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Experiences with
Acalabrutinib
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CLL Treatment Options
I have been offered 2 treatment options - a 1 Year Course of Obinutuzumab Infusion plus Venetoclax tablets; or
Acalabrutinib
Tablets for ever. I would like to understand the comparative results of the two options including likely side effects so that I can make a choice. Thanks
I have been offered 2 treatment options - a 1 Year Course of Obinutuzumab Infusion plus Venetoclax tablets; or
Acalabrutinib
Tablets for ever. I would like to understand the comparative results of the two options including likely side effects so that I can make a choice. Thanks
TopGun1001
in
CLL Support
1 year ago
Swollen nodes on
Question is, would this be the normal response to
Acalabrutinib
or should lymph nodes have disappeared by now? I am up again Thursday for review/bloods. Mick
Question is, would this be the normal response to
Acalabrutinib
or should lymph nodes have disappeared by now? I am up again Thursday for review/bloods. Mick
CillDaraAbu
in
CLL Support
1 year ago
Help Please! Took Extra dose by mistake
I just realized I mistakenly took an extra dose of
acalabrutinib
today. I’m traveling and not on my normal schedule. Concerned and not sure what to do. Thank yoy.
I just realized I mistakenly took an extra dose of
acalabrutinib
today. I’m traveling and not on my normal schedule. Concerned and not sure what to do. Thank yoy.
rggerlac
in
CLL Support
2 years ago
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Blurry Vision
Concurrently, I began Calquence (
acalabrutinib
) and Allopurinal, which I will take indefinitely. Shortly after beginning treatment, I began experiencing blurred vision, which continues. As an aside, I have had dry eye for a couple of years, and have used drops for about 2 years now.
Concurrently, I began Calquence (
acalabrutinib
) and Allopurinal, which I will take indefinitely. Shortly after beginning treatment, I began experiencing blurred vision, which continues. As an aside, I have had dry eye for a couple of years, and have used drops for about 2 years now.
Mango1957
in
CLL Support
1 year ago
Hubby about to begin Obinutuzumab infusions....feeling anxious
After having a transient loss of vision in one eye that was ultimately related to a "tortuous vein" problem and a white blood cell count of over 200k, his oncologist placed him on
Acalabrutinib
for eight months.
After having a transient loss of vision in one eye that was ultimately related to a "tortuous vein" problem and a white blood cell count of over 200k, his oncologist placed him on
Acalabrutinib
for eight months.
keikikumu
in
CLL America Support
1 year ago
Sll/Acalabrutinib/lymph nodes
I am a month into treatment with
Acalabrutinib
and I can still see and feel many lymph nodes. I’ve been reading on this site that many seem to have had much better results so far… anyone with a similar experience?
I am a month into treatment with
Acalabrutinib
and I can still see and feel many lymph nodes. I’ve been reading on this site that many seem to have had much better results so far… anyone with a similar experience?
Tofa80
in
CLL Support
2 years ago
Paxlovid
Can I take paxlovid with
acalabrutinib
?
Can I take paxlovid with
acalabrutinib
?
BallyB
in
CLL Support
2 years ago
Acalabrutinib and social life
I'm about to start taking
acalabrutinib
and I belong to quite a few social groups. Do I have to take any special precautions. My consultant expects me to be on it for a number of years .
I'm about to start taking
acalabrutinib
and I belong to quite a few social groups. Do I have to take any special precautions. My consultant expects me to be on it for a number of years .
Artlover1908
in
CLL Support
2 years ago
Acalabrutinib + Ruxolitinib interactions
Hello I have CLL (taking
Acalabrutinib
) I also have Myelofibrosis and my Dr might put me on Ruxolitinib..... I am Looking for interactions between both drugs. I have checked drugs.com and Epocrates Looking for someone with more info or someone taking this combination Thank you
Hello I have CLL (taking
Acalabrutinib
) I also have Myelofibrosis and my Dr might put me on Ruxolitinib..... I am Looking for interactions between both drugs. I have checked drugs.com and Epocrates Looking for someone with more info or someone taking this combination Thank you
antonb
in
CLL Support
2 years ago
Half dose of Acalabrutinib
Have any of you been transferred from a full to half dose of
Acalabrutinib
(1 pill a day) because the full dose caused infections ? If yes, did the half dose solved the infections, and was it still sufficient to treat CLL ?
Have any of you been transferred from a full to half dose of
Acalabrutinib
(1 pill a day) because the full dose caused infections ? If yes, did the half dose solved the infections, and was it still sufficient to treat CLL ?
MikeOr
in
CLL Support
2 years ago
W&W for 2yrs: Congested sinuses, heavily congested ear, partial deafness.
Does this perhaps herald the beginning of treatment (I have been informed by my CLL specialist that
Acalabrutinib
is likely to be my first treatment). As ever thanks to you all for making this such a friendly, indispensable and well-informed site. P.
Does this perhaps herald the beginning of treatment (I have been informed by my CLL specialist that
Acalabrutinib
is likely to be my first treatment). As ever thanks to you all for making this such a friendly, indispensable and well-informed site. P.
Petroc
in
CLL Support
1 year ago
Growth on nose
My husband is being treated with
acalabrutinib
for CLL , taking it for about 7 months. His white blood cell count was raised significantly at first but after 5 months it started to come down slowly and his lymphocyte count is now 150.
My husband is being treated with
acalabrutinib
for CLL , taking it for about 7 months. His white blood cell count was raised significantly at first but after 5 months it started to come down slowly and his lymphocyte count is now 150.
Leo71
in
CLL Support
2 years ago
acalabrutinib
after years of watch and wait I am now about to start
acalabrutinib
….. can you tell me what side effects to expect and how it is
after years of watch and wait I am now about to start
acalabrutinib
….. can you tell me what side effects to expect and how it is
Grad99
in
CLL Support
2 years ago
started Acalabrutinib 3 weeks ago..
I started
Acalabrutinib
3 weeks ago and so far I have only experienced mild side effects, some nausea and headaches in the beginning but it has already gotten much better. I now feel fine most of the days.
I started
Acalabrutinib
3 weeks ago and so far I have only experienced mild side effects, some nausea and headaches in the beginning but it has already gotten much better. I now feel fine most of the days.
Tofa80
in
CLL Support
2 years ago
Interrupting Acalabrutinib for a minor surgery
Acalabrutinib
seems to increase the patient's propensity to bruising / bleeding even more, on the top of the already low platelet count. So it needs to be stopped before and after a minor skin surgery. Have any of you been in a similar situation, and if yes - how long was your interruption ?
Acalabrutinib
seems to increase the patient's propensity to bruising / bleeding even more, on the top of the already low platelet count. So it needs to be stopped before and after a minor skin surgery. Have any of you been in a similar situation, and if yes - how long was your interruption ?
MikeOr
in
CLL Support
2 years ago
paxlovid interactions-statins, thinners
I am getting C scan in Nov. to see if i should take a vacation from
acalabrutinib
in which case an urgently required trip to Estonia overseas might be doable as then if i get infected Paxlovid would be OK. Of course need to find out if they have it there.
I am getting C scan in Nov. to see if i should take a vacation from
acalabrutinib
in which case an urgently required trip to Estonia overseas might be doable as then if i get infected Paxlovid would be OK. Of course need to find out if they have it there.
onu1tadi2
in
CLL Support
2 years ago
normal blood results after 6 weeks on Acalabrutinib (SLL)
Doctor finally recommended
Acalabrutinib
because of my bulky lymph nodes. I noticed the biggest change with the size of lymph nodes during the first two weeks after starting treatment. My entire neck decreased in size as the swelling went down.
Doctor finally recommended
Acalabrutinib
because of my bulky lymph nodes. I noticed the biggest change with the size of lymph nodes during the first two weeks after starting treatment. My entire neck decreased in size as the swelling went down.
Tofa80
in
CLL Support
2 years ago
What is next if Acalabrutinib AFIB wont stop?
My doctor put me on
Acalabrutinib
and the AFIB came back with a vengeance and I had a harder time going on walks and exercising. The doctor just told me to stop taking it and wants to meet with me to discuss "what's next".
My doctor put me on
Acalabrutinib
and the AFIB came back with a vengeance and I had a harder time going on walks and exercising. The doctor just told me to stop taking it and wants to meet with me to discuss "what's next".
barger1951
in
CLL Support
2 years ago
Chronic lymphocytic leukemia treatment algorithm 2022
(See https://healthunlocked.com/cllsupport/posts/148781199/ighv-unmutated-and-
acalabrutinib
?responses=148783074 for more information about how IGHV might influence treatment choice). When a BTK inhibitor is selected, either
acalabrutinib
or zanubrutinib is preferred in most patients.
(See https://healthunlocked.com/cllsupport/posts/148781199/ighv-unmutated-and-
acalabrutinib
?responses=148783074 for more information about how IGHV might influence treatment choice). When a BTK inhibitor is selected, either
acalabrutinib
or zanubrutinib is preferred in most patients.
CLLerinOz
Volunteer
in
CLL Support
1 year ago
Burning sensation in feet - Acalabrutinib
Been taking
Acalabrutinib
for three weeks (along with Allopurinol and anti viral and anti bacterial). Second line treatment after cll relapse. Almost no side effects except for........ I'm getting frequent and long-lasting burning sensations in both feet.
Been taking
Acalabrutinib
for three weeks (along with Allopurinol and anti viral and anti bacterial). Second line treatment after cll relapse. Almost no side effects except for........ I'm getting frequent and long-lasting burning sensations in both feet.
Savagebikenut
in
CLL Support
1 year ago
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