Search
Search
About
Log in
Join
Experiences with
Anaemia
Posts
Communities
9,897 public posts
Filter results
MCV & MCH
I have posted a chart of my MCV & MCH as I have recently got copies of blood tests. As you can see most of the mch have been flagged. Looking at getting MMA and Homocysteine tests as my last Active B12 66.1 pmol/L (25.1 - 165 pmol). Need to be tested for PA as well.
I have posted a chart of my MCV & MCH as I have recently got copies of blood tests. As you can see most of the mch have been flagged. Looking at getting MMA and Homocysteine tests as my last Active B12 66.1 pmol/L (25.1 - 165 pmol). Need to be tested for PA as well.
diamondgirl9022
in
Pernicious Anaemia Society
2 years ago
which comes first? Chicken or egg
hi first time post on this group, so bit of history diagnosed with pernicious
anaemia
in 2006 after years of going gp tiredness etc.
hi first time post on this group, so bit of history diagnosed with pernicious
anaemia
in 2006 after years of going gp tiredness etc.
shortytlc
in
British Liver Trust
2 years ago
OLAPARIB
Hello all I started Olaparib at the very end of Dec 2021 I have had 2 blood transfusions after low HB one in march and then 1 in April with a dose reduction to 500mg.I have not had another transfusion since although I am expecting my bloods to be a bit low at the moment (
Anaemia
) I am about to complete
Hello all I started Olaparib at the very end of Dec 2021 I have had 2 blood transfusions after low HB one in march and then 1 in April with a dose reduction to 500mg.I have not had another transfusion since although I am expecting my bloods to be a bit low at the moment (
Anaemia
) I am about to complete
Hidden
in
My Ovacome
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Fewer Injections, more injections or stay the course? Please advise.
I have been injecting 1 ml of methylcobalamin and cyanocobalamin, eod, alternatively for about a month. Sometimes, the numbness in my hands feels like it’s getting worse and now my right leg is weak. Should I inject once a week or skip a week. Or, should I push through the pain, numbness and weakness
I have been injecting 1 ml of methylcobalamin and cyanocobalamin, eod, alternatively for about a month. Sometimes, the numbness in my hands feels like it’s getting worse and now my right leg is weak. Should I inject once a week or skip a week. Or, should I push through the pain, numbness and weakness
RisingOne
in
Pernicious Anaemia Society
2 years ago
IRON results help please
Last year thanks to some good advice from radd and others, I was able to have an iron infusion which really improved my life. A year on, I have had the full iron panel again and my iron has dropped back to 22 from 33, and my ferritin is still way high. My GP has summoned me by email as he has
Last year thanks to some good advice from radd and others, I was able to have an iron infusion which really improved my life. A year on, I have had the full iron panel again and my iron has dropped back to 22 from 33, and my ferritin is still way high. My GP has summoned me by email as he has
Daffers123
in
Thyroid UK
2 years ago
Advice please- you have true PA or Malabsorption B12 deficiency would taking a multivitamin and increasing meat nudge up b12 levels?
hi again everyone, really need this clarification please, if you have pernicious anemia or malabsorption b12 and folate defiency , would a multivitamin and increased meat intake (meat overload lol) bring your levels up? I was B12 179ng/l beginning July now apparently I’m 199ng/l folate was July 1.5 not
hi again everyone, really need this clarification please, if you have pernicious anemia or malabsorption b12 and folate defiency , would a multivitamin and increased meat intake (meat overload lol) bring your levels up? I was B12 179ng/l beginning July now apparently I’m 199ng/l folate was July 1.5 not
Steph0077
in
Pernicious Anaemia Society
2 years ago
starting acalabrutinib while waiting for pirtobrutinib to be FDA approved
Venetoclax stopped working after 3 years and my husband has been on idealisib for several months. It isn’t working. His labs yesterday were terrible. Platelets the lowest they have ever been at 36. White blood count continues to double and it at 113 and hemoglobin is 8.8. A few weeks ago they ran
Venetoclax stopped working after 3 years and my husband has been on idealisib for several months. It isn’t working. His labs yesterday were terrible. Platelets the lowest they have ever been at 36. White blood count continues to double and it at 113 and hemoglobin is 8.8. A few weeks ago they ran
KLWC
in
CLL Support
2 years ago
INTRINSIC FACTOR ANTIBODY TEST . Has any member with P.A. had to have more than one IFAB test to get a positive reading ?
Is it a fact that the Intrinsic Factor antibodies come and go continually ? Or do they not appear when the patient has had P.A. untreated for a long period ,and the antibodies have “done their job “ and destroyed the parietal cells ?
Is it a fact that the Intrinsic Factor antibodies come and go continually ? Or do they not appear when the patient has had P.A. untreated for a long period ,and the antibodies have “done their job “ and destroyed the parietal cells ?
wedgewood
in
Pernicious Anaemia Society
2 years ago
Severe Anaemia from fibroids treatment
I have
anaemia
, gynaecologist is not proactive I feel I need more than iron supplements don't want blood transfusion can I be eligible for iron infusion
I have
anaemia
, gynaecologist is not proactive I feel I need more than iron supplements don't want blood transfusion can I be eligible for iron infusion
docshells
in
Women's Health
2 years ago
SUPPORT THE PERNICIOUS ANAEMIA SOCIETY AT NO COST TO YOURSELF !
If buying from Amazon , use Amazon smile.U.K. and choose The pernicious
Anaemia
Society as your charity . Amazon will then donate to the PAS . “ Every little helps “
If buying from Amazon , use Amazon smile.U.K. and choose The pernicious
Anaemia
Society as your charity . Amazon will then donate to the PAS . “ Every little helps “
wedgewood
in
Pernicious Anaemia Society
2 years ago
Supplements for iron
I have had the following blood tests: Serum ferritin level 41 ug/L [10.0 - 322.0] Serum folate level 23.5 ug/L [5.4 - 24.0] Should I take some iron tablets to boost my ferritin levels and if so what dosage should I be taking?
I have had the following blood tests: Serum ferritin level 41 ug/L [10.0 - 322.0] Serum folate level 23.5 ug/L [5.4 - 24.0] Should I take some iron tablets to boost my ferritin levels and if so what dosage should I be taking?
Luci20
in
Thyroid UK
2 years ago
levothyroxine/Teva/mannitol
hi everyone.. It’s just come to my notice that Levothyroxine which I’ve been taking for about 25 years or so contains “mannitol “ As I have very bad restless legs for about the same amount of years and getting worse … I was wondering how long mannitol has been in levothyroxine ? Also.. would it affect
hi everyone.. It’s just come to my notice that Levothyroxine which I’ve been taking for about 25 years or so contains “mannitol “ As I have very bad restless legs for about the same amount of years and getting worse … I was wondering how long mannitol has been in levothyroxine ? Also.. would it affect
janland
in
Thyroid UK
2 years ago
ET transforming?
I was diagnosed with ET around 12 years ago. I was on Hydroxy at first but been on Anagrelide for a few years. I’ve been anaemic for a long time, usually iron tablets bring the hg up again but it’s staying low at the moment. Specialist nurse has just called to say consultant wants to do a bmb to check
I was diagnosed with ET around 12 years ago. I was on Hydroxy at first but been on Anagrelide for a few years. I’ve been anaemic for a long time, usually iron tablets bring the hg up again but it’s staying low at the moment. Specialist nurse has just called to say consultant wants to do a bmb to check
lizzziep
in
MPN Voice
2 years ago
Going through my latest results with my GP, bearing in mind I'd been low on Folate, Ferritin etc for years and been told all good.
GP: [i]Vit D is excellent at 100nmol/L[/i] Me: [i]Yes[/i] GP:[i] Folate is good at 10.8 ug/L (3.4 - 12.2)[/i] Me:[i] Yes[/i] GP: [i]B12 is good at 461 ng/L (211 -911)[/i] Me: [i] Mmn[/i] GP: [i]Ferritin is good at 49 ug/L[/i] Me: [i]No it isn't[/i] Before I could say any more...... GP: [
GP: [i]Vit D is excellent at 100nmol/L[/i] Me: [i]Yes[/i] GP:[i] Folate is good at 10.8 ug/L (3.4 - 12.2)[/i] Me:[i] Yes[/i] GP: [i]B12 is good at 461 ng/L (211 -911)[/i] Me: [i] Mmn[/i] GP: [i]Ferritin is good at 49 ug/L[/i] Me: [i]No it isn't[/i] Before I could say any more...... GP: [
nellie237
in
Thyroid UK
2 years ago
B12 injections
My 24 year old daughter have been getting B12 injections for 3 years and feels so much better. She was also low in Folate. She has gone gluten free but can’t bear to get tests for coeliacs disease as she would have to eat foods with gluten for 6 weeks. She was told by GP that she would need injections
My 24 year old daughter have been getting B12 injections for 3 years and feels so much better. She was also low in Folate. She has gone gluten free but can’t bear to get tests for coeliacs disease as she would have to eat foods with gluten for 6 weeks. She was told by GP that she would need injections
JP57
in
Pernicious Anaemia Society
2 years ago
Medichecks - stop b12 for 2 weeks prior to testing
Hi I want to order my dad a full thyroid testing panel +antibodies and vitamins. However,he has previously had low b12 so was taking intramuscular injections until 1 month ago and is now taking the spray. I notice it says to stop taking any b12 for 2 whole weeks before testing. I wondered whether
Hi I want to order my dad a full thyroid testing panel +antibodies and vitamins. However,he has previously had low b12 so was taking intramuscular injections until 1 month ago and is now taking the spray. I notice it says to stop taking any b12 for 2 whole weeks before testing. I wondered whether
Needleandthread44
in
Thyroid UK
2 years ago
Where can I get getethylcobalamin
I am from Ebonyi State of Nigeria. I have been trying to get methylcobalamin to treat my b12 deficiency but haven't seen it around. Cyanocobalamin has not worked. Please can someone help direct me how to get it. I am going through pains now. Please help .
I am from Ebonyi State of Nigeria. I have been trying to get methylcobalamin to treat my b12 deficiency but haven't seen it around. Cyanocobalamin has not worked. Please can someone help direct me how to get it. I am going through pains now. Please help .
Agala
in
Pernicious Anaemia Society
2 years ago
Supplement advice
Hi recently increased to 100 levo liquid and prescribed folate Please see results below, would you also take b12 as possibly falsely elevated due to low folate or wait until next bloods to see if it has come down? also started taking vitd/vit k, should i take iron for ferritin too? tsh 4.49 (0.27-
Hi recently increased to 100 levo liquid and prescribed folate Please see results below, would you also take b12 as possibly falsely elevated due to low folate or wait until next bloods to see if it has come down? also started taking vitd/vit k, should i take iron for ferritin too? tsh 4.49 (0.27-
Sally1253
in
Thyroid UK
2 years ago
Frightening, weird symptoms
What I read was that restless legs is dopamine and
anaemia
related... but antidepressants make RLS worse! The other things that can make rsl worse is antacids- so I've read.
What I read was that restless legs is dopamine and
anaemia
related... but antidepressants make RLS worse! The other things that can make rsl worse is antacids- so I've read.
saj01
in
Fibromyalgia Action UK
2 years ago
RLS/PLMs and treatment
I would like to share information concerning my health particularly in relation to RLS/PLMs hoping that others with the condition may be helped. My experience of RLS could go back to my teens when, whilst seated and playing cards with my brother, we would both be moving our legs quite rapidly, toes
I would like to share information concerning my health particularly in relation to RLS/PLMs hoping that others with the condition may be helped. My experience of RLS could go back to my teens when, whilst seated and playing cards with my brother, we would both be moving our legs quite rapidly, toes
Eccleston
in
Restless Legs Syndrome
2 years ago
1
...
80
81
82
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
4211 results
Thyroid UK
3074 results
Restless Legs Syndrome
352 results
View top 10 communities
Sort by
Most Relevant
Newest