Normally on the top of my game & 24 years into this RA fixture - really struggling .
Last 12 months remission is a thing of the past and last 6 months has been jumping through the NHS hoops & increasing medication ( 20mg metojet) , steroid injections etc etc & uphill battle as bloods do not reflect inflammation . ( private consultant said it was very unfortunate !) Benepali prescribed when another joint destroyed by RA in last 12 months .
NHS mix up meant that instead of being on Benepali now it is delayed to end of Nov when back from an overseas trip ( husband's big birthday 🎂) they felt it was unwise to start 2 weeks before I go .
So last 4 weeks I have had continual flu symptoms, dreadful headaches which means to me my RA is flaring & active .
So Each day is fake it till I make it - do something , lie down .....repeat . Now hip joint is so painful ( never had pain there )
So fearing the worst .
At a low ebb - due steroid Friday & thinking to ring & bring it forward .
I am not depressed just so exhausted now I really do not want to have another day like this . If another person says to me you look so well ..........
Tired to my bones .
Think I have officially lost the plot ! 🙈