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Should FISH test be repeated?
Does anyone know if the FISH test is repeated for people with stage zero CLL? I had the test when I was first diagnosed in December 2017, and assume it hasn’t been repeated because my office exam with my hematologist this month didn’t reveal swollen lymph nodes or enlarged spleen.
Does anyone know if the FISH test is repeated for people with stage zero CLL? I had the test when I was first diagnosed in December 2017, and assume it hasn’t been repeated because my office exam with my hematologist this month didn’t reveal swollen lymph nodes or enlarged spleen.
Myfavoritecat
in
CLL Support
3 years ago
Suggestions where to find CBC pre-made spreadsheets
I apologize up-front to ask the subject question as this topic previously had great responses. Then trying to find those references buried in posts was ... well a challenge I admit I failed at. So taking the easier route thought I’d ask question in a post. New in the CLL “adventure” and so I’m gonna
I apologize up-front to ask the subject question as this topic previously had great responses. Then trying to find those references buried in posts was ... well a challenge I admit I failed at. So taking the easier route thought I’d ask question in a post. New in the CLL “adventure” and so I’m gonna
Pin57
in
CLL Support
3 years ago
Real-World Study Shows Limited Implementation of Reccomended Biomarker Testing in CLL
Targeted Oncology May 4th 2021 In an interview with Targeted Oncology, Dr Mato , a hematologc oncologist and the director of the CLL Program at Memorial Sloan Kettering Cancer Center, discusssed biomarker testing in CLL, and the future of BTK inhibitors in the CLL paradigm. Data presented at the
Targeted Oncology May 4th 2021 In an interview with Targeted Oncology, Dr Mato , a hematologc oncologist and the director of the CLL Program at Memorial Sloan Kettering Cancer Center, discusssed biomarker testing in CLL, and the future of BTK inhibitors in the CLL paradigm. Data presented at the
Jm954
Administrator
in
CLL Support
3 years ago
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Last Call - Places available for today's UK CLL treatments update webinar
Date: Wednesday 5th May 2021 Time: 3:30pm BST Topic: CLL second-line and subsequent treatments Host: Leukaemia Care and Lymphoma Action This webinar will update on CLL second-line treatments today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement
Date: Wednesday 5th May 2021 Time: 3:30pm BST Topic: CLL second-line and subsequent treatments Host: Leukaemia Care and Lymphoma Action This webinar will update on CLL second-line treatments today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement
HAIRBEAR_UK
Founder Admin
in
CLL Support
3 years ago
Duloxetine 30mg
Hi everyone, hope you are enjoying the sun🌞 😃 well we’re in Wales UK so maybe your not so lucky today. So I’ve been on Rux for a while which I’m pleased to say is controlling my blood levels. I have been taking Teva brand Amitriptyline as pain control for many years now. Unfortunately this has not
Hi everyone, hope you are enjoying the sun🌞 😃 well we’re in Wales UK so maybe your not so lucky today. So I’ve been on Rux for a while which I’m pleased to say is controlling my blood levels. I have been taking Teva brand Amitriptyline as pain control for many years now. Unfortunately this has not
StreetPastor
in
MPN Voice
3 years ago
Good News. Update on previous posts.
Having stopped HU on the instructions of A&E and my Haemo still insisting that breathing problems not caused by HU I requested GP to refer me to Dr Claire Harrison and yesterday I had a telephone appointment with her. What a lovely conversation. She acknowledged that HU was not agreeing with me obviously
Having stopped HU on the instructions of A&E and my Haemo still insisting that breathing problems not caused by HU I requested GP to refer me to Dr Claire Harrison and yesterday I had a telephone appointment with her. What a lovely conversation. She acknowledged that HU was not agreeing with me obviously
Heather270240
in
MPN Voice
3 years ago
New York City -- CLL Society Patient Support Group Sunday May 9 , 2021 3pm – 5pm
CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL Society Support & Education Network. Please join us We will meet by Zoom on May 9 at 3:00pm Date:Sunday May 9 , 2021 (or choose another day & time
CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL Society Support & Education Network. Please join us We will meet by Zoom on May 9 at 3:00pm Date:Sunday May 9 , 2021 (or choose another day & time
lankisterguy
Volunteer
in
CLL Support
3 years ago
Clumping platelets?
Does anyone here know anything about possible clumping platelets? My platelets have been dropping steadily and are now at 49. I don't have any bruising or nosebleeds or anything and my haematology nurse has ordered a blood film with my next blood test to see if they are clumping and causing a falsely
Does anyone here know anything about possible clumping platelets? My platelets have been dropping steadily and are now at 49. I don't have any bruising or nosebleeds or anything and my haematology nurse has ordered a blood film with my next blood test to see if they are clumping and causing a falsely
Otterfield
in
MPN Voice
3 years ago
Leukaemia Care and Lymphoma Action - CLL treatment update webinars – 26th April and 5th May 2021
It has been a good start to the year with several new CLL treatments being approved or approaching approval in UK countries. Leukaemia Care and Lymphoma Action are pleased to provide two joint CLL webinars to help with understanding the increasingly complex picture of CLL treatment and options for different
It has been a good start to the year with several new CLL treatments being approved or approaching approval in UK countries. Leukaemia Care and Lymphoma Action are pleased to provide two joint CLL webinars to help with understanding the increasingly complex picture of CLL treatment and options for different
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Living Well With CML - Webinar 4.30pm Wednesday 21st April.
Please join us for this free webinar , there are places available registration required https://t.co/eD9PqLbihg?amp=1 The aim of this webinar is to support chronic myeloid leukaemia (CML) patients to live well with their condition. The panel will explore challenges and opportunities that can impact on
Please join us for this free webinar , there are places available registration required https://t.co/eD9PqLbihg?amp=1 The aim of this webinar is to support chronic myeloid leukaemia (CML) patients to live well with their condition. The panel will explore challenges and opportunities that can impact on
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
New Study reveals vaccines not very effective for CLL and MM patients
Two new studies published in Blood suggest that the mRNA COVID-19 vaccine may have reduced efficacy in individuals with chronic lymphocytic leukemia (CLL) and multiple myeloma, two types of blood cancer. According to researchers, these studies could help inform the ideal time for vaccination of these
Two new studies published in Blood suggest that the mRNA COVID-19 vaccine may have reduced efficacy in individuals with chronic lymphocytic leukemia (CLL) and multiple myeloma, two types of blood cancer. According to researchers, these studies could help inform the ideal time for vaccination of these
naddude
in
CLL Support
3 years ago
CLL responses to Pfizer’s Covid vaccines.
Just sharing an ASH medical journal study of CLL patient’s responses to the Pfizer Covid vaccine: Among patients with chronic lymphocytic leukemia (CLL, n = 169) who received two doses of the Pfizer-BioNTech vaccine, the antibody response rate was 39.5% as measured by the Elecsys Anti-SARS-CoV-2 assay
Just sharing an ASH medical journal study of CLL patient’s responses to the Pfizer Covid vaccine: Among patients with chronic lymphocytic leukemia (CLL, n = 169) who received two doses of the Pfizer-BioNTech vaccine, the antibody response rate was 39.5% as measured by the Elecsys Anti-SARS-CoV-2 assay
Twin21
in
CLL Support
3 years ago
Enlarged Spleen
I have post Pv Myelofibrosis and am on Ruxolitinib. My blood counts are good except for a white cell count of 21. However, my “blasts” are at 18%. I am not experiencing any major symptoms except for an enlarged Spleen that currently measures 28 cams, which is large. The Ruxolitinib is not reducing it
I have post Pv Myelofibrosis and am on Ruxolitinib. My blood counts are good except for a white cell count of 21. However, my “blasts” are at 18%. I am not experiencing any major symptoms except for an enlarged Spleen that currently measures 28 cams, which is large. The Ruxolitinib is not reducing it
billybrock
in
MPN Voice
3 years ago
NICE Recommends Acalabrutinib for treating CLL for certain groups
NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated chronic lymphocytic leukaemia (CLL) in adults, [u]BUT ONLY IF[/u]: * there is a 17p deletion or TP53 mutation, or * there is no 17p deletion or TP53 mutation, and fludarabine plus cyclophosphamide and rituximab
NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated chronic lymphocytic leukaemia (CLL) in adults, [u]BUT ONLY IF[/u]: * there is a 17p deletion or TP53 mutation, or * there is no 17p deletion or TP53 mutation, and fludarabine plus cyclophosphamide and rituximab
Jm954
Administrator
in
CLL Support
3 years ago
FDA Issues Complete Response Letter for Ropeginterferon Alfa-2b for Polycythemia Vera
The FDA has issued a complete response letter regarding the biologics license application for ropeginterferon alfa-2b-njft for the treatment of patients with polycythemia vera. The FDA has issued a complete response letter (CRL) regarding the biologics license application (BLA) for ropeginterferon alfa
The FDA has issued a complete response letter regarding the biologics license application for ropeginterferon alfa-2b-njft for the treatment of patients with polycythemia vera. The FDA has issued a complete response letter (CRL) regarding the biologics license application (BLA) for ropeginterferon alfa
JT_Marlin
in
MPN Voice
3 years ago
Interferon-Alpha Improves MFS and OS Over Standard Approaches in Polycythemia Vera
Interferon-alpha has been shown to significantly improve both myelofibrosis-free survival and overall survival over hydroxyurea and phlebotomy only in patients with polycythemia vera. Interferon-alpha (IFN) has been shown to significantly improve both myelofibrosis-free survival (MFS) and overall survival
Interferon-alpha has been shown to significantly improve both myelofibrosis-free survival and overall survival over hydroxyurea and phlebotomy only in patients with polycythemia vera. Interferon-alpha (IFN) has been shown to significantly improve both myelofibrosis-free survival (MFS) and overall survival
JT_Marlin
in
MPN Voice
3 years ago
Fatigue
Hello everyone, I am on nPlate, I am on weekly doses and been on it for 7 weeks. I am getting periods of extreme fatigue, similar to before I was diagnosed. I am not due to have another blood test to check my platelet levels for another three weeks. Does anyone else get fatigue on nPlate? Or is
Hello everyone, I am on nPlate, I am on weekly doses and been on it for 7 weeks. I am getting periods of extreme fatigue, similar to before I was diagnosed. I am not due to have another blood test to check my platelet levels for another three weeks. Does anyone else get fatigue on nPlate? Or is
DevonMaid1
in
ITP Support Association
3 years ago
Vaccine antibodies
I know there is is some concern about recent reports that blood cancer patients are at much greater risk than solid cancer patients. My understanding is that this is related to those with very low B cells. The B cells produce antibodies, hence risk that the vaccine will be less effective. Most MPN patients
I know there is is some concern about recent reports that blood cancer patients are at much greater risk than solid cancer patients. My understanding is that this is related to those with very low B cells. The B cells produce antibodies, hence risk that the vaccine will be less effective. Most MPN patients
Paul123456
in
MPN Voice
3 years ago
Ruxolitinib and Anaemia
I'm struggling with heavy anaemia and very very low platelets after four months of Ruxolitinib. It's not pleasant at all, and I need blood transfusions every two weeks or so. There is a danger of my ferritin levels getting too high as well. I gather this happens a lot. I understand my Hgb levels might
I'm struggling with heavy anaemia and very very low platelets after four months of Ruxolitinib. It's not pleasant at all, and I need blood transfusions every two weeks or so. There is a danger of my ferritin levels getting too high as well. I gather this happens a lot. I understand my Hgb levels might
RobinBrum
in
MPN Voice
3 years ago
Aggressive CLL - Richter's Transformation
Hi Everyone, My father was diagnosed with aggressive CLL with PLL (prolymphocytic leukemia--where the cancer is present in immature white cells) and paraimmunoblastic features in March 2020. The first-line treatment was obinutuzumab/venetoclax but after a year on this treatment, his disease has turned
Hi Everyone, My father was diagnosed with aggressive CLL with PLL (prolymphocytic leukemia--where the cancer is present in immature white cells) and paraimmunoblastic features in March 2020. The first-line treatment was obinutuzumab/venetoclax but after a year on this treatment, his disease has turned
Phs2385
in
CLL Support
3 years ago
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