I had an endoscopy yesterday morning ? today I feel awful - tightness in my chest and tummy pain.Has any one else suffered post procedure ?

[AliW]

I have CREST syndrome - they have taken a biopsy -

I am also quite tearful - I went in my own & had the throat spray option so it was quite an uncomfortable procedure.

[Hidden]

Hi, my mother has 4 Endoscopies in 18 months. First two she had the throat spray and one with a local anesthetic and last one was a general anesthetic (10 days ago). It would depend on the Endoscopy - what were they exploring? My mothers went through her stomach, past the duodenum to the small intestine - so it was quite invasive. Others who have this procedure only have it to the top of the stomach, so only a small distance. If they took the camera through your stomach and beyond yes you would have a tightness both in your throat, chest and stomach. The photographic results are instantaneous and they showed the photographs to my mother. The third Endoscopy they could go no further than the stomach. The final endoscopy she had a duodenal stent (it's a metal tube about 6 to 8 inches long put in via an endoscopy. So this went as far as the start of the small intestines.

You said a biopsy, was this of the stomach? Pancreas? etc....

The first two she actually didn't need me but I went along. The third I had to be there because of the local anesthetic. The last one was a major operation so no need for me to be there.

[Vickisu in reply to Hidden]

I have raynauds, fibro, sjogrens, reflux...been having difficulties,and my physician has just requested I have an endoscopy b/c of swallowing, nausea, etc issues...what does all this have to do with all of our 'issues'? do we know??

[AliW in reply to Vickisu]

I think it's due to involvement in the oesphagus lack of motility etc these auto immune conditions are not straightforward & seem full of surprises to me .... Do you have a date for your endos/ / ?AliW

[Vickisu in reply to AliW]

no, I'm kind of putting it off, b/c I guess I'm a little scared they might find something else...I guess...I was supposed to have made an appt last week...been eating prilosec for months...hoping it will all go away. been on those fentanyl patches and percocet for pain for a year. been on disability since 09. doesn't it seem like they really don't have any answers to any of these illness? they're just treating symptoms...frustrating.

[Maggs3petts in reply to Vickisu]

I have Raynauds, arthritis, FM, asthma, depression, hiatis hernia, insomnia, severe migraine, primary biliary cirrhodid, sjogrens, sciatica, scleroderma, reflux, problems with pancreas, oesophagus, blocked bile duct. I had three endoscopies, an MRI scan, a CT scan and 2 liver scans from last January thru to September. Have to go next Monday for another endoscopy. So don't know what it has to do with it Vickisu, but I'm pretty fed up with it all. I just started getting nosebleeds and I've several lumps on my neck, arms and legs. Think I need rubbed out and re-drawn for sure.

[AliW]

Bless you for your quick reply - the endoscopist said she was in the duodenum ... not sure where they took the biospy from but I feel tightness today today & fulness - but I guess this is all quite invasive with something which is quite a strong alien instrument.

How is your dear Mum doing she sounds a very brave lady .. AliW

[KJay]

Hi AliW

I have Raynauds and UCTD. I have had an endoscopy twice. I had the throat spray but no sedation either time. I didn't have any problems afterwards except my ' tubes' felt a bit sore for a couple of days. My endoscopy did, however, only go into the stomach I believe.

It's a horrible procedure and if you are having any problems I would definitely go and get it checked out by a doctor even if it's just to put your mind at rest.

Karen x

[AliW in reply to KJay]

Hi Karen

What is UCTD ? Do you have scleroderma ?

I think if I still feel like this tomorrow I will make an appt to see the Dr.

AliW xx

[KJay in reply to AliW]

Hi AliW

Yes I would go if you are still feeling awful just to make sure it's nothing serious.

I have Raynauds and had the capillaroscopy done on my right hand for Scleroderma. There were some enlarged and tortuous capillaries but no capillary loss so they don't think I have Scleroderma. I have been given diagnoses of Sjogren's, Hughes and RA only to have other rheumatologists disagree! So now I have been told it's Undifferentiated Connective Tissue Disorder (UCTD) ie I have some connective tissue disorder but they don't know what it is! Very frustrating and confusing!

Good luck if you go tomorrow and I hope your symptoms settle down soon.

Karen x

[zenabb]

I find endoscopies emotionally exhausting.

[AliW in reply to zenabb]

I cried as soon as the tube came out ... then cried shortly afterwards as I got to work after I had had it done . :(((

[Jeanette_Ish]

I too have UCTD & due to have a endoscopy currently awaiting tests to see which one I can have done. not looking forward to it, found the one the other end a nightmare that put me off for this one. btw UCTD stands for Undifferentiated Connective-Tissue Disease

[glitzygem]

I had both procedures top and bottom done at the same time, well one after each other. And I was in a bit of pain for about a week afterwards. My chest was very sore and I brought up a bit of blood, and I had a very bloated sore stomach. I think this is normal. I have crest too.

[Vickisu]

I still don't understand the purpose of these endoscopies?? why are these docs performing, or requesting this procedure on all of us? what are the findings on all of you who had the test. sometimes I feel like we're being used like guinea pigs...sorry if I sound so negative...just trying to find answers, as I'm sure you all are also. but I must be missing something here? I read about all these reported diseases and syndromes, but I'm not hearing any positive results from tests or meds...in this case, I don't know what this test is looking for?