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I fired my oncologist
Almost a year ago I had radiation and started Lupron, Prednesone, and Abiraterone which immediately brought my PSA and T levels to undetectable. I also enrolled in a clinical trial of an experimental immunotherapy drug SD-101 along with infusions of Keytruda (pembrolizumab). I became extremely depressed
Almost a year ago I had radiation and started Lupron, Prednesone, and Abiraterone which immediately brought my PSA and T levels to undetectable. I also enrolled in a clinical trial of an experimental immunotherapy drug SD-101 along with infusions of Keytruda (pembrolizumab). I became extremely depressed
cageycruz
in
Advanced Prostate Cancer
1 year ago
Inhibikase IkT-148009 Phase 2: the study record on the Clinical Trials website has had a small, but significant, update.
The Estimated Study Completion Date is now January 1, 2025. They have been recruiting for a couple of months. Enrolment activity during that time would have had some influence on the estimation of the new completion date. According to the study record, they are seeking 90 untreated PwPs, with each
The Estimated Study Completion Date is now January 1, 2025. They have been recruiting for a couple of months. Enrolment activity during that time would have had some influence on the estimation of the new completion date. According to the study record, they are seeking 90 untreated PwPs, with each
jeffreyn
in
Cure Parkinson's
1 year ago
ART Vit D and Prostate Cancer (PCa) by Dr Campbell UK Podcast
Dr Campbell, UK, has made a summary of recent investigations and studies on VIT D and its effect on PCa specifically and cancer generally. Of import is his discussiono on the finding on PCa and African Americans; they have a genomic risk factor that leads to more aggressive PCa, BUT respond quickly
Dr Campbell, UK, has made a summary of recent investigations and studies on VIT D and its effect on PCa specifically and cancer generally. Of import is his discussiono on the finding on PCa and African Americans; they have a genomic risk factor that leads to more aggressive PCa, BUT respond quickly
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
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Fecal Microbiota Transplantation (FMT) For PD And Much Much More
While many of us are aware of the potential that FMT has shown for PD, Clostridium difficile (C. diff) and IBS that has not responded to standard therapy, I wrote this to highlight the fact that FMT has shown the potential to also help a multitude of other diseases and health issues that are often seen
While many of us are aware of the potential that FMT has shown for PD, Clostridium difficile (C. diff) and IBS that has not responded to standard therapy, I wrote this to highlight the fact that FMT has shown the potential to also help a multitude of other diseases and health issues that are often seen
chartist
in
Cure Parkinson's
1 year ago
Inhaler causing A Fib
Hi everyone, On Tuesday I had an episode of a fib. It lasted 16 hours. I take metoprolol Succinate Er 25mg. The next day after using one of my inhalers Incruse Ellipta I felt kinda off. My blood pressure was quite high 148/99. The next day the same thing happened. Today I woke up and my BP was still
Hi everyone, On Tuesday I had an episode of a fib. It lasted 16 hours. I take metoprolol Succinate Er 25mg. The next day after using one of my inhalers Incruse Ellipta I felt kinda off. My blood pressure was quite high 148/99. The next day the same thing happened. Today I woke up and my BP was still
Jances13
in
Atrial Fibrillation Support
1 year ago
Suitability for catheter ablation?
Hello I was diagnosed with AF a month ago. When asked, my GP told me that catheter ablation is not really done for Atrial Fibrillation. Since many of you on this forum, and elsewhere, have had a catheter ablation, I wonder whether there were any special circumstances that made the ablation appropriate
Hello I was diagnosed with AF a month ago. When asked, my GP told me that catheter ablation is not really done for Atrial Fibrillation. Since many of you on this forum, and elsewhere, have had a catheter ablation, I wonder whether there were any special circumstances that made the ablation appropriate
seafin
in
AF Association
1 year ago
2nd Opinion.
Hello everyone. As a few of you will know I have done all the treatments possible including Pluvicto which failed. My MO has put me on Jevtana for which I have comepleted 2 treatments so far. After my call today with my doctor it was evident he is losing hope for me ( understood) and he will look
Hello everyone. As a few of you will know I have done all the treatments possible including Pluvicto which failed. My MO has put me on Jevtana for which I have comepleted 2 treatments so far. After my call today with my doctor it was evident he is losing hope for me ( understood) and he will look
db1966
in
Advanced Prostate Cancer
1 year ago
Pulse Field Ablation
Hello Everybody, Persistent AFIB since 10/2022. 74 years. At the moment continuously in NSR post DCCV in January with initiation of Multaq (giving me some symptoms with sinus bradycardia after three week Holter Monitor use - no afib recorded but monitor showed SR/SB with rates 40-100 bpm.). Sometimes
Hello Everybody, Persistent AFIB since 10/2022. 74 years. At the moment continuously in NSR post DCCV in January with initiation of Multaq (giving me some symptoms with sinus bradycardia after three week Holter Monitor use - no afib recorded but monitor showed SR/SB with rates 40-100 bpm.). Sometimes
RVine3
in
AF Association
1 year ago
Micronized Progesterone - Does it do anything?
I started taking HRT a while ago and I felt was all over the place, sometimes on top of the world. sometimes awful - it took me a lot longer than it ought to have done to figure out that in the 2 weeks that I take Oestrogen only I'm amazing, and when I take Utrogestan with Oestrogen I can barely function
I started taking HRT a while ago and I felt was all over the place, sometimes on top of the world. sometimes awful - it took me a lot longer than it ought to have done to figure out that in the 2 weeks that I take Oestrogen only I'm amazing, and when I take Utrogestan with Oestrogen I can barely function
Abra_ka_dabra
in
Menopause and Perimenopause Support
1 year ago
Decision time!
Would be grateful for your views on my afib journey. Was diagnosed last November with paroxysmal afib, 2.6% burden. Burden up to 6% (from 7 day monitor in March). Have reacted badly to both flecainide and bisoprolol - fatigue, faintness, short of breath. Have been advised to have an ablation. However
Would be grateful for your views on my afib journey. Was diagnosed last November with paroxysmal afib, 2.6% burden. Burden up to 6% (from 7 day monitor in March). Have reacted badly to both flecainide and bisoprolol - fatigue, faintness, short of breath. Have been advised to have an ablation. However
Afib12345
in
AF Association
1 year ago
INCA033989 phase 1 clinical trial is recruiting patients
[i]Source: https://www.rarediseaseadvisor.com/news/mf-news-briefs/phase-1-trial-testing-potential-mf-therapy-recruiting/[/i] A new phase 1 clinical trial evaluating the safety, tolerability, and dose limiting toxicity of INCA033989 as a monotherapy or in combination with ruxolitinib in patients with
[i]Source: https://www.rarediseaseadvisor.com/news/mf-news-briefs/phase-1-trial-testing-potential-mf-therapy-recruiting/[/i] A new phase 1 clinical trial evaluating the safety, tolerability, and dose limiting toxicity of INCA033989 as a monotherapy or in combination with ruxolitinib in patients with
flamboyant_hawking
in
MPN Voice
1 year ago
anticoagulant
Good morning all I have probably a silly question I am female age 56 not that fit, should do more exercise. My Apple Watch is set to show any signs of AF It has shown 2% or less week 17-23rd And same week before (I have only just set it up to show this) I had a successful Cardioversion
Good morning all I have probably a silly question I am female age 56 not that fit, should do more exercise. My Apple Watch is set to show any signs of AF It has shown 2% or less week 17-23rd And same week before (I have only just set it up to show this) I had a successful Cardioversion
Mabal
in
AF Association
1 year ago
Treatment Options
Hi, Looking for some help with options presented by my MO. Below are my latest PSA results PSA TOTAL. 0.77. 07/10/2023 PSA TOTAL 0.67. 06/20/2023 PSA TOTAL 0.17. 03/21/2023 PSA TOTAL. 0.38. 12/20/2022 PSA TOTAL. 0.67. 11/15/2022 PSA TOTAL. 0.64. 10/25/2022 Been
Hi, Looking for some help with options presented by my MO. Below are my latest PSA results PSA TOTAL. 0.77. 07/10/2023 PSA TOTAL 0.67. 06/20/2023 PSA TOTAL 0.17. 03/21/2023 PSA TOTAL. 0.38. 12/20/2022 PSA TOTAL. 0.67. 11/15/2022 PSA TOTAL. 0.64. 10/25/2022 Been
Coachmy4
in
Advanced Prostate Cancer
1 year ago
A Drug To Prevent Suicide Associated With BiPolar Depression
Suicidal bipolar depression accounts for 40% of people who try to harm themselves, yet there’s never been an FDA-approved drug for this indication. Every second of every day, someone in the world attempts suicide. NRx Pharmaceuticals is developing a drug for people whose suicidal thoughts stem
Suicidal bipolar depression accounts for 40% of people who try to harm themselves, yet there’s never been an FDA-approved drug for this indication. Every second of every day, someone in the world attempts suicide. NRx Pharmaceuticals is developing a drug for people whose suicidal thoughts stem
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Update on 5th post-ablation
Had my 5th ablation March 31st. Great for 2 weeks and then back into tachycardia with bouts of atypical afib tossed in (Kardia confirmed). Scheduled for a cardioversion May 12. Meanwhile on metoprolol and diltiazem (and anticoagulated of course). Completely idiopathic and hopefully just a blip during
Had my 5th ablation March 31st. Great for 2 weeks and then back into tachycardia with bouts of atypical afib tossed in (Kardia confirmed). Scheduled for a cardioversion May 12. Meanwhile on metoprolol and diltiazem (and anticoagulated of course). Completely idiopathic and hopefully just a blip during
DKBX
in
AF Association
1 year ago
Ablation update
So 8 months on post ablation I am still in permanent AFib but completely symptomless. I am back to sleeping through the night, much reduced anxiety from awaiting the next daily onset of the paroxysmal AFib, I am walking/running 4 miles a day, I have a personal trainer and am in the gym 4 times a week
So 8 months on post ablation I am still in permanent AFib but completely symptomless. I am back to sleeping through the night, much reduced anxiety from awaiting the next daily onset of the paroxysmal AFib, I am walking/running 4 miles a day, I have a personal trainer and am in the gym 4 times a week
Kennyb1968
in
Atrial Fibrillation Support
1 year ago
Heart Rate Variability (HRV) concerns
Hi all I thought I had written and sent this but it seems to have disappeared. if you have read already my apologies. I am post ablation 3 months and doing well but finding that on my Apple Watch 4 (Bob I can see you raising your eyes to the heavens already!) I have a very low HRV of 13 which apparently
Hi all I thought I had written and sent this but it seems to have disappeared. if you have read already my apologies. I am post ablation 3 months and doing well but finding that on my Apple Watch 4 (Bob I can see you raising your eyes to the heavens already!) I have a very low HRV of 13 which apparently
foxglove1
in
Atrial Fibrillation Support
1 year ago
Breakfast then and now
Hi Afibbers. Had to miss a meal yesterday for cardioversion (back in NSR 🤞) hence my mind on breakfast this morning! Seeing as lifestyle change is central to Afib control and cure, I thought it would be interesting to share ideas on our first meal of the day and maybe how this has changed over time,
Hi Afibbers. Had to miss a meal yesterday for cardioversion (back in NSR 🤞) hence my mind on breakfast this morning! Seeing as lifestyle change is central to Afib control and cure, I thought it would be interesting to share ideas on our first meal of the day and maybe how this has changed over time,
Rainfern
in
AF Association
1 year ago
PSA down but mets increasing?
I've been on ADT + Xtandi for about a year (see my Bio for details) and my PSA has been slowly and steadily reducing over that time - now down to 0.05. However, my 3 CT scans (last August, December and last month) are showing a slight increase each time in the size of my lymph node mets and the bone
I've been on ADT + Xtandi for about a year (see my Bio for details) and my PSA has been slowly and steadily reducing over that time - now down to 0.05. However, my 3 CT scans (last August, December and last month) are showing a slight increase each time in the size of my lymph node mets and the bone
Benkaymel
in
Advanced Prostate Cancer
1 year ago
At a crossroads
Greetings All, I have recently been scanned and increased Mets in bones and a new small spot in my liver have been found, eliminating me from my Phase Ib clinical trial that had worked from November 2021. My earlier first line of treatment, Ibrance Fulvestrant failed after about 8 months. I am now
Greetings All, I have recently been scanned and increased Mets in bones and a new small spot in my liver have been found, eliminating me from my Phase Ib clinical trial that had worked from November 2021. My earlier first line of treatment, Ibrance Fulvestrant failed after about 8 months. I am now
Garlicgrower
in
SHARE Metastatic Breast Cancer
1 year ago
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