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Beckwith-Wiedemann Syndrome
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Does Plaquenil Hydroxychloroquine) help with Sjorgens
I was recently diagnosed with Sjogrens, my rheumatologist prescribed Plaquenil (Hydroxychloroquine) I read some studies that seem to suggest that there is no evidence Plaquenil helps with Sjogrens like it does with Lupus. I'm now doubting whether or not to take it. Has Plaquenil helped your Sjogrens?
I was recently diagnosed with Sjogrens, my rheumatologist prescribed Plaquenil (Hydroxychloroquine) I read some studies that seem to suggest that there is no evidence Plaquenil helps with Sjogrens like it does with Lupus. I'm now doubting whether or not to take it. Has Plaquenil helped your Sjogrens?
Miamigirl305
in
The Australian Sjögren's Syndrome Association
5 years ago
Sjogrens
My blood tests were negative for sjogrens. My doctor said the lip biosy was unnecessary but I pushed him to order it. I'm glad I did because the lip biospy was positive for Sjogrens. My rheumatologist confirmed the diagnosis and now put me on plaquenil.
My blood tests were negative for sjogrens. My doctor said the lip biosy was unnecessary but I pushed him to order it. I'm glad I did because the lip biospy was positive for Sjogrens. My rheumatologist confirmed the diagnosis and now put me on plaquenil.
Miamigirl305
in
Hughes Syndrome APS Forum
5 years ago
Methadone
Hi Everyone. Has anyone living in the U.K. with severe restless legs been prescribed methadone.? If so what are the results.? I ask because I've been on Tramadol for about 2 years (4x 20mg at night ) and they seem to be losing their efficacy now. Any other advice gratefully received.
Hi Everyone. Has anyone living in the U.K. with severe restless legs been prescribed methadone.? If so what are the results.? I ask because I've been on Tramadol for about 2 years (4x 20mg at night ) and they seem to be losing their efficacy now. Any other advice gratefully received.
bedith6
in
Restless Legs Syndrome
5 years ago
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Magnesium deficiency, PPIs & RLS - shock revelation!
I only found out today, quite by accident, that PPI's can, and do, cause magnesium deficiency. Magnesium deficiency, in turn, can then cause cramps, muscle twitches and RLS. Holy hell! I've been taking PPIs for years - literally years - and despite mentioning that I have RLS to several doctors, not ONE
I only found out today, quite by accident, that PPI's can, and do, cause magnesium deficiency. Magnesium deficiency, in turn, can then cause cramps, muscle twitches and RLS. Holy hell! I've been taking PPIs for years - literally years - and despite mentioning that I have RLS to several doctors, not ONE
Chancery
in
Restless Legs Syndrome
5 years ago
I'm New - Boyfriend has EDS
Hello all! I do not know much about EDS other than what I've read online or what my boyfriend has told me about it. His EDS has always concerned me and it makes me sad because he believes his life expectancy is super short because some doctor told him this... It bothers me because not enough doctors
Hello all! I do not know much about EDS other than what I've read online or what my boyfriend has told me about it. His EDS has always concerned me and it makes me sad because he believes his life expectancy is super short because some doctor told him this... It bothers me because not enough doctors
Usako
in
Ehlers-Danlos Support UK
5 years ago
Started Buprenorphine 😴
Hello from NYC So far it has been really worth the long hall flight I have seen an amazing doctor in NYC I am seeing him again on Tuesday - I will seek his permission before popping his name up. He was lovely older man , hugged me when I left gave me his personal Mobile / cell number He reached
Hello from NYC So far it has been really worth the long hall flight I have seen an amazing doctor in NYC I am seeing him again on Tuesday - I will seek his permission before popping his name up. He was lovely older man , hugged me when I left gave me his personal Mobile / cell number He reached
Shumbah
in
Restless Legs Syndrome
5 years ago
Rls
Hi everyone I’ve been suffering with restless legs for many years it is a bad disease I just hope I can find something natural that really works for me KRATOM seems to be working pretty well Requip is something That works but put you to sleep I can’t watch a movie without twitching my legs it’s just
Hi everyone I’ve been suffering with restless legs for many years it is a bad disease I just hope I can find something natural that really works for me KRATOM seems to be working pretty well Requip is something That works but put you to sleep I can’t watch a movie without twitching my legs it’s just
Applejacks95
in
Restless Legs Syndrome
5 years ago
Big thank you
I can't remember who to thank (Madlegs, maybe?) I've taken gabapentin for close to 30 years for unrelated nerve pain. About 5 years ago I was hospitalized and in the course of things, told that I had a magnesium deficiency and to supplement. So I have been taking magnesium. No one ever even mentioned
I can't remember who to thank (Madlegs, maybe?) I've taken gabapentin for close to 30 years for unrelated nerve pain. About 5 years ago I was hospitalized and in the course of things, told that I had a magnesium deficiency and to supplement. So I have been taking magnesium. No one ever even mentioned
Whippetmama
in
Restless Legs Syndrome
5 years ago
How long do L-dopa withdrawal symptoms last?
I took an over the counter L-dopa supplement (Macuna puriens) for a few months for my restless legs and then experienced augmentation and rebound. I stopped cold turkey a week ago and am experiencing withdrawal effects in the form of nervous system pain. Wondering how long it takes for the withdrawal
I took an over the counter L-dopa supplement (Macuna puriens) for a few months for my restless legs and then experienced augmentation and rebound. I stopped cold turkey a week ago and am experiencing withdrawal effects in the form of nervous system pain. Wondering how long it takes for the withdrawal
RoDomHarr
in
Restless Legs Syndrome
5 years ago
Bowel problems
Almost a year since ltx, bile duct blockage so another mri. My question to all you warriors is, has anyone having bowel problems?
Almost a year since ltx, bile duct blockage so another mri. My question to all you warriors is, has anyone having bowel problems?
Yuiop
in
British Liver Trust
5 years ago
Update Dr Winkleman- Buprenorphine
Hi Everyone My appointment with Dr Winkleman update Just saying I would recommend a 7 day trail to anyone interested in Buprenorphine you can start and stop with no issues . I side stepped the 6 month wait at the Massachusetts General Hospital. I saw him as a private patient at his home $1000 cash
Hi Everyone My appointment with Dr Winkleman update Just saying I would recommend a 7 day trail to anyone interested in Buprenorphine you can start and stop with no issues . I side stepped the 6 month wait at the Massachusetts General Hospital. I saw him as a private patient at his home $1000 cash
Shumbah
in
Restless Legs Syndrome
5 years ago
Stuck on ropinirole
Hi everyone it’s been a while since I was last on here, if anyone can remember I was taking 3 2mg Ropinirole in 24 hours and I tried my best to come off them! It was torture. Anyway I had a week where I got fed up with everything and I stopped all my medication apart from ropinirole, I discovered stopping
Hi everyone it’s been a while since I was last on here, if anyone can remember I was taking 3 2mg Ropinirole in 24 hours and I tried my best to come off them! It was torture. Anyway I had a week where I got fed up with everything and I stopped all my medication apart from ropinirole, I discovered stopping
Rish
in
Restless Legs Syndrome
5 years ago
Help and advice needed please
Hi UK here, I’ve had RLS for as long as I can remember, but it has been severe for about eight to ten years, I was an RN, but had to give up because of lack of sleep, I’m in my early sixties I’ve been on various medication including Ropinirole, Carbergoline, Pregabalin, Gabapentin, now on Pramipexole
Hi UK here, I’ve had RLS for as long as I can remember, but it has been severe for about eight to ten years, I was an RN, but had to give up because of lack of sleep, I’m in my early sixties I’ve been on various medication including Ropinirole, Carbergoline, Pregabalin, Gabapentin, now on Pramipexole
Shelag
in
Restless Legs Syndrome
5 years ago
CBD oil over $80 an ounce each week is worth it to me to stop RLS.
My cousin gives me a discount on my .3% THC CBD oil at $80 an ounce that last about a week or so for me. I'd say 5% is a lot! By the time I used CBD oil I was so miserable with RLS that I would have made any sacrifice to get relief. I pray u find a cheaper solution. I tried gabapentin, Requip, pamelor
My cousin gives me a discount on my .3% THC CBD oil at $80 an ounce that last about a week or so for me. I'd say 5% is a lot! By the time I used CBD oil I was so miserable with RLS that I would have made any sacrifice to get relief. I pray u find a cheaper solution. I tried gabapentin, Requip, pamelor
Reader5
in
Restless Legs Syndrome
5 years ago
Do other dopamine boosters also cause augmentation?
I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics
I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics
RoDomHarr
in
Restless Legs Syndrome
5 years ago
Should I fill the ropinirole prescription??
Went to neurologist yesterday to have epilepsy ruled out. (It was.) Mentioned I had RLS. Told him I was taking .5 milligrams of Valium every third day or so to keep the monster at bay. Mentioned that hydrocodone really helps me (But prescriptions are getting harder to get in the US. Mention the word
Went to neurologist yesterday to have epilepsy ruled out. (It was.) Mentioned I had RLS. Told him I was taking .5 milligrams of Valium every third day or so to keep the monster at bay. Mentioned that hydrocodone really helps me (But prescriptions are getting harder to get in the US. Mention the word
Marlayna67
in
Restless Legs Syndrome
5 years ago
FET Cycle starting tomorrow
I start buserelin tomorrow for downregulation and am also having an endometrial scratch in preparation for frozen embryo transfer next month. This is our only embryo but we do have another round of NHS IVF if this transfer isn't successful which I'm hoping we won't need 🙏 Trying to stay positive but
I start buserelin tomorrow for downregulation and am also having an endometrial scratch in preparation for frozen embryo transfer next month. This is our only embryo but we do have another round of NHS IVF if this transfer isn't successful which I'm hoping we won't need 🙏 Trying to stay positive but
Sarah_a_2018
in
Fertility Network UK
5 years ago
Buserelin Spray leak
Hi, This is a completely random question but does anyone know if you can absorb Buserelin spray through your skin? Reason I am asking is that I had my full bottle of spray in my pocket whilst at work and it has managed to unscrew it’s self and leak. I have about 1/4 left of a full bottle before I
Hi, This is a completely random question but does anyone know if you can absorb Buserelin spray through your skin? Reason I am asking is that I had my full bottle of spray in my pocket whilst at work and it has managed to unscrew it’s self and leak. I have about 1/4 left of a full bottle before I
Iamtrying150
in
Fertility Network UK
5 years ago
Anyone with PCOS had problems with egg quality/chromosome abnormalities with embryos?
I’m struggling to remain positive. I have had a failed fresh transfer and a failed FET and most recently a FET that ended in a chemical pregnancy all with top quality blasts. Absolutely gutted as I really though it was finally happening this time! Anyway I tried to reassure myself that we still have
I’m struggling to remain positive. I have had a failed fresh transfer and a failed FET and most recently a FET that ended in a chemical pregnancy all with top quality blasts. Absolutely gutted as I really though it was finally happening this time! Anyway I tried to reassure myself that we still have
Greyeverything
in
Fertility Network UK
5 years ago
Tried everything and have found relief
I am 68 years old and have had RLS for at least 25 years. I have tried everything from gabapentin, the dopanine agonists (experienced augmentation and withdrawal from hell), tramadol (it became ineffective) a couple of other narcotics, cannabis, iron and magnesium. I have experienced symptoms in the
I am 68 years old and have had RLS for at least 25 years. I have tried everything from gabapentin, the dopanine agonists (experienced augmentation and withdrawal from hell), tramadol (it became ineffective) a couple of other narcotics, cannabis, iron and magnesium. I have experienced symptoms in the
MATTIELUKE
in
Restless Legs Syndrome
5 years ago
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