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Atrial myxoma
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living emotionally and mentally with afib
I am 82 and have had paroxysmal afib for2+ yrs. I have always been terrified by an attack or waiting for one. They gradually increased to the point that I had cryoablation last September. That helped in that they are more mild and less common. Lately they have been increasing in frequency so I am
I am 82 and have had paroxysmal afib for2+ yrs. I have always been terrified by an attack or waiting for one. They gradually increased to the point that I had cryoablation last September. That helped in that they are more mild and less common. Lately they have been increasing in frequency so I am
Geeps527
in
AF Association
1 year ago
Afib and bradicardia
Thanks for much for everyone's help on the low heart rate. Yesterday I was Rushed to hospital by ambulance because my heart rate was so low I'm still in hospital now on a ECG machine and it keeps going really low and it's super high and all the alarms going up.
Thanks for much for everyone's help on the low heart rate. Yesterday I was Rushed to hospital by ambulance because my heart rate was so low I'm still in hospital now on a ECG machine and it keeps going really low and it's super high and all the alarms going up.
Corrie12
in
AF Association
1 year ago
Afib and Bradycardia
Thank you all for you help on my last post I've had my medication dropped to 3.75 I'm having the ecg fitted Saturday for 3 to 4 days and seeing cardiologist on the 17th
Thank you all for you help on my last post I've had my medication dropped to 3.75 I'm having the ecg fitted Saturday for 3 to 4 days and seeing cardiologist on the 17th
Corrie12
in
AF Association
1 year ago
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Facebook message received anyone heard Of this group
Facebook in my inbox -message requesting invitation to join trials for Potential new treatment. It reads Adults with diagnosis of Afib with High blood pressure, heart attack, stroke, diabetes may be able to take part in a clinical trials rearching new treatment. From panaceapatientrecruitment- panaceapatientrecruitment.com
Facebook in my inbox -message requesting invitation to join trials for Potential new treatment. It reads Adults with diagnosis of Afib with High blood pressure, heart attack, stroke, diabetes may be able to take part in a clinical trials rearching new treatment. From panaceapatientrecruitment- panaceapatientrecruitment.com
Tryfan
in
AF Association
1 year ago
pvc burden increasing
Dear all some advice please I had a cryo ablation three years ago and really good result. In the last few months I am having lots of ectopic beats. Makes me uncomfortable and now dizzy. 7 day monitoring days pvc’s. ECG doesn’t usually capture them. Gp write to cardiology and they said go back on Verapamil
Dear all some advice please I had a cryo ablation three years ago and really good result. In the last few months I am having lots of ectopic beats. Makes me uncomfortable and now dizzy. 7 day monitoring days pvc’s. ECG doesn’t usually capture them. Gp write to cardiology and they said go back on Verapamil
7164
in
AF Association
1 year ago
Afib and bradcardia
I was diagnosed with afib just over a month ago but I'm still having a lot of issues I'm having a portable ECG fitted on Saturday then two weeks later I'm seeing the cardiologist team I'm having problems not only with my heart rate going super high, andcontinuously all throughout the day going down
I was diagnosed with afib just over a month ago but I'm still having a lot of issues I'm having a portable ECG fitted on Saturday then two weeks later I'm seeing the cardiologist team I'm having problems not only with my heart rate going super high, andcontinuously all throughout the day going down
Corrie12
in
AF Association
1 year ago
Clinical trial for Mesothelioma patients
This is a stage 1 trial for patients who have Mesothelioma with a pleural effusion. If interested the contact details are below. The trial is an option for mesothelioma patients who have failed first-line treatment and have an IPC. MITOPE is available at Guy's Hospital, University of Leicester,
This is a stage 1 trial for patients who have Mesothelioma with a pleural effusion. If interested the contact details are below. The trial is an option for mesothelioma patients who have failed first-line treatment and have an IPC. MITOPE is available at Guy's Hospital, University of Leicester,
RoyCastleHelpline
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 year ago
Change of medication
Had AF for years well controlled on Flecainide New arrhythmic developed so Must stop Flec & start Digoxin. Has anyone experience of this please. I take Bisoprolol which has been increased to 5mg am & pm. Am apprehensive as have been stable for a long time. Would appreciate help. Thanks ☺️
Had AF for years well controlled on Flecainide New arrhythmic developed so Must stop Flec & start Digoxin. Has anyone experience of this please. I take Bisoprolol which has been increased to 5mg am & pm. Am apprehensive as have been stable for a long time. Would appreciate help. Thanks ☺️
Koladog
in
Atrial Fibrillation Support
1 year ago
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Will I be offered surgery?
Hi All, I have HGSOC stage 1V and when I was diagnosed just over two years ago my abdominal tumour was 15cm x 11cm with a side mass of 4cm. I had spread to the lymph nodes in my neck and chest which have now gone. After two years of chemo the tumours had reduced but are now back to square one. I was
Hi All, I have HGSOC stage 1V and when I was diagnosed just over two years ago my abdominal tumour was 15cm x 11cm with a side mass of 4cm. I had spread to the lymph nodes in my neck and chest which have now gone. After two years of chemo the tumours had reduced but are now back to square one. I was
Guilane
in
My Ovacome
1 year ago
Calquence / acalabrutinib and Brukinsa / zanubrutinib Adverse Event Comparison for Chronic Lymphocytic Leukaemia / CLL from clinical trials
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
AussieNeil
Partner
in
CLL Support
1 year ago
BIOMARKER TESTING
My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I want to get options if her current immunotherapy (atezolizumab every three weeks) becomes ineffective. There are several chemotherapy options
My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I want to get options if her current immunotherapy (atezolizumab every three weeks) becomes ineffective. There are several chemotherapy options
Info911
in
The Roy Castle Lung Cancer Foundation
1 year ago
eye stroke or retinal artery occlusion ; any experiences
3 am, I go blind in my right eye for and hour. Next day see eye dr, he calls cardio,2nd day see primary dr,3rd day see cardio- mri, ct scan, echo, tee scan. results leaking Watchman, Patent Foramen Ovale (PFO) from ablations; end results back on Xarelto( " put the watchman in and never take blood thinners
3 am, I go blind in my right eye for and hour. Next day see eye dr, he calls cardio,2nd day see primary dr,3rd day see cardio- mri, ct scan, echo, tee scan. results leaking Watchman, Patent Foramen Ovale (PFO) from ablations; end results back on Xarelto( " put the watchman in and never take blood thinners
champdoberman
in
AF Association
1 year ago
Atrial Fibrillation in Athletes
Athletes with Atrial Fibrillation, or who are worried about developing it, may be interested in this vid (just out) where two very fit cyclists visited Glenfield Hospital in Leicester (where the British Heart Foundation have a MRI Facility) and get tested. There is then a good discussion on Atrial Fibrillation
Athletes with Atrial Fibrillation, or who are worried about developing it, may be interested in this vid (just out) where two very fit cyclists visited Glenfield Hospital in Leicester (where the British Heart Foundation have a MRI Facility) and get tested. There is then a good discussion on Atrial Fibrillation
elmbury
in
AF Association
1 year ago
The 2023 update of "Parkinson’s Disease Drug Therapies in the Clinical Trial Pipeline" is now available.
For those unfamiliar with this annual report, a good place to start might be Fig. 2 in the RESULTS section (a colour-coded diagram). https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd239901
For those unfamiliar with this annual report, a good place to start might be Fig. 2 in the RESULTS section (a colour-coded diagram). https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd239901
jeffreyn
in
Cure Parkinson's
1 year ago
Where do I go from here?
Hi lovely ladies. Ok, so, diagnosed April 2021 Stage 1V HGSOC with spread to lymph nodes in neck and chest. No option of surgery because of spread. 6 rounds of Paclitaxel/Carboplatin. Reduction in tumour. Straight on to Avastin plus Olaparib (HRD negative). No more cancer in lymph nodes but slight progression
Hi lovely ladies. Ok, so, diagnosed April 2021 Stage 1V HGSOC with spread to lymph nodes in neck and chest. No option of surgery because of spread. 6 rounds of Paclitaxel/Carboplatin. Reduction in tumour. Straight on to Avastin plus Olaparib (HRD negative). No more cancer in lymph nodes but slight progression
Guilane
in
My Ovacome
1 year ago
A Correction
A few weeks ago I mentioned that Dr Ohtsuka will be a panellist in an online (Zoom) discussion about AFib and the mini-maze procedure. The WO-MM (Wolf-Ohtsuka Mini Maze) is an adaptation of the Wolf Mini Mazem as performed at the NewHeart Watanabe hospital in Tokyo. Dr Wolf, who is a surgeon at Debakey
A few weeks ago I mentioned that Dr Ohtsuka will be a panellist in an online (Zoom) discussion about AFib and the mini-maze procedure. The WO-MM (Wolf-Ohtsuka Mini Maze) is an adaptation of the Wolf Mini Mazem as performed at the NewHeart Watanabe hospital in Tokyo. Dr Wolf, who is a surgeon at Debakey
saulger
in
AF Association
1 year ago
Clinical Trials
Hello Just wondering if anyone has considered clinical trials? I volunteered for this one vhttps://bepartofresearch.nihr.ac.uk/trial-details/trial-detail?trialId=31552&location=&distance= One more visit then back in a year's time to repeat again, the information is on the MSA webpage. Truthfully
Hello Just wondering if anyone has considered clinical trials? I volunteered for this one vhttps://bepartofresearch.nihr.ac.uk/trial-details/trial-detail?trialId=31552&location=&distance= One more visit then back in a year's time to repeat again, the information is on the MSA webpage. Truthfully
esj20
in
Multiple System Atrophy Trust
1 year ago
Slow irregular heartbeat?
Was diagnosed with arrhythmia last autumn, currently on edoxaban, flecanide and bisoprolol. About 20 hours ago my heart started beating irregularly, it is still slow (about 50 bpm) and seems to be missing a beat every 3/4 beats. NHS111 yesterday advised going to A&E where they did ECG and blood
Was diagnosed with arrhythmia last autumn, currently on edoxaban, flecanide and bisoprolol. About 20 hours ago my heart started beating irregularly, it is still slow (about 50 bpm) and seems to be missing a beat every 3/4 beats. NHS111 yesterday advised going to A&E where they did ECG and blood
Afib12345
in
AF Association
1 year ago
Phase 3 SONIA Trial Challenges the Routine Practice of Using a 1st Line CDK4/6 Inhibitor in HR+, HER2- MBC
Apologies for the length, but I thought you might find this interesting! from: https://dailynews.ascopubs.org/do/sonia-challenges-need-first-line-use-cdk4-6-inhibitor-hr-positive-her2-negative?utm_source=newsletter&utm_medium=email&utm_campaign=The+OncoAlert+Newsletter+DAY+4+ASCO+2023&cmid=14f595bb-abce
Apologies for the length, but I thought you might find this interesting! from: https://dailynews.ascopubs.org/do/sonia-challenges-need-first-line-use-cdk4-6-inhibitor-hr-positive-her2-negative?utm_source=newsletter&utm_medium=email&utm_campaign=The+OncoAlert+Newsletter+DAY+4+ASCO+2023&cmid=14f595bb-abce
Bestbird
in
SHARE Metastatic Breast Cancer
1 year ago
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