My partner the vaccine and lupus

Hi all my partner has just received her vaccine letter and is very anxious about the whole thing she has discoid lupus with APS ( anti phospholipid syndrome) and for reassurance I’d like to know if anyone has had there vaccine with these conditions and if they had any side effects I understand every lupus patient is different but on a whole we wanted to get an understanding of the side effects if there was any or if you had a severe reaction thanks in advance 😊

[Twdibwd Volunteer]

Has your Partner been on the Lupus Uk site? As you quite rightly say, Lupies are individual and there is a mixed bag of replies to your question. Some have the expected side effects, some have more serious ‘flare’ reactions. There is a study currently underway to test the reactions of the vaccines on immune compromised patients. I believe about 4000 volunteers are taking part in this exercise. The results should be published later in the year.

To have the vaccine or not is an individual decision.

I declined my invitation for the vaccine for the moment. I had a severe flare reaction when given the Flu’ vaccine and this has made me very cautious about the Covid offerings. I live on my own and severe flare render me in severe pain and reliant on other people to help me perform the most basic functions. I will wait until the findings are published of these latest trials.

I am constantly warned/advised by others, family included, that the Covid is a ‘horrible’ death if I catch it. I counter with, Lupus is a ‘horrible’ and painful

condition to have ‘coped’ with for 27years (and counting). Death, I faced that particular Spectre, many years ago and thanks to Dr Graham Hughes, Prof. D’Cruz and the other Specialists I’ve encountered, I live to tell the tale.

We each have to make the decision according to our own minds and hearts.

Have the courage to make your own minds up. Nobody, not even other Lupies, knows your Lupus like you do. Good luck.

[SurvingLupusLady]

Yes, I also have Lupus w antiphospholipid syndrome! I got the Moderna brand and got shingles from it! But many ppl who do not have Lupus also got shingles from that brand! Good luck!