Medications and Sweets Syndrome
sweets20105 days ago
My wife has become my advocate after the last episode in hospital back in May. It was just to be a 4 hr stay. I was given heparin to before ...
We are new to this site and hope to find some answers thru researching. My husband was diagnosed in 2010 after extensive testing.
sweets20107 days ago
We live in British Columbia, Canada and at this point in time have heard of only 1 other case here. At our local Hospital he is "N of 1". Th...
Sweet's Syndrome UK Facebook Group
Shell5678 days ago
HealthUnlocked members can also join the Sweet's Syndrome UK FB group. It is a closed group, and posts can only be seen by group members: facebook.com/groups/sweetss......
Be the first to reply
REVIN4GODa month ago
Since my diagnosis in September 2010 (by biopsy), I have been on Clobastosol( not sure I spelled that correctly). Now my insurance is not co...
My first visit to treat my Sweet Syndrome
HairstylistSSa month ago
Tomorrow I go to my Dermotolgist to talk about my treatment for Sweet Syndrome. I already take plaquenil for lupus. I am having so many symp...
6 Replies1 Like
I'm having trouble finding a doctor that will take me seriously. Or knows about sweets syndrome. I'm in the fatigue exustion stage, tempretr
Hamden2 months ago
Sweet's break out
Liney19552 months ago
Has anyone had sweet's on their back. I have had it on my arms, but now I think it's coming on my back.
Sweet's syndrome in children
Shell5672 months ago
The Sweet's Syndrome UK blog post, 'Sweet's Syndrome in Children', has been updated: helpforsweetssyndromeuk.wor...
Drug-induced Sweet's syndrome
Shell5673 months ago
In 12% of cases, Sweet's syndrome is triggered by medication, the commonest being granulocyte-colony stimulating factor (G-CSF). The biologi...
Mum struggling with Sweet’s Syndrome
lbmg9084 months ago
Hey there, I haven’t done this sort of thing before but I’m worried about my mum. She was diagnosed with Sweet’s Syndrome a few years ago no...
It's Sweet's Syndrome UK Day '18!
Shell5675 months ago
Help us celebrate Sweet's Syndrome UK
It's 1 week until Sweet's Syndrome UK Day!
It's 1 week until SWEET'S SYNDROME UK DAY on June 2nd!
Did you know that Sweet's syndrome doesn't just affect the skin? It can cause a number...
Sweet's syndrome and other neutrophilic dermatoses
Shell5676 months ago
Sweet's syndrome is both an autoinflammatory condition and neutrophilic dermatosis (ND). On rare occasions, it's possible to have more than ...
Be the first to reply2 Likes
Meganlou157 months ago
How do I become less insecure about my spots?
Cinsweetcin7 months ago
Hi. I’m Cindy from Gold Coast Australia. Was diagnosed with Sweets in Feb 2015. Only ever had one big outbreak at that initial time. I suffe...
Meganlou158 months ago
I’ve been suffering with sweets for the last 2 years I got diagnosed when I was 14. I’ve recently had a violent outburst of it and been out ...
4 Replies1 Like
It's Rare Disease Day '18!
Shell5678 months ago
It's Rare Disease Day 2018. Please help spread awareness of Sweet's syndrome: helpforsweetssyndromeuk.wor...
Rare Disease Day 2018
Shell5679 months ago
Feb 28th is Rare Disease Day.
Find out more @ rarediseaseday.org/
Free materials to download @ rarediseaseday.org/downloads
Two years and counting
Adro9 months ago
I have had SS for the past two years. I have had swellings and rashes in varying degrees over this time, which have been managed with a cour...
3 Replies2 Likes
New Sweetie in California
Tactmed9 months ago
So I am 49 years old and I was diagnosed with Sweet’s Syndrome in August of 2017. Since then I have had two “normal” blood tests with no in...
Keeping a skin diary
Shell56710 months ago
Some of our Sweeties are now keeping photographic skin diaries to help track the improvement or progression of their Sweet's syndrome lesion...
1 Reply1 Like
Sweet's Syndrome UK wishes you a Merry Christmas. 🎄⛄🎄
3 Replies1 Like
Cinta15a year ago
Hi all, just wondering if anyone has had issues with internal Sweets? Maybe causing issues with internal organs. I have had my gallbladder o...
Emotional Wellbeing and Mental Health Survey
Shell567a year ago
If anyone's interested, Rare Disease UK has launched a new research project on mental health.
The project involves taking part in an online s...
Did anyone find a secondary condition after Sweet's diagnoses?
Danae_maea year ago
I'm just wondering if anyone has found a secondary condition after they had been diagnosed. Reason being I feel so crappy during this outbr...
Does anyone get Sweet's syndrome lesions in their ears?
I often get lesions around or in my ears that normally resolve within 1-2 weeks. Despite the fact that the lesions are small, they can still...
Living with Sweet Syndrome
Lisalucas72a year ago
I was diagnosed with Sweet syndrome Febuary 2016 . I had Blisters on both of my hands that were very painfull , my Arms, Upper Legs, Face, f...
Autoinflammatory Awareness Month is here!
August is Autoinflammatory Awareness Month. Find out more @ saidsupport.org/august-is-a...
Health unlocked newbie
Jacqs23uka year agoPOPULAR
Hi all, i was diagnosed with Sweets syndrome about 4 years ago and that was after 3 years of not knowing what was wrong with me as i had so ...
Support 'International Autoinflammatory Awareness Month' this August!
Sweet's syndrome is an autoinflammatory and not an autoimmune condition.
Share the 'Autoinflammatory Awareness' campaign or add a twibbon @ twibbon.com/support/autoinf......
2 Replies1 Like
Start a Community