Support and raising awareness - St Thomas Lupus T...

St Thomas Lupus Trust

1,383 members126 posts

Support and raising awareness

Ncurt profile image
1 Reply

Hi,

Does anyone have any Instagram or YouTube accounts documenting their story I’m trying to do it as a way to help myself learn to manage and cope with this and increase awareness.

If so what’s your address?

My insta’s:

that.chronic.fitness.lifestyle

Also does anyone live in Coventry? I’ve looked around and there doesnt seem to be support for young people in Cov and I would love to start up a group where we could meet if anyone is interested?

Written by
Ncurt profile image
Ncurt
To view profiles and participate in discussions please or .
1 Reply
Bronagh2015 profile image
Bronagh2015

Check out Lupus UK'S website.

Not what you're looking for?

You may also like...

What can I do about nerve pain stopping me sleeping, it is affecting my Lupus and Fibromyalgia as I must rest!

Can anyone help? I have suffered for over 20 years from an autoimmune problem initially told it was...

Why do we have to PUSH and PUSH to get a diagnosis from MDs? I just don't understand and am close to giving up

I have heard the sympathy and advice over and over " keep going", "hang in there" I don't think I...

How many of you have heard this? "Yes, but everybody gets tired....."

Has anyone found a good way to explain lupus exhaustion to someone who doesn't know what it feels...

Help understanding symptoms and blood results.

Hi, I m a 44 year old female that has been suffering with lupus 'type' symptoms including a facial...

Better... but not better

Since starting prednisolone and hydroxy chloroquine I have already seen an improvement in my energy...