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Acalabrutinib
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Treatment advised (after 21 years w & w)
The consultant said if "I was his father" he would advise OB. plus Venetoclax. as he was concerned about long-term side effects of
Acalabrutinib
. I think I am willing to risk these as i don't have heart issues. As regards the issue of treatment sequencing.
The consultant said if "I was his father" he would advise OB. plus Venetoclax. as he was concerned about long-term side effects of
Acalabrutinib
. I think I am willing to risk these as i don't have heart issues. As regards the issue of treatment sequencing.
ornstin
in
CLL Support
3 years ago
Just started Acalabritunib....
Hello, everyone, My husband just started on
Acalabrutinib
and has been having sore joints and serious headaches. What can you tell me from your experience that might help him? Thank you in advance for your kindness.... Heather
Hello, everyone, My husband just started on
Acalabrutinib
and has been having sore joints and serious headaches. What can you tell me from your experience that might help him? Thank you in advance for your kindness.... Heather
hsouter
in
CLL Support
3 years ago
Acalabrutinib headaches - on and off all day?
My husband started
Acalabrutinib
in mid April - 2 pills daily - and has been having lots of headaches…at random times. In the morning (coffee helps), in the evening before bed, in the middle of the night.
My husband started
Acalabrutinib
in mid April - 2 pills daily - and has been having lots of headaches…at random times. In the morning (coffee helps), in the evening before bed, in the middle of the night.
OaktownA
in
CLL Support
3 years ago
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Acalabrutinib
Thanks to everyone for your advice. My husband has started the drugs and is doing well so far.
Thanks to everyone for your advice. My husband has started the drugs and is doing well so far.
paddlerwhite
in
CLL Support
3 years ago
The Leukemia & Lymphoma Society’s National Patient Registry COVID-19 vaccination antibody results - published today (Greenberg et al)
cytotoxic chemotherapy 71 Obinutuzumab, ibrutinib 70 Obinutuzumab,
acalabrutinib
66 Rituximab 63
Acalabrutinib
55 Ibrutinib 48 Ibrutinib, IVIG 40 IVIG 25 Source: The LLS National Patient Registry.
cytotoxic chemotherapy 71 Obinutuzumab, ibrutinib 70 Obinutuzumab,
acalabrutinib
66 Rituximab 63
Acalabrutinib
55 Ibrutinib 48 Ibrutinib, IVIG 40 IVIG 25 Source: The LLS National Patient Registry.
lankisterguy
Volunteer
in
CLL Support
3 years ago
Acalabrutinib
How is
acalabrutinib
tolerated? I am new to it all!
How is
acalabrutinib
tolerated? I am new to it all!
paddlerwhite
in
CLL Support
3 years ago
LLS Covid-19 Vaccine Trial: Antibody response to SARS-CoV-2 vaccines in patients with hematologic malignancies
[/i] [i]Treatment in the last two years with a BTKi such as ibrutinib or
acalabrutinib
lowers the chances of responding.
[/i] [i]Treatment in the last two years with a BTKi such as ibrutinib or
acalabrutinib
lowers the chances of responding.
lankisterguy
Volunteer
in
CLL Support
3 years ago
When do you start feeling better with A-brutinib?
My husband started
Acalabrutinib
in mid-April, and his numbers have definitely improved (and swollen nodes/spleen no longer bothering). However, he's still quite fatigued.
My husband started
Acalabrutinib
in mid-April, and his numbers have definitely improved (and swollen nodes/spleen no longer bothering). However, he's still quite fatigued.
OaktownA
in
CLL Support
3 years ago
News - Acalabrutinib approved for Restricted use in Scotland
[/i] Evidence presented showed that
Acalabrutinib
, compared with chlorambucil-obinutuzumab, significantly improved progression-free survival in adults with previously untreated CLL with co-morbidities. Jackie
[/i] Evidence presented showed that
Acalabrutinib
, compared with chlorambucil-obinutuzumab, significantly improved progression-free survival in adults with previously untreated CLL with co-morbidities. Jackie
Jm954
Administrator
in
CLL Support
3 years ago
Acalabrutinib and early morning headaches
Has anyone else experienced the same when starting the
Acalabrutinib
? Thanks for any comments you may provide.
Has anyone else experienced the same when starting the
Acalabrutinib
? Thanks for any comments you may provide.
Agatesup
in
CLL Support
3 years ago
Covid Vaccination Acalabrutinib
The procedure that was successful for me: hold
acalabrutinib
2 days before and five days after vaccination. Antibodies verified: by T test and standard test after second dose. Zero antibodies after first test.
The procedure that was successful for me: hold
acalabrutinib
2 days before and five days after vaccination. Antibodies verified: by T test and standard test after second dose. Zero antibodies after first test.
Mik_
in
Non Hodgkin's Lymphoma Friends
3 years ago
BTK inhibitors for the treatment of CLL - the current state of play of 'brutinibs'
[Until] today, no clinical trial has directly compared ibrutinib to
acalabrutinib
in previously treated CLL. Our trial presented here does this.”
[Until] today, no clinical trial has directly compared ibrutinib to
acalabrutinib
in previously treated CLL. Our trial presented here does this.”
CLLerinOz
Volunteer
in
CLL Support
3 years ago
Trigger finger & costochondritis from Acalabrutinib?
Wonder if anyone here also experienced such side effects from
acalabrutinib
? Seok
Wonder if anyone here also experienced such side effects from
acalabrutinib
? Seok
Seok
in
CLL Support
3 years ago
What’s the next step.
Or 3
Acalabrutinib
indefinitely. I’m sure these are correct. Mind is swimming at the minute. Does anyone have any experience or advice. Billy.
Or 3
Acalabrutinib
indefinitely. I’m sure these are correct. Mind is swimming at the minute. Does anyone have any experience or advice. Billy.
Billys60
in
CLL Support
3 years ago
First results of a head-to-head trial of acalabrutinib versus ibrutinib in previously treated chronic lymphocytic leukemia.
It's worth having a look at if trying to decide between Ibrutinib or
Acalabrutinib
. https://meetinglibrary.asco.org/record/201554/abstract Jackie
It's worth having a look at if trying to decide between Ibrutinib or
Acalabrutinib
. https://meetinglibrary.asco.org/record/201554/abstract Jackie
Jm954
Administrator
in
CLL Support
3 years ago
Ibrutinib to Acalabrutinib
After more than 4.5 years on Ibrutinib, I was switched to Acalabrutinub 6 days ago. I started having diarrhea the 6th night and had a headache about 4:00 a.m. Has anyone experienced the same problems- and how long did they last? Any comments will be appreciated.
After more than 4.5 years on Ibrutinib, I was switched to Acalabrutinub 6 days ago. I started having diarrhea the 6th night and had a headache about 4:00 a.m. Has anyone experienced the same problems- and how long did they last? Any comments will be appreciated.
Agatesup
in
CLL Support
3 years ago
Covid Pfizer vaccine acalabrutinib efficacy one case
Patient under
acalabrutinib
over 12 months 2. Dose two: done in 30 days dose one, last
acalabrutinib
taken 36 hours before second vaccination and patient back to
acalabrutinib
in 5 days after second vaccinationant. Antibodies test is done 21 days after vaccination. POSiTiVE.
Patient under
acalabrutinib
over 12 months 2. Dose two: done in 30 days dose one, last
acalabrutinib
taken 36 hours before second vaccination and patient back to
acalabrutinib
in 5 days after second vaccinationant. Antibodies test is done 21 days after vaccination. POSiTiVE.
Mik_
in
CLL Support
3 years ago
anyone have experience with pre existing bowel problems starting Acalabrutinib
age 77 recent sugery
age 77 recent sugery
tatly
in
CLL Support
3 years ago
NICE Recommends Acalabrutinib for treating CLL for certain groups
Despite the uncertainty,
acalabrutinib
is likely to be cost saving compared with ibrutinib. Therefore,
acalabrutinib
is recommended in this group.
Despite the uncertainty,
acalabrutinib
is likely to be cost saving compared with ibrutinib. Therefore,
acalabrutinib
is recommended in this group.
Jm954
Administrator
in
CLL Support
3 years ago
I have CLL and PV , anyone has thw same condition?
I will switch to
Acalabrutinib
, get aspirine and plhebotomies if needed by the moment. No Symptons My Dr says it is rare to have both. Any other people with the two pathologies in the group ?. Would like to share experiences with other patients having both diseases.
I will switch to
Acalabrutinib
, get aspirine and plhebotomies if needed by the moment. No Symptons My Dr says it is rare to have both. Any other people with the two pathologies in the group ?. Would like to share experiences with other patients having both diseases.
antonb
in
CLL America Support
3 years ago
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