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Journey to diagnosis
Hi everyone, hope you’re ok. I’m new here and have been under rheumatology for a year now. I’ve got multiple health conditions and understand that it takes a while to get diagnosed due to the crossover in symptoms. My ANA keeps switching between positive and negative, but the nurse said that happens
Hi everyone, hope you’re ok. I’m new here and have been under rheumatology for a year now. I’ve got multiple health conditions and understand that it takes a while to get diagnosed due to the crossover in symptoms. My ANA keeps switching between positive and negative, but the nurse said that happens
Hidden
in
LUPUS UK
4 years ago
I was looking for answers...
I am trying to see if the diagnosis of lupus was wrong for me ( would really like to switch from Warfarin to Xeralto), and thought my negative Anti -DNA blood tests would rule it out. I have a positive ANA (1:640 speckled fine, atypical). I found this info: “The anti-dsDNA test is fairly specific for
I am trying to see if the diagnosis of lupus was wrong for me ( would really like to switch from Warfarin to Xeralto), and thought my negative Anti -DNA blood tests would rule it out. I have a positive ANA (1:640 speckled fine, atypical). I found this info: “The anti-dsDNA test is fairly specific for
Willow7733
in
LUPUS UK
4 years ago
Need help!
So I have been struggling with quite a lot of symptoms for a while (since I was 17, I am 19 right now). My family doctor did a routine blood work and found out I am deficient in vitamin d, somewhat anemic (runs in the family) and my lymphocytes are 4.4xe9/L. I did a course of vitamin d supplements since
So I have been struggling with quite a lot of symptoms for a while (since I was 17, I am 19 right now). My family doctor did a routine blood work and found out I am deficient in vitamin d, somewhat anemic (runs in the family) and my lymphocytes are 4.4xe9/L. I did a course of vitamin d supplements since
simit
in
Thyroid UK
4 years ago
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Confused!!! Please please help
So I have been struggling with quite a lot of symptoms for a while (since I was 17, I am 19 right now). My family doctor did a routine blood work and found out I am deficient in vitamin d, somewhat anemic (runs in the family) and my lymphocytes are 4.4xe9/L. I did a course of vitamin d supplements since
So I have been struggling with quite a lot of symptoms for a while (since I was 17, I am 19 right now). My family doctor did a routine blood work and found out I am deficient in vitamin d, somewhat anemic (runs in the family) and my lymphocytes are 4.4xe9/L. I did a course of vitamin d supplements since
simit
in
LUPUS UK
4 years ago
ANA test result?
Hi Im new on here, and not even sure I'm on the right sight. But I just wanted to ask a question in the hope that someone would know and be able to reassure me. My daughter has had a negative ANA test but it says underneath Cytoplasmic staining. Ive obv looked this up on google and am now highly concerned
Hi Im new on here, and not even sure I'm on the right sight. But I just wanted to ask a question in the hope that someone would know and be able to reassure me. My daughter has had a negative ANA test but it says underneath Cytoplasmic staining. Ive obv looked this up on google and am now highly concerned
Loopylou100
in
Myositis UK
4 years ago
ANA
Hi, My bloods came back positive for Lupus and the Dr told me it was Lupus. I have all the symptoms and have been ill for about six years. I had my 1st F2F with a Rheumatologist and was told my ANA was negative and because I hadn’t ever miscarriaged she didn’t know if it was. Hi Dd I feel dreadful can
Hi, My bloods came back positive for Lupus and the Dr told me it was Lupus. I have all the symptoms and have been ill for about six years. I had my 1st F2F with a Rheumatologist and was told my ANA was negative and because I hadn’t ever miscarriaged she didn’t know if it was. Hi Dd I feel dreadful can
Molly2012
in
LUPUS UK
4 years ago
Lupus?
I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel good. I’ve been seeing a hematologist and she decided to run an ANA on me. CRP 9.7 ANA Ab screen POSITIVE ANA Titer <1:40 ANA pattern none detected
I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel good. I’ve been seeing a hematologist and she decided to run an ANA on me. CRP 9.7 ANA Ab screen POSITIVE ANA Titer <1:40 ANA pattern none detected
Anniemari
in
Lupus Foundation of Florida
4 years ago
Do I have lupus
I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel good. I’ve been seeing a hematologist and she decided to run an ANA on me. CRP 9.7 ANA Ab screen POSITIVE ANA Titer <1:40 ANA pattern none detected
I’ve have had high platelets for the past 20 years and have been living with primary Addison’s and hypothyroid for the past 27 years. I literally never feel good. I’ve been seeing a hematologist and she decided to run an ANA on me. CRP 9.7 ANA Ab screen POSITIVE ANA Titer <1:40 ANA pattern none detected
Anniemari
in
LUPUS UK
4 years ago
Low C3 and C4
Hello, I haven't been diagnosed with Lupus, but it's one of the things I've wondered about following years of symptoms, many matching the diagnostic criteria for Lupus. My GP was unwilling to refer me so I paid for a one-off private rheumatology appointment. She ran a series of blood tests on the NHS
Hello, I haven't been diagnosed with Lupus, but it's one of the things I've wondered about following years of symptoms, many matching the diagnostic criteria for Lupus. My GP was unwilling to refer me so I paid for a one-off private rheumatology appointment. She ran a series of blood tests on the NHS
BlackInk
in
LUPUS UK
4 years ago
updates from last post, warning: long, sorry!
How is everyone doing today? It's quite a sunny day over here in CA and I'm waiting for one of the kids to finish their class for the day. They both got caught up in playing and that resulted in her being late to class. Kind of funny when you hear little miss being forced out of their room for goofing
How is everyone doing today? It's quite a sunny day over here in CA and I'm waiting for one of the kids to finish their class for the day. They both got caught up in playing and that resulted in her being late to class. Kind of funny when you hear little miss being forced out of their room for goofing
JennaShi
in
LUPUS UK
4 years ago
Is there an age limit to LUPUS?
i wonder if anyone has been told that you cannot have Lupus past the age of the menopause? last year, i was struggling so much i went to see a so called Lupus expert in London, he was supposed to be the absolute authority and he said it is impossible to have LUPUS SLE after menopause and said i had something
i wonder if anyone has been told that you cannot have Lupus past the age of the menopause? last year, i was struggling so much i went to see a so called Lupus expert in London, he was supposed to be the absolute authority and he said it is impossible to have LUPUS SLE after menopause and said i had something
yellowmarie
in
LUPUS UK
4 years ago
Blood tests I had today 😩for what
Good evening all and thank you once again for all the advice I have received for you all reference my PMR . I went to my DR to day to ask if I could have a referral letter to go private to have a dexascan he said it would be of no help at this stage what ever he meant by that 🤔I stated it might be
Good evening all and thank you once again for all the advice I have received for you all reference my PMR . I went to my DR to day to ask if I could have a referral letter to go private to have a dexascan he said it would be of no help at this stage what ever he meant by that 🤔I stated it might be
Maggie1313
in
PMRGCAuk
4 years ago
Florencian
My doctors don't think I have lupus. 1st tested years ago negative. 2nd ANA positive, 3rd ANA negative. I have a rash on my chest and all the symptoms of lupus. Will someone help me with figuring this out? Now the latest is my eyelashes are falling out plus hair on other parts of my body. I'm 63.
My doctors don't think I have lupus. 1st tested years ago negative. 2nd ANA positive, 3rd ANA negative. I have a rash on my chest and all the symptoms of lupus. Will someone help me with figuring this out? Now the latest is my eyelashes are falling out plus hair on other parts of my body. I'm 63.
Florencian
in
LUPUS UK
4 years ago
Update: Hashimoto s new to taking meds helpless, jitters....
Update by Allie323: Hello, its been 27 days since my other post I'm Hashimotos with 1/2 working thyroid who first tried thyroid meds (Armour 15mg. for 2 weeks 11/19 then stopped ) and ironically just stopped being able to fall asleep a year ago Jan2020. ( felt breathing was shallow, weak like air hunger
Update by Allie323: Hello, its been 27 days since my other post I'm Hashimotos with 1/2 working thyroid who first tried thyroid meds (Armour 15mg. for 2 weeks 11/19 then stopped ) and ironically just stopped being able to fall asleep a year ago Jan2020. ( felt breathing was shallow, weak like air hunger
Allie323
in
Thyroid UK
4 years ago
Numbness?
Hi there, I’ve posted a few times about strange symptoms snd blood test results. I’m still not medicated or really been diagnosed with anything. Briefly my results so far: positive ANA antibodies, strongly positive Antiphospholipid antibodies (2 out of three 12 weeks apart), confirmed vasculitis following
Hi there, I’ve posted a few times about strange symptoms snd blood test results. I’m still not medicated or really been diagnosed with anything. Briefly my results so far: positive ANA antibodies, strongly positive Antiphospholipid antibodies (2 out of three 12 weeks apart), confirmed vasculitis following
Daisyyellow
in
Hughes Syndrome APS Forum
4 years ago
Heart & Sole (Diagnosis)
Recently I switched to a new rheumatologist affiliated with a cardio-rheumatology program (due to arrhythmia, cholesterol and valve issues). He ran a new blood panel on me, with a surprising result: My anti-CCP levels (tested twice before at almost 200) were now negative! Several years ago, I had
Recently I switched to a new rheumatologist affiliated with a cardio-rheumatology program (due to arrhythmia, cholesterol and valve issues). He ran a new blood panel on me, with a surprising result: My anti-CCP levels (tested twice before at almost 200) were now negative! Several years ago, I had
RxMe
in
LUPUS UK
4 years ago
Positive ANA and anti-DNA
Hi everyone, I’m new here. I just had a question I was hoping someone might be able to answer. My blood work came out positive for ANA with elevated anti-DNA and Immunoglobulin M. Does this mean I have lupus? What if I am showing few other symptoms and all the other blood work was fine? Thanks so much
Hi everyone, I’m new here. I just had a question I was hoping someone might be able to answer. My blood work came out positive for ANA with elevated anti-DNA and Immunoglobulin M. Does this mean I have lupus? What if I am showing few other symptoms and all the other blood work was fine? Thanks so much
TrickkiNikki
in
LUpus Patients Understanding and Support
4 years ago
Has anyone had ongoing headaches for two months with diarrhea, and a rash? I’ve had every test done.. could this be celiacs?
Hi guys! So I’ve been suffering with headaches for a month and 2 weeks along with diarrhea and a facial/ neck rash. Everyday is a new symptom and I just can’t seem to figure it out. I’ve literally had every test done, mri, cat scan blood work and next I’m seeing an allergist. But my doctor also wants
Hi guys! So I’ve been suffering with headaches for a month and 2 weeks along with diarrhea and a facial/ neck rash. Everyday is a new symptom and I just can’t seem to figure it out. I’ve literally had every test done, mri, cat scan blood work and next I’m seeing an allergist. But my doctor also wants
Aidackovic
in
National Migraine Centre
4 years ago
ILD/possible NSIP
I have recently been diagnosed with an ILD/possible NSIP , it’s not clear really what’s happening as I have only had a couple of telephone consultations , it really shocked me I just wasn’t expecting this it’s all happening so quick. Up until last October I was still running/working out but started experiencing
I have recently been diagnosed with an ILD/possible NSIP , it’s not clear really what’s happening as I have only had a couple of telephone consultations , it really shocked me I just wasn’t expecting this it’s all happening so quick. Up until last October I was still running/working out but started experiencing
Hidden
in
Lung Conditions Community Forum
4 years ago
Help Please regarding bloods
Help Please Hi, I am still searching for a diagnosis after 5 years. I have been told possible Betchets, lupus, undifferentiated connective tissue disorder. I have a positive ANA, joint pain, scleritis in both eyes and ocular hypertension. My concern is I have been feeling unwell with fever, night
Help Please Hi, I am still searching for a diagnosis after 5 years. I have been told possible Betchets, lupus, undifferentiated connective tissue disorder. I have a positive ANA, joint pain, scleritis in both eyes and ocular hypertension. My concern is I have been feeling unwell with fever, night
Suzywhizzo
in
Behçet's UK
4 years ago
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