Hi all. I was diagnosed with RA last January, with my hands and wrists being badly affected. I have had to take early retirement from work ( I was a nurse), as my hands and fingers just don't work well enough any more. I am, therefore, going through the horrors of being treated like some sort of fraud whilst doing PIP assessments, housing benefits etc, whilst being told that £73.10 a week is sufficient to run a house on (I live alone, so am solely responsible for my bills!) It's bad enough having the RA, with the fatigue and the pain, but this whole change of lifestyle is so difficult.
The DMARDS didn't suit me at all, causing problems with my liver and blood pressure, so I've yet to take any med for longer than 3 weeks, therefore nothing has been in my system long enough to work for my RA. I've been started on Benepali, having had my second injection this week; however, the side effects of this drug are increased risk of skin cancer and blood cancers!!! This isn't even in the 'rare' category either! But it seems that this treatment regime is like a ladder, and you can't go onto anything else until you have tried the drug before and found it doesn't work. As a palliative care nurse, who has spent her nursing career nursing people who are dying, mainly of cancer, I am struggling with putting this drug into my body! But I have no choice; otherwise the RA will become more disabling. What a depressing post, sorry all!