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AV (atrioventricular) node ablation
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Mini maze update.
Apologies I know I promised to post updates and haven't. I had my mini maze surgery back in September with the wonderful Mr Hunter on the NHS. I've been in NSR ever since which is amazing as I had moved to persistant Afib and I felt pretty awful all the time before surgery. I am soooo grateful to Mr
Apologies I know I promised to post updates and haven't. I had my mini maze surgery back in September with the wonderful Mr Hunter on the NHS. I've been in NSR ever since which is amazing as I had moved to persistant Afib and I felt pretty awful all the time before surgery. I am soooo grateful to Mr
waveylines
in
Atrial Fibrillation Support
9 months ago
AV Node ablation and still being in AF
heart also has sinus pauses and bradycardia I am very scared tearful about
AV
node
ablation
even though I think I will feel a bit better However I would like to know if damage still be done to the heart Thank you all
heart also has sinus pauses and bradycardia I am very scared tearful about
AV
node
ablation
even though I think I will feel a bit better However I would like to know if damage still be done to the heart Thank you all
SMwils
in
Atrial Fibrillation Support
2 years ago
Greetings from an AF sufferer.
Hello all, Firstly I just wanted to introduce myself as this is the first time that I have been on the site, secondly I wanted to share my experiences of AF with you all and see if anyone has had similar issues. Many years ago when I was 18 (Now 39) I suffered my first bout of what I now know to
Hello all, Firstly I just wanted to introduce myself as this is the first time that I have been on the site, secondly I wanted to share my experiences of AF with you all and see if anyone has had similar issues. Many years ago when I was 18 (Now 39) I suffered my first bout of what I now know to
__Ollie__
in
AF Association
9 months ago
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Greetings from an AF sufferer.
Hello all, Firstly I just wanted to introduce myself as this is the first time that I have been on the site, secondly I wanted to share my experiences of AF with you all and see if anyone has had similar issues. Many years ago when I was 18 (Now 39) I suffered my first bout of what I now know to
Hello all, Firstly I just wanted to introduce myself as this is the first time that I have been on the site, secondly I wanted to share my experiences of AF with you all and see if anyone has had similar issues. Many years ago when I was 18 (Now 39) I suffered my first bout of what I now know to
__Ollie__
in
British Heart Foundation
9 months ago
Pacemakers
I'm a hand-cycling Paraplegic, about to have a Pacemaker fitted followed by an
AV
Node
Ablation
and interested to hear from any other paraplegic about how they handled the minimum movement of left arm / left pectoral during the 4 to 6 week settling in period for the leads, prior to the ablation
I'm a hand-cycling Paraplegic, about to have a Pacemaker fitted followed by an
AV
Node
Ablation
and interested to hear from any other paraplegic about how they handled the minimum movement of left arm / left pectoral during the 4 to 6 week settling in period for the leads, prior to the ablation
Mudzviti
in
Men's Health Forum
2 years ago
Failed Endometrial Ablation: Prostap
Hi folks, Here goes, I had an ablation done but I’ve never had endometriosis - long story - it’s failed and I’m due to have the Prostap injection. I’m worried about weight gain a developing hashimoto’s, I’m paralysed and osteoporosis is also a worry. I’m very high risk for hysterectomy surgery, so
Hi folks, Here goes, I had an ablation done but I’ve never had endometriosis - long story - it’s failed and I’m due to have the Prostap injection. I’m worried about weight gain a developing hashimoto’s, I’m paralysed and osteoporosis is also a worry. I’m very high risk for hysterectomy surgery, so
Chingri2021
in
Endometriosis UK
9 months ago
Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Is there any order to when new medications or PARP inhibitor are tried?
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
Shorehousejam
in
Fight Prostate Cancer
9 months ago
Question, each month with rising PSA, when do I do a pet scan
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Exercise capability after AV node ablation
Why am I unable to obtain a heartbeat of more than 80 BPM.I become very tired and presumed my heartbeat would be about 140 BPM!
Why am I unable to obtain a heartbeat of more than 80 BPM.I become very tired and presumed my heartbeat would be about 140 BPM!
Pingpong21
in
AF Association
2 years ago
Atrioesophageal fistula (AEF)
Heads up to those undergoing cardiac ablation for Afib…had my ablation 12/6/23. Everything went great! Been in normal rhythm ever since! No bleeding, no hematoma, no real discomfort. However I woke up to abdominal pain, pain between shoulder blades and sore throat. 3 nights post op woke up to a burning
Heads up to those undergoing cardiac ablation for Afib…had my ablation 12/6/23. Everything went great! Been in normal rhythm ever since! No bleeding, no hematoma, no real discomfort. However I woke up to abdominal pain, pain between shoulder blades and sore throat. 3 nights post op woke up to a burning
Acheybreakeyheart
in
Atrial Fibrillation Support
10 months ago
Af episode since Wednesday 5.am
diagnosed AF? Af since 2010. AF 3 cardiac ablation and a period of past year on daily dose of flexanid 50 mg. X2 per day . An Bisolproli 1.25 per day was working well with the occasional breakthrough .this episode feels different as although it started at 125 bpm it now between. 90-80but still
diagnosed AF? Af since 2010. AF 3 cardiac ablation and a period of past year on daily dose of flexanid 50 mg. X2 per day . An Bisolproli 1.25 per day was working well with the occasional breakthrough .this episode feels different as although it started at 125 bpm it now between. 90-80but still
judybrowneyes
in
Atrial Fibrillation Support
10 months ago
Proposed ablation next week. 48 Yr old. PAF
Hi all, I have been on waiting list for a catheter ablation for over a year. They called me today and offered an ablation next week at a private hospital instead. Has taken me a bit by surprise to be honest. My AF is paroxysmal and generally very tolerable. I'm 48 so not sure if I should go ahead with
Hi all, I have been on waiting list for a catheter ablation for over a year. They called me today and offered an ablation next week at a private hospital instead. Has taken me a bit by surprise to be honest. My AF is paroxysmal and generally very tolerable. I'm 48 so not sure if I should go ahead with
JLONDON
in
AF Association
10 months ago
Adenomyosis, should I have hysterectomy?
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
mavenmi
in
Endometriosis UK
10 months ago
My First Pacemaker Followup
Today was my first real follow up with my EP since the fitting of my pacemaker and
AV
node
ablation
done on February 13 and 27th. I have not been feeling 100% although much much better than before all of this.
Today was my first real follow up with my EP since the fitting of my pacemaker and
AV
node
ablation
done on February 13 and 27th. I have not been feeling 100% although much much better than before all of this.
DawnTX
in
Atrial Fibrillation Support
1 year ago
Groin pain from catheter ablation
Harefield hospital carried out an ablation for AF and flutter Jan 2023. There was a black area of my groin/thigh that was black. Since the operation I get a dull inner pain in my thigh going down my leg a few inches. This problem / annoyance does not effect my activities and I am only aware of it when
Harefield hospital carried out an ablation for AF and flutter Jan 2023. There was a black area of my groin/thigh that was black. Since the operation I get a dull inner pain in my thigh going down my leg a few inches. This problem / annoyance does not effect my activities and I am only aware of it when
leg-end-1
in
British Heart Foundation
10 months ago
Should I have a hysterectomy?
The short version is that I have adenomyosis, but it is well enough managed on zoladex/Tibolone that I'm not having any significant pain and not bleeding enough that it is a problem, but I do have lots of more minor issues and my consultant thinks a hysterectomy would be better. I've got the op booked
The short version is that I have adenomyosis, but it is well enough managed on zoladex/Tibolone that I'm not having any significant pain and not bleeding enough that it is a problem, but I do have lots of more minor issues and my consultant thinks a hysterectomy would be better. I've got the op booked
mavenmi
in
Menopause and Perimenopause Support
10 months ago
Palpitations worse after ablation
Good evening everyone, I’m really struggling after my catheter ablation 10 days ago. The palpitations and ectopics I’m experiencing are awful. So different to the palpitations I was having before my ablation. They are very erratic. I have Dilated Cardiomyopathy and AVNRT. I know it’s early days
Good evening everyone, I’m really struggling after my catheter ablation 10 days ago. The palpitations and ectopics I’m experiencing are awful. So different to the palpitations I was having before my ablation. They are very erratic. I have Dilated Cardiomyopathy and AVNRT. I know it’s early days
Carolx
in
AF Association
10 months ago
6 months AF free
6months today since my hybrid mini maze., at Sheffield Northern General. Mostly good with a few bumps in the road. When I’m feeling frustrated/frightened if my heart starts to bounce, I try to remind myself that I’m ok. Kardia nearly always says nsr, only twice in 6 months said unclassified and never
6months today since my hybrid mini maze., at Sheffield Northern General. Mostly good with a few bumps in the road. When I’m feeling frustrated/frightened if my heart starts to bounce, I try to remind myself that I’m ok. Kardia nearly always says nsr, only twice in 6 months said unclassified and never
4chickens
in
Atrial Fibrillation Support
11 months ago
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