mshope.org, somebody posted this yesterday and I would like to thank you, so thank you.
With the ongoing quest for more and new information about my illness, I went to the site. I watched the video and was rather sad about what he said. After being sad for five minutes. I watched Mr Embrys video and had a thnk. Thinking is actually a good thing, reminds me that I still have something working upstairs. She who must be obeyed says not much, but I guess it is still something.
He speaks of diet and exercises mostly. I am not sure I can or will follow everything he says. it might be a little too late. It has been twenty years, but if "YOU are a newbie, or even a few years along your ms journey it might be a good thing to add some of his suggestions. Especially if "YOU" are having issues with insurance etcetera. I do totally agree with his diet recommendations, I followed the Swank Diet protocol for many years, I still do, just maybe not as strictly. Exercise, well that is three or four days a week, I should do more but I am beholden to somebody else's driving schedule, for gym and what other exercises, I do at home. I do not do my chin ups, leg raises all in one go. Just all through the day, that gets me between 60 and 100 leg raises a day, 18ish at a time. I try to keep my core strong so that I can always hold myself up straight and get out of bed. I feel this is probably more important than big sexy muscles, besides she does not like me to be tomuscle-bound.
He also mentioned a Judy Graham, diet book and a Dr Wahls diet book. Amazon will have them, I have not looked them up but I am sure that they are not too expensive.
He also talked about ms societies around the world, I am not disparaging anybody, too much at least, but I was told not to mention protective underwear to the newly diagnosed (newbies) because it might scare them. Far better that they embarrass themselves needlessly than to say such things. Twenty years ago I was told not to mention emotional issues because it was really not that big a deal. Good thing that I had an emotional support system that was there for me. Otherwise, we may not be having this talk today.
I am not ever suggesting to "YOU", that "YOU" should not take your Disease Modifying Therapy(DMT). I took Betaseron\Betaferon and take Tecfidera now, Merely that it will not hurt "YOU" to add some healthy eating principles to your lifestyle. Some exercise is great as well, getting the endorphins flowing and feel better within yourself.
This is a multi-factorial condition. It is not stopped by doing just one thing. Look for multiple ways that "YOU" can use to help "YOU" manage the many years of this, your ms life.
Am I making a point for "YOU"? This is a big condition that we have. There are many different approaches that "YOU" can take. I am not in your head, or with "YOU" constantly. I am just talking to "YOU" for a few minutes every day or so, and what I am saying is "DO NOT" despair. There are ways to manage this illness, find your way and manage your ms life. Relapsing-Remitting ms is a very doable disease no matter what "YOU" are told. Make a choice to "DO" it and get started, because "YOU" really "CAN" I believe in "YOU"
Royce
ms is not impossible, you just have to make some changes and decisions.
