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mpal leukaemia
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
su0906
in
Leukaemia Support
3 years ago
I’m here to help and support
Hi everyone! I’m a live kidney transplant recipient - on Valentine’s Day 2019. Glad to help anyone who would like general information or suggestions on finding a live donor or have questions about my transplant procedure, recovery, etc.
Hi everyone! I’m a live kidney transplant recipient - on Valentine’s Day 2019. Glad to help anyone who would like general information or suggestions on finding a live donor or have questions about my transplant procedure, recovery, etc.
NKFcommunity
in
Finding a Living Donor: From Home
3 years ago
Good news for those suffering from heart failure, you CAN recover, I DID, thanks God.
First sorry for long post but it could be really helpful to those with heart failure. Nov 2019 ejection fraction at 15% , Mitral valve regurgitations (means not even pumping the 15% out correctly!), Got steadily worse, movement severely restricted, 80-year-old man fitter than me..and i was very fit
First sorry for long post but it could be really helpful to those with heart failure. Nov 2019 ejection fraction at 15% , Mitral valve regurgitations (means not even pumping the 15% out correctly!), Got steadily worse, movement severely restricted, 80-year-old man fitter than me..and i was very fit
hf54
in
British Heart Foundation
3 years ago
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“I think we’ll cure leukemia in my lifetime”
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
Manouche
in
MPN Voice
3 years ago
Liver + Kidney Transplant + Nephrectomy is Terrifying
I have learned that I am most likely facing a liver and kidney transplant in the very near future due to my PKD. This will include a nephrectomy. This surgery is rather terrifying to me as it is so huge. Has anyone had experience with this same surgery?
I have learned that I am most likely facing a liver and kidney transplant in the very near future due to my PKD. This will include a nephrectomy. This surgery is rather terrifying to me as it is so huge. Has anyone had experience with this same surgery?
BeachLove
in
Kidney Transplant
3 years ago
Lung transplant list
So today I learned my lung transplant journey has come to an end. My body has failed me whilst my mind is still breakdancing. An osteoporotic fracture in my spine is one risk too many for me to receive the gift of new lungs - it was going to be an already high risk operation due to my many complications
So today I learned my lung transplant journey has come to an end. My body has failed me whilst my mind is still breakdancing. An osteoporotic fracture in my spine is one risk too many for me to receive the gift of new lungs - it was going to be an already high risk operation due to my many complications
Joseph260268
in
Lung Conditions Community Forum
3 years ago
THINING SKIN AFTER KIDNEY TRANSPLANT
I have extremely thin skin since my transplant 17 months ago. I am still on high dosages of cellcept due to rejection issues. My arms, in particular, bruise very easily. Just scratching my arms will leave red marks that take weeks to disappear. I use Cera Ve moisturizer 2x a day and Eucerin Moisturizer
I have extremely thin skin since my transplant 17 months ago. I am still on high dosages of cellcept due to rejection issues. My arms, in particular, bruise very easily. Just scratching my arms will leave red marks that take weeks to disappear. I use Cera Ve moisturizer 2x a day and Eucerin Moisturizer
Norken
in
Kidney Transplant
3 years ago
So I had a kidney pancreas transplant nearly 4 yearsago. I had various problems.....
Has anybody rlse have BK virus endless urine infections high creatinine dehydration kidney biopsies and the list goes on.........
Has anybody rlse have BK virus endless urine infections high creatinine dehydration kidney biopsies and the list goes on.........
Lillybash1
in
Kidney Transplant
3 years ago
Does anyone with a kidney transplant ride a motorcycle? If so do you wear anything special to protect your new kidney? How long did you wait
Riding motorcycle
Riding motorcycle
KWT65
in
Kidney Transplant
3 years ago
My brothers kidney transplant
Hello everyone, I’m Steve and new here, I joined this community because my brother has some serious health problems with his kidney and is in need of a transplant, I wish to interact with people who with similar conditions to better understand how to overcome this both medically and emotionally... thanks
Hello everyone, I’m Steve and new here, I joined this community because my brother has some serious health problems with his kidney and is in need of a transplant, I wish to interact with people who with similar conditions to better understand how to overcome this both medically and emotionally... thanks
Lordsteve
in
Lung Conditions Community Forum
3 years ago
Which vaccine have you received and how did that go??
Does your transplant center recommend a certain vaccine like Moderna, Pfizer or Johnson Johnson?? Which one would be the best for kidney transplant or all the same?
Does your transplant center recommend a certain vaccine like Moderna, Pfizer or Johnson Johnson?? Which one would be the best for kidney transplant or all the same?
Dna4christ
in
Kidney Transplant
3 years ago
COVID-19 Patient Receives Lung Transplant From Living Donors
https://time.com/5953534/covid19-lung-transplant/?utm_medium=email&utm_source=sfmc&utm_campaign=newsletter+health-friday+default+ac&utm_content=+++20210409+++body&et_rid=33540339 Ken
https://time.com/5953534/covid19-lung-transplant/?utm_medium=email&utm_source=sfmc&utm_campaign=newsletter+health-friday+default+ac&utm_content=+++20210409+++body&et_rid=33540339 Ken
Elpojohn
in
Lung Conditions Community Forum
3 years ago
Oxygen and Holidays
Hi, I know it’s possible to have a concentrator delivered to a holiday cottage. Can you tell me whether it is sometimes a problem with the cottage owners. I’m on the lung transplant list, but at the moment none are being done. I heard yesterday that it will be at least 2 months, until transplants are
Hi, I know it’s possible to have a concentrator delivered to a holiday cottage. Can you tell me whether it is sometimes a problem with the cottage owners. I’m on the lung transplant list, but at the moment none are being done. I heard yesterday that it will be at least 2 months, until transplants are
mary1956
in
Lung Conditions Community Forum
3 years ago
COVID-19 patient receives lung transplant from living donors.
Doctors in Japan announced Thursday they have successfully performed the world’s first transplant of lung tissue from living donors to a patient with severe lung damage from COVID-19. The recipient, identified only as a woman from Japan’s western region of Kansai, is recovering after the nearly 11-hour
Doctors in Japan announced Thursday they have successfully performed the world’s first transplant of lung tissue from living donors to a patient with severe lung damage from COVID-19. The recipient, identified only as a woman from Japan’s western region of Kansai, is recovering after the nearly 11-hour
2greys
in
Lung Conditions Community Forum
3 years ago
Dangers of drinking alcohol with a kidney transplant ?
What are peoples experiences with drinking alcohol ? My son is 21 and doing very well 9 months post kidney transplant. I know he will feel peer pressure to perhaps imbibe on occasion. What are the dangers? I am worried he will make a bad decision and not much I can do about it.
What are peoples experiences with drinking alcohol ? My son is 21 and doing very well 9 months post kidney transplant. I know he will feel peer pressure to perhaps imbibe on occasion. What are the dangers? I am worried he will make a bad decision and not much I can do about it.
Qdog
in
Kidney Transplant
3 years ago
Kidney Recipients
HI. I'm looking to chat with people who have had kidney transplants to find out about what it was like from pre-op to surgery to recovery to life after transplant. Thanks.
HI. I'm looking to chat with people who have had kidney transplants to find out about what it was like from pre-op to surgery to recovery to life after transplant. Thanks.
Hidden
in
Kidney Transplant
3 years ago
The Rice Diet Revisited- Who & what drove Dr. Kempner to invent the Rice Diet!
Dr Walter Kempner ( 1903-1997) was Nazi Refugee in Germany during world war-2, who taught in Dukes University. During 1939, he was treating his hypertension Patients with Kidney failure. Those days there was no kidney transplant , no dialysis....and the patients those days knew that the final outcome
Dr Walter Kempner ( 1903-1997) was Nazi Refugee in Germany during world war-2, who taught in Dukes University. During 1939, he was treating his hypertension Patients with Kidney failure. Those days there was no kidney transplant , no dialysis....and the patients those days knew that the final outcome
namaha
Administrator
in
Diabetes India
3 years ago
Struggling with ectopics and enlarged left ventricle
Hello, I am new to this group. I am feeling very nervous and worried as I have been struggling for sometime with ectopic beats, now been told my left ventricle is enlarged as is my heart. Hoping medication will improve things, otherwise I will be placed on the heart transplant list. I am 48 and had surgery
Hello, I am new to this group. I am feeling very nervous and worried as I have been struggling for sometime with ectopic beats, now been told my left ventricle is enlarged as is my heart. Hoping medication will improve things, otherwise I will be placed on the heart transplant list. I am 48 and had surgery
andrea_waffle7
in
British Heart Foundation
3 years ago
Hepatic encephalopathy
My dad has decompensated liver disease and is awaiting a liver transplant. He is currently in hospital due to a serious gallbladder infection and internal bleeds. He has acities and had an abdominal tap placed Saturday. The medical team appear pleased that there is some progress with this. Today we
My dad has decompensated liver disease and is awaiting a liver transplant. He is currently in hospital due to a serious gallbladder infection and internal bleeds. He has acities and had an abdominal tap placed Saturday. The medical team appear pleased that there is some progress with this. Today we
HH21
in
British Liver Trust
3 years ago
What Immunocompromised People Should Know About the CDC Recommendations for Fully Vaccinated People
It may not be time to ease up on your COVID-19 mitigation efforts quite yet. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Guidelines for Fully Vaccinated Immunocompromised People Tatiana Ayazo The U.S. Centers for Disease Control and
It may not be time to ease up on your COVID-19 mitigation efforts quite yet. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Guidelines for Fully Vaccinated Immunocompromised People Tatiana Ayazo The U.S. Centers for Disease Control and
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
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