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A tragic but inspiring and heartwarming story about someone running to raise money for PMRGCAuk after a friend lost her sight from GCA
A big thank you to James Robinson who's running the Leeds Marathon in support of Kate, a family friend, who lost her sight due to giant cell
.
Help James raise money to support people with PMR and GCA. Help us to raise awareness so that no-one loses their sight from this disease.
A big thank you to James Robinson who's running the Leeds Marathon in support of Kate, a family friend, who lost her sight due to giant cell
.
Help James raise money to support people with PMR and GCA. Help us to raise awareness so that no-one loses their sight from this disease.
tangocharlie
in
PMRGCAuk
3 months ago
More about the presentation by the Irish doctor posted about this week relating to GCA in PMR
responses=150488304&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response and the abstract is here https://acrabstracts.org/abstract/clinical-phenotype-of-patients-with-subclinical-giant-cell-
arteritis
-in-polymyalgia-rheumatica/#:~:text=This%20suggests%20that%20patients%20with
responses=150488304&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response and the abstract is here https://acrabstracts.org/abstract/clinical-phenotype-of-patients-with-subclinical-giant-cell-
arteritis
-in-polymyalgia-rheumatica/#:~:text=This%20suggests%20that%20patients%20with
PMRpro
Ambassador
in
PMRGCAuk
3 months ago
Newly diagnosed
I have Giant Cell
Arteritis
, Polymyalgia Rheumatica, Hashimoto’s, IBS, Intestitial Cystitis and Reynaud’s. A year ago I had a heart attack. Last week I was diagnosed with fibromyalgia. Otherwise I am terrific (🤪). My doctor wants me to go on Effexor.
I have Giant Cell
Arteritis
, Polymyalgia Rheumatica, Hashimoto’s, IBS, Intestitial Cystitis and Reynaud’s. A year ago I had a heart attack. Last week I was diagnosed with fibromyalgia. Otherwise I am terrific (🤪). My doctor wants me to go on Effexor.
Miacaro45
in
Fibromyalgia Action UK
15 days ago
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MGUS and PMR/GCA
In that study, history of giant cell
arteritis
, polymyalgia rheumatica and rheumatoid arthritis was associated with a significantly increased risk of MGUS [91]. " https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4900299/
In that study, history of giant cell
arteritis
, polymyalgia rheumatica and rheumatoid arthritis was associated with a significantly increased risk of MGUS [91]. " https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4900299/
kp60
in
PMRGCAuk
4 months ago
GCA or Occipital Neauralgia
I’ve seen a rheumatologist three times in the last year Re:Temporal
Arteritis
. I’ve had a biopsy which came back negative, because previously my doctor prescribed steroids for inflammation and head pain. Rheumatologist prescribed 50mg of prednisone after a while to be gradually reduced.
I’ve seen a rheumatologist three times in the last year Re:Temporal
Arteritis
. I’ve had a biopsy which came back negative, because previously my doctor prescribed steroids for inflammation and head pain. Rheumatologist prescribed 50mg of prednisone after a while to be gradually reduced.
Qscrabble8
in
PMRGCAuk
13 days ago
Tired of all of this
Have Giant Cell
Arteritis
, Polymyalgia Rheumatica, MGUS, and possibly MGRS. They just listen to my heartbeat and tell me I am fine. I know my heart is involved in all of this, but no one will listen to me.
Have Giant Cell
Arteritis
, Polymyalgia Rheumatica, MGUS, and possibly MGRS. They just listen to my heartbeat and tell me I am fine. I know my heart is involved in all of this, but no one will listen to me.
phebamom
in
British Heart Foundation
6 months ago
Thank you
I've been told it's Giant Cell
Arteritis
, Vasculitis, Aortitis, depending on who I've seen in Rheumatology.
I've been told it's Giant Cell
Arteritis
, Vasculitis, Aortitis, depending on who I've seen in Rheumatology.
Dance62
in
PMRGCAuk
2 months ago
Increasing Prednisone to 40 mg?
I have come across Takayasu
arteritis
as a possible diagnosis. I value your thoughts and opinions. Thank you for being there.
I have come across Takayasu
arteritis
as a possible diagnosis. I value your thoughts and opinions. Thank you for being there.
Moaningxcat
in
PMRGCAuk
2 days ago
GCA: permanent or what?
Mine is: GCA/temporal
arteritis
permanent or will it improve and disappear, or will it get worse?
Mine is: GCA/temporal
arteritis
permanent or will it improve and disappear, or will it get worse?
AlamedaCounty
in
PMRGCAuk
10 months ago
Feature on Temporal Arteritis in 'Woman's Weekly' magazine.
Just wanted to say that I've just read a health article in this weeks 'Woman's Weekly' magazine, headed 'Coping With Temporal
Arteritis
'. I was all prepared to be quite scathing about it's content, but perhaps our message is getting through!!
Just wanted to say that I've just read a health article in this weeks 'Woman's Weekly' magazine, headed 'Coping With Temporal
Arteritis
'. I was all prepared to be quite scathing about it's content, but perhaps our message is getting through!!
Kendrew
in
PMRGCAuk
4 months ago
Afib, inflammation and NSAIDs
I have Afib, polymyalgia, giant cell
arteritis
, bursitis, arthritis, spondylitis, tendonitis, IBS etc. Is there a connection between Afib and inflammation? I am unable to take NSAIDs due to being on edoxaban. Since being on DOACs my inflammation has got worse.
I have Afib, polymyalgia, giant cell
arteritis
, bursitis, arthritis, spondylitis, tendonitis, IBS etc. Is there a connection between Afib and inflammation? I am unable to take NSAIDs due to being on edoxaban. Since being on DOACs my inflammation has got worse.
Broseley
in
Atrial Fibrillation Support
2 months ago
Newly diagnosed with a difficult decision to make
I am immunosupressed due to taking Tocilizumab for Rheumatoid Arthritis and Temporal
Arteritis
. I would appreciate any feed back before I make the decision.
I am immunosupressed due to taking Tocilizumab for Rheumatoid Arthritis and Temporal
Arteritis
. I would appreciate any feed back before I make the decision.
Teekay2
in
Kidney Disease
5 months ago
return of throbbing after stopping prednisolone
Diagnosed with temporal
arteritis
Nov 2021. Finally off prednisolone 2 weeks ago. Seem to be getting worse throbbing than when I started. 1. Is this usual? 2. Will it improve?
Diagnosed with temporal
arteritis
Nov 2021. Finally off prednisolone 2 weeks ago. Seem to be getting worse throbbing than when I started. 1. Is this usual? 2. Will it improve?
AlamedaCounty
in
PMRGCAuk
11 months ago
Clinical manifestations of GCA and PMR - the latest versions from Uptodate
https://www.uptodate.com/contents/clinical-manifestations-of-giant-cell-
arteritis
https://www.uptodate.com/contents/clinical-manifestations-and-diagnosis-of-polymyalgia-rheumatica?
https://www.uptodate.com/contents/clinical-manifestations-of-giant-cell-
arteritis
https://www.uptodate.com/contents/clinical-manifestations-and-diagnosis-of-polymyalgia-rheumatica?
PMRpro
Ambassador
in
PMRGCAuk
5 months ago
CRP and ESR
rheumatoid arthritis (RA) patients who have failed to respond to conventional synthetic disease‐modifying antirheumatic drugs (csDMARDs) and/or tumour necrosis factor antagonists.2 It is also approved for systemic juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis and giant cell
arteritis
rheumatoid arthritis (RA) patients who have failed to respond to conventional synthetic disease‐modifying antirheumatic drugs (csDMARDs) and/or tumour necrosis factor antagonists.2 It is also approved for systemic juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis and giant cell
arteritis
Joseph14612
in
PMRGCAuk
11 months ago
Did Covid trigger my GCA?
But, 3 months later in late January I was diagnosed with giant cell
arteritis
. I am still taking medication for that but I do wonder whether Covid caused an underlying inflammation problem that then led to GCA?
But, 3 months later in late January I was diagnosed with giant cell
arteritis
. I am still taking medication for that but I do wonder whether Covid caused an underlying inflammation problem that then led to GCA?
Handloomweaver
in
PMRGCAuk
7 months ago
Hands started hurting every morning
been tapering , finally down to 4 mgs, hsve been on for aboutva week now, thinking arthritis, bit would withdrawal be the cause or could flare last this long?
been tapering , finally down to 4 mgs, hsve been on for aboutva week now, thinking arthritis, bit would withdrawal be the cause or could flare last this long?
arvine
in
Pain Concern
21 hours ago
Severe pain in Hips
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Shamrockgirl
in
NRAS
22 hours ago
Back pain
Good morning I've been suffering from chronic low back pain for years now had a x-ray on my back and got this back all my doctor says is old age lol constantly getting slipped disc's also got cervical spondylosis arthritis in every joint and lumbago with sciatica thanks 👍
Good morning I've been suffering from chronic low back pain for years now had a x-ray on my back and got this back all my doctor says is old age lol constantly getting slipped disc's also got cervical spondylosis arthritis in every joint and lumbago with sciatica thanks 👍
Glenr78
in
Arthritis Action
2 days ago
Save the date: Friday 24th May, 'Wear Purple for JIA'
Children can get arthritis too... Wear Purple is our annual campaign dedicated to raising awareness and NRAS funds for the benefit of those living with Juvenile Idiopathic Arthritis 💜. This year it will he held on Friday 24th May. If you would like to learn more about how you can involved and help
Children can get arthritis too... Wear Purple is our annual campaign dedicated to raising awareness and NRAS funds for the benefit of those living with Juvenile Idiopathic Arthritis 💜. This year it will he held on Friday 24th May. If you would like to learn more about how you can involved and help
Nicola-NRAS
Administrator
in
NRAS
4 days ago
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