Search
Search
About
Log in
Join
Experiences with
Benepali
Posts
Communities
612 public posts
Filter results
Feeling strange
I started
benepali
25mg weekly (there is a query with dose). Had my second one yesterday. The nurse who called yesterday queried the dose as well as last weeks nurse who asked me to call my Rheumatology department which I did but got a rude secretary.
I started
benepali
25mg weekly (there is a query with dose). Had my second one yesterday. The nurse who called yesterday queried the dose as well as last weeks nurse who asked me to call my Rheumatology department which I did but got a rude secretary.
Matilda_1922
in
NRAS
7 years ago
Is anyone else losing their hair?!!
I started
Benepali
6 weeks ago, and this problem was happening prior to this. I know in the great scheme of things it's not a huge issue, but so many changes have happened over this last year, and this is a very visible one. I feel different. Is it the RA?
I started
Benepali
6 weeks ago, and this problem was happening prior to this. I know in the great scheme of things it's not a huge issue, but so many changes have happened over this last year, and this is a very visible one. I feel different. Is it the RA?
Jinnybabs
in
NRAS
7 years ago
Biologics v Biosimilar Sulfra or Flare?
Hi All I had been on Enbrel for about 18 months for AS ( Ankylosing Spondylitis ) when I was informed I would be changing to
Benepali
.
Hi All I had been on Enbrel for about 18 months for AS ( Ankylosing Spondylitis ) when I was informed I would be changing to
Benepali
.
sappy
in
NRAS
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
FRUSTRATING 😩
Due to start
Benepali
end of September but due to hospital mix up -delivery date finally set for 29th November . Steroid injection & Naproxen ( & other meds) whilst away to tide me over 😥 All well & good - nooooooo.!!!!
Due to start
Benepali
end of September but due to hospital mix up -delivery date finally set for 29th November . Steroid injection & Naproxen ( & other meds) whilst away to tide me over 😥 All well & good - nooooooo.!!!!
MAHGS
in
NRAS
7 years ago
Enberel finally arrived !
Made my husband open package while I signed for it to make sure it was Enberel and not
Benepali
then scurried upstairs for injection ! Felt great today apart from a sore back due to over enthusiastic getting up this morning.😃
Made my husband open package while I signed for it to make sure it was Enberel and not
Benepali
then scurried upstairs for injection ! Felt great today apart from a sore back due to over enthusiastic getting up this morning.😃
Furle
in
NRAS
7 years ago
Starting benepali today
Nurse coming this morning Hope I can start to get my life back soon. So fingers crossed Have a wonderful and as pain free day as possible X
Nurse coming this morning Hope I can start to get my life back soon. So fingers crossed Have a wonderful and as pain free day as possible X
Matilda_1922
in
NRAS
7 years ago
Can't find my Folic acid seems to have been misplaced.
I'm going to see if I can buy some over the counter once my delivery has arrived as I'm about to start
benepali
. Does anyone know where I may be able to buy Folic acid. I'm thinking boots may have them.
I'm going to see if I can buy some over the counter once my delivery has arrived as I'm about to start
benepali
. Does anyone know where I may be able to buy Folic acid. I'm thinking boots may have them.
Matilda_1922
in
NRAS
7 years ago
Delivery of Benepali
Given a time band 11:30-13:30. This is my first delivery in my area Tuesday and Friday. So next date will hopefully be Tuesday. Called them around 16:30 and told they were delayed by traffic and may or my not deliver today. I’m back at work next week. The nurse booked for next Friday. Has anyone had
Given a time band 11:30-13:30. This is my first delivery in my area Tuesday and Friday. So next date will hopefully be Tuesday. Called them around 16:30 and told they were delayed by traffic and may or my not deliver today. I’m back at work next week. The nurse booked for next Friday. Has anyone had
Matilda_1922
in
NRAS
7 years ago
End of the Road
Benepali
prescribed when another joint destroyed by RA in last 12 months . NHS mix up meant that instead of being on
Benepali
now it is delayed to end of Nov when back from an overseas trip ( husband's big birthday 🎂) they felt it was unwise to start 2 weeks before I go .
Benepali
prescribed when another joint destroyed by RA in last 12 months . NHS mix up meant that instead of being on
Benepali
now it is delayed to end of Nov when back from an overseas trip ( husband's big birthday 🎂) they felt it was unwise to start 2 weeks before I go .
MAHGS
in
NRAS
7 years ago
Back on Enberel
Have just been told I can go back on Enberel after 5 weeks on
Benepali
. Unfortunately
Benepali
did not work for me after being in remission for 8 years on Enberel . Thank you my great rheumatology team!
Have just been told I can go back on Enberel after 5 weeks on
Benepali
. Unfortunately
Benepali
did not work for me after being in remission for 8 years on Enberel . Thank you my great rheumatology team!
Furle
in
NRAS
7 years ago
Risky side effects of Benepali?
I've been started on
Benepali
, having had my second injection this week; however, the side effects of this drug are increased risk of skin cancer and blood cancers!!! This isn't even in the 'rare' category either!
I've been started on
Benepali
, having had my second injection this week; however, the side effects of this drug are increased risk of skin cancer and blood cancers!!! This isn't even in the 'rare' category either!
Jinnybabs
in
NRAS
7 years ago
Know it all nurses
As some of you know i.ve been o
benepali
injections since june .was having a real bad time ..so at first i thought it was doing some good .swelling went down .but 3 weeks after everything swelled again only worse .ankles feet.wrists even my face ??.
As some of you know i.ve been o
benepali
injections since june .was having a real bad time ..so at first i thought it was doing some good .swelling went down .but 3 weeks after everything swelled again only worse .ankles feet.wrists even my face ??.
keeta
in
NRAS
7 years ago
Flu jab & Benepali
I went to the Drs this morning to have my flu jab but the nurse advised me not to have it as I take
benepali
and that I should check with rheumatologist, I left a message with the rheumatology nurse but she's not got back to me yet so I was just wondering if anyone here knew ?
I went to the Drs this morning to have my flu jab but the nurse advised me not to have it as I take
benepali
and that I should check with rheumatologist, I left a message with the rheumatology nurse but she's not got back to me yet so I was just wondering if anyone here knew ?
Kerry-78
in
NRAS
7 years ago
Enbrel to Benepali
Having had RA since 1986 Enbrel has been my wonder drug over past 12 years..Now to soon swap to Benapali I dread what lies ahead..
Having had RA since 1986 Enbrel has been my wonder drug over past 12 years..Now to soon swap to Benapali I dread what lies ahead..
juliea793
in
NRAS
7 years ago
Benepali, sulfasaoline, methotrexate and Thrush
I have been on MTX since Feb and sulfa since March, I have gone from not being able to walk very easily to doing "ok". saw rhumey 8 weeks ago and she said she wants o to move me onto biologicals as she isn't happy wiht the results i ma getting for my age (43),
Benepali
. Is anyone on this?
I have been on MTX since Feb and sulfa since March, I have gone from not being able to walk very easily to doing "ok". saw rhumey 8 weeks ago and she said she wants o to move me onto biologicals as she isn't happy wiht the results i ma getting for my age (43),
Benepali
. Is anyone on this?
nattynooo
in
NRAS
7 years ago
Injections
This is my 4th week on
benepali
now and I’m still struggling. I don’t want to give up on the drug. It has worked amazingly for me. It’s so hard. I hate this disease.
This is my 4th week on
benepali
now and I’m still struggling. I don’t want to give up on the drug. It has worked amazingly for me. It’s so hard. I hate this disease.
Cydney96
in
NRAS
7 years ago
Benepali and muscle spasm
Hi, just changed from Enberel to
Benepali
after 7 plus years problem free treatment . Had first injection last night and today I have been having awful muscle spasms around abdomen and ribs. Never had them before and was wondering if anyone else had experience of this?
Hi, just changed from Enberel to
Benepali
after 7 plus years problem free treatment . Had first injection last night and today I have been having awful muscle spasms around abdomen and ribs. Never had them before and was wondering if anyone else had experience of this?
Furle
in
NRAS
7 years ago
Steroids / Blood Levels
I've had to have a pause in my medication but if all infection markers are gone from my blood i am due to start
Benepali
in October, ive had a depo injection during this time and i was on 15mg which has just been reduced to 10mg of pred. Im due bloods this week to check inflammation levels.
I've had to have a pause in my medication but if all infection markers are gone from my blood i am due to start
Benepali
in October, ive had a depo injection during this time and i was on 15mg which has just been reduced to 10mg of pred. Im due bloods this week to check inflammation levels.
Ouchyjenna
in
NRAS
7 years ago
Peripheral Neuropathy
I’ve had RA for about 13 years and I’m pretty stable on methotrexate and
Benepali
. Does anyone else experience neuropathy symptoms? Just wondering if it’s common in RA?
I’ve had RA for about 13 years and I’m pretty stable on methotrexate and
Benepali
. Does anyone else experience neuropathy symptoms? Just wondering if it’s common in RA?
Fj65
in
NRAS
7 years ago
From Abatacept to Benepali
Hi there My consultant is changing my medication from Abatacept to
Benepali
due to severe onset of migraines with Abatacept. Does anyone have any experience of this please? What about
Benepali
? Has it worked? Any side effects? Any other things I should look out for with
Benepali
?
Hi there My consultant is changing my medication from Abatacept to
Benepali
due to severe onset of migraines with Abatacept. Does anyone have any experience of this please? What about
Benepali
? Has it worked? Any side effects? Any other things I should look out for with
Benepali
?
Mistydawn
in
NRAS
7 years ago
1
...
24
25
26
...
31
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
NRAS
586 results
Arthritis Action
9 results
Beyond Psoriasis
3 results
View top 10 communities
Sort by
Most Relevant
Newest