Sweet's syndrome and other neutrophilic dermatoses
Shell567a month ago
Sweet's syndrome is both an autoinflammatory condition and neutrophilic dermatosis (ND). On rare occasions, it's possible to have more than ...
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Meganlou152 months ago
How do I become less insecure about my spots?
Cinsweetcin2 months ago
Hi. I’m Cindy from Gold Coast Australia. Was diagnosed with Sweets in Feb 2015. Only ever had one big outbreak at that initial time. I suffe...
Meganlou153 months ago
I’ve been suffering with sweets for the last 2 years I got diagnosed when I was 14. I’ve recently had a violent outburst of it and been out ...
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It's Rare Disease Day '18!
Shell5673 months ago
It's Rare Disease Day 2018. Please help spread awareness of Sweet's syndrome: helpforsweetssyndromeuk.wor...
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Rare Disease Day 2018
Shell5674 months ago
Feb 28th is Rare Disease Day.
Find out more @ rarediseaseday.org/
Free materials to download @ rarediseaseday.org/downloads
Two years and counting
Adro4 months ago
I have had SS for the past two years. I have had swellings and rashes in varying degrees over this time, which have been managed with a cour...
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New Sweetie in California
Tactmed4 months ago
So I am 49 years old and I was diagnosed with Sweet’s Syndrome in August of 2017. Since then I have had two “normal” blood tests with no in...
Keeping a skin diary
Shell5675 months ago
Some of our Sweeties are now keeping photographic skin diaries to help track the improvement or progression of their Sweet's syndrome lesion...
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Sweet's Syndrome UK wishes you a Merry Christmas. 🎄⛄🎄
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Cinta156 months ago
Hi all, just wondering if anyone has had issues with internal Sweets? Maybe causing issues with internal organs. I have had my gallbladder o...
Emotional Wellbeing and Mental Health Survey
Shell5676 months ago
If anyone's interested, Rare Disease UK has launched a new research project on mental health.
The project involves taking part in an online s...
Did anyone find a secondary condition after Sweet's diagnoses?
Danae_mae7 months ago
I'm just wondering if anyone has found a secondary condition after they had been diagnosed. Reason being I feel so crappy during this outbr...
Does anyone get Sweet's syndrome lesions in their ears?
Shell5677 months ago
I often get lesions around or in my ears that normally resolve within 1-2 weeks. Despite the fact that the lesions are small, they can still...
Living with Sweet Syndrome
Lisalucas7210 months ago
I was diagnosed with Sweet syndrome Febuary 2016 . I had Blisters on both of my hands that were very painfull , my Arms, Upper Legs, Face, f...
Autoinflammatory Awareness Month is here!
Shell56710 months ago
August is Autoinflammatory Awareness Month. Find out more @ saidsupport.org/august-is-a...
Health unlocked newbie
Jacqs23uk10 months agoPOPULAR
Hi all, i was diagnosed with Sweets syndrome about 4 years ago and that was after 3 years of not knowing what was wrong with me as i had so ...
Support 'International Autoinflammatory Awareness Month' this August!
Sweet's syndrome is an autoinflammatory and not an autoimmune condition.
Share the 'Autoinflammatory Awareness' campaign or add a twibbon @ twibbon.com/support/autoinf......
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FREE Rare Revolution Magazine
Rare Revolution issue 4: edition.pagesuite.com/html5...
Rare Revolution also has a Facebook group. It's UK-based, but welcomes members from a...
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Having a flare-up sucks
Danae_maea year ago
Hi I just thought I'd share this with people who might understand. I was diagnosed with Sweet's in 2012. I had a small scratch on my arm ...
HealthUnlocked iPhone app is now available GLOBALLY!
Shell567a year ago
The HealthUnlocked iPhone app was made available to the UK in March 2017. It is now available GLOBALLY!! 😀
Download @ itunes.apple.com/app/apple-......
It's Sweet's Syndrome UK Day!
Today is Sweet's Syndrome UK Day and the 5th anniversary of Sweet's Syndrome UK!
Our blog post to help spread awareness of Sweet's syndro...
TDTURNERa year ago
My husband has been suffering from Sweet's Syndrome for more than five years. It comes and goes, better sometimes, worse other times, as you...
Just 1 week until Sweet's Syndrome UK Day!
It's just 1 week until Sweet's Syndrome UK Day on June 2nd.
Find out how you can help to spread awareness of Sweet's syndrome @ helpforsweetssyndromeuk.wor......
[BLOG] If it Happened to You... by Autoimmunity Girl.
Sweet's syndrome is autoinflammatory, but can develop secondary to an autoimmune condition.
On her blog, Autoimmunity Girl writes about the '...
Joints really hurt
BonnieG567a year ago
My joints are really hurting. Anyone else get this?
Rare Disease Day 2017
Rare Disease Day is on Feb 28th 2017. It is an event that promotes awareness of rare diseases around the globe!
Download your free RARE DISEA...
Cancer Tamer Video: Sweet's Syndrome and Breast Cancer
If anyone's interested, there is a 'Cancer Tamer' video that discusses malignancy-associated Sweet's syndrome, and problems associated with ...
Does stress make your Sweet's syndrome worse?
Sweet's syndrome (SS) is an autoinflammatory condition and is caused by errors in the innate immune system. There is no evidence to show tha...
[NEW] Mindfulness can reduce psychosocial distress in patients with conditions affecting the skin
Taken from the Sweet's Syndrome UK blog.
Can mindfulness help those with conditions affecting the skin to cope better?
Yes. A study by Montgom...
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