on nifedipine for raynauds and being ... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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on nifedipine for raynauds and being investigated for pernicious anaemia, overwhelmed and unwell

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I have scleroderma with secondary raynauds and sjogrens, primary biliary cirrhosis, hypothyroidism, osteoarthritis and am perimenopausal. I went to my rheumatolgist this week and they started me on nifedipine for the raynauds. I had it years ago and it made me faint. Now i have horrendous headaches and feel sicky. ANYONE ELSE ON THIS? They also told me i have developed gastric parietal antibody, so am being investigated for pernicious anaemia. I feel like i,m falling apart. Anyone else have pernicious anaemia due to autoimmune probs? Thanks

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Totally understand. Started on Nifedipine 3 weeks ago. Faint, headaches and the first 5 days were hell on it. I reduced the dose for four days and then went back up. Now still lightheaded and terrible headaches, but to a certain extent the Raynaud's is about 5% better. Pain Clinic dosed me up with 120 x 30mg codeine phosphate (causes constipation) so like you I feel I'm falling apart. To see a Rheumatologist in my area is 48 week waiting list. So from Vascular Surgeon took me 8 months to see a Dermatologist and Pain Clinic and now another 48 weeks even though the Dermatologist diagnosed me :(

I have codeine also, but that makes me feel like **** as well as it gives me a hangover. I work full time so cant afford to go in feeling like i,ve had a night on the tiles! I see rheumatologist but even when you're with them you have to wait weeks until you get back for the results from the tests you had the last time!

zenabb profile image
zenabb

I have been on nifedipine for many many years and now I am on 90 mg daily because of blood pressure. I remember that at first they started me on a very low dose.

pcokfarm profile image
pcokfarm

I take nifedipine when I'm going outside and going to be exposed to cold. Don't take it on a regular bases, otherwise It can make me dizzy.

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