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Bowel and bladder problems after Radiotherapy
Hi, I am Maz and I am 76 years old, I still work but from home now. I have suffered with multiple sclerosis for over 40 years although apart from the early years it hasn't bothered me too much until 2013 when I was diagnosed with anal cancer stage T3. I underwent some chemo and a great deal of radiotherapy
Hi, I am Maz and I am 76 years old, I still work but from home now. I have suffered with multiple sclerosis for over 40 years although apart from the early years it hasn't bothered me too much until 2013 when I was diagnosed with anal cancer stage T3. I underwent some chemo and a great deal of radiotherapy
Maz131
in
Pelvic Radiation Disease Association
3 months ago
Help with vitamins
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
Flossiewestie2020
in
Thyroid UK
3 months ago
Atrophied Thyroid....
Hi All, I looking for advice again! After being ill over Christmas and convinced it was my medication, coming off everything bar my 100mg Levothyroxine, symptoms didn't improve. My GP thought I had Sjorgrens, I've been told CREST too, only to find out in a call from an RA Consultant on Monday which i
Hi All, I looking for advice again! After being ill over Christmas and convinced it was my medication, coming off everything bar my 100mg Levothyroxine, symptoms didn't improve. My GP thought I had Sjorgrens, I've been told CREST too, only to find out in a call from an RA Consultant on Monday which i
Ontherun81
in
Thyroid UK
3 months ago
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T3/T4 HRT Meds before surgery?
Hello lovely people, i hope everyone is managing to catch up on the long overdue sun ;) Sadly, my gynaecologist has found an ovarian tumour which needs to be removed and biopsied. Recovery from this will take between 6-8 weeks. I am in really good health otherwise but do take 150mg Levo and 45mg Liothyronine
Hello lovely people, i hope everyone is managing to catch up on the long overdue sun ;) Sadly, my gynaecologist has found an ovarian tumour which needs to be removed and biopsied. Recovery from this will take between 6-8 weeks. I am in really good health otherwise but do take 150mg Levo and 45mg Liothyronine
Piggyoink
in
Thyroid UK
3 months ago
Hydroxyurea and Anagrelide
Goid evening, I visited a local hematologist this week, not my MPN specialist, due to non coverage and he suggested trying combo of Hydroxyurea and Anagrelide. Has anyone used this combination for treatment of ET? Also, maybe (2) 81 mg baby aspirin/ day to counteract the ever increasing platelets which
Goid evening, I visited a local hematologist this week, not my MPN specialist, due to non coverage and he suggested trying combo of Hydroxyurea and Anagrelide. Has anyone used this combination for treatment of ET? Also, maybe (2) 81 mg baby aspirin/ day to counteract the ever increasing platelets which
mbr8076
in
MPN Voice
3 months ago
For anyone who is on T3 only... When did you realise you needed it?
Hi everyone. I've been on a real journey since January with Hashimoto's. I started on levothyroxine and it made me feel a lot worse. I started seeing a private thyroid doctor who looked at my bloods and saw my T3 had dropped on levo, and with my symptoms she decided levo was not right for me and put
Hi everyone. I've been on a real journey since January with Hashimoto's. I started on levothyroxine and it made me feel a lot worse. I started seeing a private thyroid doctor who looked at my bloods and saw my T3 had dropped on levo, and with my symptoms she decided levo was not right for me and put
rosael56
in
Thyroid UK
3 months ago
Atorvastatin
hello. Mr GP surprised me when I visited him for something else when he informed me I had high cholesterol (7.5) and prescribed 30mg of Atorvastatin daily. Within a few days bad side effects appeared. I became so tired and drowsy. If I sat down I fell asleep almost instantly. I got an extreme
hello. Mr GP surprised me when I visited him for something else when he informed me I had high cholesterol (7.5) and prescribed 30mg of Atorvastatin daily. Within a few days bad side effects appeared. I became so tired and drowsy. If I sat down I fell asleep almost instantly. I got an extreme
Brainfoglady
in
British Heart Foundation
3 months ago
Jardiance and thyroxine
hi ive recently been prescribed Jardiance for type 2 diabetes i take my other meds at night as i don’t like taking medication in a morning as that when i take my thyroxine but i want to take the Jardiance in the morning as its causing me sleeplessness at night what’s the best time difference from my
hi ive recently been prescribed Jardiance for type 2 diabetes i take my other meds at night as i don’t like taking medication in a morning as that when i take my thyroxine but i want to take the Jardiance in the morning as its causing me sleeplessness at night what’s the best time difference from my
Mtraynor
in
Thyroid UK
3 months ago
Shall I raise my Levo
I’ve been on 115mcg of T4 now for around 3 months. For one month I did the carnivore/keto diet with a little T3 but it was so hard to stick to. I’ve been eating normally again with no T3 now for about 2-3 weeks. My levels are still quite low so I’m thinking of going up to 125mcg per day does this sound
I’ve been on 115mcg of T4 now for around 3 months. For one month I did the carnivore/keto diet with a little T3 but it was so hard to stick to. I’ve been eating normally again with no T3 now for about 2-3 weeks. My levels are still quite low so I’m thinking of going up to 125mcg per day does this sound
ockerdoc
in
Thyroid UK
3 months ago
Liver Results and Spleen Pain
Hi, so take a immune Upadacitinib for my skin and have took for 2 years now, I am M 41 and do like the occasional drink, I was diagnosed with NAFLD around 6 months ago and have cut down drinking, my levels have always been fine other than GGT which was around 200. I have recently had further bloods
Hi, so take a immune Upadacitinib for my skin and have took for 2 years now, I am M 41 and do like the occasional drink, I was diagnosed with NAFLD around 6 months ago and have cut down drinking, my levels have always been fine other than GGT which was around 200. I have recently had further bloods
kevsmt5111
in
British Liver Trust
3 months ago
1 year post diagnosis
I am a 54 yo male living in Vegas, I found out I was Jak2 positive last year, looked at labs before doctor and freaked. I have been having slightly higher RBC and Platelets for around 6-7 years. I used to donate blood pretty regularly and took testosterone, so the doctors kinda ignored it. I was a paramedic
I am a 54 yo male living in Vegas, I found out I was Jak2 positive last year, looked at labs before doctor and freaked. I have been having slightly higher RBC and Platelets for around 6-7 years. I used to donate blood pretty regularly and took testosterone, so the doctors kinda ignored it. I was a paramedic
FINFAN1970
in
MPN Voice
3 months ago
T3 battles
I’m on T3 only, taking 30mcg in one dose daily. Spoke to the endocrinologist this morning and after explaining to her that the reason I don’t take levothyroxine is because it made me far worse she said she’s never heard anyone that’s happened to. I told her I currently have symptoms of being under medicated
I’m on T3 only, taking 30mcg in one dose daily. Spoke to the endocrinologist this morning and after explaining to her that the reason I don’t take levothyroxine is because it made me far worse she said she’s never heard anyone that’s happened to. I told her I currently have symptoms of being under medicated
ScriptMaz
in
Thyroid UK
3 months ago
Best way to take NDT
Hello, today is my first day taking NDT. I was on a T4/T3 combo for the last two years. I usually chewed my meds (T4, T3) and tried to grind them as much as possible with my teeth before drinking a glass of water. What is the best way to take NDT? Can I take it in the same way to ensure good absorption
Hello, today is my first day taking NDT. I was on a T4/T3 combo for the last two years. I usually chewed my meds (T4, T3) and tried to grind them as much as possible with my teeth before drinking a glass of water. What is the best way to take NDT? Can I take it in the same way to ensure good absorption
Alex_N
in
Thyroid UK
3 months ago
T3 NHS Prescription in SW London
Hi all,
Has anyone found a NHS endocrinologist who will prescribe Liothyronine in SW London?!
Ideally Charing Cross/Chelsea Westminster… Details: I have been taking 100mcg Levothyroxine daily and 10mcg (morning) and 5mcg (afternoon) Liothyronine for 3 years which has made a world of difference
Hi all,
Has anyone found a NHS endocrinologist who will prescribe Liothyronine in SW London?!
Ideally Charing Cross/Chelsea Westminster… Details: I have been taking 100mcg Levothyroxine daily and 10mcg (morning) and 5mcg (afternoon) Liothyronine for 3 years which has made a world of difference
Meebles
in
Thyroid UK
3 months ago
Reverse T3, stress and temperature
hello. I am one of a few outliers here, not hashi, but some classic low thyroid symptoms eg loss of eyebrows, leg hair, and in bloods, poor converter and not high t3, and for me most telling, low temperature and heart rate. (i am not posting results today) People have suggested it is central hypothyroidism
hello. I am one of a few outliers here, not hashi, but some classic low thyroid symptoms eg loss of eyebrows, leg hair, and in bloods, poor converter and not high t3, and for me most telling, low temperature and heart rate. (i am not posting results today) People have suggested it is central hypothyroidism
lauriegraham
in
Thyroid UK
3 months ago
PSA still undectable
it’s been 4 months now since I didn’t have my ADT injection ( so 7 months since the last one). Continuing on Apalutamide as a monotherapy atm. Pleased to have experienced Christmas and a 3 week hol in Barbados with no bad news as Decembers have bed. Dodgy in the past. Back at work now - enjoyed
it’s been 4 months now since I didn’t have my ADT injection ( so 7 months since the last one). Continuing on Apalutamide as a monotherapy atm. Pleased to have experienced Christmas and a 3 week hol in Barbados with no bad news as Decembers have bed. Dodgy in the past. Back at work now - enjoyed
Brysonal
in
Fight Prostate Cancer
7 months ago
Radiation?
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
Tommyj2
in
Advanced Prostate Cancer
7 months ago
Started Xtandi mono therapy 2 months ago but after dropping PSA from 3.3 to .82 its now up to1.360. Continue with SBRT to 4 spots next week?
PSMA Scan results from March 5, 2024 ONCOLOGIC FINDINGS: History of metastatic castrate resistant prostate cancer status post interval radiation therapy to T3 and right 3rd rib with: - Post surgical changes prior prostatectomy - Essentially resolved prior PSMA uptake in right 3rd posterior rib and
PSMA Scan results from March 5, 2024 ONCOLOGIC FINDINGS: History of metastatic castrate resistant prostate cancer status post interval radiation therapy to T3 and right 3rd rib with: - Post surgical changes prior prostatectomy - Essentially resolved prior PSMA uptake in right 3rd posterior rib and
SViking
in
Advanced Prostate Cancer
3 months ago
Genitourinary Cancers Symposium Meeting Coverage, MedPage Today, January 2024
Latest 2024 PCa-related GuCS Meeting Coverage from MedPage Today: [i]
More Evidence That ARSIs for Prostate Cancer Differ in Cognitive Effects -More fatigue, depression, worse reaction time with enzalutamide as compared with abiraterone, January 29, 2024:
[/i] https://www.medpagetoday.com/meetingcoverage
Latest 2024 PCa-related GuCS Meeting Coverage from MedPage Today: [i]
More Evidence That ARSIs for Prostate Cancer Differ in Cognitive Effects -More fatigue, depression, worse reaction time with enzalutamide as compared with abiraterone, January 29, 2024:
[/i] https://www.medpagetoday.com/meetingcoverage
cujoe
in
Fight Prostate Cancer
7 months ago
PLMD medication
Hello I just joined because i was recently diagnosed with PLMD. The doctors don't really seem very informed about this condition. My ferritin level was fine around 200 so I decided to not supplement that even though the hospital advised me to. I then went onto take Pramipexole (didn't help) for
Hello I just joined because i was recently diagnosed with PLMD. The doctors don't really seem very informed about this condition. My ferritin level was fine around 200 so I decided to not supplement that even though the hospital advised me to. I then went onto take Pramipexole (didn't help) for
drover123
in
Restless Legs Syndrome
3 months ago
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