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Experiences with
Besremi
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Besremi or Jakafi coverage on Medicare?
Anyone on here have Medicare coverage for either of these drugs? I just went online and see that the cost would be about $3,500 a year. Thanks!
Anyone on here have Medicare coverage for either of these drugs? I just went online and see that the cost would be about $3,500 a year. Thanks!
Laluna5683
in
MPN Voice
8 months ago
Update on my jak2 AB
Does that mean I do great on
besremi
? I have tet2 though.
Does that mean I do great on
besremi
? I have tet2 though.
Ben2022
in
MPN Voice
10 months ago
Besremi and Afib
I never had Afib before but as my
Besremi
dosage has recently been increased, it seems like I am more fatigued and my watch is telling me I have a high percentage of Afib incidents. Going to a cardiologist to check but I do understand that
Besremi
can contribute to afib.
I never had Afib before but as my
Besremi
dosage has recently been increased, it seems like I am more fatigued and my watch is telling me I have a high percentage of Afib incidents. Going to a cardiologist to check but I do understand that
Besremi
can contribute to afib.
dgar
in
MPN Voice
11 months ago
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Advice about Hydroxycarbamide/ Anagrelide please
Could I ask them to switch to
Besremi
? Any advice would be appreciated.
Could I ask them to switch to
Besremi
? Any advice would be appreciated.
Blonde25
in
MPN Voice
7 months ago
Besremi & depression
I began
Besremi
about 4 months ago and at first I felt more like myself than I have in quite awhile. The past month or two I'e felt some depression, feeling blue and generally very low on energy.
I began
Besremi
about 4 months ago and at first I felt more like myself than I have in quite awhile. The past month or two I'e felt some depression, feeling blue and generally very low on energy.
givingITMybest
in
MPN Voice
10 months ago
Besremi clinical trial opportunity
My Dr thinks I'd qualify for a clinical study on
Besremi
for ET. I don't think this drug is available in Canada yet, so this may be a unique opportunity.
My Dr thinks I'd qualify for a clinical study on
Besremi
for ET. I don't think this drug is available in Canada yet, so this may be a unique opportunity.
WRLM
in
MPN Voice
9 months ago
Fatigue with PV using Besremi
I am taking 450 mcg/ml
Besremi
every two weeks. Is fatigue a problem with PV or
Besremi
? or both? Does anyone have similar experiences?
I am taking 450 mcg/ml
Besremi
every two weeks. Is fatigue a problem with PV or
Besremi
? or both? Does anyone have similar experiences?
dgar
in
MPN Voice
11 months ago
Besremi in France?
Hi all, I mentioned
Besremi
to my hematologist (as I am not tolerating Peg well). He knew about it, but said it was not available in France yet. :( I asked if I could pay for it myself, but, apperently, it would be thousands per months (if I could get hold of it).
Hi all, I mentioned
Besremi
to my hematologist (as I am not tolerating Peg well). He knew about it, but said it was not available in France yet. :( I asked if I could pay for it myself, but, apperently, it would be thousands per months (if I could get hold of it).
JustKeepSw1mming
in
MPN Voice
10 months ago
Besremi Temperature Update
I recently posted about contacting Pharma Essentia due to a refrigerator malfunction and
Besremi
dose sitting in a higher than 46 degrees F (8 degrees C) refrigerator.
I recently posted about contacting Pharma Essentia due to a refrigerator malfunction and
Besremi
dose sitting in a higher than 46 degrees F (8 degrees C) refrigerator.
C_Anne_Orange
in
MPN Voice
11 months ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
In the Euro label Sjo is the only (non-thyroid) A-I listed as “common” (1-10% pts) on page 9 here: https://www.ema.europa.eu/en/documents/product-information/
besremi
-epar-product-information_en.pdf At least Sjo is at the lower end of common.
In the Euro label Sjo is the only (non-thyroid) A-I listed as “common” (1-10% pts) on page 9 here: https://www.ema.europa.eu/en/documents/product-information/
besremi
-epar-product-information_en.pdf At least Sjo is at the lower end of common.
EPguy
in
MPN Voice
6 months ago
Pegasys --> Besremi and HCT
I recently made the jump from Pegasys to
Besremi
. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so).
I recently made the jump from Pegasys to
Besremi
. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so).
Swede99
in
MPN Voice
11 months ago
PV with Exon 12 Mutation & Besremi Treatment Experiences
Has anyone had a similar experience where
Besremi
primarily affected the WBC but not the HCT or Hb levels? 2. For those who've been on
Besremi
, after how long did you notice a significant reduction in erythrocytes and hematocrit? 3.
Has anyone had a similar experience where
Besremi
primarily affected the WBC but not the HCT or Hb levels? 2. For those who've been on
Besremi
, after how long did you notice a significant reduction in erythrocytes and hematocrit? 3.
skakulec2
in
MPN Voice
11 months ago
Update 7.9 = Good News
The
Besremi
dose increase to 175mcg appears to have done the trick. As of the last CBC, HCT is back at target (HCT = 44.9%). Neutrophils came back up to reference range (NEUT = 1.60). The mild lymphopenia remains stable and acceptable.
The
Besremi
dose increase to 175mcg appears to have done the trick. As of the last CBC, HCT is back at target (HCT = 44.9%). Neutrophils came back up to reference range (NEUT = 1.60). The mild lymphopenia remains stable and acceptable.
hunter5582
in
MPN Voice
6 months ago
Temperature Issues in Besremi due to poor packaging during shipping...
Hi all, I may have mentioned this before, but while my response to the maximal dosage of
Besremi
has been measurable in other ways, my Hct control has been off and on.
Hi all, I may have mentioned this before, but while my response to the maximal dosage of
Besremi
has been measurable in other ways, my Hct control has been off and on.
PhysAssist
in
MPN Voice
9 months ago
paraesthesia with Peg
Suggested that I commence
Besremi
if /when it becomes available here (UK) Has anyone experienced paraesthesia with
Besremi
too? Ruxolitinib has been suggested too . Thanks for any other experiences out there with this problem, All the best Bobbie
Suggested that I commence
Besremi
if /when it becomes available here (UK) Has anyone experienced paraesthesia with
Besremi
too? Ruxolitinib has been suggested too . Thanks for any other experiences out there with this problem, All the best Bobbie
Bobadog
in
MPN Voice
11 months ago
Start of SCT journey
After some RBC transfusions, blood tests and BMP I enrolled on FEDORA clinical trial November 2022, taking 400mg Fedratinib daily and 250mcg
Besremi
(Ropeginterferon Alpha 2b) every 2 weeks.
After some RBC transfusions, blood tests and BMP I enrolled on FEDORA clinical trial November 2022, taking 400mg Fedratinib daily and 250mcg
Besremi
(Ropeginterferon Alpha 2b) every 2 weeks.
Flyingsteamer
in
MPN Voice
7 months ago
Besremi temperature problem
I have looked up other injectables and most of them say that the doses can be unrefrigerated for a fairly long period of time, but I could find nothing online about this for
Besremi
.
I have looked up other injectables and most of them say that the doses can be unrefrigerated for a fairly long period of time, but I could find nothing online about this for
Besremi
.
C_Anne_Orange
in
MPN Voice
11 months ago
Traveling with Besremi or Pegasys
I recently had similar concerns as I accidentally left my fridge door open and the temperature of my
Besremi
increased to 13C, well above the recommended 2 to 8C.
I recently had similar concerns as I accidentally left my fridge door open and the temperature of my
Besremi
increased to 13C, well above the recommended 2 to 8C.
JohnSC
in
MPN Voice
2 months ago
Reducing Besremi dosing
Hi Community, I shared prior that I upped my
Besremi
dose from 150 to 180 the past two months.
Hi Community, I shared prior that I upped my
Besremi
dose from 150 to 180 the past two months.
Elizka
in
MPN Voice
1 year ago
Started Besremi
Hope to hear from members who are benefiting from
Besremi
, and wish all strength and faith in living with these diseases.
Hope to hear from members who are benefiting from
Besremi
, and wish all strength and faith in living with these diseases.
Pogm
in
MPN Voice
1 year ago
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