Hi all 👋 I'm new here, and I joined because I'm trying to get answers as to what's causing the chilblain-like lesions I get on my fingers and toes, and whether or not they're linked to my erythromelalgia. I've seen a rheumatologist, and they suggested a few things that could be causing them:
Chilblain Lupus
Raynaud's
Other Autoimmune/Immune issue
Vasculitis or something similar
The only symptom I have that might suggest Raynaud's is these two patches of white I sometimes get across my knuckles (see photo). Bizarrely, only on my left hand, and only ever these two fingers. The white patches do appear more in cold weather, but not exclusively. And they only started appearing in my mid twenties, about 10 years after the chilblain-like lesions started appearing, and also after I already had erythromelalgia.
The rheumatologist suggested I get nailfold capillaroscopy done, as this can distinguish between primary and secondary Raynaud's (if I do in fact have Raynaud's), which might in turn help work out what's going on with the chilblain lesions. Does anyone know where I can get nailfold capillaroscopy done privately in the UK, and how to arrange this?