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Besremi
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Interferon alpha
The 2 mentioned are Pegasys and
Besremi
and was hoping someone on the same could explain the benefits they believe they get versus the side affects (I understand the affects will vary from person to person).
The 2 mentioned are Pegasys and
Besremi
and was hoping someone on the same could explain the benefits they believe they get versus the side affects (I understand the affects will vary from person to person).
Carlalawoo
in
MPN Voice
4 months ago
PV treatment follow-Up
I am considering going on a low dose of
Besremi
and staying there to limit any side effects. Any one have any thoughts on: 1.. The
Besremi
, 2. That my VAF went down after 3 years 3. Testing positive for CALR with JAK2 Axon 12.
I am considering going on a low dose of
Besremi
and staying there to limit any side effects. Any one have any thoughts on: 1.. The
Besremi
, 2. That my VAF went down after 3 years 3. Testing positive for CALR with JAK2 Axon 12.
FlTodd
in
MPN Voice
8 months ago
Jakafi/Weight Gain
It has only been two months, but my numbers are better and most importantly, I am not having the debilitating side effects of GI issues that were ruining my life on
Besremi
. So, I do realize that health is number one. However. 😬 The weight gain is really tough on me.
It has only been two months, but my numbers are better and most importantly, I am not having the debilitating side effects of GI issues that were ruining my life on
Besremi
. So, I do realize that health is number one. However. 😬 The weight gain is really tough on me.
Miriammusic
in
MPN Voice
17 days ago
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Update 8.1 - post venesection
I will confirm the plan to stay at 175mcg
Besremi
with my MPN care team. I do not anticipate any need to change. Wishing all of you all the best
I will confirm the plan to stay at 175mcg
Besremi
with my MPN care team. I do not anticipate any need to change. Wishing all of you all the best
hunter5582
in
MPN Voice
4 months ago
vaccine
I do plan to get it soon, yet would like to know if anyone on
Besremi
has had any issues with the vaccine (Pfizer) All my previous shots have happened before I was taking
Besremi
. I never had any reactions from them. I have scheduled the vaccine a week in between my next dose.
I do plan to get it soon, yet would like to know if anyone on
Besremi
has had any issues with the vaccine (Pfizer) All my previous shots have happened before I was taking
Besremi
. I never had any reactions from them. I have scheduled the vaccine a week in between my next dose.
Pogm
in
MPN Voice
8 months ago
Besremi and the heart
A heart ultrasound and all other work ups related to
Besremi
risks (initial doctor, pro HU, was very leery of
Besremi
) all came out very well this last year. Nurse told me to go to emergency if it happens again, of course. They did note how close the reaction was to my injection.
A heart ultrasound and all other work ups related to
Besremi
risks (initial doctor, pro HU, was very leery of
Besremi
) all came out very well this last year. Nurse told me to go to emergency if it happens again, of course. They did note how close the reaction was to my injection.
Ovidess
in
MPN Voice
8 months ago
Dizzy/full head
I realize this is a symptom of both PV and
Besremi
. Does anyone else experience this symptom and if so any tips on how to manage this issue.
I realize this is a symptom of both PV and
Besremi
. Does anyone else experience this symptom and if so any tips on how to manage this issue.
josup26
in
MPN Voice
8 months ago
Post PV Myelofibrosis - One Year Update
Anyway, I'm finding peace that my drop in counts was due to
Besremi
and not quickly progressing MF. I do not know what my journey will be like in the future but I will try to avoid the catastrophic thinking that I indulged in this past year.
Anyway, I'm finding peace that my drop in counts was due to
Besremi
and not quickly progressing MF. I do not know what my journey will be like in the future but I will try to avoid the catastrophic thinking that I indulged in this past year.
marlenablue
in
MPN Voice
8 months ago
Update 7.7
I am a proponent of the low and slow approach to
Besremi
dose titration. My care team has concurred with this approach thus far. I feel much better with my iron levels higher, so I am hoping that the
Besremi
dose increase will be both effective and tolerable.
I am a proponent of the low and slow approach to
Besremi
dose titration. My care team has concurred with this approach thus far. I feel much better with my iron levels higher, so I am hoping that the
Besremi
dose increase will be both effective and tolerable.
hunter5582
in
MPN Voice
8 months ago
PCV besremi and low platelets
Given the trend it’s hard to say it was spurious reading My oncologist at MGH said to pause my
Besremi
for a few weeks and see if there is any recovery.
Given the trend it’s hard to say it was spurious reading My oncologist at MGH said to pause my
Besremi
for a few weeks and see if there is any recovery.
gjh8733
in
MPN Voice
9 months ago
Besremi Question
Hello all, I have been on
Besremi
therapy for a year and 3 months. My numbers have shown nice improvement. I started at a burden of 78% and down 32% all other blood work staying steady. My question is does anyone experience muscle and bone pain?
Hello all, I have been on
Besremi
therapy for a year and 3 months. My numbers have shown nice improvement. I started at a burden of 78% and down 32% all other blood work staying steady. My question is does anyone experience muscle and bone pain?
josup26
in
MPN Voice
8 months ago
besremi or jakafi
The MD suggested we look at both
Besremi
and Jakafi. I’ve been combing through the product profiles and am finding myself wondering how to decide which one to go forward with. I understand that one is an injectable, so that might be a choosing point for some.
The MD suggested we look at both
Besremi
and Jakafi. I’ve been combing through the product profiles and am finding myself wondering how to decide which one to go forward with. I understand that one is an injectable, so that might be a choosing point for some.
Laluna5683
in
MPN Voice
8 months ago
Jak2 and Besremi reduction
My latest test results continue to show a reduction in JAK2 (56% to 24%) since I started
Besremi
in February 2022. The downward trend was slow at first, but I'm happy it continues to drop. I'm at 150 mg.
My latest test results continue to show a reduction in JAK2 (56% to 24%) since I started
Besremi
in February 2022. The downward trend was slow at first, but I'm happy it continues to drop. I'm at 150 mg.
Elizka
in
MPN Voice
8 months ago
Update 7.9.5
I remain at target on 175mcg
Besremi
. NEUT=1.44 (low), LYMPH=0.51 (low), WBC=2.52 (low). I am still mildly leukopenic but the range is acceptable. The plan I have made with my MPN Care team is that we will monitor at 8-week intervals.
I remain at target on 175mcg
Besremi
. NEUT=1.44 (low), LYMPH=0.51 (low), WBC=2.52 (low). I am still mildly leukopenic but the range is acceptable. The plan I have made with my MPN Care team is that we will monitor at 8-week intervals.
hunter5582
in
MPN Voice
5 months ago
Hydroxyurea vs Besremi
Which drug is considered less toxic on the body - hydroxyurea or
besremi
? My MPN specialist put me on hydroxyurea a few years ago with the plan to switch over to
besremi
in a couple of months. I did get insurance approval for the
besremi
a long time ago but I've been hesitant to make the switch.
Which drug is considered less toxic on the body - hydroxyurea or
besremi
? My MPN specialist put me on hydroxyurea a few years ago with the plan to switch over to
besremi
in a couple of months. I did get insurance approval for the
besremi
a long time ago but I've been hesitant to make the switch.
ERei
in
MPN Voice
10 months ago
Right dose of Besremi
Hi, I last posted here four months ago while awaiting the effects of
Besremi
: https://healthunlocked.com/mpnvoice/posts/149899645/pv-with-exon-12-mutation-
besremi
-treatment-experiences After my initial two doses of 150 mcg, I experienced a fivefold increase in AST and ALT levels, and my leukocytes
Hi, I last posted here four months ago while awaiting the effects of
Besremi
: https://healthunlocked.com/mpnvoice/posts/149899645/pv-with-exon-12-mutation-
besremi
-treatment-experiences After my initial two doses of 150 mcg, I experienced a fivefold increase in AST and ALT levels, and my leukocytes
skakulec2
in
MPN Voice
7 months ago
Update 7.8
Besremi
increased to 175mcg on 11/22/23. As of 12/15, HCT is basically stable at 45.4% following two increased doses of
Besremi
175mcg. HGB is stable at 14.7. PLT is down to 235, the lowest it has ever been but not a concern.
Besremi
increased to 175mcg on 11/22/23. As of 12/15, HCT is basically stable at 45.4% following two increased doses of
Besremi
175mcg. HGB is stable at 14.7. PLT is down to 235, the lowest it has ever been but not a concern.
hunter5582
in
MPN Voice
7 months ago
Anyone else with Jak2 PV have difficulty walking and leg pain?
(WBC also a bit hight) I have started
Besremi
last week.
(WBC also a bit hight) I have started
Besremi
last week.
Panda2014
in
MPN Voice
2 months ago
Good end to 2023
Besremi
has been a blessing to me. Now we will cross the bridge of my MRI of my brain in January but for now trying to enjoy this great news! I am so grateful to all of y’all’s posts and help. I hope everyone has Happy Holidays! And I hope for an even better 2024 for all of us!
Besremi
has been a blessing to me. Now we will cross the bridge of my MRI of my brain in January but for now trying to enjoy this great news! I am so grateful to all of y’all’s posts and help. I hope everyone has Happy Holidays! And I hope for an even better 2024 for all of us!
KLCTJC
in
MPN Voice
8 months ago
1 Year on Besremi results
Overall I am very pleased with
Besremi
response.
Overall I am very pleased with
Besremi
response.
PupsBestFriends
in
MPN Voice
10 months ago
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