Newbies part 2 : hello again, yes I am... - My MSAA Community

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Newbies part 2

RoyceNewton profile image
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hello again, yes I am back with yet still more to tell "YOU"

AS I will say, again and again, I am "NOT" any kind of professional. These opinions are mine from forty plus years of combined experience, Mine (male) and she who must be obeyed (female) so if there is a medical issue see a doctor, I am just a bit of a guide. I hope to be the one I did not have long ago, for you.

Okay, Disease Modifying Therapies (DMT) There are a lot to choose from now. I just had Betaseron back when I started. Betaseron or Betaseron Doing nothing or just waiting and seeing was never an option and it should not be for "YOU" either. If somebody suggests that "YOU" just "give it awhile, just wait and see" ignore them. The same is true for the person that says get this treatment or take this tablet it is what "YOU" need. All the just what "YOU" need stuff has never cured anybody. It may make "YOU" a lot poorer, but as this is a lifelong condition, very "DOABLE" but lifelong, perhaps "YOU" may just want to stay with the DMTs.

On this website, there are tables about the DMTs. Look at them and be thoroughly confused, that's okay. RRms is sometimes confusing. For me when more options became available I started to make my own chart which included certain requirements for a DMT.

How was it taken, how often, how effective. Can I live with the side effects pretty simple really. Cost and availability where things to be worried about later. I really do not like needles, fainted once or twice over the years that is how much they messed with me. I like disability even less so I relaxed and took the needle, Over many years I actually started to do it myself, before that others mostly did it for me. Point is I did not like it, it upset me, it was not a cure. "BUT" it was slowing the progression of our illness and that is the best we can hope for today in 2018.

So it comes down to finding a DMT that "YOU" can religiously take. Take it and start slowing ms down. Always remembering this is not a cure, this is a slowdown technique. I am very sorry to say we are all getting worse, but this medicine allows us to get worse slower and that is our goal. All medicines have side effects, even aspirin. Do "NOT" let this stop you. To this day I have never worked out what "flu-like symptoms" are. Just experiment with yourself, take medicine at night, maybe with food, what type of food. Experiment until "YOU find the right technique for "YOU" Just never stop, never stop. RRms is lifelong but is very "DOABLE", so get out there and start. "DO" your ms life

Royce

Always the goal is to get worse slower and this is a very "DOABLE" condition

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