelled this, my ms journey has given me the belief system that I have. I have learned that it can be rather
msers, to just be polite I have been strongly told that I should inform people a little about me. Basically, things that I am 'not" and how I come by my opinions and beliefs. 20 years having travelled this, my ms journey has given me the belief system that I have. I have learned that it can be rather
RoyceNewton
in
My MSAA Community
6 years ago
Very very interesting, mshope.org
I took Betaseron\
Betaferon
and take Tecfidera now, Merely that it will not hurt "YOU" to add some healthy eating principles to your lifestyle. Some exercise is great as well, getting the endorphins flowing and feel better within yourself. This is a multi-factorial condition.
I took Betaseron\
Betaferon
and take Tecfidera now, Merely that it will not hurt "YOU" to add some healthy eating principles to your lifestyle. Some exercise is great as well, getting the endorphins flowing and feel better within yourself. This is a multi-factorial condition.
RoyceNewton
in
My MSAA Community
6 years ago
This is sort of obvious
I will try to keep the old stuff brief. 1. wear your protective underwear, DEPENDS are my choice. 2. take a Disease Modifying Therapy (DMT) My 3rd one is Tecfidera, originally
Betaferon
then interferon beta 1a, not Avonex the 3x a week one, Now Tecfidera.
I will try to keep the old stuff brief. 1. wear your protective underwear, DEPENDS are my choice. 2. take a Disease Modifying Therapy (DMT) My 3rd one is Tecfidera, originally
Betaferon
then interferon beta 1a, not Avonex the 3x a week one, Now Tecfidera.
RoyceNewton
in
My MSAA Community
6 years ago
It really is YOUR choice
That is the crux of the matter isn't it. What do I want, what do I want my life to be, dare a say it "what do I want my life to say"? That is the question for all of US. You as a newbie have options I dreamed of having, old-timers wish they had my options. it is now your choice, what are you going
That is the crux of the matter isn't it. What do I want, what do I want my life to be, dare a say it "what do I want my life to say"? That is the question for all of US. You as a newbie have options I dreamed of having, old-timers wish they had my options. it is now your choice, what are you going
RoyceNewton
in
My MSAA Community
6 years ago
G'day Newbies
My name is Royce, I am your self appointed temporary Bus Driver for this stage of your ms journey. I am not a Dr, any kind of therapist just an ordinary person like you with a little experience with this illness/disease/journey we I like to call my travels as a disabled man with ms in 2018. Feel free
My name is Royce, I am your self appointed temporary Bus Driver for this stage of your ms journey. I am not a Dr, any kind of therapist just an ordinary person like you with a little experience with this illness/disease/journey we I like to call my travels as a disabled man with ms in 2018. Feel free
RoyceNewton
in
My MSAA Community
6 years ago
1
2
Next page
Filter results
Clear filters
Posted in
All communities
My MSAA Community
31 results
Hughes Syndrome APS Forum
1 result
Sort by
Most Relevant
Newest