Enberel finally arrived !: Three weeks ago I posted... - NRAS

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Enberel finally arrived !

Furle profile image
16 Replies

Three weeks ago I posted that I was going back to my beloved Enberel after 5 weeks of Benepali making my RA worse. After no meds apart from sulfasalazine for 3 weeks I was feeling good but hands and feet just starting to cause problems then last night H@H finally delivered my Enberel. Made my husband open package while I signed for it to make sure it was Enberel and not Benepali then scurried upstairs for injection ! Felt great today apart from a sore back due to over enthusiastic getting up this morning.😃

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Furle profile image
Furle
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16 Replies
Birthdaygirl profile image
Birthdaygirl

In these circumstances it is nerve racking opening the package isn’t it! Glad it has arrived and hope all goes well and you feel benefits soon. Wishing you all the best.

BG

Furle profile image
Furle in reply toBirthdaygirl

Thank you. RA feeling better already after only 24 hours. Feel so lucky to be back on Enberel again.

Birthdaygirl profile image
Birthdaygirl in reply toFurle

Glad your rheumy team were quick to listen to you and remedy your situation. Wish you well.

Jillyanne profile image
Jillyanne

Enbrel is brilliant, I took it for over 5 years before it stopped working, I was gutted.

You said it good to be back on it, is this your second time and if my present reatment doesn’t work Can I ask to go back onto Enbrel ???

Birthdaygirl profile image
Birthdaygirl in reply toJillyanne

Interesting question. I don’t personally have any experience but, as I have been in enbrel for a couple of years, I look forward to seeing any comments and answers to your question.

BG

Jillyanne profile image
Jillyanne in reply toBirthdaygirl

I just wondered if it had stopped working for you and they gave you a break and put you back on it.

It’s miles better than the one I am on now 😞😞😞😞

Birthdaygirl profile image
Birthdaygirl in reply toJillyanne

Hi Jillyanne

I didn’t post the original message but feel sure Furle will get back to you with her story.

Your suggested scenario Is something I had never considered.

I am currently on enbrel and doing ok.

BG

Jewels94 profile image
Jewels94 in reply toJillyanne

From the original post it seems that Furle was switched to Benepali, the biosimilar for Enbrel. She had problems with the switch over, the Benapali didn’t work as well for her, so asked her rheumatologist to switch her back to Enbrel

Jillyanne profile image
Jillyanne in reply toJewels94

Ok, thank you

Furle profile image
Furle in reply toJillyanne

Hi, I was moved on to the biosimilar Benepali but it made my RA worse so my rheumatology team arranged for me to back to Enberel . Had been on Enberel since 2009 with no problems at all and has started working again immediately .

My reason for coming off Enberel was different to yours so I am uncertain if it would be the same for you. Hope you find something that works well for you.

Amy65 profile image
Amy65 in reply toJillyanne

I was on Embrel it stopped working after 3years went onto humera it didn't work after 6mths asked my rheaumtoglist could I try Enbrel again he said he was happy to let me it depends on ur rheaumtoglist some are happy to work with u mine is brill

Jillyanne profile image
Jillyanne in reply toAmy65

Thank you that’s really interesting to know 👍💐💕

Jewels94 profile image
Jewels94

Congratulations on getting your Enbrel back. I’ve been switched over to Benepali as well but so far seems to be okay.

Furle profile image
Furle in reply toJewels94

Thank you. Hope Benepali keeps working for you too.

OH starts on this tomorrow. Fingers crossed for it!

Furle profile image
Furle in reply toChickenkeeper2015

Good luck to you and I hope it works for you

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