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Besremi
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Temperature Issues in Besremi due to poor packaging during shipping...
Hi all, I may have mentioned this before, but while my response to the maximal dosage of
Besremi
has been measurable in other ways, my Hct control has been off and on.
Hi all, I may have mentioned this before, but while my response to the maximal dosage of
Besremi
has been measurable in other ways, my Hct control has been off and on.
PhysAssist
in
MPN Voice
10 months ago
paraesthesia with Peg
Suggested that I commence
Besremi
if /when it becomes available here (UK) Has anyone experienced paraesthesia with
Besremi
too? Ruxolitinib has been suggested too . Thanks for any other experiences out there with this problem, All the best Bobbie
Suggested that I commence
Besremi
if /when it becomes available here (UK) Has anyone experienced paraesthesia with
Besremi
too? Ruxolitinib has been suggested too . Thanks for any other experiences out there with this problem, All the best Bobbie
Bobadog
in
MPN Voice
1 year ago
Besremi temperature problem
I have looked up other injectables and most of them say that the doses can be unrefrigerated for a fairly long period of time, but I could find nothing online about this for
Besremi
.
I have looked up other injectables and most of them say that the doses can be unrefrigerated for a fairly long period of time, but I could find nothing online about this for
Besremi
.
C_Anne_Orange
in
MPN Voice
1 year ago
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Reducing Besremi dosing
Hi Community, I shared prior that I upped my
Besremi
dose from 150 to 180 the past two months.
Hi Community, I shared prior that I upped my
Besremi
dose from 150 to 180 the past two months.
Elizka
in
MPN Voice
1 year ago
Started Besremi
Hope to hear from members who are benefiting from
Besremi
, and wish all strength and faith in living with these diseases.
Hope to hear from members who are benefiting from
Besremi
, and wish all strength and faith in living with these diseases.
Pogm
in
MPN Voice
1 year ago
Dry mouth
Has anyone noticed dry mouth on
Besremi
?
Has anyone noticed dry mouth on
Besremi
?
Elizka
in
MPN Voice
1 year ago
Immune Responses + Autoimmune Myelofibrosis
For more detail see: https://pubmed.ncbi.nlm.nih.gov/37361587/ The paperwork for
Besremi
lists "active serious or untreated autoimmune disease" as a contraindication whereas that for Peg says it is contraindicated for those with autoimmune hepatitis.
For more detail see: https://pubmed.ncbi.nlm.nih.gov/37361587/ The paperwork for
Besremi
lists "active serious or untreated autoimmune disease" as a contraindication whereas that for Peg says it is contraindicated for those with autoimmune hepatitis.
LongETinUS
in
MPN Voice
9 months ago
Jak2/tet2 mutation
I was diagnosed with MPN last year and use
Besremi
every 2 weeks. I have jak2/tet2 mutations which makes me feel confused and scared since the majority of PVs only have jak2(or other so-called driver mutations). I read a lot online and it seems tet2 is not the worst thing, but still upset.
I was diagnosed with MPN last year and use
Besremi
every 2 weeks. I have jak2/tet2 mutations which makes me feel confused and scared since the majority of PVs only have jak2(or other so-called driver mutations). I read a lot online and it seems tet2 is not the worst thing, but still upset.
Ben2022
in
MPN Voice
1 year ago
Good news on mutant allele reduction on Jakafi.
My thought was that if my % was broadly the same, I might ask again about trying
Besremi
, as 60% struck me as high. Great news: I am now at 25% mutant allele frequency! Of course, I have no idea of Jakafi is responsible for this pretty dramatic reduction, but it seems likely, doesn't it?
My thought was that if my % was broadly the same, I might ask again about trying
Besremi
, as 60% struck me as high. Great news: I am now at 25% mutant allele frequency! Of course, I have no idea of Jakafi is responsible for this pretty dramatic reduction, but it seems likely, doesn't it?
Sewingtime
in
MPN Voice
1 year ago
Has anyone gone from Pegasys to Besremi?
Besremi
looked even more intense and I am scared of what could potentially happen to me. Sorry for this long post! So, has anyone been on Pegasys and then been switched to
Besremi
? What was that like? And what is it like to go on
Besremi
and were people started at that dose?
Besremi
looked even more intense and I am scared of what could potentially happen to me. Sorry for this long post! So, has anyone been on Pegasys and then been switched to
Besremi
? What was that like? And what is it like to go on
Besremi
and were people started at that dose?
ET625
in
MPN Voice
7 months ago
I have PV with no symptoms
Besremi
for its potential molecular remission, ( I am also concerned about side effects considering I have none now) 2.
Besremi
for its potential molecular remission, ( I am also concerned about side effects considering I have none now) 2.
FlTodd
in
MPN Voice
1 year ago
Event-free survival in patients with polycythemia vera treated with Besremi versus best available treatment
»Normal life expectancy may be achievable in PV based on comparable overall survival in interferon-treated patients and a matched US population (p = 0.3), contrasting with shortened survival (p = 0.03) in non-interferon treated patients at the same academic center [3]. Although overall survival was
»Normal life expectancy may be achievable in PV based on comparable overall survival in interferon-treated patients and a matched US population (p = 0.3), contrasting with shortened survival (p = 0.03) in non-interferon treated patients at the same academic center [3]. Although overall survival was
Manouche
in
MPN Voice
1 year ago
4000km + Bresremi Odyssee !!
A surefire way to travel for 4,5 weeks with
Besremi
! June 20th: did my injection Pen 1 - 50mcg and Pen 2 - 150mcg. (100mcg left over), 650km drive to Padua with 3
Besremi
Pens in my tiny fridge plugged into the car’s cigarette lighter. Weather was 30°C.
Besremi
in fridge upon arrival.
A surefire way to travel for 4,5 weeks with
Besremi
! June 20th: did my injection Pen 1 - 50mcg and Pen 2 - 150mcg. (100mcg left over), 650km drive to Padua with 3
Besremi
Pens in my tiny fridge plugged into the car’s cigarette lighter. Weather was 30°C.
Besremi
in fridge upon arrival.
Anag
in
MPN Voice
1 year ago
Besremi, Pegasys and Jakafi adverse event question?
As said before, my brother started
Besremi
recently. And since then I am doing some researches about the safety of drugs for PV and other MPN. To ease my anxious, I guess, my brother sent me a slide seems from Pharmaessential (the mfg of
Besremi
), as above.
As said before, my brother started
Besremi
recently. And since then I am doing some researches about the safety of drugs for PV and other MPN. To ease my anxious, I guess, my brother sent me a slide seems from Pharmaessential (the mfg of
Besremi
), as above.
Joey1025
in
MPN Voice
1 year ago
Low grade fever, Besremi, pre-PMF
Before
besremi
, I had an episode spanning a few weeks where I had nightly low grade fevers (made me think it was more of a disease symptom vs. medication symptom). Anyone else ET / pre-PMF / MF +
Besremi
with similar experiences?
Before
besremi
, I had an episode spanning a few weeks where I had nightly low grade fevers (made me think it was more of a disease symptom vs. medication symptom). Anyone else ET / pre-PMF / MF +
Besremi
with similar experiences?
besremiso
in
MPN Voice
1 year ago
JAK2-Besremi big drop
With the slight increase in
Besremi
from 150 to 180-ish [u]see previous post: https://healthunlocked.com/mpnvoice/posts/149599808/
besremi
-update-15-months[/u] look at the big drop in my JAK Allele! Next steps: not sure what I'll do now as far as dose.
With the slight increase in
Besremi
from 150 to 180-ish [u]see previous post: https://healthunlocked.com/mpnvoice/posts/149599808/
besremi
-update-15-months[/u] look at the big drop in my JAK Allele! Next steps: not sure what I'll do now as far as dose.
Elizka
in
MPN Voice
1 year ago
Besremi Question
For all of you on
Besremi
how do you pay for it? Does your insurance pay for it ? Or Medicare? It’s such an expensive drug ? sorry if this is too personal or if this has been answered before. I am not on Medicare yet and I am not insured on a company plan unfortunately.
For all of you on
Besremi
how do you pay for it? Does your insurance pay for it ? Or Medicare? It’s such an expensive drug ? sorry if this is too personal or if this has been answered before. I am not on Medicare yet and I am not insured on a company plan unfortunately.
Ccsintx
in
MPN Voice
1 year ago
Besremi and vaccines
To date, I've had no issues with many COVID vaccines, the flu or shingles, but EPGuy mentioned a concern with
Besremi
and the flu vaccine and his reaction. Anyone had any issues with vaccines (no anti covid comments please) while on
Besremi
?
To date, I've had no issues with many COVID vaccines, the flu or shingles, but EPGuy mentioned a concern with
Besremi
and the flu vaccine and his reaction. Anyone had any issues with vaccines (no anti covid comments please) while on
Besremi
?
Elizka
in
MPN Voice
1 year ago
Besremi after a year
This past week, I received the results of a bone marrow biopsy after being on
Besremi
for 12 months to treat PV (diagnosed 16 years prior to interferon treatment).
This past week, I received the results of a bone marrow biopsy after being on
Besremi
for 12 months to treat PV (diagnosed 16 years prior to interferon treatment).
GardNerd
in
MPN Voice
1 year ago
What is your Besremi dose how is it working?
https://healthunlocked.com/mpnvoice/posts/148390360/
besremi
-dose-point-plot-of-some-members-update-aug-15 -- With more members on Bes for longer it's a good time to ask again: 1- What is your current
Besremi
Dose? (If other than 2/month please note that) 2-Are you at CHR?
https://healthunlocked.com/mpnvoice/posts/148390360/
besremi
-dose-point-plot-of-some-members-update-aug-15 -- With more members on Bes for longer it's a good time to ask again: 1- What is your current
Besremi
Dose? (If other than 2/month please note that) 2-Are you at CHR?
EPguy
in
MPN Voice
1 year ago
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