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Experiences with
Androgen deprivation therapy (ADT)
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Ouch! Santa only left me lumps of coal. Still digesting my latest DX and any input would be welcome.
The symptoms fit at least 20 other diseases and the SE of my
ADT
. Probably it is undercounted since it get mixed in with other comorbidites. About a 35% chance that it will turn into Acute Myeloid Leukemia. Some thought that radiation may cause it.
The symptoms fit at least 20 other diseases and the SE of my
ADT
. Probably it is undercounted since it get mixed in with other comorbidites. About a 35% chance that it will turn into Acute Myeloid Leukemia. Some thought that radiation may cause it.
SpencerBoy11
in
Advanced Prostate Cancer
2 years ago
Three strikes and...
My MO has never been in favor of adding Zytiga as
ADT
+. I'm thinking he is going to wait for the PSA to go above .5 and when order another PSMA scan before starting Zytiga. I'm also thinking starting Zytiga now rather than later makes sense since the cancer is apparently no longer confined.
My MO has never been in favor of adding Zytiga as
ADT
+. I'm thinking he is going to wait for the PSA to go above .5 and when order another PSMA scan before starting Zytiga. I'm also thinking starting Zytiga now rather than later makes sense since the cancer is apparently no longer confined.
Jvaughan0
in
Advanced Prostate Cancer
1 year ago
T4 over range yet again due to side effect of Amiodarone. I have no thyroid, am on 25mcg levo daily now. In a dilemma
Hi all I am aware that most people on this site will have little knowledge about the drug Amiodarone so here is a brief account of what it is used for and it's potential side effects that can alter conversion of thyroid medication such as levo or NDT so pushing levels either up or down. It can also effect
Hi all I am aware that most people on this site will have little knowledge about the drug Amiodarone so here is a brief account of what it is used for and it's potential side effects that can alter conversion of thyroid medication such as levo or NDT so pushing levels either up or down. It can also effect
DizzyD
in
Thyroid UK
9 months ago
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Results on new test
I have just had the new test offered by Monitor My Health which I think is good value for money. My thyroid tests were good. I am on 2.5 grain of NDT so my TSH is suppressed. TSH .01 (.27 - 4.2) T4 20.3 (12 - 22) T3 5.9 (2.1 - 6.8) I'm not sure whether I need to be higher in some of
I have just had the new test offered by Monitor My Health which I think is good value for money. My thyroid tests were good. I am on 2.5 grain of NDT so my TSH is suppressed. TSH .01 (.27 - 4.2) T4 20.3 (12 - 22) T3 5.9 (2.1 - 6.8) I'm not sure whether I need to be higher in some of
dottyb09
in
Thyroid UK
9 months ago
Vitamin and mineral deficiencies/Thyroid dysfunction.. Chicken or Egg?
Before I spend my hard earned money on going to a private ENDO because the NHS is failing me I wanted to ask what you all thought about the problem of iron deficiency and vitamin D deficiency and how this relates to underactive thyroid . I read a lot here about how these vitamins should be optimal for
Before I spend my hard earned money on going to a private ENDO because the NHS is failing me I wanted to ask what you all thought about the problem of iron deficiency and vitamin D deficiency and how this relates to underactive thyroid . I read a lot here about how these vitamins should be optimal for
doingitfordad
in
Thyroid UK
9 months ago
Genuine NDT source please
I'm starting again slightly differently 🤠Could people please pm me with their trusted sources of genuine NDT please? Usual story - I've had several clueless GPs, cant get a referral for love nor money as my results don't warrant it, tsh only of course because symptoms are put down to stress and a
I'm starting again slightly differently 🤠Could people please pm me with their trusted sources of genuine NDT please? Usual story - I've had several clueless GPs, cant get a referral for love nor money as my results don't warrant it, tsh only of course because symptoms are put down to stress and a
Morbidmoggy
in
Thyroid UK
9 months ago
My brother has advanced Prostate cancer
Hi everyone, I attached previous post about my brother. Since then he had one more PSA test which came back at 17! He has CT scan and bone scan, he had some new mets on his bones(spine) and they are suspected to some lymph nodes of chest. Currently he has hormone therapy every 3 months and Nubeqa
Hi everyone, I attached previous post about my brother. Since then he had one more PSA test which came back at 17! He has CT scan and bone scan, he had some new mets on his bones(spine) and they are suspected to some lymph nodes of chest. Currently he has hormone therapy every 3 months and Nubeqa
rasher1
in
Advanced Prostate Cancer
1 year ago
Blood Test Results! Can Anyone Interpret?
I went for a routine blood test today & I've just had the results posted already! I've never been able to read blood results - can someone help me Please.I had my Thyroid fully removed in 2008. I was Poisoned by Thyroxin! I'm on T3 Only. Recently I've found I feel a lot better on NDT Only. Six weeks
I went for a routine blood test today & I've just had the results posted already! I've never been able to read blood results - can someone help me Please.I had my Thyroid fully removed in 2008. I was Poisoned by Thyroxin! I'm on T3 Only. Recently I've found I feel a lot better on NDT Only. Six weeks
Lily905
in
Thyroid UK
9 months ago
42 yr old prostate cancer
I am looking for some relatable experiences. My husband was diagnosed with prostate cancer in February. He is 42 years old. His Gleason score was 9, PSA 17.8. He had surgery in March. He had multiple positive margins and one positive lymph node. He started hormone therapy 1 month prior to surgery. We
I am looking for some relatable experiences. My husband was diagnosed with prostate cancer in February. He is 42 years old. His Gleason score was 9, PSA 17.8. He had surgery in March. He had multiple positive margins and one positive lymph node. He started hormone therapy 1 month prior to surgery. We
Footballlover
in
Advanced Prostate Cancer
1 year ago
First ever PSMA scan shows two small bone lesions
At the time his MO was suggesting adding Zytiga per studies showing its effectiveness with
ADT
at diagnosis for localized high grade cancer (he is Gleason 9). MO also ordered PSMA scan which is now available locally as a baseline, this is his first. PSA is 0.03.
At the time his MO was suggesting adding Zytiga per studies showing its effectiveness with
ADT
at diagnosis for localized high grade cancer (he is Gleason 9). MO also ordered PSMA scan which is now available locally as a baseline, this is his first. PSA is 0.03.
mooman80
in
Advanced Prostate Cancer
1 year ago
Hiding head injury
Four and a half years ago I had a concussion and I am still experiencing periods in which I have balance and coordination problems, fatigue, can't concentrate and am easily feeling overwhelmed. Since then I have picked up freelance work again, working outdoors and in educational contexts part-time.
Four and a half years ago I had a concussion and I am still experiencing periods in which I have balance and coordination problems, fatigue, can't concentrate and am easily feeling overwhelmed. Since then I have picked up freelance work again, working outdoors and in educational contexts part-time.
Blackbird98
in
Headway
8 months ago
Adt and heart arrythmia
This is my husbands second time taking
adt
in 5 years since a ct scan shows 2 pelvic lymph nodes. we cannot recall this side effect first time around, although it is classed as a side effect.
This is my husbands second time taking
adt
in 5 years since a ct scan shows 2 pelvic lymph nodes. we cannot recall this side effect first time around, although it is classed as a side effect.
Knittingque
in
Advanced Prostate Cancer
2 years ago
The good doctor
I had a GP appointment this morning (double appointment) for a Medication Review. I haven’t had one since pre-Covid when I lived in a different part of the country. I crept into the surgery with fear in my heart as I prepared to explain the ins and outs of NDT. OH came with me as I was in the middle
I had a GP appointment this morning (double appointment) for a Medication Review. I haven’t had one since pre-Covid when I lived in a different part of the country. I crept into the surgery with fear in my heart as I prepared to explain the ins and outs of NDT. OH came with me as I was in the middle
Hidden
in
Thyroid UK
9 months ago
How is thyroid hormone prescribed across the US?
I suspect there might be a few comments on this just-posted thread: [i]Matt Ettleson[/i] [i]Ed: @NorthwesternU[/i] [i]/@NUFeinbergMed[/i] [i]. Former resident/CMR @UMIntMed[/i] [i]. Clinical Instructor @uchicagomed[/i] [i]. Focus: improving care of thyroid disease.[/i] [i]Chicago, IL[/i] [i]1h
I suspect there might be a few comments on this just-posted thread: [i]Matt Ettleson[/i] [i]Ed: @NorthwesternU[/i] [i]/@NUFeinbergMed[/i] [i]. Former resident/CMR @UMIntMed[/i] [i]. Clinical Instructor @uchicagomed[/i] [i]. Focus: improving care of thyroid disease.[/i] [i]Chicago, IL[/i] [i]1h
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Can't find proper thyroid medication
Hi all, I've tried almost all thyroid medications under the sun, NDT, T4 only (tirosint, synthroid, euthyrox), T4 + T3, T3 only, NDT + T4. And no matter what I still have lingering symptoms despite all my levels being optimal ( TSH, free T4 and free T3). My vitamins are all optimal as well (vtiamin
Hi all, I've tried almost all thyroid medications under the sun, NDT, T4 only (tirosint, synthroid, euthyrox), T4 + T3, T3 only, NDT + T4. And no matter what I still have lingering symptoms despite all my levels being optimal ( TSH, free T4 and free T3). My vitamins are all optimal as well (vtiamin
Sam_Tx
in
Thyroid UK
9 months ago
Amiriodone & NDT update
So I was put on Amiodarone post heart surgery 3 1/2 weeks ago. I thought it was a three week course but it's not. Now on 200mg per day for the next few months . And yes I think it's messing my thyroid hormones up. I did protest over taking it...due to its high iodine content and contrary indications.
So I was put on Amiodarone post heart surgery 3 1/2 weeks ago. I thought it was a three week course but it's not. Now on 200mg per day for the next few months . And yes I think it's messing my thyroid hormones up. I did protest over taking it...due to its high iodine content and contrary indications.
waveylines
in
Thyroid UK
9 months ago
Care Home response
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Wybert
in
PSP Association
8 months ago
Easy, Cheap Exercise solutiom
Hi all, I’m on
ADT
for Pca and got lectured by everyone in a white coat about the importance of resistance training. I was doing fine at the gym until a bladder cancer reappeared. Combined with a bad case of radiation cystitis, I’ve had to have a bladder catheter in for a few months.
Hi all, I’m on
ADT
for Pca and got lectured by everyone in a white coat about the importance of resistance training. I was doing fine at the gym until a bladder cancer reappeared. Combined with a bad case of radiation cystitis, I’ve had to have a bladder catheter in for a few months.
Anthonyve
in
Advanced Prostate Cancer
1 year ago
Thyroid issues r the problem
I have Hashimoto thyroiditis and I have CFS/ME I am sure that I have bowel problems and bladder problems and immune problems. I can't work out what is what as the body is malfunctioning. It's not getting better levothyroxine 75mg per day and multivitamin setraline for depression but it supposed to help
I have Hashimoto thyroiditis and I have CFS/ME I am sure that I have bowel problems and bladder problems and immune problems. I can't work out what is what as the body is malfunctioning. It's not getting better levothyroxine 75mg per day and multivitamin setraline for depression but it supposed to help
Vasiliki99
in
Thyroid UK
9 months ago
Advice on Blood Test Results
For the past year I have been trying to sort out my Thyroid Medication. I am now back to trying Levo plus T3. These are my latest results. on 100 Levo plus 18.75 T3. TSH 0.01 (0.27 - 4.20) FT4 21.30 (11.90 - 21.60) FT3 4.64 ( 3.10 - 6.80) I am still waiting for my
For the past year I have been trying to sort out my Thyroid Medication. I am now back to trying Levo plus T3. These are my latest results. on 100 Levo plus 18.75 T3. TSH 0.01 (0.27 - 4.20) FT4 21.30 (11.90 - 21.60) FT3 4.64 ( 3.10 - 6.80) I am still waiting for my
Brightness14
in
Thyroid UK
9 months ago
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