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Looking to connect
Hello, I would like to connect with survivors with these combinations in their medical experience, please. Can you help? 1. Have had heart failure 2. Have had a dissection B 3. Havd had a torn aorta 4. Have had a lumpectomy or mastectomy on the LEFT breast 5. Have had radiation or PROTON therapy
Hello, I would like to connect with survivors with these combinations in their medical experience, please. Can you help? 1. Have had heart failure 2. Have had a dissection B 3. Havd had a torn aorta 4. Have had a lumpectomy or mastectomy on the LEFT breast 5. Have had radiation or PROTON therapy
AVOCADOtastes
in
SHARE Breast Cancer Support
5 months ago
TAPUR study
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
muzzatron
in
SHARE Metastatic Breast Cancer
5 months ago
happy Saturday!
I brought home my dog domino following acl surgery and am overwhelmed about his rehab routine. Massage, ice, meds, trips to vet daily for laser therapy, etc. for at least 8 weeks. Has anyone else been through this and have any coping skills to suggest?
I brought home my dog domino following acl surgery and am overwhelmed about his rehab routine. Massage, ice, meds, trips to vet daily for laser therapy, etc. for at least 8 weeks. Has anyone else been through this and have any coping skills to suggest?
CatDogLover
in
Anxiety and Depression Support
5 months ago
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Transitioning into High School
Hello everyone, I have a 14 year old son who has ADHD, ODD and anxiety. He was diagnosed at 8 with it all and has been through many years of behavioral therapy and medication. He's very small for his age (just started on growth hormone therapy) and is currently taking the smallest dose of Vyvance for
Hello everyone, I have a 14 year old son who has ADHD, ODD and anxiety. He was diagnosed at 8 with it all and has been through many years of behavioral therapy and medication. He's very small for his age (just started on growth hormone therapy) and is currently taking the smallest dose of Vyvance for
tattooed_mom
in
CHADD's ADHD Parents Together
1 year ago
red light therapy
hi everyone! I am wondering if anyone has heard of using red and near infrared light therapy.
hi everyone! I am wondering if anyone has heard of using red and near infrared light therapy.
positiveness
in
My MSAA Community
5 months ago
Capiverstib
Anyone heard of or started this new FDA approved targeted therapy? What is your experience or understanding?
Anyone heard of or started this new FDA approved targeted therapy? What is your experience or understanding?
Yikes123
in
SHARE Metastatic Breast Cancer
5 months ago
Seeking to connect, share, support and heal this anxiety
Howdy all: I am TS—my nickname, so it's all good. I have experienced depression for 34 years, when I was first diagnosed. About 5 months ago, I was also diagnosed with general anxiety disorder, Since that time, I have experienced a combination of anxiety, fear and deep loneliness. I am currently on
Howdy all: I am TS—my nickname, so it's all good. I have experienced depression for 34 years, when I was first diagnosed. About 5 months ago, I was also diagnosed with general anxiety disorder, Since that time, I have experienced a combination of anxiety, fear and deep loneliness. I am currently on
LittleShik
in
Anxiety and Depression Support
5 months ago
Parkinson's Nurse update
Hi all, thank you for all your previous posts, they were most helpful. Since then we have had a few medical professionals visit. The Parkinsons Nurse is coming to see my father-in-law tomorrow. Is there any questions we need to be asking? The OT and Physio visited yesterday and recommended a new commode
Hi all, thank you for all your previous posts, they were most helpful. Since then we have had a few medical professionals visit. The Parkinsons Nurse is coming to see my father-in-law tomorrow. Is there any questions we need to be asking? The OT and Physio visited yesterday and recommended a new commode
Loveispatient23
in
PSP Association
5 months ago
recurrence after lobectomy
Hello, I am 53 and live in the UK and I stop smoking in my late 20’. I had a lobectomy of my right lower lobe in April 2022 to remove a minimally invasive adenocarcinoma staged pT1 N0, M0, PL0, R0 (found by complete accident on an abdomen CT scan.) I begged for adjuvant therapy after the operation
Hello, I am 53 and live in the UK and I stop smoking in my late 20’. I had a lobectomy of my right lower lobe in April 2022 to remove a minimally invasive adenocarcinoma staged pT1 N0, M0, PL0, R0 (found by complete accident on an abdomen CT scan.) I begged for adjuvant therapy after the operation
Bibicata
in
The Roy Castle Lung Cancer Foundation
5 months ago
Transformation of Richter's Transformation Treatment to combination targeted therapy - tislelizumab +zanubrutinib (ASH 2023)
Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that [i]"In a phase 2 trial, anti-PD-1 inibitor tislelizumab + next gen BTK inhibitor zanubrutinib had an overall response rate of 58.3% in patients with Richter's
Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that [i]"In a phase 2 trial, anti-PD-1 inibitor tislelizumab + next gen BTK inhibitor zanubrutinib had an overall response rate of 58.3% in patients with Richter's
AussieNeil
Administrator
in
CLL Support
5 months ago
Pain everywhere.
I've been 10+ yrs searching for answers. I had some bladder problems in 2013. Doctors did surgery. I almost died. Apparently they told me my blood vessels looked funny. They didn't know if they "knicked " me or what but I lost 8 pints of blood very quickly. They barely got me transfusion in time. I chalked
I've been 10+ yrs searching for answers. I had some bladder problems in 2013. Doctors did surgery. I almost died. Apparently they told me my blood vessels looked funny. They didn't know if they "knicked " me or what but I lost 8 pints of blood very quickly. They barely got me transfusion in time. I chalked
CountryGirl9636
in
Partners for Behcet's
5 months ago
Free Live ADAA Webinar Tomorrow - Cognitive Behavior Therapy (CBT) for Tinnitus Distress: Your Questions
Featuring Dr. Bruce Hubbard. Tinnitus is a common neurological condition in which a person hears internal sounds which have no external source. Everyone hears tinnitus occasionally, but for about a billion people world-wide the sounds are persistent and chronic. Persistent tinnitus appears to arise
Featuring Dr. Bruce Hubbard. Tinnitus is a common neurological condition in which a person hears internal sounds which have no external source. Everyone hears tinnitus occasionally, but for about a billion people world-wide the sounds are persistent and chronic. Persistent tinnitus appears to arise
ADAATeamLise
Partner
in
Anxiety and Depression Support
1 year ago
How you can help make ibrutinib plus venetoclax fixed duration therapy a reality for Australians with previously untreated CLL
In Australia, no new medicine can be listed on the Pharmaceutical Benefits Scheme (PBS) unless it has first been recommended by the Pharmaceutical Benefits Advisory Committee (PBAC). In March 2024, PBAC will again consider a submission to recommend a 15-month combination therapy of ibrutinib plus venetoclax
In Australia, no new medicine can be listed on the Pharmaceutical Benefits Scheme (PBS) unless it has first been recommended by the Pharmaceutical Benefits Advisory Committee (PBAC). In March 2024, PBAC will again consider a submission to recommend a 15-month combination therapy of ibrutinib plus venetoclax
CLLerinOz
Volunteer
in
CLL Support
5 months ago
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
cujoe
in
CLL Support
6 months ago
Genetic therapy: for solid malignancy hopefully soon
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
Maxone73
in
Advanced Prostate Cancer
6 months ago
coming off rotigotine patches
Hello, First post… Could someone please share their experience coming off rotigotine patches, and what helped you throughout this experience? Been on rotigotine for 4 or so years, and more recently started experiencing augmentation. Was on 2mg, in August GP suggested increasing to 3mg but that hardly
Hello, First post… Could someone please share their experience coming off rotigotine patches, and what helped you throughout this experience? Been on rotigotine for 4 or so years, and more recently started experiencing augmentation. Was on 2mg, in August GP suggested increasing to 3mg but that hardly
Artifcial
in
Restless Legs Syndrome
6 months ago
Where Are My People?
I was diagnosed with major depressive disorder over 5 years ago. It started with speech therapy but didn’t seem to help. I’ve been medicated since then but it doesn’t feel like it’s doing its job anymore. The last couple years have been a rollercoaster with changing meds multiple times, worsening depression
I was diagnosed with major depressive disorder over 5 years ago. It started with speech therapy but didn’t seem to help. I’ve been medicated since then but it doesn’t feel like it’s doing its job anymore. The last couple years have been a rollercoaster with changing meds multiple times, worsening depression
RottieFlood37
in
Major Depressive Disorder (MDD) Support
6 months ago
Input on Timing of Initial ADT after RP/SRT Failed
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
dans_journey
in
Advanced Prostate Cancer
9 days ago
COMBINATION THERAPY IS NOW UNDER REVIEW
This review indicates how and why combination therapy may be used in treatment. Interesting in itself, but another example of cherry-picking evidence ( we aren't mentioned in spite of starting this concept in 2012. Good cliquish admission where the "nonprofessionals"are best kept well out of the limelight
This review indicates how and why combination therapy may be used in treatment. Interesting in itself, but another example of cherry-picking evidence ( we aren't mentioned in spite of starting this concept in 2012. Good cliquish admission where the "nonprofessionals"are best kept well out of the limelight
diogenes
in
Thyroid UK
6 months ago
some great news….
My son will be turning 4 this January and that in and of itself is great news. Nothing is scarier than having just given birth and not knowing what the future of your precious new child will hold, like simply living. my son was born with PUV and severe reflux bilaterally. Of course there was renal
My son will be turning 4 this January and that in and of itself is great news. Nothing is scarier than having just given birth and not knowing what the future of your precious new child will hold, like simply living. my son was born with PUV and severe reflux bilaterally. Of course there was renal
MotherofBarbearians
in
Parents of Children with Kidney Disease
6 months ago
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