Thank you MAP44! For me the side effects of Besremi are not obvious. I feel good and no obvious symptoms. The only problem is that my WBC, HCT and PLT are all slightly lower, while ferritin is a little higher. Will keep monitoring that.
That's wonderful news! I have a very high allele burden(94%) as of March, and now on Besremi for almost 3 months. I am looking forward to finding out if there has been a reduction. How are your side effects? Any, at all? Hope you continue to do extremely well!
Ben! What great news! Encouraging for me since I too am Jak & Tet2 positive. I appreciate you sharing as I am in the first 9 months of Besremi. May I ask how long you have taken and dosage? I have been kept at 150 mcg and MD stated wouldn’t check again for a few years. What a great feat for you! Are you feeling better?
Thank you DiveGoddess! Yes we are all Jak2&Tet2 positive. I have been kept on 500mcg every other week for almost 4 months. Before I get dizzy sometimes but now is much better. MD suggested check AB(only jak2) in 6 months. Did you also check Tet2? Will it get down like jak2?
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.