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St Thomas Lupus Trust
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Small cell lung cancer patient with lupus and possible while brain radiotherapy anyone can help?

Hi all

My mum was diagnosed with small cell lung cancer and just finished her 4 cycles of chemo. Today we had a consultation to speak about radiotherapy but as she may have lupus ( tests keep coming back as positive and negative ) the consultant said that because small cell lung cancer usually spreads to the brain, he would offer radiotherapy to the whole of the brain as a preventative measure. However because she is question mark lupus, he said that the side affect could affect her more than the average person and could cause all these horrible side effects such as a strokesurge, dementia ect. I was wondering if anyone had any experience with whole brain radiotherapy and what's it like and what side effects happened and if any one with lupus has gone ahead and had it done and what was the outcome?

My mum has a week decide what to do, she is going ahead with the radiotherapy on the lung but with the brain shes unsure weather it will be worth it?.

Does she take the brain radiotherapy and potentially decrease her quality of life just to prevent the cancer going to her brain a little longer? Or would it work all together?

Or does she refuse for it to possibly come back and spread to the brain but her quality of life is fine in between and deal with the cancer if it happenes?

So many questions not many answers

Thank you for reading