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confused re meds
Hi all, can anyone give me advice about timing all these wonderful medications? I have just been prescribed Calium and Vit D supplement as well as Alendronic acid. I have already decided to give the Alendronic a miss honest however, the calcium and vit d need to be taken twice a day and this is where
Hi all, can anyone give me advice about timing all these wonderful medications? I have just been prescribed Calium and Vit D supplement as well as Alendronic acid. I have already decided to give the Alendronic a miss honest however, the calcium and vit d need to be taken twice a day and this is where
Cooper02
in
PMRGCAuk
6 months ago
Bone Density
Since I last posted six months ago, I have tapered down to 2.5mg a day. The occasional mild discomfort in my arm remains - to remind me that PMR has not gone away - but my quality of life is fine. I will continue with a very slow taper. A few weeks ago I had a bone density scan L1-L4 is 2.7 Hip is
Since I last posted six months ago, I have tapered down to 2.5mg a day. The occasional mild discomfort in my arm remains - to remind me that PMR has not gone away - but my quality of life is fine. I will continue with a very slow taper. A few weeks ago I had a bone density scan L1-L4 is 2.7 Hip is
Glassbox
in
PMRGCAuk
6 months ago
Vitamins/supplement balance 2ww and TTC. SO CONFUSING!
How do you manage preparing for an IVF cycle with suplements if you are also trying naturally? I am in a 2ww and might be pregnant if you believe in miracles. I have been taking the list below before, but learnt this is too much and can be detrimental in a two week wait so swapped for a pregnancy
How do you manage preparing for an IVF cycle with suplements if you are also trying naturally? I am in a 2ww and might be pregnant if you believe in miracles. I have been taking the list below before, but learnt this is too much and can be detrimental in a two week wait so swapped for a pregnancy
Cuppppatea
in
Fertility Network UK
6 months ago
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Can I stop taking Ibandronic Acid?
I have been on Ibandronic Acid for 2 years after 3 years of Alendronic Acid, making it a total of 5 years this year. The last time I spoke to my doctor she said that the Osteoporosis specialist said that as I was young, I am still only 56, that I could stay on Ibandronic Acid for 10 years. My last
I have been on Ibandronic Acid for 2 years after 3 years of Alendronic Acid, making it a total of 5 years this year. The last time I spoke to my doctor she said that the Osteoporosis specialist said that as I was young, I am still only 56, that I could stay on Ibandronic Acid for 10 years. My last
Mamamia21
in
PMRGCAuk
6 months ago
Alendronic Acid - First Day
..... that's it! I took my first Alendronic Acid pill 70mg an hour ago... I am worried that things will go wrong but let's see. I have been getting a lot of aches and pains of late and it really is bothering me so - hey ho here we go! Hope you are all well David
..... that's it! I took my first Alendronic Acid pill 70mg an hour ago... I am worried that things will go wrong but let's see. I have been getting a lot of aches and pains of late and it really is bothering me so - hey ho here we go! Hope you are all well David
Hidden
in
PMRGCAuk
6 months ago
Alendronic Acid side effects
I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and she's just prescribed Alendronic Acid. Reading the patient leaflet, the side-effects sound pretty grim. I'm going on a river cruise at the
I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and she's just prescribed Alendronic Acid. Reading the patient leaflet, the side-effects sound pretty grim. I'm going on a river cruise at the
Hercules307
in
PMRGCAuk
7 months ago
Ferritin and Iron
I found some information below about Ferritin and Iron - it is from the Dr Mercola website. I have just had my ferritin levels and iron levels checked - The Doctor said they were a bit on the low side so I am taking some gentle iron. My ferritin was 50.9 - I never heard of ferritin before having RLS
I found some information below about Ferritin and Iron - it is from the Dr Mercola website. I have just had my ferritin levels and iron levels checked - The Doctor said they were a bit on the low side so I am taking some gentle iron. My ferritin was 50.9 - I never heard of ferritin before having RLS
Summer194
in
Restless Legs Syndrome
7 months ago
Alendronic Acid and...
Hi everyone :) I saw my lovely GP last week and we talked about my problems in a really kind manner. I said that I am in pain and aching too often these days. Paracetomol doesn't help :/ I have been on a taper from 7mg - 6mg and in achy town all the time. I told him, again, that the Rheumy ( I
Hi everyone :) I saw my lovely GP last week and we talked about my problems in a really kind manner. I said that I am in pain and aching too often these days. Paracetomol doesn't help :/ I have been on a taper from 7mg - 6mg and in achy town all the time. I told him, again, that the Rheumy ( I
Hidden
in
PMRGCAuk
7 months ago
Is what I'm experiencing Pelvic Pain? Plus Spritz for Bits?
I'm 77 years old and have been diagnosed with rectocele and cystocele by my GP and also a private consultant, who told me he could do nothing until I had done 16 weeks of pelvic floor exercises. I found a women's health physio who tells me my pelvic floor measures 5/5 on the modified Oxford scale so
I'm 77 years old and have been diagnosed with rectocele and cystocele by my GP and also a private consultant, who told me he could do nothing until I had done 16 weeks of pelvic floor exercises. I found a women's health physio who tells me my pelvic floor measures 5/5 on the modified Oxford scale so
tort100
in
Pelvic Pain Support Network
7 months ago
two week wait vitamins
We continue trying naturally this month after failed embryo transfer last month … Currently ovulating but concerned about vitamins in the two week wait. Any insights ? I am taking : Alpha lipoic acid - 500 mg Vit D - 4,000 IU COQ10 - Ubiquinone, 300mg twice a day (folic actin) methylfolate 400
We continue trying naturally this month after failed embryo transfer last month … Currently ovulating but concerned about vitamins in the two week wait. Any insights ? I am taking : Alpha lipoic acid - 500 mg Vit D - 4,000 IU COQ10 - Ubiquinone, 300mg twice a day (folic actin) methylfolate 400
Cuppppatea
in
Fertility Network UK
7 months ago
Second opinion Dr implies no Endo!
Hi Everyone! So I work abroad on and off and in the UK, I was ‘kinda’ diagnosed with endometriosis, based on a teeny tiny left side ovary cyst they found and the fact that my womb or something was stuck to the back wall of something (uterus?) 🙈🙈 so in the country where I am working, I finally managed
Hi Everyone! So I work abroad on and off and in the UK, I was ‘kinda’ diagnosed with endometriosis, based on a teeny tiny left side ovary cyst they found and the fact that my womb or something was stuck to the back wall of something (uterus?) 🙈🙈 so in the country where I am working, I finally managed
SunSeaNoSex
in
Endometriosis UK
7 months ago
Hello everyone
I was diagnosed with PMR at the end of January after several months of aching joints with limited mobility, particularly in my shoulders. After a week of steroids the mobility in my shoulders returned to normal and my hips and knees were fine. I was able to resume doing my weekly 30 mile cycle ride.
I was diagnosed with PMR at the end of January after several months of aching joints with limited mobility, particularly in my shoulders. After a week of steroids the mobility in my shoulders returned to normal and my hips and knees were fine. I was able to resume doing my weekly 30 mile cycle ride.
AnnaColuthon
in
PMRGCAuk
7 months ago
Finally finished prednisolone.
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Amstel
in
PMRGCAuk
7 months ago
Advice on egg freezing and hysterectomy for severely heavy bleeding
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
GrouchoSparx
in
Endometriosis UK
7 months ago
Private Dexa Scan
I have been on 40mg pred for 3 weeks for positive GCA.I have agreed to take weekly alendronic acid as advised by my rheumatologist, and took my first dose yesterday. I asked him about having a dexa scan. He says he will arrange a dexa scan when/if I am off steroids, which he says may be in 1 - 1.5
I have been on 40mg pred for 3 weeks for positive GCA.I have agreed to take weekly alendronic acid as advised by my rheumatologist, and took my first dose yesterday. I asked him about having a dexa scan. He says he will arrange a dexa scan when/if I am off steroids, which he says may be in 1 - 1.5
kalgoorlie
in
PMRGCAuk
7 months ago
Alendronic Acid
Hi. I've been taking Alendronic Acid for 5.5 years with no problems. Now I'm told I need a treatment break for 2 years. Why would this be? I'm on Letrozole since March 2018 and have been having bone scans every 2 years since 2020.
Hi. I've been taking Alendronic Acid for 5.5 years with no problems. Now I'm told I need a treatment break for 2 years. Why would this be? I'm on Letrozole since March 2018 and have been having bone scans every 2 years since 2020.
Walkingwizard
in
PMRGCAuk
7 months ago
NAC and Alpha Lipoic Acid
hi, I have been reading about NAC and Alpha Lipoic Acid for egg n sperm health. Has anyone take these supplements and seen improved outcomes? Can I take these without consulting my clinic? Please let me know. Thank you x
hi, I have been reading about NAC and Alpha Lipoic Acid for egg n sperm health. Has anyone take these supplements and seen improved outcomes? Can I take these without consulting my clinic? Please let me know. Thank you x
Shwet_16
in
Fertility Network UK
7 months ago
Grade 3 Fatty Liver - Liver Enzymes keeps on elevating
Last month I was diagnosed with grade 3 fatty liver through an ultrasound. I am 27 & extremely obese ( BMI - 33 ) . Just before that I had a drug reaction which led to short term Hemolytic Anemia and Jaundice . At that time everything on my LFT was elevated . It's been 40 days everything else on my LFT
Last month I was diagnosed with grade 3 fatty liver through an ultrasound. I am 27 & extremely obese ( BMI - 33 ) . Just before that I had a drug reaction which led to short term Hemolytic Anemia and Jaundice . At that time everything on my LFT was elevated . It's been 40 days everything else on my LFT
Imviiku
in
Living with Fatty Liver and NASH
7 months ago
GCA confirmed after Ear pain
Just to let you know that the result of my temporal artery biopsy has been confirmed as positive today. I had the biopsy on monday, just 3.5 weeks after initially going to the GP with earache. I am amazed actually as it was a result of knowledge on this forum that prompted me to go back to my GP, after
Just to let you know that the result of my temporal artery biopsy has been confirmed as positive today. I had the biopsy on monday, just 3.5 weeks after initially going to the GP with earache. I am amazed actually as it was a result of knowledge on this forum that prompted me to go back to my GP, after
kalgoorlie
in
PMRGCAuk
7 months ago
Alendronic Acid and Methotrexate
I've had PMR for about two years. All symptoms vanished completely as soon as I was put on Prednisolone (15mg per day), but I had a bad experience with trying to reduce, as advised by both GPs and my rheumatologist, by large cliff-edge steps--from 15mg to 12.5mg, then 10mg, all in a very few weeks.
I've had PMR for about two years. All symptoms vanished completely as soon as I was put on Prednisolone (15mg per day), but I had a bad experience with trying to reduce, as advised by both GPs and my rheumatologist, by large cliff-edge steps--from 15mg to 12.5mg, then 10mg, all in a very few weeks.
PressBarVet
in
PMRGCAuk
7 months ago
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