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Light Therapy Trial: Update starting to recruit in March 2024
Below is text from an email I received from PhotoPharmics a company that is testing a light therapy device for Parkinson's Disease. I posted about this trial over a year ago and it is now recruiting (see link below): Light Therapy Trial: Update starting to r... - Cure Parkinson's (healthunlocked.com
Below is text from an email I received from PhotoPharmics a company that is testing a light therapy device for Parkinson's Disease. I posted about this trial over a year ago and it is now recruiting (see link below): Light Therapy Trial: Update starting to r... - Cure Parkinson's (healthunlocked.com
Canddy
in
Cure Parkinson's
3 months ago
Failed first ablation, dilt + Carvedilol= bad orthostatic hypotension, bradycardia, 15-20lb wt gain
First episode of PAF occured 2019 2 mos after wife diagnosed w cancer, my cardiologist thinks not coincidental. (My myasthenia gravis was also dx 2019, but had sx for 3-4yrs) Later, Dec 2022, afib episodes much more frequent, lasting longer when she was worsening despite chemotherapy w terrible side
First episode of PAF occured 2019 2 mos after wife diagnosed w cancer, my cardiologist thinks not coincidental. (My myasthenia gravis was also dx 2019, but had sx for 3-4yrs) Later, Dec 2022, afib episodes much more frequent, lasting longer when she was worsening despite chemotherapy w terrible side
DunwichWilbur
in
AF Association
9 months ago
Should the dose of Dutasteride be increased?
The plot above shows the residual (nadir) level of DHT in men as a function of the daily Dutasteride dose (mg/day). The DHT nadir numbers shown in this plot are: 23.8 pg/mL for 0.5 mg daily dose; 10.2 pg/mL for 2.5 mg daily dose; and 7.3 pg/mL for 5 mg daily dose. Ref: Clark (2004) [see Table
The plot above shows the residual (nadir) level of DHT in men as a function of the daily Dutasteride dose (mg/day). The DHT nadir numbers shown in this plot are: 23.8 pg/mL for 0.5 mg daily dose; 10.2 pg/mL for 2.5 mg daily dose; and 7.3 pg/mL for 5 mg daily dose. Ref: Clark (2004) [see Table
janebob99
in
Advanced Prostate Cancer
3 months ago
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Should the dose of Dutasteride be increased?
The plot above shows the residual (nadir) level of DHT in men as a function of the daily Dutasteride dose (mg/day). The DHT nadir numbers shown in this plot are: 23.8 pg/mL for 0.5 mg daily dose; 10.2 pg/mL for 2.5 mg daily dose; and 7.3 pg/mL for 5 mg daily dose. Ref: Clark (2004) [see Table
The plot above shows the residual (nadir) level of DHT in men as a function of the daily Dutasteride dose (mg/day). The DHT nadir numbers shown in this plot are: 23.8 pg/mL for 0.5 mg daily dose; 10.2 pg/mL for 2.5 mg daily dose; and 7.3 pg/mL for 5 mg daily dose. Ref: Clark (2004) [see Table
janebob99
in
Prostate Cancer Network
3 months ago
medication
I have managed my Atrial Fibrillation since being diagnosed in 2017, but the last month I have had problems with low heart rate 31-40 & then A/F lasting for over 24hours at a time . Cardiologist suggested medication Disopyramide 250mgs twice a day has anyone used this ? He said if this doesn’t work
I have managed my Atrial Fibrillation since being diagnosed in 2017, but the last month I have had problems with low heart rate 31-40 & then A/F lasting for over 24hours at a time . Cardiologist suggested medication Disopyramide 250mgs twice a day has anyone used this ? He said if this doesn’t work
Health2512
in
Atrial Fibrillation Support
9 months ago
Dofetilide
I have afib and hypertrophic cardiomyopathy along with a history of 3 ablations and 7 cardioversions. I recently started taking Dofetilitde after the required 3 day hospital stay. IT is now 10 day later and I still have passing epidodes of afib. I am interested to hear about anyone else on defetilide
I have afib and hypertrophic cardiomyopathy along with a history of 3 ablations and 7 cardioversions. I recently started taking Dofetilitde after the required 3 day hospital stay. IT is now 10 day later and I still have passing epidodes of afib. I am interested to hear about anyone else on defetilide
Xian1
in
Atrial Fibrillation Support
9 months ago
Distended stomach & abdomen after ablation
Bit of a strange one this, so thought I'd ask if anyone else has had a similar experience and a diagnosis. I had my 2nd catheter ablation 4 days ago under Gen Aanaesthetic; the ablation, plus cardioversion, seems to have gone well (allowing for it being very early days) and the groin wound is healing
Bit of a strange one this, so thought I'd ask if anyone else has had a similar experience and a diagnosis. I had my 2nd catheter ablation 4 days ago under Gen Aanaesthetic; the ablation, plus cardioversion, seems to have gone well (allowing for it being very early days) and the groin wound is healing
chrisfellrunner
in
AF Association
9 months ago
Clinical Trial PT 112 ?
I’m writing for my husband who is French (I’m English : we live in France ) He’s 65 and was diagnosed in March 2022 - already metastatic : PSA 36 (previous test 18months before was normal ) Mets in spine and pelvis also liver . Enantone 3 monthly injections and Zytiga to start with. PSA went down
I’m writing for my husband who is French (I’m English : we live in France ) He’s 65 and was diagnosed in March 2022 - already metastatic : PSA 36 (previous test 18months before was normal ) Mets in spine and pelvis also liver . Enantone 3 monthly injections and Zytiga to start with. PSA went down
Enilorac63
in
Advanced Prostate Cancer
3 months ago
Anything new on sabizabulin?
I can't find any current info on clinical trials continuing on this drug. Here's a link about the Phase Ib/II Study of Sabizabulin. Thanks for any info anyone may have. Also posted on Fight Prostate Cancer board.
I can't find any current info on clinical trials continuing on this drug. Here's a link about the Phase Ib/II Study of Sabizabulin. Thanks for any info anyone may have. Also posted on Fight Prostate Cancer board.
SuppWife
in
Advanced Prostate Cancer
3 months ago
Anything new on sabizabulin?
I can't find any current info on clinical trials continuing on this drug. Here's a link about the Phase Ib/II Study of Sabizabulin. Thanks for any info anyone may have.
I can't find any current info on clinical trials continuing on this drug. Here's a link about the Phase Ib/II Study of Sabizabulin. Thanks for any info anyone may have.
SuppWife
in
Fight Prostate Cancer
3 months ago
Differences in Clinical Outcomes Between Hydroxyurea-Resistant and-Intolerant Polycythemia Vera Patients
Differences in Clinical Outcomes Between Hydroxyurea-Resistant and -Intolerant Polycythemia Vera Patients ABSTRACT Background: Previous studies have suggested that patients with polycythemia vera (PV) who exhibit hydroxyurea-resistance (HU-R) and -intolerance (HU-I) may have distinct characteristics
Differences in Clinical Outcomes Between Hydroxyurea-Resistant and -Intolerant Polycythemia Vera Patients ABSTRACT Background: Previous studies have suggested that patients with polycythemia vera (PV) who exhibit hydroxyurea-resistance (HU-R) and -intolerance (HU-I) may have distinct characteristics
PhysAssist
in
MPN Voice
3 months ago
Update on Clinical Trial
I started 2nd line treatment about 9 weeks ago here in Charlotte. It is a clinical trial for ER+, Her2- with pik3ca mutation. Drugs are Inavolisib and Giredestrant (SERD). First scans last week were stable, with tiny bit of shrinkage... cautiously optimistic. Side effects not bad.
I started 2nd line treatment about 9 weeks ago here in Charlotte. It is a clinical trial for ER+, Her2- with pik3ca mutation. Drugs are Inavolisib and Giredestrant (SERD). First scans last week were stable, with tiny bit of shrinkage... cautiously optimistic. Side effects not bad.
Trissh
in
SHARE Metastatic Breast Cancer
3 months ago
Kenai Therapeutics Secures $82M for Parkinson's Cell Therapy, Eyes Clinical Trials
https://bnnbreaking.com/breaking-news/health/kenai-therapeutics-secures-82m-for-parkinsons-cell-therapy-eyes-clinical-trials
https://bnnbreaking.com/breaking-news/health/kenai-therapeutics-secures-82m-for-parkinsons-cell-therapy-eyes-clinical-trials
Farooqji
in
Cure Parkinson's
3 months ago
Clinical Trial
I stumbled across this recent article about a new clinical trial - will be asking about it on our next clinic appointment https://www.clinicaltrialsarena.com/news/amylyx-psp-treatment-trial/ Hopeful that prevention and cure will be found 🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻
I stumbled across this recent article about a new clinical trial - will be asking about it on our next clinic appointment https://www.clinicaltrialsarena.com/news/amylyx-psp-treatment-trial/ Hopeful that prevention and cure will be found 🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻
Bergenser
in
PSP Association
3 months ago
Feasibility of someone from out of USA joining a clinical trial in USA?
My father has Prostate cancer (stage IV) and High Grade Neuro-endocrine cancer / Small Cell Carcinoma in liver. His six doses of Chemotherapy (carboplatin + etoposide) that ended seven weeks earlier. My understanding is that chemotherapy is the established regimen for High Grade NE Cancer/SCC. Are
My father has Prostate cancer (stage IV) and High Grade Neuro-endocrine cancer / Small Cell Carcinoma in liver. His six doses of Chemotherapy (carboplatin + etoposide) that ended seven weeks earlier. My understanding is that chemotherapy is the established regimen for High Grade NE Cancer/SCC. Are
RindaMan
in
Advanced Prostate Cancer
3 months ago
Ambroxol clinical trials.
I have been taking ambroxol 1200 mg/d with some success. There are clinical trials taking place in the UK, but I am not officially involved because I live in the US. My neurologists has no knowledge concerning this drug. Will anyone share with me any news about success or failures with this drug? Thank
I have been taking ambroxol 1200 mg/d with some success. There are clinical trials taking place in the UK, but I am not officially involved because I live in the US. My neurologists has no knowledge concerning this drug. Will anyone share with me any news about success or failures with this drug? Thank
Badmouth
in
Cure Parkinson's
3 months ago
Humidity and AF
Hi all. Here in SW England we’ve had such heavy, humid weather the past few days. Does anyone else struggle with more breathlessness and fatigue in these conditions? I have persistent AFib and normally get a bit puffed, but this seems twice the normal load, Not to mention the havoc it has caused with
Hi all. Here in SW England we’ve had such heavy, humid weather the past few days. Does anyone else struggle with more breathlessness and fatigue in these conditions? I have persistent AFib and normally get a bit puffed, but this seems twice the normal load, Not to mention the havoc it has caused with
Rainfern
in
AF Association
9 months ago
Update on post ablation - day 6
Hi. Well after posting such a positive message to try to cheer up anyone waiting for their first ablation, I came back down to earth with a bump. I felt so well on Wednesday (ablation on Tuesday) that I did everything I felt like doing but at about 01.30, I got a full-blown AF episode which I wasn't
Hi. Well after posting such a positive message to try to cheer up anyone waiting for their first ablation, I came back down to earth with a bump. I felt so well on Wednesday (ablation on Tuesday) that I did everything I felt like doing but at about 01.30, I got a full-blown AF episode which I wasn't
lizzieloo2
in
AF Association
9 months ago
Coast Clinical Trial
Has anyone heard of this CT? Trial number is NCT05036226. ET
Has anyone heard of this CT? Trial number is NCT05036226. ET
Echotango51
in
Advanced Prostate Cancer
3 months ago
Transdermal estrogen/estradiol as monotherapy for Prostate Cancer
Does anyone know of recent studies, clinical trials or Standard of Care (SoC) protocols using or studying estrogen gels, sprays, ointments or patches as hormone therapy for Prostate Cancer, particularly micrometastatic cancer that has not spread beyond the pelvic region? I am in discussions with my
Does anyone know of recent studies, clinical trials or Standard of Care (SoC) protocols using or studying estrogen gels, sprays, ointments or patches as hormone therapy for Prostate Cancer, particularly micrometastatic cancer that has not spread beyond the pelvic region? I am in discussions with my
Lost_Sheep
in
Prostate Cancer Network
3 months ago
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