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Lupus with vasculitis
I had over a year of
Actemra
biologic shots but had to stop because of dividiculitis. My body pain is just unbearable and certain markers for possibly lupus are sometimes elevated. I really have the body pain symptoms of polymyositis.
I had over a year of
Actemra
biologic shots but had to stop because of dividiculitis. My body pain is just unbearable and certain markers for possibly lupus are sometimes elevated. I really have the body pain symptoms of polymyositis.
Aleish
in
LUPUS UK
5 years ago
Major flare gca
I have been ok on
Actemra
twice monthly also 9 mg pred. Stopped the
Actemra
for two weeks for eye surgery and every muscle is useless and vile pain. Had dvt and pe and have been on blood thinners. Off now. ESR 47 CRP 12. In one week. ESR Was 7 and .06. Major flare.
I have been ok on
Actemra
twice monthly also 9 mg pred. Stopped the
Actemra
for two weeks for eye surgery and every muscle is useless and vile pain. Had dvt and pe and have been on blood thinners. Off now. ESR 47 CRP 12. In one week. ESR Was 7 and .06. Major flare.
Nap1
in
PMRGCAuk
5 years ago
Prednisone Actemra and MTX
Does anyone have experience taking prednisone,
Actemra
and MTX all at the same time?
Does anyone have experience taking prednisone,
Actemra
and MTX all at the same time?
Lauren103
in
PMRGCAuk
5 years ago
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Tocilizumab (Actemra) withdrawn - update
Hello all who responded to my last post about the above. I have now been told I can have three more months supply but they cannot tell me if they will continue after that. Feel relieved to have three months!
Hello all who responded to my last post about the above. I have now been told I can have three more months supply but they cannot tell me if they will continue after that. Feel relieved to have three months!
christine2715
in
PMRGCAuk
5 years ago
Want to know about Actemra
My Doctor is thinking of putting me on
Actemra
. I would like to know what other people think of this. Seems scary.
My Doctor is thinking of putting me on
Actemra
. I would like to know what other people think of this. Seems scary.
confused2
in
PMRGCAuk
5 years ago
GCA
According to this doctor, she keeps her patients on 5 mg of prednisone, and suggests using
Actemra
to help with that. It was also suggested by the doctors at Mayo that
Actemra
will help me get off the high dose and keep me at a low dose (5 mg) without flare ups.
According to this doctor, she keeps her patients on 5 mg of prednisone, and suggests using
Actemra
to help with that. It was also suggested by the doctors at Mayo that
Actemra
will help me get off the high dose and keep me at a low dose (5 mg) without flare ups.
luv2read
in
PMRGCAuk
5 years ago
Actemra
Is
Actemra
available to you. Have been getting it every four weeks IV for four years. It is one of the newer biologics. I am doing exceptionally well on it with no side effects.
Is
Actemra
available to you. Have been getting it every four weeks IV for four years. It is one of the newer biologics. I am doing exceptionally well on it with no side effects.
Seaberry
in
NRAS
5 years ago
Horrible gca headache!! (and update)
My rheumy then decided he is going to treat me for the gca and prescribed
Actemra
. It has taken over a month to get that arranged. I'll have my first infusion day after tomorrow. In the meantime, my pred dose keeps going up because nothing seems to get rid of this awful headache.
My rheumy then decided he is going to treat me for the gca and prescribed
Actemra
. It has taken over a month to get that arranged. I'll have my first infusion day after tomorrow. In the meantime, my pred dose keeps going up because nothing seems to get rid of this awful headache.
pattypoo01
in
PMRGCAuk
5 years ago
Stelara for GCA
My doctor wants to try Stelara biologic shots for my treatment because I was no longer able to continue
Actemra
when I got dividiculitis. Some small studies have shown promise in GCA. She would try and get me approved for it based on a previous diagnosis of psoriatic arthritis .
My doctor wants to try Stelara biologic shots for my treatment because I was no longer able to continue
Actemra
when I got dividiculitis. Some small studies have shown promise in GCA. She would try and get me approved for it based on a previous diagnosis of psoriatic arthritis .
Aleish
in
PMRGCAuk
5 years ago
Actmera
My question today: is anyone taking
Actemra
as a monthly infusion? After my Rheumatologist drained syringes full of fluid from my knee and my overall pain level being high in all my joints, he feels the 25mgs of Methotrexate is not enough.
My question today: is anyone taking
Actemra
as a monthly infusion? After my Rheumatologist drained syringes full of fluid from my knee and my overall pain level being high in all my joints, he feels the 25mgs of Methotrexate is not enough.
EdieB
in
NRAS
5 years ago
Stomach irritation most of time.
My PMR pain is non stop and did better on
Actemra
with the prednisone but as previously reported had to get off after two years because of dividiculitis. I was down to 5 mgs prednisone and going crazy with pain was told to up dosage to 20 to get over the current inflammatory problem.
My PMR pain is non stop and did better on
Actemra
with the prednisone but as previously reported had to get off after two years because of dividiculitis. I was down to 5 mgs prednisone and going crazy with pain was told to up dosage to 20 to get over the current inflammatory problem.
Aleish
in
PMRGCAuk
5 years ago
GCA,Actemra, Prednisone and IL6
I am on
Actemra
162 mg subcutaneous since a month. I am also on 30 mg prednisone currently though have stepped down from 60 mg over last three months.
I am on
Actemra
162 mg subcutaneous since a month. I am also on 30 mg prednisone currently though have stepped down from 60 mg over last three months.
Iwillwin123
in
PMRGCAuk
5 years ago
Flare on Actemra
Since on
Actemra
I was able to slowly reduce medrol from 12mg to 5mg, then boom, major flare last week. I went back to 6mg 2 days ago and beginning to feel better.
Since on
Actemra
I was able to slowly reduce medrol from 12mg to 5mg, then boom, major flare last week. I went back to 6mg 2 days ago and beginning to feel better.
NEPatriots12
in
PMRGCAuk
5 years ago
surgery and actemra
I discontinued my
actemra
for total of 5 weeks. Three weeks prior and 2 weeks after surgery. I had been on 6mg of prednisone for 3weeks prior to surgery and 2weeks after surgery.
I discontinued my
actemra
for total of 5 weeks. Three weeks prior and 2 weeks after surgery. I had been on 6mg of prednisone for 3weeks prior to surgery and 2weeks after surgery.
mngirl
in
PMRGCAuk
5 years ago
Biologics and Lung Disease
Shortly after starting
Actemra
(tocilizumab) I noticed shortness of breath. I was told that I had genetic COPD but I have since read articles that Biologics could be the cause
Shortly after starting
Actemra
(tocilizumab) I noticed shortness of breath. I was told that I had genetic COPD but I have since read articles that Biologics could be the cause
SufferingOnHumira
in
NRAS
5 years ago
GCA and Actemra.
Hello all, I have been on
Actemra
(tocilizumab) for GCA for 1 yr 9 months. I was on the drug trial. For me it has been marvellous and I started at one injection per week, self injecting and am just starting one every 4 weeks.
Hello all, I have been on
Actemra
(tocilizumab) for GCA for 1 yr 9 months. I was on the drug trial. For me it has been marvellous and I started at one injection per week, self injecting and am just starting one every 4 weeks.
christine2715
in
PMRGCAuk
5 years ago
Additional autoimmune disease now.
Prescribed high dose of prednisone and got started on
Actemra
and in less then two years was coming along ok. Had to stop the
Actemra
this January because I developed Dividiculitis.
Prescribed high dose of prednisone and got started on
Actemra
and in less then two years was coming along ok. Had to stop the
Actemra
this January because I developed Dividiculitis.
Aleish
in
PMRGCAuk
5 years ago
Reduce 5 or less
Actemra
is carrying the ball. Once I get to 10 I can think about what to do with the Eliquis. I know I have to stop the
Actemra
. Eye Dr. the best in the US at Bascom Palma and he says I am the most difficult case. I am beginning to find myself difficult too.
Actemra
is carrying the ball. Once I get to 10 I can think about what to do with the Eliquis. I know I have to stop the
Actemra
. Eye Dr. the best in the US at Bascom Palma and he says I am the most difficult case. I am beginning to find myself difficult too.
Nap1
in
PMRGCAuk
5 years ago
Can I cope?
I have GCA and PMR and the GCA is much better thanks to
Actemra
(tocilizumab) injections. I have recently reduced to one every four weeks. On the last day before the injection the right side of my scalp and temple was really sore to the touch.Luckily was gone by morning and I am fine now.
I have GCA and PMR and the GCA is much better thanks to
Actemra
(tocilizumab) injections. I have recently reduced to one every four weeks. On the last day before the injection the right side of my scalp and temple was really sore to the touch.Luckily was gone by morning and I am fine now.
christine2715
in
PMRGCAuk
5 years ago
Actemra biological injection for Rhuematoid Arthritis
Could anyone help me please. You have been injecting myself now for about 6 months. I hate doing it. Sometimes the needle goes in the skin easier than other times. I pinch the skin and wait fir the needle to get room temperature. This morning when I done it it took ages to try and get it in. Am I
Could anyone help me please. You have been injecting myself now for about 6 months. I hate doing it. Sometimes the needle goes in the skin easier than other times. I pinch the skin and wait fir the needle to get room temperature. This morning when I done it it took ages to try and get it in. Am I
Ruffles13
in
NRAS
5 years ago
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