Hello everyone, I’ve had a strange thing going on with my right hand since before Christmas. Initially my fingers were very swollen and painful to bend. Some ‘sores’ then appeared at the joints and tips, and I sent a photo to my GP surgery (no face to face appointments just now) who diagnosed chilblains - which seemed odd as I hadn’t been out in the cold, and I’ve never had anything like this before. I got some blood tests were normal except my thyroid which was borderline, so the GP is happy nothing’s wrong. But my fingers are still swollen and painful. I’ve been taking care of my hands, wearing gloves, using hand cream etc
I’ve attached a photo from today. They’re not too sore or swollen at the moment (it flairs up and down).
When I googled, the closest images I could find were ‘scleroderma hands’ with the redness around the nails, sores and discolouration, which is why I’m asking you good people. Should I just be patient and wait to see what happens - if it gets worse or goes away, or should I go back to the GP and ask for different blood tests?
I have had an incredibly stressful time recently so feel it’s probably connected.
Thank you so much for your help.
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LollyAlves
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Thanks for that. No, I don’t think so, it was just the standard blood tests to check my iron levels, etc I wasn’t sure if I could just ask for a referral to rheumatology if the GP didn’t suggest it, but I’ve been thinking the stress might have triggered some sort of auto-immune thing and I know it’s not always a straightforward diagnosis. My fingers have been bothering me for about 4 months now without showing any signs of getting better, and when they’re sore it’s difficult to use the keyboard for my job (I work in IT). I’ve been away skiing most winters, in really cold temperatures where my hands have sometimes been so cold they’re numb - and never had a chilblain or any issues when they warm up, so it’s weird this has just happened all of a sudden for no reason. But at the same time I don’t want to pester my GP if I’m making a fuss about nothing 😊
What does your gut instinct tell you? It might be worth checking as it is only a simple blood test. It should not be too trouble for them. It might be Raynaud’s related. My start with LSSc was similar. Actually, it was part of it. I woke up one morning and couldn’t move my hands. They were red and swollen. They sometimes went white and red. My old GP kept fobbing me off for about a year, but in the end I wasn’t going to be fobbed off. I paid for a private Rheumy consult and was finally being listened to and then referred into the NHS.
I fought by old GP surgery for 5 years in order to be heard. Even after I got that ANA titre blood test I had to push them to do more investigation. SSc is a rare condition. Despite a GP best intentions, few of them have experience with it. GP are just that, general practitioners. Push for that blood test from your GP and get that referral. If only to put your mind at ease.
Your hand doesn't appear to be the one of a person who suffers from scleroderma.In any case in order to put aside all doubts I suggest you follow amc282's advice and take ANA blood testing.
Thanks everyone for all the replies. I’ll go back to my GP and ask for an ANA blood test, and if that shows anything I’ll ask for a referral to rheumatology.
I get the same thing. It's all part of the scleroderma and raynauds. My rheumatologist prescribed me nitroglycerin ointment to put on my fingers to open up the blood capillaries for the blood to flow. along with my medication that she prescribed , nifedepine, mycophenolate , hydroxychloroquine and baby aspirin. I hope this helps as I know firsthand how painful this can be
Hey! I have had the same thing same time!! My ANA was negative, and mine did go away.. I wonder if it’s COVID related. I have raynauds since a child but never chilblains either... mine cleared up and hands fine now.
Oh that’s good to know I’m not alone 😀Thank you for taking the time to reply! I’m hoping it’s just down to stress and will clear up on it’s own. I never thought of Covid - although now I think of it, I’ve heard of “Covid toes” which seems to be like chilblains...
I’ve not had Covid as far as I know, but I suppose I can’t rule that out. I’m glad yours are fine now 😊
Yeh COVID fingers are possible too. I spent so many nights worrying about scleroderma as google always directs raynauds/puffy hands directly there. And I had reflux too which is even more terrifying! But mine have been clear the last month and I’m really careful about keeping my hands warm. Anyway let me know how you get on! Here is a pic of my swollen hand and my sores had gone a bit by then! I wake up every morning scared it’s back...
I've been diagnosed with long covid fingers and look very similar to yours. I didn't even know I had covid. Having problems getting an effective treatment.
My hands are exactly the same, red around nails been like that for years and I’ve wondered why. I’m just going through tests as spent week in hospital and they think it’s scleroderma and I’m under rheumatology now so push for referral.
HelloMy daughter had Covid and about a month after got sever raynauds - looks like your picture with red sore areas but now has turned weepy and infected.
She also got a positive ANA
Do you know if ana is definitive and dies it show levels of ANA-still waiting to see actual amounts and waiting to see rheumatologist.
Hi I know this is an old thread but I have just been through a very similar experience and wanted to ask how you were all doing now?
I have had Raynauds for as long as I can remember and this past winter I also developed swollen fingers on my right hand with little blister like lesions. I was worried that it was an infection but my dermatologist said that it looked like chilblains. This made sense as my hands had been exposed to the cold on several occasions. The dermatologist also commented that people who had had covid could have similar looking fingers but I think that it is unlikely that I had covid without realising it. The dermatologist wanted me to get a full auto immune workup as well so I was referred to a rheumatologist.
I remember also being concerned about scleroderma or lupus (possibly chilblain lupus) from googling hand pictures. My blood counts were fine, vitamin levels fine, thyroid fine and ANA all negative. The rheumatologist has put me on a low dose of Plasmoquine (200mg every second day) to "calm down my immune system." I asked her if I fitted the diagnostic criteria for any auto immune disorders and she said no but she wants me to go back for a check up in a couple of months time. She also told me to regulate my temperature better and to keep my hands warm.
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Could this be something else other than raynaud's? 
Red itchy lumps and blisters following an attack
How symmetrical is your skin involvement?
Hints and tips please from my "Scleroderma family"? (new on this website)
Red fingers, mottled red and white palms. Happens when hands get warm from being colder. 
