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Experiences with
Benepali
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Know it all nurses
As some of you know i.ve been o
benepali
injections since june .was having a real bad time ..so at first i thought it was doing some good .swelling went down .but 3 weeks after everything swelled again only worse .ankles feet.wrists even my face ??.
As some of you know i.ve been o
benepali
injections since june .was having a real bad time ..so at first i thought it was doing some good .swelling went down .but 3 weeks after everything swelled again only worse .ankles feet.wrists even my face ??.
keeta
in
NRAS
7 years ago
Flu jab & Benepali
I went to the Drs this morning to have my flu jab but the nurse advised me not to have it as I take
benepali
and that I should check with rheumatologist, I left a message with the rheumatology nurse but she's not got back to me yet so I was just wondering if anyone here knew ?
I went to the Drs this morning to have my flu jab but the nurse advised me not to have it as I take
benepali
and that I should check with rheumatologist, I left a message with the rheumatology nurse but she's not got back to me yet so I was just wondering if anyone here knew ?
Kerry-78
in
NRAS
7 years ago
Enbrel to Benepali
Having had RA since 1986 Enbrel has been my wonder drug over past 12 years..Now to soon swap to Benapali I dread what lies ahead..
Having had RA since 1986 Enbrel has been my wonder drug over past 12 years..Now to soon swap to Benapali I dread what lies ahead..
juliea793
in
NRAS
7 years ago
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Benepali, sulfasaoline, methotrexate and Thrush
I have been on MTX since Feb and sulfa since March, I have gone from not being able to walk very easily to doing "ok". saw rhumey 8 weeks ago and she said she wants o to move me onto biologicals as she isn't happy wiht the results i ma getting for my age (43),
Benepali
. Is anyone on this?
I have been on MTX since Feb and sulfa since March, I have gone from not being able to walk very easily to doing "ok". saw rhumey 8 weeks ago and she said she wants o to move me onto biologicals as she isn't happy wiht the results i ma getting for my age (43),
Benepali
. Is anyone on this?
nattynooo
in
NRAS
7 years ago
Injections
This is my 4th week on
benepali
now and I’m still struggling. I don’t want to give up on the drug. It has worked amazingly for me. It’s so hard. I hate this disease.
This is my 4th week on
benepali
now and I’m still struggling. I don’t want to give up on the drug. It has worked amazingly for me. It’s so hard. I hate this disease.
Cydney96
in
NRAS
7 years ago
Benepali and muscle spasm
Hi, just changed from Enberel to
Benepali
after 7 plus years problem free treatment . Had first injection last night and today I have been having awful muscle spasms around abdomen and ribs. Never had them before and was wondering if anyone else had experience of this?
Hi, just changed from Enberel to
Benepali
after 7 plus years problem free treatment . Had first injection last night and today I have been having awful muscle spasms around abdomen and ribs. Never had them before and was wondering if anyone else had experience of this?
Furle
in
NRAS
7 years ago
Steroids / Blood Levels
I've had to have a pause in my medication but if all infection markers are gone from my blood i am due to start
Benepali
in October, ive had a depo injection during this time and i was on 15mg which has just been reduced to 10mg of pred. Im due bloods this week to check inflammation levels.
I've had to have a pause in my medication but if all infection markers are gone from my blood i am due to start
Benepali
in October, ive had a depo injection during this time and i was on 15mg which has just been reduced to 10mg of pred. Im due bloods this week to check inflammation levels.
Ouchyjenna
in
NRAS
7 years ago
Peripheral Neuropathy
I’ve had RA for about 13 years and I’m pretty stable on methotrexate and
Benepali
. Does anyone else experience neuropathy symptoms? Just wondering if it’s common in RA?
I’ve had RA for about 13 years and I’m pretty stable on methotrexate and
Benepali
. Does anyone else experience neuropathy symptoms? Just wondering if it’s common in RA?
Fj65
in
NRAS
7 years ago
From Abatacept to Benepali
Hi there My consultant is changing my medication from Abatacept to
Benepali
due to severe onset of migraines with Abatacept. Does anyone have any experience of this please? What about
Benepali
? Has it worked? Any side effects? Any other things I should look out for with
Benepali
?
Hi there My consultant is changing my medication from Abatacept to
Benepali
due to severe onset of migraines with Abatacept. Does anyone have any experience of this please? What about
Benepali
? Has it worked? Any side effects? Any other things I should look out for with
Benepali
?
Mistydawn
in
NRAS
7 years ago
Despairing
I'm in absolute tears as I have just spent 30 min with my Rheumatologist and he's told me to stop
Benepali
as it clearly hasn't been working (though the CRP is within normal range now).
I'm in absolute tears as I have just spent 30 min with my Rheumatologist and he's told me to stop
Benepali
as it clearly hasn't been working (though the CRP is within normal range now).
Roostermum
in
NRAS
7 years ago
Shoes
more ZARA shop kind of girl I went in clarks shoe shop and marched back out but I'm crippled it's effecting my knees hips and back in fact I'm destroyed all over, my lovely nurse Paul says give it 6 more weeks before I go on the ivi mabs, no clue as to why 6 more weeks it's been almost 15 weeks on
benepali
more ZARA shop kind of girl I went in clarks shoe shop and marched back out but I'm crippled it's effecting my knees hips and back in fact I'm destroyed all over, my lovely nurse Paul says give it 6 more weeks before I go on the ivi mabs, no clue as to why 6 more weeks it's been almost 15 weeks on
benepali
Vonnie10
in
NRAS
7 years ago
Benepali not working..,
Hi, I have been on
Benepali
on & off for two months now. Zero side effects for a while, then suddenly it changed for the worse. RA definitely not any better, in fact, I'd say I'm a bit worse... Anyone else experienced this?
Hi, I have been on
Benepali
on & off for two months now. Zero side effects for a while, then suddenly it changed for the worse. RA definitely not any better, in fact, I'd say I'm a bit worse... Anyone else experienced this?
Roostermum
in
NRAS
7 years ago
Caught in a postcode lottery
I've only got one dose of
Benepali
left, and no guarantee any more will be around in a week, which means my doses may be interrupted. I've got forms I can't get filled out and a Blue Badge due to expire in a week, and no powerchair so I'm back to being housebound again.
I've only got one dose of
Benepali
left, and no guarantee any more will be around in a week, which means my doses may be interrupted. I've got forms I can't get filled out and a Blue Badge due to expire in a week, and no powerchair so I'm back to being housebound again.
Silvergilt
in
LUPUS UK
7 years ago
Advice please! Not allowed Methotrexate...
I am on
Benepali
and have been on mtx, but gradually reducing it from 25 to 5 mg. Each time, even with reductions, my blood count has gone so low that I've had to come off it. My rheumy nurse rang me to say that I'm going to have to come off mtx altogether.
I am on
Benepali
and have been on mtx, but gradually reducing it from 25 to 5 mg. Each time, even with reductions, my blood count has gone so low that I've had to come off it. My rheumy nurse rang me to say that I'm going to have to come off mtx altogether.
LizzieR
in
NRAS
7 years ago
Flare up!!!
I waiting for end of Oct to start
Benepali
. I'm currently taking 7mg of pred, codeine and naproxen. I'm having such a bad flare up. I had a depo injection in July which helped for a few weeks but now the pain is worst than ever. The pain is particularly worse in my hands.
I waiting for end of Oct to start
Benepali
. I'm currently taking 7mg of pred, codeine and naproxen. I'm having such a bad flare up. I had a depo injection in July which helped for a few weeks but now the pain is worst than ever. The pain is particularly worse in my hands.
Ouchyjenna
in
NRAS
7 years ago
Numbness
Plus is it also normal for health care at home to leave me with just one
benepali
or should I have had a delivery by now I'm on my 12 week, my major concern is this numbness is waking me up of a night I read it could be a complication but there is that much info on the internet so I'm mot a 100 % sure
Plus is it also normal for health care at home to leave me with just one
benepali
or should I have had a delivery by now I'm on my 12 week, my major concern is this numbness is waking me up of a night I read it could be a complication but there is that much info on the internet so I'm mot a 100 % sure
Vonnie10
in
NRAS
7 years ago
Sweating buckets
Sweating buckets I've been on
benepali
for 8 weeks I'm literally sweating buckets tired fatigued feel generally rough, do you think I should stop ?
Sweating buckets I've been on
benepali
for 8 weeks I'm literally sweating buckets tired fatigued feel generally rough, do you think I should stop ?
Vonnie10
in
NRAS
7 years ago
Could I end up disabled ?
Hi, I haven't been doing to great on my
benepali
I'm not doing great at the minute not sleeping, so last night I was thinking back as to what as been said at clinic, two nurses who are CNS and know there job and have 50/60 years experience between them, I have the upmost respect for these two nurses
Hi, I haven't been doing to great on my
benepali
I'm not doing great at the minute not sleeping, so last night I was thinking back as to what as been said at clinic, two nurses who are CNS and know there job and have 50/60 years experience between them, I have the upmost respect for these two nurses
Vonnie10
in
NRAS
7 years ago
Bruising
Having being on MTX and
Benepali
for 2 years and having monthly blood tests, I have noticed bruising over the past 3 weeks, this does not seem normal for me as I have never bruised before. Anyone else with similar problems?
Having being on MTX and
Benepali
for 2 years and having monthly blood tests, I have noticed bruising over the past 3 weeks, this does not seem normal for me as I have never bruised before. Anyone else with similar problems?
Jackadoodle
in
NRAS
7 years ago
Hands up who has been happy with Healthcare at home/HAH?
After being switched to
Benepali
from Enbrel and having an awful time of it months ago. You can imagine I'm desperate to get back on to Enbrel and get my life back.
After being switched to
Benepali
from Enbrel and having an awful time of it months ago. You can imagine I'm desperate to get back on to Enbrel and get my life back.
Deminem
in
NRAS
7 years ago
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