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Vacation from Lupron/Zytiga - Temporary or Permanent!
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
groth12345
in
Advanced Prostate Cancer
8 months ago
Kellgren Centre in Manchester retains LUPUS UK Centre of Excellence award
In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the LUPUS UK Centre of Excellence award. You can read the full inspection report, including how it met our criteria and what we recommended for improvements
In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the LUPUS UK Centre of Excellence award. You can read the full inspection report, including how it met our criteria and what we recommended for improvements
Debbie_kinsey
Administrator
in
LUPUS UK
6 months ago
Confused and getting worse... Update
Hi I visited my GP today. I got a letter about my last visit and some results but I need to see my consultant for the rest. Most look OK to me just a couple outside of normal. The letter just confirmed that I have a strong family history of Rheumatoid arthritis and I exhibit organ specific autoimmune
Hi I visited my GP today. I got a letter about my last visit and some results but I need to see my consultant for the rest. Most look OK to me just a couple outside of normal. The letter just confirmed that I have a strong family history of Rheumatoid arthritis and I exhibit organ specific autoimmune
12stkeepgoing
in
Thyroid UK
6 months ago
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Has anyone had an operation on the elbow that has rheumatoid arthritis? If so has it helped or not?
Has anyone had an operation on the elbow that has rheumatoid arthritis? If so has it helped or not?
65_women
in
PMRGCAuk
6 months ago
stomach acid
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
lifegems
in
Pernicious Anaemia Society
6 months ago
Collapse then AF
Dad has mixed dementia and is 90 in May. He lives alone with my support. He has a history of collapse dating back to the 1990's but only three in all that time. He had a pacemaker in 2017 due to another collapse and found to have some heart block. A year later he had another and this is when we noticed
Dad has mixed dementia and is 90 in May. He lives alone with my support. He has a history of collapse dating back to the 1990's but only three in all that time. He had a pacemaker in 2017 due to another collapse and found to have some heart block. A year later he had another and this is when we noticed
ian16527
in
AF Association
6 months ago
Symptoms but blood tests Normal?
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
jennylouise91
in
Thyroid UK
6 months ago
Is it a choice? Pacemaker v Implanted defibrillator?
Hi, it's #chinkoflight here with an update. Things are moving on. I'm in coronary care, and the evidence for my fainting whilst running story has now shown an arrthymia at the time of the fall, effectively stopping my heart functioning, leading to the drop in blood pressure and the syncope event. It's
Hi, it's #chinkoflight here with an update. Things are moving on. I'm in coronary care, and the evidence for my fainting whilst running story has now shown an arrthymia at the time of the fall, effectively stopping my heart functioning, leading to the drop in blood pressure and the syncope event. It's
Chinkoflight
in
Atrial Fibrillation Support
6 months ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
8 months ago
Starting Abiraterone and predniSONE
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
dac500
in
Advanced Prostate Cancer
8 months ago
Legal Advice?
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
DM0329
in
My MSAA Community
8 months ago
Research Lounge FREE Online Event: Does knowledge of liver scarring affect drinking behaviour?
Does knowing the effects of alcohol on your liver change your drinking?
Researchers have been looking at how people's drinking behaviours may change when they know that alcohol is damaging their liver. They have some interesting and thought-provoking results to share with you on:
Wednesday
Does knowing the effects of alcohol on your liver change your drinking?
Researchers have been looking at how people's drinking behaviours may change when they know that alcohol is damaging their liver. They have some interesting and thought-provoking results to share with you on:
Wednesday
BritishLiverTrust1
Partner
in
British Liver Trust
8 months ago
Multiple mechanisms to clear a-synuclein with natural substances (in mice).
For informational purposes only Alpha Synuclein 1. INTRODUCTION: There are no effective treatments nor drugs available to modify disease progression
For informational purposes only Alpha Synuclein 1. INTRODUCTION: There are no effective treatments nor drugs available to modify disease progression
House2
in
Cure Parkinson's
8 months ago
Scientists have discovered a new cause of Parkinsons disease
https://scitechdaily.com/scientists-have-discovered-a-new-cause-of-parkinsons-disease/ A major discovery sheds light on the underlying mechanisms of Parkinson’s disease, opening the door for novel therapeutic approaches down the line. Until recently, our understanding of Parkinson’s disease has been
https://scitechdaily.com/scientists-have-discovered-a-new-cause-of-parkinsons-disease/ A major discovery sheds light on the underlying mechanisms of Parkinson’s disease, opening the door for novel therapeutic approaches down the line. Until recently, our understanding of Parkinson’s disease has been
NextStage
in
Cure Parkinson's
8 months ago
Heavy legs and low energy feeling
My recent thyroid results showed a below range T3, and I have been having trouble with a brand of thyroxine and feeling generally unwell as previously posted with some helpful advice. But, I have a feeling of heavy legs and low energy and wondered whether when the T3 is low it can cause this? I am
My recent thyroid results showed a below range T3, and I have been having trouble with a brand of thyroxine and feeling generally unwell as previously posted with some helpful advice. But, I have a feeling of heavy legs and low energy and wondered whether when the T3 is low it can cause this? I am
Sailing14
in
Thyroid UK
8 months ago
Do you live with advanced liver disease? Are you interested in attending an in-person workshop in Bristol or Liverpool this month?
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
BritishLiverTrust1
Partner
in
British Liver Trust
8 months ago
Introduction
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Ildivolover
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
PSMA pet scan negative
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
Rfs1975
in
Advanced Prostate Cancer
8 months ago
Persistent AF
Hi everyone, I have been to see my cardiologist today. Had all the usual tests done he asked me how I was feeling I said I felt really well. He then told me I was no longer in Paroxysmal AF and I was in Persistent AF. How can they tell? I have got to have an echocardiogram done and a machine fitted
Hi everyone, I have been to see my cardiologist today. Had all the usual tests done he asked me how I was feeling I said I felt really well. He then told me I was no longer in Paroxysmal AF and I was in Persistent AF. How can they tell? I have got to have an echocardiogram done and a machine fitted
Gillybean123
in
AF Association
6 months ago
Have you visited the Arrhythmia Alliance website?
If you are new to the Forum, or would like updated information relating to a new medication, a scheduled procedure? an information booklet? Make a donation? Register for our monthly patient e-newsletter or simply just find out more about the charity and how we can help you. Our website contains a
If you are new to the Forum, or would like updated information relating to a new medication, a scheduled procedure? an information booklet? Make a donation? Register for our monthly patient e-newsletter or simply just find out more about the charity and how we can help you. Our website contains a
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
6 months ago
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