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Antihemophilic factor
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MMA result
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hollybushroad
in
Pernicious Anaemia Society
11 months ago
Various B12D/PA resources
Admin Edit: This is not an official PAS post but it does contain many resources that may be of use to members and has been pinned for that reason ___________________________________________________________________ Hi all, I had some time to spare today and thought I would write a post with a list of
Admin Edit: This is not an official PAS post but it does contain many resources that may be of use to members and has been pinned for that reason ___________________________________________________________________ Hi all, I had some time to spare today and thought I would write a post with a list of
jade_s
in
Pernicious Anaemia Society
11 months ago
Vabysmo or Eylea
Hi All, I need an urgent advice from the experts here. My father's dry amd has recently progressed to wet and we have been advised to get an Anti VEGF injection. He has advanced glaucoma as well and this is his only working eye (left). The other eye is already affected by glaucoma (90-95%). We are
Hi All, I need an urgent advice from the experts here. My father's dry amd has recently progressed to wet and we have been advised to get an Anti VEGF injection. He has advanced glaucoma as well and this is his only working eye (left). The other eye is already affected by glaucoma (90-95%). We are
VikPa
in
Macular Society
4 months ago
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Castor oil
Has Anyone used castor oil, is there any benefits in using it for ostoarthritis on the feet?
Has Anyone used castor oil, is there any benefits in using it for ostoarthritis on the feet?
Greenginger12
in
Arthritis Ireland
9 months ago
Article on Castor Oil benefits
I would like to share this article. It may be beneficial to kidneys. I hope it can be accessed with the following link. If not, I’m sorry! https://stevegallik.org/can-castor-oil-packs-heal-kidney-nephrons/
I would like to share this article. It may be beneficial to kidneys. I hope it can be accessed with the following link. If not, I’m sorry! https://stevegallik.org/can-castor-oil-packs-heal-kidney-nephrons/
CuriousCKD
in
Kidney Disease
9 months ago
B12 Injections stopped as I do not meet crtieria.
Good morning I now have information to identify that; 1) the practice updated their process in November 2022 to " ensure only patients with P.A. receive B12 injections. 2) Blood tests in 2018 show low B12, but Intrinsic factor and celliac screen were negative. 3) GP Practice direct me to take
Good morning I now have information to identify that; 1) the practice updated their process in November 2022 to " ensure only patients with P.A. receive B12 injections. 2) Blood tests in 2018 show low B12, but Intrinsic factor and celliac screen were negative. 3) GP Practice direct me to take
b12timbo
in
Pernicious Anaemia Society
11 months ago
B12 / PA roller-coaster and further tests
Hi all - I'd really appreciate any support and advice you can all offer please as it's all got a bit too much today. I've been feeling unwell for a while now but I initially put the exhaustion, brain fog, migraines with visual auras etc down to going through a difficult few years personally and that
Hi all - I'd really appreciate any support and advice you can all offer please as it's all got a bit too much today. I've been feeling unwell for a while now but I initially put the exhaustion, brain fog, migraines with visual auras etc down to going through a difficult few years personally and that
TheSunshineSanctuary
in
Pernicious Anaemia Society
11 months ago
Mrjustatip
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
MrJustatip
in
Pernicious Anaemia Society
1 year ago
Recent results following increase in Levothyroxine dose.Anything of note?
HiFollowing advice on the forum I asked GP for screening for Vit D etc at my recent review of increased dose. I have generalised osteoarthritis and a family rich in autoimmune diseases. Please see my results. The only comment made by GP is that Vit D a bit low and to take over the counter supplement.
HiFollowing advice on the forum I asked GP for screening for Vit D etc at my recent review of increased dose. I have generalised osteoarthritis and a family rich in autoimmune diseases. Please see my results. The only comment made by GP is that Vit D a bit low and to take over the counter supplement.
Pebble23
in
Thyroid UK
1 year ago
Thyroid levels advice for friend with newly dx Hashi and P.A please?
Hi, a friend has been supporting me in getting a Pernicious Anaemia diagnosis, as she also has it. She also has a recent Hashimoto's dx (like me, plus I'm hypothyroid too) but I've been trying to help her with it as it's all very new and overwhelming and she's been really ill with P.A for a long time
Hi, a friend has been supporting me in getting a Pernicious Anaemia diagnosis, as she also has it. She also has a recent Hashimoto's dx (like me, plus I'm hypothyroid too) but I've been trying to help her with it as it's all very new and overwhelming and she's been really ill with P.A for a long time
Opal79
in
Thyroid UK
1 year ago
Am I really lacking B12?
I was diagnosed with PA around 2018, I had the camera down which confirmed atrophic gastritis, I had positive tests for anti parietal cells and intrinsic factor; so classic PA. My B12 levels were around 300 at the time and not considered low but i was given loading doses and monthly injections. However
I was diagnosed with PA around 2018, I had the camera down which confirmed atrophic gastritis, I had positive tests for anti parietal cells and intrinsic factor; so classic PA. My B12 levels were around 300 at the time and not considered low but i was given loading doses and monthly injections. However
expatkerry
in
Pernicious Anaemia Society
1 year ago
Positive IFA, Negative Parietal Cell, B-12 injections affect IFA test
Hello, I recently tested positive for intrinsic factor blocking antibody but the result of my parietal cell antibody test was negative. I’m curious if other members have had this same experience? My doctors have suspected a PA diagnosis for several years. An IFA test about five years ago produced
Hello, I recently tested positive for intrinsic factor blocking antibody but the result of my parietal cell antibody test was negative. I’m curious if other members have had this same experience? My doctors have suspected a PA diagnosis for several years. An IFA test about five years ago produced
mcg-woo
in
Pernicious Anaemia Society
1 year ago
Advice on test results
Hi I'm new here and after a bit of advice please. I was diagnosed with hypothyroidism about 20 years ago (I was 22at the time) and have been on 75 mcg levothyroxine for most of that time.Since diagnosis I have continued to suffer with fatigue, depression, brain fog, and in the past 10 years neurological
Hi I'm new here and after a bit of advice please. I was diagnosed with hypothyroidism about 20 years ago (I was 22at the time) and have been on 75 mcg levothyroxine for most of that time.Since diagnosis I have continued to suffer with fatigue, depression, brain fog, and in the past 10 years neurological
Lita22
in
Thyroid UK
1 year ago
Blood results
HiI'm just looking some advice on recent NHS b12 and folate results: B12 284 (197-779) Folate. 4.6 (3-26) Of course GP receptionist said all 'normal " on phone but I have asked for a print out of results and will pick them up tomorrow. I had asked my GP if I could be tested for intrinsic factor
HiI'm just looking some advice on recent NHS b12 and folate results: B12 284 (197-779) Folate. 4.6 (3-26) Of course GP receptionist said all 'normal " on phone but I have asked for a print out of results and will pick them up tomorrow. I had asked my GP if I could be tested for intrinsic factor
Hollybushroad
in
Pernicious Anaemia Society
1 year ago
Blue Horizon Results - High Cortisol
Hi, I have just received my results, I took the blood test as I am experiencing symptoms which are not normal for me. Hashimotos is common within my family but I have never had any blood tests which show I have any thyroid issue. I do have PA and self inject - I have the intrinsic factor missing and
Hi, I have just received my results, I took the blood test as I am experiencing symptoms which are not normal for me. Hashimotos is common within my family but I have never had any blood tests which show I have any thyroid issue. I do have PA and self inject - I have the intrinsic factor missing and
Filsmoos
in
Thyroid UK
1 year ago
PPI complications
I've now had my endoscopy. I wanted to find out what state my stomach was in after taking PPIs (Omeprazol) for over 5 years and an H2 Blocker for 15 years before that (the now withdrawn Ranitidine of carcinogenic fame). What the endoscopy revealed were fundic polyps which are 'accepted' as a standard
I've now had my endoscopy. I wanted to find out what state my stomach was in after taking PPIs (Omeprazol) for over 5 years and an H2 Blocker for 15 years before that (the now withdrawn Ranitidine of carcinogenic fame). What the endoscopy revealed were fundic polyps which are 'accepted' as a standard
Orchard33
in
IBS Network
1 year ago
Vitamins
Hi allI posted here last week my vitamin test results from medichecks. My active B12 and folate were low so as per advice on the forum I have held off supplementing until my GP tests for pernicious anaemia. My mother had PA and I certainly do have some symptoms of B12 deficiency. I'm due to get my bloods
Hi allI posted here last week my vitamin test results from medichecks. My active B12 and folate were low so as per advice on the forum I have held off supplementing until my GP tests for pernicious anaemia. My mother had PA and I certainly do have some symptoms of B12 deficiency. I'm due to get my bloods
Hollybushroad
in
Thyroid UK
1 year ago
Uncertain PMR or EORA?
Good morning, My first visit to see the Rheumatologist referred by GP and taking Naproxen for three months. Hip pain much better but not doing much walking, shoulders heavy with impaired mobility and last four weeks hands stiff and tight feeling. ESR was 50 in March, 76 in April. CRP was 22 March
Good morning, My first visit to see the Rheumatologist referred by GP and taking Naproxen for three months. Hip pain much better but not doing much walking, shoulders heavy with impaired mobility and last four weeks hands stiff and tight feeling. ESR was 50 in March, 76 in April. CRP was 22 March
Woollyback1
in
PMRGCAuk
1 year ago
interesting find
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
Thrones12
in
Pernicious Anaemia Society
1 year ago
Sourcing advice please
Hi I went to my GP in April with this problem. My GP practice give you forms for self booking for Rheumatology at choice of 2 hospitals. Both have no appointments available. I rang and was told 18 to 34 week wait but even then you have to go on a waiting list to get the appointment before that. I booked
Hi I went to my GP in April with this problem. My GP practice give you forms for self booking for Rheumatology at choice of 2 hospitals. Both have no appointments available. I rang and was told 18 to 34 week wait but even then you have to go on a waiting list to get the appointment before that. I booked
Wonderfullifeandmore
in
PMRGCAuk
1 year ago
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