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Beckwith-Wiedemann Syndrome
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Long Covid
I have had RLS for decades and have had more help on this site from wonderful people than from any medical person. Currently I take Methadone 15 mg daily which gives me about 5 hours of broken sleep per night. I can live with it as its the best I have had for decades. I wonder if some Marijuana would
I have had RLS for decades and have had more help on this site from wonderful people than from any medical person. Currently I take Methadone 15 mg daily which gives me about 5 hours of broken sleep per night. I can live with it as its the best I have had for decades. I wonder if some Marijuana would
wairoa36
in
Restless Legs Syndrome
1 year ago
Maple Syrup
Does anyone else get RLS from 100% pure Maple Syrup? I mean 100% as stated on the label. I have experienced restlessness quite a few times after having it in a night time soothing drink. It was to replace cheap "pouring honey" which I was trying to replace with a healthier option. Would like to get
Does anyone else get RLS from 100% pure Maple Syrup? I mean 100% as stated on the label. I have experienced restlessness quite a few times after having it in a night time soothing drink. It was to replace cheap "pouring honey" which I was trying to replace with a healthier option. Would like to get
Madlegs1
in
Restless Legs Syndrome
1 year ago
Help!
Hello, everyone, I've an appointment to see my doctor tomorrow and would like to know what strength of buprenorphine helps rls? I'm not doing so good, rls back with a vengeance, had to go back on the hrt gel as I found my rls was way worse after stopping it, I'm crawling all over, day and night since
Hello, everyone, I've an appointment to see my doctor tomorrow and would like to know what strength of buprenorphine helps rls? I'm not doing so good, rls back with a vengeance, had to go back on the hrt gel as I found my rls was way worse after stopping it, I'm crawling all over, day and night since
Loopylegs
in
Restless Legs Syndrome
1 year ago
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systemic sclerosis
Does anyone suffer from terrible heat in veins and arteries(skin) yet raynaud's at the same time? But can also be shaking with cold inside - if that makes sense! I have Sjogren's and Systemic sclerosis but all the Doctors ignore the intolerable symptom of hot and cold I suffer
Does anyone suffer from terrible heat in veins and arteries(skin) yet raynaud's at the same time? But can also be shaking with cold inside - if that makes sense! I have Sjogren's and Systemic sclerosis but all the Doctors ignore the intolerable symptom of hot and cold I suffer
sessull
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Withdrawals from Pramipexole.
Hi everyone i had been taking one .088mgs pramipexole for approx 3 years plus one or two 8/500 cocodamol at night it’s never been perfect as my tolerance to meds is lowi can’t take high doses. Recently i have had 3 nights and days of meds not working and out this down to the pramipexole and augmentation
Hi everyone i had been taking one .088mgs pramipexole for approx 3 years plus one or two 8/500 cocodamol at night it’s never been perfect as my tolerance to meds is lowi can’t take high doses. Recently i have had 3 nights and days of meds not working and out this down to the pramipexole and augmentation
Hidden
in
Restless Legs Syndrome
1 year ago
APNEA v RLS - something else
I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are conflicting with the efficacy of the CPAP kit and not bring down my incidence of AHI during the night. The consultant has asked me to row back
I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are conflicting with the efficacy of the CPAP kit and not bring down my incidence of AHI during the night. The consultant has asked me to row back
joepublic
in
Restless Legs Syndrome
1 year ago
Horizant
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
wantokporo
in
Restless Legs Syndrome
1 year ago
ropinerole withdrawal
I have had restless legs for most of my life. The restless legs are out of control now so my GP put me on ropinerole 4 mg a day to begin with and them upped it 8 mg a day. That’s making me have funny feelings, like I’m buzzed or high but I’m not. So I went to a neurologist and he has started taking me
I have had restless legs for most of my life. The restless legs are out of control now so my GP put me on ropinerole 4 mg a day to begin with and them upped it 8 mg a day. That’s making me have funny feelings, like I’m buzzed or high but I’m not. So I went to a neurologist and he has started taking me
wyomingquilter
in
Restless Legs Syndrome
1 year ago
Attitudes to people using opiates
We all have a back story. I know nobody wishes to be thought of as a drug addict. But there may be members with RLS who are recovering drug addicts, or alcoholics trying to get their lives back on track, and needing support from this forum. Its a sensitive are. I hope I haven't offended or upset anyone
We all have a back story. I know nobody wishes to be thought of as a drug addict. But there may be members with RLS who are recovering drug addicts, or alcoholics trying to get their lives back on track, and needing support from this forum. Its a sensitive are. I hope I haven't offended or upset anyone
pennygates
in
Restless Legs Syndrome
1 year ago
Opioid prejudice at the pharmacy
I wonder if other HU members have experienced hostile treatment from the pharmacy, while collecting their opioid medication?At my local chemist, there are a few members of staff who are rude and hostile towards patients who are prescribed opiates. I pick up my prescription every month. When I go in
I wonder if other HU members have experienced hostile treatment from the pharmacy, while collecting their opioid medication?At my local chemist, there are a few members of staff who are rude and hostile towards patients who are prescribed opiates. I pick up my prescription every month. When I go in
pennygates
in
Restless Legs Syndrome
1 year ago
Interesting Tx for OIC
Sorry about the abbreviations. If you have Opioid-Induced Constipation (OIC) you might be interested in this little story. Tx means Treatment. I am currently on low-dose opioid for RLS--buprenorphine, but previously methadone--and I suffer from OIC. I have been taking a variety of laxatives
Sorry about the abbreviations. If you have Opioid-Induced Constipation (OIC) you might be interested in this little story. Tx means Treatment. I am currently on low-dose opioid for RLS--buprenorphine, but previously methadone--and I suffer from OIC. I have been taking a variety of laxatives
Doctorplacebo
in
Restless Legs Syndrome
1 year ago
Restless Legs and Sleeping Tablets?
Tried the usual meds, Ropinirole, Amtriphyline, Pregabalin and Gabapentin - all useless. Having to stop one and gradually increase of the other has been tortuous. Hell. My mental health is suffering with the nightly and now early evening frequent, wired, compulsive urge to move. Also affecting my arm
Tried the usual meds, Ropinirole, Amtriphyline, Pregabalin and Gabapentin - all useless. Having to stop one and gradually increase of the other has been tortuous. Hell. My mental health is suffering with the nightly and now early evening frequent, wired, compulsive urge to move. Also affecting my arm
Springfiel1
in
Restless Legs Syndrome
1 year ago
HELP, PLEASE??!!
I just had a total knee replacement. For 3 years now buprenorphine has helped, but today I took hydromorphone for pain that my surgeon prescribed, Nexium that my family doctor recommended to take to keep the aspirin I have to take postop to keep from getting ulcers, and cyclobenzaprine. Unfortunately
I just had a total knee replacement. For 3 years now buprenorphine has helped, but today I took hydromorphone for pain that my surgeon prescribed, Nexium that my family doctor recommended to take to keep the aspirin I have to take postop to keep from getting ulcers, and cyclobenzaprine. Unfortunately
LanaCSR
in
Restless Legs Syndrome
1 year ago
Augmentation
Hi all , Im slowly weaning off Ropinirole and it has been hell with lots of sleepless nights , I even fell asleep walking and fell , bruising all my back .Im down to 1mg now from 6mg taking the immediate release. Last night my legs were fine until I took my tablet at 20.00 and by 20.15 they were going
Hi all , Im slowly weaning off Ropinirole and it has been hell with lots of sleepless nights , I even fell asleep walking and fell , bruising all my back .Im down to 1mg now from 6mg taking the immediate release. Last night my legs were fine until I took my tablet at 20.00 and by 20.15 they were going
Huntingleroy
in
Restless Legs Syndrome
1 year ago
Opioid induced loss of appetite
I'm currently taking Buprenorphine, but it seems to be causing a major loss of my appetite. Does anyone know if either Suboxone or Methadone are better in regard to appetite suppression? I can't tell you how important you all are to all of us trying to deal with titration off of these terrible DA's
I'm currently taking Buprenorphine, but it seems to be causing a major loss of my appetite. Does anyone know if either Suboxone or Methadone are better in regard to appetite suppression? I can't tell you how important you all are to all of us trying to deal with titration off of these terrible DA's
climber54
in
Restless Legs Syndrome
1 year ago
I don't actually know what to do now.
I spoke to my GP this afternoon as I'm really struggling with what I believe is severe augmentation. I'm on pramipexole 2 tablets and 2 x 30/500g cocodamol each evening and have been taking cocodamol for years. The pramipexole was introduced last year as my GP ideally wanted me to stop taking the cocodamol
I spoke to my GP this afternoon as I'm really struggling with what I believe is severe augmentation. I'm on pramipexole 2 tablets and 2 x 30/500g cocodamol each evening and have been taking cocodamol for years. The pramipexole was introduced last year as my GP ideally wanted me to stop taking the cocodamol
MillieBerlin
in
Restless Legs Syndrome
1 year ago
Hi, I'm New - and so sick of RLS!
Hello Everyone, I've been lurking off and on but have not posted until today. I'm really glad to have found this group and am thankful to see so much information. I've been dealing with rls for years. I'm 57 and have been on ropinirole for over 10 years now. I started out on 2mg and for the last
Hello Everyone, I've been lurking off and on but have not posted until today. I'm really glad to have found this group and am thankful to see so much information. I've been dealing with rls for years. I'm 57 and have been on ropinirole for over 10 years now. I started out on 2mg and for the last
Moonmyst
in
Restless Legs Syndrome
1 year ago
morphine alternative- any thoughts?
had a review with my GP and mentioned that I am still waking up around 2am with RLS, albeit more manageable than before. She gave me prescription for 'MORPHINE 5MG MODIFIED-RELEASE TABLETS' and said to give this a try to get me through the night. Anybody tried these and are they going to cause me issues
had a review with my GP and mentioned that I am still waking up around 2am with RLS, albeit more manageable than before. She gave me prescription for 'MORPHINE 5MG MODIFIED-RELEASE TABLETS' and said to give this a try to get me through the night. Anybody tried these and are they going to cause me issues
Phantom38
in
Restless Legs Syndrome
1 year ago
Sore tongue
Hi folks, is a sore tongue part of UCTD? I've had sore patches (which grow and change shape, and are smooth in the middle) for some years, more on than off. I've assumed it is geographic tongue but that's supposed to be painless from what I've read. I also have a moderately dry mouth and wondering
Hi folks, is a sore tongue part of UCTD? I've had sore patches (which grow and change shape, and are smooth in the middle) for some years, more on than off. I've assumed it is geographic tongue but that's supposed to be painless from what I've read. I also have a moderately dry mouth and wondering
redmaggie
in
LUPUS UK
1 year ago
Starting pregabalin
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
I have received a letter from Leicester hospital following my consultation with a neurology Registrar. I am on 1100mg of Gabapentin suggested dose of Pregabalin is 75mg at 6.00pm and 75mg 30 minutes before bedtime, can be uptitrated as required. Does this sound right? I have zero confidence in registrar
Elsie77
in
Restless Legs Syndrome
1 year ago
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