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Update of Mithradite Trial
BMB showed Reticulin grade 1, I have no idea what that means but the bloods have improved as I was bordering
anaemia
for a while. I seem to have swapped the itch for the fatigue but I'll take the fatigue any day over the itch. To sum up I'm happy with it.
BMB showed Reticulin grade 1, I have no idea what that means but the bloods have improved as I was bordering
anaemia
for a while. I seem to have swapped the itch for the fatigue but I'll take the fatigue any day over the itch. To sum up I'm happy with it.
JP1952
in
MPN Voice
2 years ago
Could Members With Experience of PBC Without A Gallbladder Feels Like , Is Treatment and Diagnosis done the same way? Thanks
I was recently also diagnosed with Vitamin B 12
Anaemia
/sero negative PA , I have malabsorption problems that cause regular Vitamin D deficiency and have Chronic Migraine and Fatigue syndromes. Basically , I have many health issues that either link to my EDS and Autoimmunity.
I was recently also diagnosed with Vitamin B 12
Anaemia
/sero negative PA , I have malabsorption problems that cause regular Vitamin D deficiency and have Chronic Migraine and Fatigue syndromes. Basically , I have many health issues that either link to my EDS and Autoimmunity.
Blearyeyed
in
PBCers Organization
1 year ago
Some help with interpreting iron panel please.
My mum is supplementing with iron. Crp hs 0.48 (0-5) Iron 29,9 (5.8-34.5) Tibc 62.7 (45-81) Uibc 30.9 (24.2-70.1) Transferrin 47.5 (20-50) Ferritin 298.6 (13-150) It looks as though she should’ve stopped a while back. Any insight with what these numbers are now saying and mean would be helpful
My mum is supplementing with iron. Crp hs 0.48 (0-5) Iron 29,9 (5.8-34.5) Tibc 62.7 (45-81) Uibc 30.9 (24.2-70.1) Transferrin 47.5 (20-50) Ferritin 298.6 (13-150) It looks as though she should’ve stopped a while back. Any insight with what these numbers are now saying and mean would be helpful
musicaljune
in
Thyroid UK
2 years ago
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diagnosed
Was originally diagnosed 8 years ago. I have not had injections for 2 years due to covid so asked GP to restart them but wouldn’t without blood test etc. blood test has come back saying b12 is normal and intrinsic factor is negative so he is saying I don’t have PA anymore? And therefore won’t treat me
Was originally diagnosed 8 years ago. I have not had injections for 2 years due to covid so asked GP to restart them but wouldn’t without blood test etc. blood test has come back saying b12 is normal and intrinsic factor is negative so he is saying I don’t have PA anymore? And therefore won’t treat me
Moon1309
in
Pernicious Anaemia Society
2 years ago
Pernicious Anemia - Self Injecting
I have ordered VB12 from Germany which has just arrived. I’m not sure what size needles to order and wondered if someone could advise me please? I’m 70kgs and plan to SI in my thighs. What size needle should I use?
I have ordered VB12 from Germany which has just arrived. I’m not sure what size needles to order and wondered if someone could advise me please? I’m 70kgs and plan to SI in my thighs. What size needle should I use?
Chelsea01
in
Pernicious Anaemia Society
2 years ago
When blood tests don't show the reality in lupus
im sure there are so many of you who have blood test after blood test that doesn't show the true and complete picture of what is going on. GPs don't give me the actual numbers bc I'm medical, instead they say normal or satisfactory which to me mean very little. And is their normal my normal? I know
im sure there are so many of you who have blood test after blood test that doesn't show the true and complete picture of what is going on. GPs don't give me the actual numbers bc I'm medical, instead they say normal or satisfactory which to me mean very little. And is their normal my normal? I know
LottieLou96
in
LUPUS UK
2 years ago
Update on Daughter's Ferritin levels
Hi just an update from the other day,I had posted about my daughter havi low ferritin of 11. She has just let me know her ferritin is now 52😲can't quite believe it. She's going to get D checked and ask which blood tests she's had.She was only taking the Iron Protein Plus (life extension) so these
Hi just an update from the other day,I had posted about my daughter havi low ferritin of 11. She has just let me know her ferritin is now 52😲can't quite believe it. She's going to get D checked and ask which blood tests she's had.She was only taking the Iron Protein Plus (life extension) so these
caroash
in
Thyroid UK
2 years ago
feeling like I’m on a boat… light headed dizzy after increasing b12 lozenges
hi again guys I’ve been taking b12 lozenges daily now 5000mcg x 5-6 a day to increase the dose while I wait for GPS to do their investigations… intrinsic factor came back at 1.63 but I know it’s not reliable. Waiting to see haematology and neurology privetly so don’t want to take too many more supplements
hi again guys I’ve been taking b12 lozenges daily now 5000mcg x 5-6 a day to increase the dose while I wait for GPS to do their investigations… intrinsic factor came back at 1.63 but I know it’s not reliable. Waiting to see haematology and neurology privetly so don’t want to take too many more supplements
Cookiedough2022
in
Pernicious Anaemia Society
2 years ago
Can buprenorphine cause augmentation
Hi I am back for help! we cannot source Temgesic in South Africa anymore so my husband is using the buprenorphine patch (sovenor) plus now adding gabapentin 900mg for the past 3 days. However he is having the most terrible time, has managed to sleep from 7:30 this morning for a few hours, up the whole
Hi I am back for help! we cannot source Temgesic in South Africa anymore so my husband is using the buprenorphine patch (sovenor) plus now adding gabapentin 900mg for the past 3 days. However he is having the most terrible time, has managed to sleep from 7:30 this morning for a few hours, up the whole
rchobby
in
Restless Legs Syndrome
2 years ago
New blood test results
B12 I have stopped due to it being high on my last couple of tests (I thought I might have pernicious
anaemia
due to other family members having it, but a GP blood test ruled that out). I did buy some Thorne B Complex supplements, but am not using them due to their containing B12.
B12 I have stopped due to it being high on my last couple of tests (I thought I might have pernicious
anaemia
due to other family members having it, but a GP blood test ruled that out). I did buy some Thorne B Complex supplements, but am not using them due to their containing B12.
Justine_Case
in
Thyroid UK
1 year ago
Folate
I have very high parietal cell antibodies and a long history of
anaemia
and neurological and other symptoms without b12 injections but haven’t been diagnosed with PA because the IF test was negative. That was 14 years ago and I’m now 61. Should I be pressing for another IF test now I’m older?
I have very high parietal cell antibodies and a long history of
anaemia
and neurological and other symptoms without b12 injections but haven’t been diagnosed with PA because the IF test was negative. That was 14 years ago and I’m now 61. Should I be pressing for another IF test now I’m older?
Blais
in
Pernicious Anaemia Society
1 year ago
Anemia
Hi all Has anyone had an iron infusion while suffering from Pmr and taking steroids 🌺
Hi all Has anyone had an iron infusion while suffering from Pmr and taking steroids 🌺
Nanny71
in
PMRGCAuk
2 years ago
Update
I know members will probably tell me off for supplementing with iron but in my defence it did seem an avenue worth pursuing due to my issues with iron and
anaemia
in the past. I'm so fed up with feeling ill.
I know members will probably tell me off for supplementing with iron but in my defence it did seem an avenue worth pursuing due to my issues with iron and
anaemia
in the past. I'm so fed up with feeling ill.
Sparklingsunshine
in
Thyroid UK
2 years ago
Help/advice needed -1st marathon in 4 weeks + really struggled this week...anaemia or overtraining?
Hi, I've got my first marathon in 27days -well its actually 45km (Adidas Terrex South Downs). It's quite hilly (2770 ft ascent) and so I've been mostly training on the Downs. Had a couple of setbacks in April/May, but since then have managed to stick to my plan, but have perhaps overdone the increase
Hi, I've got my first marathon in 27days -well its actually 45km (Adidas Terrex South Downs). It's quite hilly (2770 ft ascent) and so I've been mostly training on the Downs. Had a couple of setbacks in April/May, but since then have managed to stick to my plan, but have perhaps overdone the increase
chickensrun
Half Marathon
in
Fun Beyond 10K & Race Support
2 years ago
Adrenals or Not Adrenals
Well, further to my post last week, I've had the results of both my faecal occult blood test (for new re-occurring digestive issues) and BNP blood test (for indications of heart failure) and all have come back normal with no further action required. The extreme fatigue has improved significantly
Well, further to my post last week, I've had the results of both my faecal occult blood test (for new re-occurring digestive issues) and BNP blood test (for indications of heart failure) and all have come back normal with no further action required. The extreme fatigue has improved significantly
Kendrew
in
PMRGCAuk
2 years ago
Possible Pernicious Anemia
Hello all, I have been feeling ill for months now. As I write, it is August 2022, I was diagnosed with low iron stores, ferritin of 13 ug/l in March this year. I have been on tablets for the past 6 months or so. Although recently I have been experiencing, headaches, vomiting, weakness, dizzyness to name
Hello all, I have been feeling ill for months now. As I write, it is August 2022, I was diagnosed with low iron stores, ferritin of 13 ug/l in March this year. I have been on tablets for the past 6 months or so. Although recently I have been experiencing, headaches, vomiting, weakness, dizzyness to name
ae0200
in
Pernicious Anaemia Society
2 years ago
Iron panel results
In early Sept my ferritin came back: 25.9 (10-291) so I asked for an iron panel. I am a bit confused by the transferrin result as I have read that if low iron then transferrin should be high? Mine is below range. Oct 22: Ferritin: 28.9 (10-291) Iron serum: 13.7 (9-30.4) Transferrin: 2.42 (2.5
In early Sept my ferritin came back: 25.9 (10-291) so I asked for an iron panel. I am a bit confused by the transferrin result as I have read that if low iron then transferrin should be high? Mine is below range. Oct 22: Ferritin: 28.9 (10-291) Iron serum: 13.7 (9-30.4) Transferrin: 2.42 (2.5
Fizzyinch
in
Thyroid UK
2 years ago
Ectopic Beats or Something More?
My GP did various tests... the results of which all ruled out
anaemia
, diabetes and thyroid as being possible causes. Heart failure was also ruled out but still they kept happening.
My GP did various tests... the results of which all ruled out
anaemia
, diabetes and thyroid as being possible causes. Heart failure was also ruled out but still they kept happening.
Kendrew
in
PMRGCAuk
1 year ago
Folate level
H i everyone, hope you are all well? I had my folate checked and my level came back as 2.9ng (3.1ng - 19.9ng reference range) Doctor said not to worry about it as it was only slightly under range. My question is even though I have B12 injections should my folate be in range and should the doctor
H i everyone, hope you are all well? I had my folate checked and my level came back as 2.9ng (3.1ng - 19.9ng reference range) Doctor said not to worry about it as it was only slightly under range. My question is even though I have B12 injections should my folate be in range and should the doctor
Purplestaffie
in
Thyroid UK
2 years ago
SERUM BLOOD TESTS
Good morning, I had a blood test 4/3/22. Just checked my results online. These were tested- Serum vitamin B12 level, Serum ferritin level , Serum folate level. The result is borderline & doesnt need any further action. Shall I contact the GP and follow it up?
Good morning, I had a blood test 4/3/22. Just checked my results online. These were tested- Serum vitamin B12 level, Serum ferritin level , Serum folate level. The result is borderline & doesnt need any further action. Shall I contact the GP and follow it up?
Florah
in
Thyroid UK
2 years ago
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